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ME/CFS AUSTRALIA (SA) INC

Registered Charity 3104

Email:
sacfs@sacfs.asn.au

Mailing address:
PO Box 28,
Hindmarsh,
South Australia 5007

Office:
Suite 506,
North Terrace House,
19 North Terrace,
Hackney, SA, 5069


Phone:
1300 128 339

Office Hours:
Wednesdays, 11am-3pm

ME/CFS Australia (SA) Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.

Disclaimer

ME/CFS Australia (SA) Inc aims to keep members informed of various research projects, diets, medications, therapies, news items, etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.

Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.

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New research raises question – is CFS an autoimmune disease?

Saturday 7 April 2012

 

From the Holy Hormones Journal:

 

Holy Hormones JournalNew Research Raises Question – Is CFS An Autoimmune Disease?

March 25, 2012 By

Monday, March 26 from 6 to 7 pm MST on KRFC FM Community Radio Fort Collins, CO

 

Download podcast (82.76 MB)

 

Tina Marie Miller Tidmore and Dr. Kenneth Friedman will join Leslie Carol Botha on Holy Hormones Honey! to discuss the latest research on ME/CFS - Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, a neurological disease that now affects over 17 million people world-wide.

Tina Tidmore is the Media Relations and Facilitator for the grassroots ME/CFS Worldwide Patient Alliance formed in August 2010 in response to a community-wide call for greater patient empowerment and influence. For too long, the public and patients have been left out of the discussion and denied a voice, yet they are the main ones impacted. One of the primary aims of the MCWPA is to enable sufferers of myalgic encephalomyelitis/chronic fatigue syndrome to make public statements concerning inadequacies in government agencies, lack of research cooperation and ignorance of their illness.

Dr. Friedman sits on the Executive Board for P.A.N.D.O.R.A – Patient Alliance for Neuroendocrine Immune Disorders. He is an internationally recognized expert in the field of ME/CFS and the driving force behind the CFS Physician’s Manual, which was published and supported by the New Jersey CFS Association, leading to the PANDORA grant for the Spanish translation. This manual has also been translated into Japanese.

Dr. Friedman has served as a distinguished member of the Chronic Fatigue Advisory Committee (CFSAC), a congressional committee that makes recommendations to government officials, particularly the U.S. Secretary of Health and Human Services, concerning ME/CFS. He also currently serves on the Executive Board of the International Association of CFS/ME, the Vermont CFIDS Association, and the New Jersey CFS Association.

Friedman is a former professor of the University of Medicine and Dentistry of New Jersey where he taught for 34 years. He is currently teaching at Castleton State College. Dr. Friedman’s interest in this disorder is personal. His daughter was stricken with ME/CFS during her first year in college.

 

The above, with comments, originally appeared here.

 


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