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ME/CFS AUSTRALIA (SA) INC

Registered Charity 698

Email:
sacfs@sacfs.asn.au

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ME/CFS Australia (SA) Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.

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ME/CFS State of the Knowledge Workshop: videos

Tuesday 19 April 2011

NIH VideoCasting and PodcastingBoth days (7 and 8 April 2011) of the ME/CFS State of the Knowledge Workshop are now available on video:

www

Day 1 (Thursday 7 April 2011)

www

Day 2 (Friday 8 April 2011)

Here is some background information from the CFIDS Association of America:

 

ME/CFS State of the Knowledge Workshop Resources

The National Institutes of Health (NIH) hosted the ME/CFS State of the Knowledge Workshop on April 7-8, 2011. The workshop brought together subject matter experts to discuss multiple aspects of ME/CFS, including epidemiology, etiology, pathophysiology, diagnosis and treatment. The workshop panelists helped identify gaps in knowledge and opportunities for advancing biomedical research. NIH Director Francis Collins addressed the meeting and several other top Department of Health and Human Services and NIH staff attended all or part of the workshop. Secretary Kathleen Sebelius expressed her support in a letter sent to workshop participants.

The two-day meeting agenda provides the presentation topics and speakers’ names. The meeting was webcast live and the recordings have been archived for on-demand viewing.

The Association’s scientific director, Suzanne D. Vernon, PhD, was a member of the workshop steering committee and she was asked by organizers to provide a summary at the end of the Workshop. View her slides here.

Kim McCleary, the Association’s CEO, was invited to briefly address communicating with research stakeholders during a Day 2 session on Communications. View her slides here.

Amy Dockser Marcus of the Wall Street Journal attended the first day of the Workshop and she posted this report on the WSJ Health Blog, “At NIH Conference on CFS, XMRV Debate Heats Up.”

The Association will provide a short summary report on the Workshop soon. NIH plans to make a full report available; however its compilation will take several weeks.

The Workshop was planned by the Trans-NIH ME/CFS Working Group under the leadership of Dennis Mangan, PhD, and a steering committee comprised of the following volunteers appointed by NIH: Pat Fero; Ken Friedman, PhD; Lenny Jason, PhD; Nancy Klimas, MD; Mary Schweitzer, PhD; and Suzanne Vernon, PhD.

 

The above text originally appeared here.

 


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