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ME/CFS AUSTRALIA (SA) INC

Registered Charity 3104

Email:
sacfs@sacfs.asn.au

Mailing address:
PO Box 322,
Modbury North,
South Australia 5092

Office:
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North Terrace House,
19 North Terrace,
Hackney, SA, 5069


Phone:
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ME/CFS Australia (SA) Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.

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ME/CFS Australia (SA) Inc aims to keep members informed of various research projects, diets, medications, therapies, news items, etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.

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Hope for CFS/ME patients

Monday 24 October 2011

From Norway's Kavli Trust:

 

ME patient Len Loe...
ME patient Len Loe receives immune modulating therapy
with Rituximab at the HUH’s cancer polyclinic.
Nurse Helle Øvrebø, Professor Olav Mella and
senior consultant Øystein Fluge monitor the treatment.

Hope for CFS/ME patients

The latest medical research to be supported by the Kavli Trust focuses on myalgic encephalomyelitis (ME), often called chronic fatigue syndrome (CFS).

The charitable trust is backing a project at the  cancer department of Haukeland University Hospital (HUH) in Bergen which aims to chart the causes of and possible treatment for the illness.

This work holds out hope for thousands of patients suffering from ME/CFS and their relatives.

Afflicting about 0.2 per cent of Norway’s population, ME is much discussed in the Norwegian press. Sufferers often experience a severe loss of energy and feelings of exhaustion. Many also have pain and disruption to cognitive functions, such as concentration and memory. Permanent loss of functionality and chronic invalidity are  also common.

Unfortunately, many sufferers meet little understanding from the community or the health service, reflecting continued ignorance of ME’s causes and the lack of standard treatments.

Surprising improvement
However, treatment of cancer patients at HUH has thrown up surprising results. ME symptoms have declined in people who also had lymphatic cancer. The figures show that 67 per cent of patients receiving active medication showed a clear improvement, as opposed to 13 per cent of those in the control group who were given a saline solution.

Causes
Further research aims to identify the causes of ME and to continue development of the concept for treating this condition. The hypothesis is that ME could be an autoimmune illness, in which the body comes under attack from its own immune system (often as a result of other infections).

New clinical studies are underway to investigate how the Rituximab drug should be given to achieve the best possible result through “maintenance” treatment with repeated doses. Research will also seek to see whether this therapy can help the very sickest ME patients.

The Kavli Trust’s support is crucial for the project’s continuation and chances of success.

Read more:

 

The above originally appeared here.

 


 

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