ME/CFS South Australia Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.
ME/CFS South Australia Inc aims to keep members informed of various research projects, diets, medications, therapies, news items, etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.
Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.
Multiple Chemical Sensitivity – Deborah's story
Friday 11 May 2012
What if you could never step foot outside without wearing a face mask to block out the smell of perfumes and cologne from people. How would you handle it? For Deborah, who suffers from Multiple Chemical Sensitivity Disorder, this is her reality. Let her coping mechanisms inspire you.
View the video here.
"Multiple Chemical Sensitivity: Deborah's Story"
"I've always been sensitive, I've always had a strong sense of smell, but it's never affected me in a negative way, until maybe 3 or 4 years ago. I can't tolerate being near everyday chemical compounds like, cleaning detergents, body deodorants, hair spray, diesel fume, deodorizers, air fresheners, pesticides, and the list seems to get longer everyday. I can take my mask off for periods of time when I'm not too close to people, but when I can get a waft of perfume or aftershave, I have to put my mask back on. I can't do things like I used to do like go to the movies or eat to a restaurant. And when I do go outside where it's a lovely day, and I go out in the park, and everybody's walking, and then they look at me, and then the kid looks at his mom, and goes [makes facial gesture], you know, I think it scares children, maybe it scares adults too, I don't know, it's freaky looking.
I began seeing an environmental doctor last summer, who treats multiple chemical sensitivities. There's no real cure or solution for it, beyond avoiding exposures. Because once you get exposed, then you're in a more vulnerable position, and your condition deteriorates. The second thing is to change your environment, I'd like to move, I'd like to move somewhere out of the city. I think I could do a little better, and I could recuperate.
There are positives to it, when I see people who are disabled, or unfortunate, I'm really able to feel their pain and empathize more than I ever would be before, and it makes me value the little things, like a nice day, and that's a blessing."
The above originally appeared here.
blog comments powered by Disqus