Society Logo
ME/CFS Australia Ltd
Please click here to donate ME/CFS Australia (SA) Inc
 
 
Facebook
 
ME/CFS AUSTRALIA (SA) INC

Registered Charity 3104

Email:
sacfs@sacfs.asn.au

Mailing address:
PO Box 28,
Hindmarsh,
South Australia 5007

Office:
Suite 506,
North Terrace House,
19 North Terrace,
Hackney, SA, 5069


Phone:
1300 128 339

Office Hours:
Wednesdays, 11am-3pm

ME/CFS Australia (SA) Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.

Disclaimer

ME/CFS Australia (SA) Inc aims to keep members informed of various research projects, diets, medications, therapies, news items, etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.

Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.

Become a Member
PDF Application Form (PDF, 242KB)
Why become a member?
 

12 May: International ME/CFS/FM Awareness Day

Thursday 12 May 2011

From EmpowHer:

 

ME/CFS International Awareness DayChronic Fatigue Syndrome: International ME/CFS and FM Awareness Day is May 12th

By Jody Smith, HERWriter
May 10, 2011 - 10:06am

May 12, 2011 is International ME/CFS and FM Awareness Day. ME stands for myalgic encephalomyelitis. CFS stands for Chronic Fatigue Syndrome. FM is the short form for fibromyalgia.

It has been almost two decades since Tom Hennessey established our International Awareness Day in 1992. He picked that particular date to honor the birthday of Florence Nightingale.

Nightingale, after service and dedication above and beyond the call of duty, was taken down by a condition suspiciously like ME/CFS, spending the last 50 years of her life with this chronic and debilitating illness.

Even though people with ME/CFS have been trying to raise public awareness for almost 20 years, we haven't made much of a dent. Very few people have even heard of this day that is so symbolic for us. It seems to us in our darkest hours that not many more people are aware of the extremity of this illness than there were a score of years ago.

But we persevere. We write articles. We blog. We lobby, write letters and emails.

You'll find us on YouTube, in videos. On Facebook. Many of us are too ill to lead a normal life amongst average citizens, but increasingly we use the internet and pool what resources we have.

A small number of researchers, scientists and doctors have gathered around us, determined to ease the suffering of ME/CFS if they can. A handful of journalists have taken our faces and our stories and published them to bring us out of the shadows and out of the CFS ghettos, at least for the few moments it takes to read their words.

Online support groups are the lifeline for many of the chronically ill who virtually have no life other than the virtual world on the internet. These groups are where we get our emotional support, much of our medical information, advice and encouragement from others who are also ill.

This is where we go to shoot the breeze. To vent after a bad day. To share a funny story. To get the only response some of us are going to get anywhere.

These interactions are a treasure that helps reassure us that we exist and that we matter to someone. For many of us, this is the only place any reassurance will come from.

ME/CFS energy is small energy. Small, brief and intermittent, like a flickering candle.

Impossible for many of us to know from one moment to the next whether the ability to write, or speak, or think complete thoughts, will last through our small bursts of communication. And impossible to predict whether, once that burst is spent, another one will ever come again.

The internet thankfully has a way of amplifying and connecting tiny sparks and flickers of ME/CFS energy, from one laptop to another around the globe.

We get our words across to each other. And we are hoping eventually to get our message out to the rest of the world in a way that will spur the world on to care about finding a cure for ME/CFS, and relieve the suffering.

Remember May 12, and International ME/CFS and FM Awareness Day. Remember us.

Resources:

Fibromyalgia and Chronic Fatigue Syndrome Awareness Day
http://chronicfatigue.about.com/b/2010/05/12/fibromyalgia-chronic-fatigu...

An Interview With International Awareness Day Founder and Leader of RESCIND, Tom Hennessy
http://phoenix-cfs.org/old_site/InterviewHennesseyCFS.htm

National ME/FM Action Network: Clinicians and Researchers Are Invited to the 10th International ME/CFS Clinical and Research Conference
http://www.msnbc.msn.com/id/42613141

About Jody Smith:

I spent 15 years losing the battle against Chronic Fatigue Syndrome. Four years ago, I found treatment that worked for me, and now I am making a comeback.

http://www.ncubator.ca and http://ncubator.ca/blogger

 

The above originally appeared here.

Facebook

International ME/CFS & FM Awarenesss Day on Facebook

 


 

blog comments powered by Disqus
Previous Previous Page