ME/CFS Australia (SA) Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.
ME/CFS Australia (SA) Inc aims to keep members informed of various research projects, diets, medications, therapies, news items, etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.
Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.
A healthy passion
Saturday 9 April 2011
A healthy passion
Charlottetown artist Sarah Lacy, who has chronic fatigue syndrome, uses her art as a positive force in her life
Art has been an energizing force for Sarah Lacy.
This Charlottetown artist uses her passion for art as a sustaining entity in her life as she lives with chronic fatigue syndrome (CFS).
And now she's energetically preparing for an extensive art study from May to August in a small town in France to expand her classical figure drawing and painting horizons.
"I've always drawn and I think that was kind of the thing that kept me sane, especially when I was younger and learning how to cope with feeling sick all the time," says this self-taught painter.
"It was an escape for me. It was a way for me to get through the nights (because) when I'm in the zone, the pain thing, the exhaustion thing (withdraws) and I just focus entirely on that piece of art."
Life changed instantly and dramatically for Lacy when she was 12 years of age and living in St. Catharine's, Ont.
"I went to bed one night - it was January 14 - and I woke up three hours later feeling horrible, like I had the flu or something really bad," she says.
"There are two different kinds of onset (for CFS) that you can have. There's a long-term one where gradually you feel more sick and then there's the acute one. And I had the acute onset."
Lacy's symptoms worsened with time. She was experiencing joint and muscle pain and was beyond exhausted.
"It's fatigue but not 'I missed a couple of nights sleep' fatigue. (It's more like) when you have the flu and you just feel really weak and it's hard to focus? You just have no umph left. And that's what it feels like so my stamina levels aren't as high," she says.
Fortunately for Lacy, her physician suspected CFS and sent her to a top pediatrician who conducted a battery of tests to exclude various other ailments.
"Then he diagnosed me with post-infectious neuromyasthenia, which is what you get diagnosed with before you hit the six-month mark (following the onset of symptoms). After six months it's chronic fatigue syndrome because it's (become) chronic," she says.
Over the years, Lacy visited specialist after specialist in the hopes of finding something that would improve her quality of life.
But by the age of 18 her condition had deteriorated even more where she was experiencing double vision, slurring her words and sometimes even losing consciousness.
"That was the worst that I'd ever been and after that I said, 'OK, I'm going to dedicate my life to art and I'm going to turn everything around' because I had hit rock bottom . . . ," Lacy says.
She also had a major change in her attitude.
"At the same time I'd be going from doctor to doctor to doctor trying to figure something out and nothing was working," she adds.
"And so I finally said, 'I'm not going to spend any more of life in doctor's office. I have the rest of my life to get on with now.' And I just started being really careful. I learned how to pace myself. . . . I've learned to spend my energy doing things that I love . . . ."
Now at the age of 23 and living in Charlottetown, Lacy is on the cusp of a new adventure with a partial scholarship from Studio Escalier in a small town two hours south of Paris.
She will be one of just 12 students enrolled in the intensive three-month program in classical figure drawing and painting under the direction of Timothy Stotz and N. Michelle Tully, who are two of the foremost artists in classical realism today.
To build on that, she has applied for a spot in the autumn course.
Lacy is now focused on raising the money to pay for her travel, housing and art supplies she will need while in France. The cost for the two back-to-back programs will be about $20,000.
She will be also be sharing her paintings from her studies when she returns to P.E.I. She plans to hold a Parisian-themed gala night around Christmas to display the paintings, as well as share photos and tales from her trip.
"Not many people get the chance to live in a small, medieval French town for five months," she says.
"I really want to share this experience with others."
The above, with comments, originally appeared here.
blog comments powered by Disqus