ME/CFS AUSTRALIA (SA) INC
Registered Charity 698
PO Box 28,
South Australia 5007
19 North Terrace,
Hackney, SA, 5069
1300 128 339
ME/CFS Australia (SA) Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.
ME/CFS Australia (SA) Inc aims to keep members informed of various research projects, diets, medications, therapies, news items, etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.
Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.
ME/CFS Australian Patient Advocacy Network
Friday 25 March 2011
A group of Victorian patients are setting up a new network:
Are you sick of our illness not being treated seriously?
Do you think we should expect more?
Join the ME/CFS Australian Patient Advocacy Network!
Who are we?
We are a group of ME/CFS patients whose ultimate wish is to recover. We are asking fellow patients to join with us in lifting our sights to advocate for appropriate medical research and treatment for our illness. Our approach is to establish a network of patients, carers and other interested people to draw on our skills, contacts and desire for change.
Our vision is that every ME/CFS patient in Australia has access to effective treatment and has a life with dignity, understanding and respect.
How do we plan to achieve our objectives?
We seek to work in partnership with ME/CFS Australia, State ME/CFS Societies and our doctors. We will also work in alliance with other groups with similar aims or independently where appropriate. Strategies may include: approaching scientific and medical institutions, politicians, government officials, research funding bodies and education organisations; to use publicity and awareness campaigns that support our goals; to leverage the recent retroviral findings into ME/CFS.
How do I join? Is there a cost? More information?
What we are not
blog comments powered by Disqus