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ME/CFS AUSTRALIA (SA) INC

Registered Charity 698

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sacfs@sacfs.asn.au

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Voices from the Shadows – world premiere and discussion

Monday 28 November 2011

From Jeannette's Thoughts About ME blog:

 

Voices from the ShadowsVoices From The Shadows—World Premiere and Panel Discussion

By Jeannette
Posted on October 15, 2011

Voices from the Shadows,” a one-hour documentary about the commonplace abuse and neglect of gravely ill ME patients, including children, by the British government and medical establishment, most notably psychiatrists, and the misportrayal of ME* by the media, premiered on Saturday, October 8, 2011 at the Mill Valley Film Festival. The movie was produced and directed by Natalie Boulton and Josh Biggs, the mother and brother of a patient who has been severely ill with ME for 20 years. The wonderful music for the film was written, free of charge as a donation to the ME community, by Emmy-nominated composer David Poore.

The movie is a sequel to the book “Lost Voices from a Hidden Illness” by Natalie. This was the first time Natalie and Josh produced and directed a film (although Josh is a professional freelance editor and cameraman); it was self-funded and the screening at the prestigious Mill Valley Film Festival was a tremendous achievement for Natalie and Josh. I attempted to summarize the highlights of the movie below for those patients who will not be able to watch it, but there is no way that my written words can do justice to this powerful movie and I urge every who feels up to it to watch the movie.


Voices from the Shadows Trailer from Josh on Vimeo.

*ME, standing for myalgic encephalomyelitis, is the term frequently used in the UK for this disease. It is commonly referred to in the US as CFS, chronic fatigue syndrome, which I and many in the patient community consider a mislabeling and derogatory term.

 

The full article, with comments, can be found here.

 


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