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ME/CFS South Australia Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.


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Family Forum: Dad kept in the dark

Tuesday 12 April 2011

Grandfather and granddaughter
One of our readers is concerned he is being kept
in the dark about a medical issue affecting his
Source: The Advertiser

From the Family Forum section of Adelaide newspaper The Advertiser:


Family Forum: Dad kept in the dark

The Advertiser
April 02, 2011 12:00am

THE panel advises a grandfather concerned about the welfare of his grandchildren.


I am a 78-year-old widower. I have a loving family and they mean the world to me. However, my three adult children think they are "protecting" me from worrying by not telling me when anything serious happens to my grandchildren. This practice actually causes me to worry more.

For example, I have long been concerned about one of my teenage grandchildren. Two weeks ago I discovered the grandchild was diagnosed at least eight months ago with chronic fatigue.

My requests for information are still being "brushed aside". My daughter says my grandchild just needs more rest.

Can you tell me what chronic fatigue is and how it is going to affect my grandchild's future?


The panel can understand how you continue to worry about your grandchild when you don't know anything about the condition.

The cause of chronic fatigue syndrome (CFS) or myalgic encephalomyelitis (ME) is not known. It is not a psychological or psychiatric disorder. The symptoms include severe fatigue, loss of concentration, an excessive need for sleep and, often, severe muscle pain.

It can be very disabling when it occurs in teenagers as it interferes with their study and social development.

It can take years to recover fully. Most young people who develop it catch up over time but it is certainly a problem for both the sufferer and the family. It is understandable that families will not always share every family situation with grandparents. It may be to avoid worrying them or because the grandchild does not want this information shared. A parent will naturally respect this wish.

However, the role of grandparent remains a valuable one - to be there for the family and to give support during difficult times.


The above originally appeared here.



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