ME/CFS Australia (SA) Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.
ME/CFS Australia (SA) Inc aims to keep members informed of various research projects, diets, medications, therapies, news items, etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.
Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.
Florida International University joins PANDORA as academic partner
Tuesday 24 May 2011
Florida International University Joins PANDORA as Academic Partner for Future NEI CenterTM
Stephen and Marly Silverman, of South Florida, have donated $5,000 toward creating an endowment through the Florida International University Foundation as a first step in creating the NEI Center(TM), a PANDORA project. This establishes FIU as the academic partner for the multi-system treatment and research center that will lead to improving the quality of life of NeuroEndocrineImmune diseases in Florida, the US and around the globe. The NEI CenterTM will be in the FIU Department of Molecular Microbiology and Infectious Diseases at the Herbert Wertheim College of Medicine.
"This is a milestone in the history and progress in the treatment of NEI diseases," said Dr. Kenneth J. Friedman, PANDORA's Vice-President and Public Policy Chair. "It is a testimonial to the power of the patient community in obtaining the medical and supportive care that patients need. We look forward to providing similar satellite centers in other locations in the U.S." In 2010, the New Jersey legislature passed a resolution in support of the NEI CenterTM.
Creating a center that will provide the best in clinical care, cutting-edge research and assistance with accessing social services for multi-system diseases has been a PANDORA project for years. NEIDs (NeuroEndocrineImmune diseases) include ME/CFS (myalgic encephalomyelitis / chronic fatigue syndrome), fibromyalgia, chemical sensitivities / environmental illness, chronic Lyme disease and Gulf War illnesses.
"I am extremely excited that FIU and our department will be in the forefront of this field of medicine that has garnered so much national attention," said Kalai Mathee, PhD, Founding Chair of the FIU Department of Molecular Microbiology and Infectious Diseases. "Physician training and updating in the new science of these diseases are crucial because effective treatments can restore quality of life and increase the life span for NEI disease patients."
This endowment means that the FIU Department of Molecular Microbiology and Infectious Diseases will house the first NEI CenterTM as an institute in the Herbert Wertherim College of Medicine. The goal now is to bring in researchers and physicians to staff the future clinic. PANDORA will now pursue more funding, through grants, partnerships with government agencies, and private and corporate donors. Setting up a clinic early in this process will be important for the NEI CenterTM as it will provide patient care and will allow this component of the NEI CenterTM to be financially self-sustaining as it gets off the ground.
The philosophy behind the NEI CenterTM is that biomedical and translational research in any of the chronic NEI diseases will advance understanding and progress in the other NEI diseases. Using the latest technology, the NEI CenterTM will be the first of its kind, a multi-system and multi-disease research and clinical care facility that was initiated by a patient-driven organization dedicated to improving the life of those with NEIDs.
"The timing of this development could not be better as May is International NEIDs Awareness Month," said Marly Silverman, PANDORA founder. "Recent research has brought a better understanding of these illnesses, and I am pleased to see Florida will be prominent in turning that knowledge into improved patient care for the estimated 20 million Americans suffering with NEIDs."
Recent interest from universities, the Canadian government and the US Department of Defense have accelerated momentum in research that will translate into improving the lives in this medically under-served patient community.
About P.A.N.D.O.R.A., Inc. - Since 2002, the Patient Alliance for NeuroEndocrineImmune Disorders Organization for Research and Advocacy, Inc. has advocated for restored quality of life for persons chronically ill with NeuroEndocrineImmune diseases (NEIDs). P.A.N.D.O.R.A. Inc. is built on hope, strong on advocacy, and supports finding cures for NEIDs through research. For more information, go to p-a-n-d-o-r-a.org.
About FIU Department of Molecular, Microbiology and Infectious Diseases - With a student body of over 42,000, FIU is one of the 25 largest universities in the United States. As one of South Florida's anchor institutions, FIU has been locally and globally engaged for more than four decades in finding solutions to the most challenging problems of our time. As part of the Herbert Wertheim College of Medicine, the Department of Molecular Microbiology and Infectious Diseases includes research in achieving its mission: to establish a vibrant department that uncovers many mysteries of science and facilitate better understanding of infections and develop approaches that ameliorate diseases. For more information, go here.
For more information, contact Tina Tidmore at firstname.lastname@example.org or 205-680-6890.
Together, we are One Voice, One Community, One CauseTM
Sign P.A.N.D.O.R.A.'s petition on Facebook addressed to the U.S. Secretary of Health.
The time to fund NeuroEndocrineImmune Disorders (NEIDs) is now.
The above originally appeared here.
blog comments powered by Disqus