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PACE treatment manuals published online

Saturday 19 February 2011

Action for M.E.From the UK's Action for M.E.:

 

PACE treatment manuals published online

17 February 2011

Manuals of treatments used in the PACE trial have now been published online.

The treatments involved are adaptive pacing therapy, cognitive behaviour therapy, graded exercise therapy and standardised specialist medical care.

The results regarding effectiveness and safety of these treatments have not yet been published, but they are expected soon.

The PACE trial website says: “These treatments should only be delivered by appropriately qualified healthcare professionals, who have received appropriate training and continued supervision in their use. The treatments described were not designed to be stand-alone self-help approaches. No responsibility is accepted by the authors for the application of treatments described in these manuals outside of the PACE trial. The PACE trial team are unable to respond to queries or comments regarding the use of these manuals or the treatments described.”

PACE was a large-scale trial which aimed to test and compare the effectiveness of four of the main therapies currently available for those people with CFS/M.E. whose primary symptom is fatigue (rather than, for example, pain).

 

The above originally appeared here.

This prompted a response from Dr Ellen Goudsmit on Co-Cure:

 

Tomorrow, The Lancet publishes the results of the PACE trial. In the comments and in your papers, you may see statements suggesting that APT (adaptive pacing therapy) is the same as pacing as advocated by myself and Prof. Jason. It is not. The fact that APT had little effect does not mean that pacing is worthless. The two are not the same and aspects of APT concern me as it may lead to increased social isolation, further deconditioning and depression. I do not recommend it and never have. I am not aware of any scientific evidence supporting the 70% rule, a part of APT. Evidence supporting pacing includes two RCTS and a number of controlled trials. I do not regard pacign as a therapy for the illness, but only as a strategy to help conserve energy and avoid post-exertional malaise etc.

 

The above originally appeared here.

The Lancet article that Dr Goudsmit refers to can be found here:

www

The Lancet, Early Online Publication, 18 February 2011
Comparison of adaptive pacing therapy, cognitive behaviour therapy, graded exercise therapy, and specialist medical care for chronic fatigue syndrome (PACE): a randomised trial

 


 

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