Society Logo
ME/CFS Australia Ltd
Please click here to donate ME/CFS Australia (SA) Inc
 
 
Facebook
 
ME/CFS AUSTRALIA (SA) INC

Registered Charity 3104

Email:
sacfs@sacfs.asn.au

Mailing address:
PO Box 322,
Modbury North,
South Australia 5092

Office:
Suite 506,
North Terrace House,
19 North Terrace,
Hackney, SA, 5069


Phone:
1300 128 339

Office Hours:
Wednesdays, 11am-3pm

ME/CFS Australia (SA) Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.

Disclaimer

ME/CFS Australia (SA) Inc aims to keep members informed of various research projects, diets, medications, therapies, news items, etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.

Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.

Become a Member
PDF Application Form (PDF, 242KB)
Why become a member?
 

Support for Theda not slowing down

Wednesday 4 May 2011

From Australian newspaper WA Today:

 

Theda Myint
An intravenous drip helps Theda Myint battle the
migraines which are part of her daily battle as a
Chronic Fatigue Syndrome sufferer.
Photo: Chalpat Sonti

Support for Theda not slowing down

Lucy Rickard
April 20, 2011 - 8:37AM

Support has been flowing in from around the country for chronic fatigue sufferer Theda Myint after WAtoday.com.au revealed the tragic reality behind her private and painful battle with the debilitating illness.

As well as dozens of emails and messages generated on her Facebook page - Help Theda - friends are pitching in to do what they can to raise funding required for more testing and treatment.

Many are also chronic fatigue sufferers, offering kind words, new treatment ideas and general support for Ms Myint and her mother Carol Adams, who provides her with round-the-clock care.

Painting for Theda Myint
One of the paintings available for purchase to raise funds for
bed-ridden chronic fatigue sufferer Theda Myint.

One such person is Sydney artist Liz McKay, who has known Ms Myint for more than a decade, before she fell seriously ill with myalgic encephalomyelitis which has been getting progressively worse for 11 years.

Ms Myint, from the southern suburb of Willetton, has been left bedridden with crippling migraines, severe body pain and an extremely low tolerance to light and noise. She spends the majority of her days in bed, in complete darkness and silence, and in the past two months, decided she did not want to fight the battle any longer.

On April 13, Ms Myint attempted to euthanase herself for the third time in two weeks and was found by her mother Carol Adams in a dire condition. She was rushed to Fremantle Hospital where after several days in intensive care she was wrongly admitted to a psychiatric ward according to Ms Adams.

Her mother is lodging a formal complaint over the treatment Ms Myint received in the locked ward, where she said her daughter was not fed or given medical treatment for her chronic pain.

The State Government has refused to help with Health Minister Kim Hames citing patient confidentiality as the reason behind his silence on the issue.

Ms Adams has also pleaded with Dr Hames to approve a new treatment for Ms Myint but to no avail.

Ms McKay said she still remembered Ms Myint as being a "very vibrant, kind-hearted, enthusiastic, talented woman" who thrived in her university studies.

She has watched on helplessly as Ms Myint was misdiagnosed and then mistreated for what would later be found to be ME.

Now a successful painter based in Sydney, she said she didn't hesitate to pitch in the only way she knew how – by donating her artworks for auction to raise some desperately needed money for Ms Myint.

"What I am hoping is that the medication and treatment can cure her illness through testing, or lessen the symptoms and alleviate the constant pain she is in," she said.

"She has lost a lot of hope: it would be terribly hard to live with 11 years of constant pain.

"What struck me is that this could happen to everyone. She is only in her mid-30s, and has been ill for 11 years now."

Three paintings valued at more than $1500 each, will go under the hammer on Saturday June 4 at the Cultural Centre on Walcliffe Road in Margaret River.

For more information on the auction visit www.margaretriverartauction.com.

All money raised from the charity auction of Ms McKay's three paintings will be given to Ms Myint and Ms Adams to assist them in treating her condition.

To help out, join the 'Help Theda' Facebook page, where there is more information on how you can do your bit.

In a last-ditch effort to relieve her worsening pain, Ms Myint will be flying to India to try an traditional Indian medical treatment known as ayurveda, which Ms Adams said was "a desperate measure, but we cannot get the help we need in Australia".

 

The above originally appeared here.

Please note: This article contains references to death. If you have feelings of helplessness, or of suicidal thoughts, seek help immediately. Lifeline is an excellent starting point: Lifeline – Suicide Prevention resources and links.

 


 

blog comments powered by Disqus
Previous Previous Page