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ME/CFS Australia Ltd
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ME/CFS South Australia Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.


ME/CFS South Australia Inc aims to keep members informed of various research projects, diets, medications, therapies, news items, etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.

Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.

In the News – 2011

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In the News


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MRC funds £1.6m research into CFS/ME
Saturday 31 December 2011: The Medical Research Council (MRC) has awarded more than £1.6m for research into the causes of the debilitating condition CFS/ME.

ME fighter Judith finds a new lease of life
Saturday 31 December 2011: ME sufferer Judith Gill who has found a new lease of life through glass design thanks to course run by the University of Sunderland at the National Glass Centre.

Chelsea announces positive phase II trial results of droxidopa in fibromyalgia
Friday 30 December 2011: Chelsea Therapeutics International, Ltd. announced results of a Phase II dose-finding study designed to evaluate the safety and determine the potential therapeutic dose range of droxidopa, alone or in combination with carbidopa, that might be effective for the treatment of fibromyalgia.

Scholars retract another study linking virus to fatigue syndrome
Thursday 29 December 2011: For the second time in a week, a key study suggesting a link between a retroviral infection and chronic fatigue syndrome has been retracted.

Sleepless and in pain: a link between Fibromyalgia and sleep
Wednesday 28 December 2011: A new study suggests that sleep deprivation is associated with an increased risk of developing fibromyalgia.

Plans unveiled for Complex Chronic Disease Clinic
Tuesday 27 December 2011: Canada's BC Women's Hospital & Health Centre will be home to a new clinic that will address complex diseases such as Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, Lyme disease and Fibromyalgia, which often lead to disability for British Columbians.

Journal retracts study linking a virus to ME
Monday 26 December 2011: A study linking a virus to chronic fatigue syndrome, also known as ME, has been withdrawn by the journal which published it.

Merry Christmas from the Society
Sunday 25 December 2011: From all of us here at ME/CFS Australia (SA) Inc, we wish you a very Merry Christmas and a Happy New Year.

New mitochondrial function analysis technique to be used in ME/CFS research at University of Liverpool
Saturday 24 December 2011: Researchers at the University of Liverpool will be the first to implement a newly developed lab technique that is more sensitive to identifying mitochondrial function within the muscle's fibers – a technique they believe could reveal the causes of ME/CFS.

Neural-muscle connection discovery could help people with muscle fatigue
Friday 23 December 2011: For the first time, investigators have discovered neuronal processes that are responsible for reducing muscle activity during muscle-fatiguing exercise.

Chronic Fatigue Syndrome vs. depression: one doctor's view
Thursday 22 December 2011: For decades, many doctors and a large chunk of the general public believed the myth that people with chronic fatigue syndrome (ME/CFS) were "just depressed" - in spite of a wealth of research showing numerous physiological abnormalities across multiple systems.

Civil court rules against CFS researcher
Thursday 22 December 2011: Embattled researcher Judy Mikovits lost an important round in court yesterday in a civil suit that her former employer filed against her over alleged "misappropriation" of laboratory notebooks and computer data.

Development and testing of the Fibromyalgia Diagnostic Screen for primary care
Wednesday 21 December 2011: The Fibromyalgia Diagnostic Screen was developed for use by primary care clinicians to assist in the diagnostic evaluation of fibromyalgia, a disorder that predominantly affects women.

Medical Billing & Coding Certification website
Tuesday 20 December 2011: Medical Billing & Coding Certification is a website that focuses on the World Health Organization's ICD-10.

TGA to cancel four prescription pain-killers
Monday 19 December 2011: Australia's TGA intends to cancel all pain-killers containing dextropropoxyphene - Capadex, Di-Gesic, Doloxene and Paradex - from the Australian Register of Therapeutic Goods, from 1 March 2012.

CFS scientist finds a temporary home
Monday 19 December 2011: Judy Mikovits, the embattled chronic fatigue syndrome researcher will conduct her arm of a US National Institute for Allergy and Infectious Disease sponsored study on the condition's link to certain retroviruses at another US government laboratory.

Struggling for air, and a new home
Sunday 18 December 2011: New London (US) resident, suffering from a combination of illnesses, finds most indoor living intolerable.

CFS researcher Dr Nancy Klimas joins Nova Southeastern University
Saturday 17 December 2011: Nancy Klimas, M.D., one of the world's leading researchers and clinicians in CFS/ME, recently joined Nova Southeastern University's College of Osteopathic Medicine faculty in December.

Is chronic fatigue a major cause of school absence?
Friday 16 December 2011: New research into the cause of school absence finds that up to one per cent of secondary pupils could be suffering from chronic fatigue.

Conflicting approaches to CFS: Mayo Clinic goes "British"
Thursday 15 December 2011: The United States' prestigious Mayo Clinic has gone over to what some chronic fatigue syndrome (ME/CFS) patients, researchers and advocates consider the dark side when it comes to their approach to the illness.

Teen chosen for Olympic torch relay
Wednesday 14 December 2011: A teenager was given the surprise of her life after winning the chance to become an Olympic torchbearer.

Former mayor tells how she was laid low by devastating form of CFS
Tuesday 13 December 2011: Former Islington (UK) Mayor Anna Berent has bravely confronted young vandals and even bitten a burglar, but nothing has laid her so low as her current illness – a form of ME/CFS.

Data on harms done by CBT & GET therapies for ME/CFS
Monday 12 December 2011: Research by Tom Kondlon on the adverse effects of Graded Exercise Therapy and Cognitive Behavioural Therapy when applied to ME/CFS.

CFS news: what's happening?
Sunday 11 December 2011: A US radio program with the latest news in ME/CFS.

Mason award landmark grant for CFS research
Saturday 10 December 2011: Researchers at Bond University have received a landmark grant of over $800,000 to continue their ground-breaking research into identifying the cause and possible treatment of Chronic Fatigue Syndrome.

Barbara Smart's aching 35-year wait for diagnosis
Friday 9 December 2011: Although the lady in question does not have ME/CFS, Barbara Smart's story will be familiar to a lot of sufferers.

Structural brain changes in CFS
Thursday 8 December 2011: A new study suggests that structural brain changes may be responsible for some symptoms of chronic fatigue syndrome (ME/CFS).

Criminal attorney speaks for controversial CFS researcher
Thursday 8 December 2011: ME/CFS researcher Judy Mikovits was jailed on a felony charge of being a fugitive from justice, and her new attorney, Scott Freeman, has plenty to say about her case.

Zurich studies suggest muscle fatigue signals start in brain
Wednesday 7 December 2011: Based on recent studies, it will be possible to specifically investigate reasons for reduced muscular performance without apparent cause – as in certain cases diagnosed as chronic fatigue syndrome.

Chronic Fatigue Syndrome and the CDC: a long, tangled tale
Tuesday 6 December 2011: An article chronicling how the US's Centers for Disease Control has viewed CFS over time.

Interview with Katya Meyers
Tuesday 6 December 2011: An interview with professional triathlete Katya Meyers shown on American television program ABC News.

ME/CFS brain volume anomalies
Monday 5 December 2011: Research that finds ME/CFS brain volume anomalies consistent with impaired memory, subtle vision & movement processing changes.

Stolen notebooks and a biochemist in chains
Monday 5 December 2011: Another article about the travails of ME/CFS researcher Judy Mikovits.

The MusicWorks
Sunday 4 December 2011: The MusicWorks – aka The Dynamic Day Gig – is a monthly event held at the Governor Hindmarsh Hotel.

Answer to tired teen mystery
Saturday 3 December 2011: For some young people, "typical" teenage tiredness and growing pains can morph into something far more serious, leading to debilitating illness, social isolation and months or even years off school.

Society AGM reminder
Friday 2 December 2011: A reminder that the Society's Annual General Meeting will be held on tomorrow (Saturday 3 December 2011).

Hidden risks of lurking chemicals
Friday 2 December 2011: An article in The Sydney Morning Herald about Multiple Chemical Sensitivity.

MCS Rally reminder
Thursday 1 December 2011: A reminder that a Multiple Chemical Sensitivity rally will be held tomorrow (Friday 2 December) in Adelaide.


Badge Day
Wednesday 30 November 2011: Today (Wednesday 30 November 2011) is the Society's Badge Day.

CFS distinguished from CFS and Fibromyalgia by unique sleep stage pattern
Tuesday 29 November 2011: A paper published in Sleep magazine entitled "Sleep-Stage Dynamics in Patients with Chronic Fatigue Syndrome with or without Fibromyalgia".

Voices from the Shadows – world premiere and discussion
Monday 28 November 2011: "Voices from the Shadows," a one-hour documentary about the commonplace abuse and neglect of gravely ill ME patients by the British government and medical establishment, premiered at the Mill Valley Film Festival.

Medical school lists CFS as a mental disorder
Sunday 27 November 2011: The Hull Medical School in the UK has a page on its website that lists mental health problems, including "chronic fatigue syndrome".

Details emerge of the criminal charges against embattled CFS researcher
Sunday 27 November 2011: More details on the arrest of CFS researcher Judy Mikovits.

MCS disability access rally
Saturday 26 November 2011: A rally recognizing Multiple Chemical Sensitivity will be held in Adelaide on Friday 2 December.

UK Parliamentary questions, Countess of Mar, 21 November 2011
Friday 25 November 2011: The Countess of Mar received answers to two written questions – both very relevant to ME/CFS – in the House of Lords on 21 November 2011.

Getting to the root of Fibromyalgia
Thursday 24 November 2011: A Korean study of trace elements in hair samples show fibromyalgia patients have lower levels of important minerals compared to healthy adults.

Exercise improves perceived pain in Fibromyalgia patients
Wednesday 23 November 2011: Researchers at Columbia University will be recruiting soon for a trial of four nutrients that they believe have the potential to support improved mitochondrial energy production in Chronic Fatigue Syndrome patients.

Exercise improves perceived pain in Fibromyalgia patients
Tuesday 22 November 2011: The area of the brain responsible for pain control and cognitive performance decreased after fibromyalgia patients took part in an exercise regimen following a medication holiday, according to a study at Georgetown University Medical Center.

CFS researcher Judy Mikovits arrested
Monday 21 November 2011: Judy Mikovits, the embattled chronic fatigue syndrome researcher who was fired from her post at Reno, Nevada’s Whittemore Peterson Institute in September, has been arrested in California.

North's promising return to triathlon
Sunday 20 November 2011: An article about Australian triathlete Nick North.

Girl, 13, left in 'waking coma'
Saturday 19 November 2011: UK parents Steve and Pauline Hinks are convinced the controversial HPV jab is behind their daughter Lucy’s mystery illness which is making her sleep up to 23 hours a day.

Building compassion
Friday 18 November 2011: Thanks to good Samaritans, students and staff from Milwaukee's Community High School are working with the NARI Foundation to renovate Jacquelyn Windom's home.

Gait markers in Fibromyalgia
Friday 18 November 2011: Research from France entitled "The interest of gait markers in the identification of subgroups among fibromyalgia patients".

Charity Christmas cards now on sale
Thursday 17 November 2011: Our friends in Victoria have Christmas cards for sale.

Prevalence of Fibromyalgia in France
Thursday 17 November 2011: Research from France about the prevalence of Fibromyalgia there.

No-spray and pesticide guidelines
Wednesday 16 November 2011: No-Spray Register guidelines developed by the South Australian government.

Lawsuit filed against CFS researcher by former employer
Wednesday 16 November 2011: The protracted saga of Judy Mikovits, the lead researcher who tied a mouse retrovirus to chronic fatigue syndrome, has taken yet another dizzying turn.

New Multiple Chemical Sensitivity book
Tuesday 15 November 2011: Illness activist, Glenna Chance, seeks to reverse society’s toxic trend in new book.

Opioid use in Fibromyalgia: potential problems
Monday 14 November 2011: A study published in the American Journal of Medicine discourages long-term use of opioids for treating fibromyalgia pain.

'Waltons' cast member to make stop in Lynchburg area
Sunday 13 November 2011: A profile of actor Mary McDonough.

Dr. Ian Lipkin and Dr. Mady Hornig use deep sequencing and proteomics to hunt CFS viruses
Saturday 12 November 2011: An article about research performed by Drs. Ian Lipkin and mady Horning.

Petition for Parliament brings hope
Friday 11 November 2011: New Zealander Wendy Matthews is the driving force behind a petition to raise the public’s awareness of chronic fatigue syndrome.

Two weeks for $250,000 (or more) for CFS Support Groups with Chase Community Giving (Nov 8th-22nd)
Thursday 10 November 2011: Advice from Cort Johnson about the Chase Community Giving fundraiser.

Banners flying over Michigan Stadium part of campaign to raise awareness of neighborhood pesticides
Wednesday 9 November 2011: An article about Linda Weiss and her efforts to raise awareness for Multiple Chemical Sensitivity in the US.

Playing from the heart
Tuesday 8 November 2011: Griffith University’s School of Applied Psychology is conducting a study on the relationship between persistent (chronic) pain, attention to pain and emotional connectedness.

Playing from the heart
Monday 7 November 2011: Jazz pianist Keith Jarrett re-evaluated his approach to music after he was diagnosed with chronic fatigue syndrome.

National health study encourages medical treatment
Monday 7 November 2011: A national health study is hoping to positively impact many Pennsylvania pain victims.

IACFS/ME International Conference summary
Sunday 6 November 2011: Brandi McAtee of Kalispell overcame systemic fibromyalgia and was crowned Figure B champion at the 2011 Washington Ironman Competition in Bellevue, Washington.

Fibromyalgia sufferer becomes figure champion
Saturday 5 November 2011: Brandi McAtee of Kalispell overcame systemic fibromyalgia and was crowned Figure B champion at the 2011 Washington Ironman Competition in Bellevue, Washington.

Southern support group meeting
Friday 4 November 2011: This new group led by Brad McCann is meeting this Sunday (6th November) at 1 pm at Cafe Rimini Cove at the Hallett Cove Shopping Centre and Brad is looking forward to meeting you if you live in the area.

SA disability blueprint
Friday 4 November 2011: The SA Social Inclusion Unit has published its long-awaited report into South Australian disability services in the last days of Mr Rann's Premiership.

Society Annual General Meeting
Thursday 3 November 2011: The Society's Annual General Meeting will be held on Saturday 3 December 2011.

Petition to end NICE bias toward CBT
Wednesday 2 November 2011: The Alliance for Counselling and Psychotherapy has launched a new petition challenging the unscientific bias towards CBT of the UK Department of Health's NICE clinical treatment guidelines.

'Just breathing makes it hurt more,' chronic pain sufferer says
Tuesday 1 November 2011: A profile of Fibromyalgia sufferer Margaret Bristow.


Science with Chris Smith: chronic fatigue and lymphoma cancer
Monday 31 October 2011: The latest news from the world of science with Chris Smith.

Gut bacteria linked to MS
Monday 31 October 2011: Questions remain about how autoimmune disorder is triggered.

The MusicWorks
Sunday 30 October 2011: The MusicWorks – aka The Dynamic Day Gig – is a monthly event held at the Governor Hindmarsh Hotel.

18 very gentle stretches for Fibromyalgia & ME
Saturday 29 October 2011: Get Well From ME host Giles Meehan provides an easy-paced, conversational demonstration of gentle movements and stretches that he believes help him ease muscle tensions and improve tone.

The mystery of chronic fatigue syndrome
Friday 28 October 2011: Most health professionals have finally acknowledged that it's a real and serious illness. But we still don't know what causes it.

Adelaide entrepreneur goes global with Speed Striker
Thursday 27 October 2011: An Adelaide entrepreneur has struck a deal with a major global distributor for his agility training invention, which he developed while suffering a long-term illness.

Combination pharmacological management of Fibromyalgia
Wednesday 26 October 2011: An individualized regimen that addresses associated Fibromyalgia symptoms is needed.

Grant awarded to study chronic fatigue
Tuesday 25 October 2011: A Stony Brook University professor has won a $600,000 two-year grant from the National Institutes of Health for research on home management techniques for people with chronic fatigue syndrome.

Hope for CFS/ME patients
Monday 24 October 2011: The latest medical research to be supported by the Kavli Trust focuses on myalgic encephalomyelitis, often called chronic fatigue syndrome.

National Fibromyalgia & Chronic Pain Association issues position paper
Sunday 23 October 2011: The National Fibromyalgia & Chronic Pain Association has issued a position paper that calls for an end to step-therapy or fail-first as insufficient treatment options which needlessly prolong the suffering of fibromyalgia and chronic pain patients.

Recent, newsmaking scientific research has been debunked
Saturday 22 October 2011: Two big science stories have broken in recent days. One has implications for the health of millions, while the other is most likely inconsequential and wrong. Guess which attracted the bigger headlines?

Chronic Fatigue Syndrome eased by cancer drug
Friday 21 October 2011: An anti-cancer drug could hold the key to treating chronic fatigue syndrome.

The 'San Antonio Seven' still sidelined by illness years after chemical and mold exposures
Thursday 20 October 2011: A profile of seven Americans who suffer from Multiple Chemical Sensitivity.

A talk with investigative journalist Arnold Mann about mold, environmental illness, and MCS
Wednesday 19 October 2011: An interview with Arnold Mann about his new book, They're Poisoning Us!: From The Gulf War to The Gulf of Mexico – An Investigative Report.

Fatigue syndrome takes its toll in US
Tuesday 18 October 2011: A controversial chapter in the saga of chronic fatigue syndrome has ended with the dismissal of a high-profile US researcher, along with the theory the debilitating disorder is caused by a mouse virus.

Genetic Fibromyalgia subgroup with higher BMI & inflammation identified
Monday 17 October 2011: An article from Rheumatology International entitled "A brain-derived neurotrophic factor polymorphism Val66Met identifies fibromyalgia syndrome subgroup with higher body mass index and C-reactive protein".

Canadian author hopes to shed new light on Fibromyalgia
Sunday 16 October 2011: A profile of author Lynn Dowdall and her latest book on Fibromyalgia.

"I owe my life to Butterfly"
Saturday 15 October 2011: An article about the positive impact that UK charity the Butterfly Group made on ME/CFS/Fibromyalgia sufferer Dawn Poleon.

Homeless Boca Raton woman turns to Twitter for help
Friday 14 October 2011: An article about the generosity of strangers towards Blair Miller, a homeless woman with Fibromyalgia.

In the mind or in the brain? Central sensitization in CFS
Thursday 13 October 2011: In the past ten years, several studies have examined central sensitization in patients with CFS.

A sick joke? Study reveals how ME sufferers excluded from welfare system
Wednesday 12 October 2011: The World Health Organisation classifies Myalgic Encephalomyelitis as a physical disease. But this condition is not recognised as a disability in Malta.

Radio interview with Dr. Ken Friedman
Tuesday 11 October 2011: A radio interview (and transcript) with Dr. Ken Friedman on his thoughts from the IAME conference about future for Chronic Fatigue Syndrome research and treatment.

Pregabalin fares poorly for Fibromyalgia outside of US
Monday 10 October 2011: A new study has raised doubts about whether the first FDA-approved Fibromyalgia drug is as effective as previously thought.

Myalgic encephalomyelitis: International Consensus Criteria
Sunday 9 October 2011: A paper published in the Journal of Internal Medicine.

Saturday 8 October 2011: Details about an Australia online social health network.

Integrity issue follows fired researcher
Friday 7 October 2011: The scientist behind a study that linked CFS to a virus has lost her job and is now facing accusations that she has misrepresented data.

New book: Caring for the M.E. Patient
Thursday 6 October 2011: Details about Caring for the M.E. Patient, a new book by Western Australian artist, writer, and patient advocate Jodi Bassett.

The Fibromyalgia drug market will experience minimal growth over the next decade
Wednesday 5 October 2011: In 2010, Eli Lilly/Boehringer Ingelheim’s Cymbalta supplanted Pfizer’s Lyrica as the market- and patient-share leader in the U.S. Fibromyalgia market, according to findings from decision resources.

Rugby player's ME battle
Tuesday 4 October 2011: A young UK rugby player has secured a place at a top training school despite battling the debilitating condition ME.

Health Services Finder
Monday 3 October 2011: The Health Services Finder is a free online directory providing easy access to useful information about private and public health related services in South Australia.

Drunk behaviour – a question of immunity
Sunday 2 October 2011: University of Adelaide researchers have found that immune cells in your brain may contribute to how you respond to alcohol.

The MusicWorks
Sunday 2 October 2011: The MusicWorks – aka The Dynamic Day Gig – is a monthly event held at the Governor Hindmarsh Hotel.

Body painter fights to overcome pain
Saturday 1 October 2011: A profile of Sam Wheeler, a New Zealand body artist with Fibromyalgia.


Rangnick leaves Schalke post
Friday 30 September 2011: An article about soccer coach Ralf Rangnick who has left his position as coach of the Schalke team due to CFS.

Off-label use of H.I.V. medications is catalyst for more controversy
Thursday 29 September 2011: An article from The New York Times about medicines that are being used for ailments other than the ones they were originally intended for.

New hope for fighting Fibromyalgia pain
Wednesday 28 September 2011: A muscle relaxant, Cyclobenzaprine, may ease Fibromyalgia pain.

Link between virus and chronic fatigue syndrome gets even weaker
Tuesday 27 September 2011: More evidence of the lack of a link between XMRV and ME/CFS.

High court sides with sick 11-year-old, clears block to medical torts
Monday 26 September 2011: Chronically ill welcome high court decision; defense attorneys warn of ‘junk science’ in court.

Science lags as health problems emerge near gas fields
Sunday 25 September 2011: On a summer evening in June 2005, Susan Wallace-Babb went out into a neighbor's field near her ranch in Western Colorado to close an irrigation ditch. She parked down the rutted double-track, stepped out of her truck into the low-slung sun, took a deep breath and collapsed, unconscious.

Growth hormone treatment helpful in Fibromyalgia
Saturday 24 September 2011: Several earlier studies have shown that growth hormone (GH) deficiency is common in FMS — and that treatment with GH can be helpful. A new study adds more evidence.

How to bring the school experience to sick kids learning from home
Friday 23 September 2011: Kids and adolescents diagnosed with “hidden disabilities” such as chronic fatigue syndrome are posing unique challenges to cash-strapped public schools.

Family puts $10 million into chronic fatigue research
Thursday 22 September 2011: A family charity is hoping to jump-start the search for a cause for the mysterious disease known as chronic fatigue syndrome (CFS) by funding around $10 million in studies by top research groups.

Chronic Fatigue Syndrome: The invisible illness
Wednesday 21 September 2011: Chronic fatigue syndrome can turn a hopeful life like Shelley Schellin’s into one of suffering and pain. Although the disease is as common as diabetes, it is often misunderstood. It goes under the microscope at a conference in Ottawa in late September.

Meters are not-so-smart to some
Tuesday 20 September 2011: Chronic fatigue is a complex syndrome with consistent symptoms which rob individuals of their vitality every day. The syndrome is now being seen as an immune deficiency disorder, which means sufferers contend not only with a lack of energy, they are also constantly fighting off illness.

New research into chronic condition reveals long-term cost to UK economy
Monday 19 September 2011: The University of Bristol has published the results of research into the impact of the illness on employment and productivity has estimated lost earnings of over £102 million a year to the UK economy.

Stomach bug linked to IBS and chronic fatigue
Sunday 18 September 2011: Being infected with the stomach bug Giardia may increase your risk of having irritable bowel syndrome or chronic fatigue years later, say researchers. But we can’t say that the infection actually causes these conditions.

Applying venture philanthropy to Chronic Fatigue Syndrome
Saturday 17 September 2011: Venture philanthropy — the model used to accelerate research and drug development in diseases such as multiple myeloma and cystic fibrosis — is now being applied to a new arena: chronic fatigue syndrome.

Reminder: Jariel's Dance Extravaganza
Friday 16 September 2011: A reminder that friend of the Society, Jariel Dancer, has organised a fundraiser for ME/CFS for Saturday 24 September.

The brain-gut connection in Fibromyalgia & Chronic Fatigue Syndrome
Thursday 15 September 2011: New research demonstrates that bacteria in the digestive tract can have a direct influence on neurotransmitter function in the brain.

NPR: Raised ME/CFS Awareness on Labor Day; Advocates Had Bones to Pick
Wednesday 14 September 2011: On September 5 (Labor Day), National Public Radio’s "Morning Edition" ran some segments on ME/CFS that raised public awareness - though listeners’ comments find fault with both.

Fibromyalgia & Chronic Pain LIFE™ magazine announced
Tuesday 13 September 2011: The National Fibromyalgia & Chronic Pain Association today released the inaugural issue of Fibromyalgia & Chronic Pain LIFE™, the bi-monthly digital magazine for, by and about fibromyalgia and related chronic pain communities.

TONIX advances in nighttime Fibromyalgia meds released
Monday 12 September 2011: In new research released this week, TONIX Pharmaceuticals has shared news that the very first drug being developed for night time usage in the treatment of fibromyalgia syndrome (FM), named cyclobenzaprine (CBP), is working on improving the condition's core symptoms.

Cracking the conundrum of Chronic Fatigue Syndrome
Sunday 11 September 2011: Nearly three decades have passed since the debate began about a series of symptoms that have come to be known as chronic fatigue syndrome.

MCS advice for professional gardeners
Saturday 10 September 2011: The Government of South Australia has published advice for professional gardeners.

Massage as part of a multidisciplinary treatment program for Fibromyalgia
Friday 9 September 2011: Massage therapy and other touch therapies, including craniosacral and myofascial release, have been found through research to reduce pain, anxiety and stiffness associated with Fibromyalgia.

Private doctor attacks GMC over 'witch hunt'
Thursday 8 September 2011: Dr Sarah Myhill, a doctor who specialises in treating patients with ME and chronic fatigue syndrome, has called for an inquiry into the General Medical Council after misconduct charges against her were dropped.

Scientists search for reliable biomarkers in Multiple Chemical Sensitivity
Wednesday 7 September 2011: After years out in the medical and scientific wilderness, researchers are starting to take a serious look at the underlying pathological mechanisms at work in multiple chemical sensitivity in seach of a reliable biomarker that would revolutionise diagnosis and treatment.

Brave teen who lost teenage years to ME
Tuesday 6 September 2011: A Basingstoke teenager, who suffers from a debilitating condition that has left her practically bed-ridden, has spoken out to raise awareness of ME.

Vagus nerve stimulation shows early promise in Fibromyalgia
Monday 5 September 2011: An open-label phase 1/2 trial of patients with treatment-resistant fibromyalgia shows that a therapy called vagus nerve stimulation is safe and effective and may be a useful treatment addition.

The MusicWorks
Sunday 4 September 2011: The MusicWorks – aka The Dynamic Day Gig – is a monthly event held at the Governor Hindmarsh Hotel.

Protesters have got it all wrong on ME
Saturday 3 September 2011: An opinion piece by UK journalist Max Pemberton.

Abnormal brain signals and Fibromyalgia symptoms
Friday 2 September 2011: Recent research out of Korea has linked abnormalities in 2 regions of the brain with fibromyalgia pain.

Among turmeric's benefits: easing Fibromyalgia pain
Thursday 1 September 2011: An article about the health benefits of turmeric.


E-recipe book for CFS sufferers
Wednesday 31 August 2011: Author Ali Gandy has emailed to tell us about a recipe book she's produced.

Open letter to Professor Simon Wessely
Tuesday 30 August 2011: An open letter sent to Professor Simon Wessely, Institute of Psychiatry, King's College London from Dr John H Greensmith, M.E. Community

Doc Talk: filling the information gap between CFS clinicians and patients
Monday 29 August 2011: A discussion of the information gap that separates people with ME/CFS from their primary care and specialty providers.

Bringing new life to comedy
Sunday 28 August 2011: A profile of New Zealand comedian Pauline Toye.

Small wins matter in advocacy movements: giving voice to patients
Saturday 27 August 2011: An article in which the various players are delineated in a story of a contested illness and patient advocacy, played out within the corridors of federal power.

Chronic pain is no laughing matter, says comedian
Friday 26 August 2011: A profile of Kathy Buckley, a successful comedian who has guest starred on television shows like "Good Morning America" and "Touched By an Angel".

Dealing with chronic fatigue
Thursday 25 August 2011: An interview with ME/CFS health promotion project co-ordinator Alison Copley.

CFS researchers face death threats from militants
Wednesday 24 August 2011: Scientists are subjected to a campaign of abuse and violence.

The Disabled Equestrian – determination to follow a dream
Tuesday 23 August 2011: An article by Robynn "Bobbie" Dinse about her life with Fibromyalgia.

What might cause ME/CFS?
Monday 22 August 2011: An articulate summary of possible causes or triggers involved in this real, multi-system disease, by Giles Meehan.

Nature's call: CFS through the pages of Nature Publishing Group
Sunday 21 August 2011: A report on Nature magazine's increasing coverage of stories about ME/CFS.

To work or not to work with Fibromyalgia & Chronic Fatigue Syndrome
Sunday 21 August 2011: When do you know it's time to quit work and go on disability?

Triple J Hack story on living with chronic pain
Saturday 20 August 2011: A report on chronic pain.

Living with a double burden: Meanings of pain for women with Fibromyalgia
Saturday 20 August 2011: The results of a study about the impact of Fibromyalgia on women that was published in the International Journal of Qualitative Studies of Health and Well-being.

Finding the cause of fatigue, from Harvard Medical School’s Boosting Your Energy Special Health Report
Friday 19 August 2011: Fatigue is a common problem with many possible causes. Medical treatment or lifestyle changes can help alleviate fatigue once the cause is identified.

Dressing with Fibromyalgia: do your clothes cause you pain?
Friday 19 August 2011: An article by Karen Lee Richards about the clothing problems facing Fibromyalgia sufferers.

Do FM sufferers have lower pain thresholds?
Thursday 18 August 2011: Some pain researchers have put forth a theory that people with Fibromyalgia have a lower threshold for pain because of increased sensitivity in the brain to pain signals.

Special shopping benefits cure for Claire
Thursday 18 August 2011: Details of a "Summer Ladies Night," a fundraiser that aims to raise money for Claire Sharkey of Park Ridge, who is trying to regain her strength after learning she has chronic fatigue syndrome.

Toni Bernhard teaches us how to be well
Wednesday 17 August 2011: An interview with author and CFS sufferer, Toni Bernhard.

Hypnosis, guided imagery, and Fibromyalgia
Wednesday 17 August 2011: According to a recent systematic review published in BMC Musculoskeletal Disorders, hypnosis and guided imagery may not improve fibromyalgia-related quality of life.

Impaired heart function in Chronic Fatigue Syndrome
Tuesday 16 August 2011: The hearts and blood flow of people with chronic fatigue syndrome are significantly different from healthy people's, according to a small new study published in the Journal of Internal Medicine.

Fibromyalgia: the facts
Tuesday 16 August 2011: It's one of the most-searched health terms on the internet, but what exactly is Fibromyalgia?

What ever happened to Chronic Fatigue Syndrome?
Monday 15 August 2011: The "Yuppie Flu" of the 1980s may have dropped off the radar. But this debilitating disease is still a major women's health problem and a confounding medical mystery.

Back-to-school time with Fibromyalgia & CFS
Monday 15 August 2011: Tips From's Adrienne Dellwo.

EEOC sues Children's Hospital Colorado
Sunday 14 August 2011: The U.S. Equal Employment Opportunity Commission is suing Children's Hospital Colorado, claiming the hospital discriminated against a job applicant because of her Fibromyalgia.

Tiredness you don't get over
Saturday 13 August 2011: The actors in a play about chronic fatigue syndrome performed July 15 at Missouri State University are all healthy. The playwright, Rivka Solomon, who lives in the Boston area, is not.

How to be a great patient
Saturday 13 August 2011: Dr. Lissa Rankin tells you, the patient, how to make your doctor swoon.

New social group
Friday 12 August 2011: Society member Bradley McCann is keen to set up a new social group in the Adelaide metropolitan area.

New hope for ME/CFS research in the UK
Friday 12 August 2011: Three charities – Action for M.E., The ME Association, and ME Research UK – and a private donor have joined forces to fund the UK's first biobank of human blood samples for research into the causes of ME/CFS.

Unsolicited advice about Fibromyalgia & CFS
Thursday 11 August 2011: Those of us with fibromyalgia (FMS) and chronic fatigue syndrome (CFS or ME/CFS) seem to be advice about our illness from people who (usually) mean well but don't have a clue what they're talking about.

David Aaronovitch column in The Times
Wednesday 10 August 2011: An article by David Aaronovitch about the current controversy involving the physical vs. psychological debate about ME/CFS.

Coping with persistent pain
Wednesday 10 August 2011: Chronic Pain Australia is a website that has a section entitled Self Managing Pain which contains publications focusing on ways of coping with various aspects of chronic pain.

Letters about interview with Professor Simon Wessely
Tuesday 9 August 2011: The recent interview with Professor Simon Wessely that appeared in the UK newspaper The Times has prompted letters of complaint.

Video: Exercise & ME-CFS Part 3 by Dr. Klimas
Tuesday 9 August 2011: The third video in the series on Exercise & ME/CFS, focuses how a safe and effective exercise program can be developed, even for those who are bedridden.

New Australian ME/CFS website
Monday 8 August 2011: Victorian ME/CFS/FM sufferer Keith Rolfe, leader of the Frankston FMS/CFS self-help Support Group, has created a website: fmscfs-support4me.

Interview with Professor Simon Wessely
Monday 8 August 2011: A profile of UK psychiatrist Professor Simon Wessely.

Invest In ME International Conference DVD
Sunday 7 August 2011: A DVD of Invest in ME's 6th International ME/CFS Conference is now available for sale.

Three extreme healing homes: nontoxic building could cure what ails you
Sunday 7 August 2011: A feature on three US non-toxic homes.

Cruel taunts as teen battles health condition
Saturday 6 August 2011: A profile of UK teenager Jessica Thompson.

Looking for new ways to ease the pain of Fibromyalgia
Saturday 6 August 2011: Audio and transcript of an episode of the Voice of America's Science in the News radio program.

Jariel's Dance Extravaganza
Friday 5 August 2011: Friend of the Society, Jariel Dancer, has organised a fundraiser for ME/CFS in September.

Contributions and co-signatories to open letter
Friday 5 August 2011: Dr. John H. Greensmith has started drafting an open letter to all publications which have covered the M.E. "death threats" story, and is asking for people to contribute to it and co-sign.

Survey based on the MCS criteria
Thursday 4 August 2011: Dorothy Bowes from ASEHA Qld is conducting a survey as part of developing the Multiple Chemical Sensitivity GP guidelines in SA.

Shoot the medical messenger – see if that’ll cure you
Thursday 4 August 2011: An article about the heated debate surrounding UK researcher Prof Simon Wesseley.

Impaired cardiac function in Chronic Fatigue Syndrome
Wednesday 3 August 2011: Research published in the Journal of Internal Medicine.

Video: Exercise & ME-CFS Parts 1 and 2 by Dr. Klimas
Wednesday 3 August 2011: Dr. Nancy Klimas, MD, director of the CFS Clinic in Miami, has developed a three-part video series to help people at risk of post-exercise malaise (what the new International Consensus Criteria for ME call ‘post-exertional neuroimmune exhaustion’.

ME charity slams 'misuse' of funding
Tuesday 2 August 2011: Medical experts say research funding for ME and chronic fatigue sufferers should be directed into physical rather than psychological causes.

Dr. Sarah Myhill sanctions dropped
Tuesday 2 August 2011: Sanctions against Dr Sarah Myhill have been dropped.

Society seminar
Monday 1 August 2011: If you are able, please join us this Saturday, 6 August from 1:30pm to 4:30pm at the Sofia Conference Room (situated in Cabra Dominican College), 225 Cross Rd, Cumberland Park.

ME researchers 'receive death threats from sufferers'
Monday 1 August 2011: Scientists researching new treatments for ME claim they have received death threats from sufferers angered by suggestions the syndrome may have a mental explanation.


The MusicWorks
Sunday 31 July 2011: The MusicWorks – aka The Dynamic Day Gig – is a monthly event held at the Governor Hindmarsh Hotel.

The MusicWorks
Sunday 31 July 2011: The MusicWorks – aka The Dynamic Day Gig – is a monthly event held at the Governor Hindmarsh Hotel.

ICC definition to be freely available
Sunday 31 July 2011: The authors of the Myalgic Encehalomyelitis: International Consensus Criteria (ICC) have announced that the International Consensus Criteria paper, which is presently in accepted preprint format online in the Journal of Internal Medicine, will be available free online when it is assigned an issue.

Badge Day
Saturday 30 July 2011: The Society is having a collection/Badge Day at the Adelaide Railway Station this year.

Buying medicines online: know the risks
Saturday 30 July 2011: Buying medicines over the Internet without leaving your front door sounds very appealing. But is it safe?

Pharmacotherapy of Fibromyalgia
Friday 29 July 2011: Research results published in the American Journal of Health-System Pharmacy.

International Consensus Criteria published for Myalgic Encephalomyelitis
Thursday 28 July 2011: A discussion of the new International Consensus Criteria for ME.

Wild about flours: Local mom goes totally organic
Wednesday 27 July 2011: A profile of Fibromyalgia sufferer Kathrine Wehrung.

New regulations for Gulf War veterans' illnesses
Tuesday 26 July 2011: New US Veterans Affairs regulations taking effect on Aug. 15 specify that functional gastrointestinal disorders are covered as presumptive illnesses.

Three letters published in BMJ
Monday 25 July 2011: Tom Kindlon has reprinted three letters for BMJ – two to be published and one not circulated.

Science versus Psychiatry – again
Sunday 24 July 2011: An editorial by Malcolm Hooper and Margaret Williams about a recent BMJ editorial by Fiona Godlee.

Myalgic Encephalomyelitis: International Consensus Criteria
Saturday 23 July 2011: An abstract published in the Journal of Internal Medicine.

Light on ME/CFS
Friday 22 July 2011: An article by Cort Johnson on research by Drs. Alan and Kathleen Light.

Experts probe challenges of Chronic Fatigue Syndrome
Thursday 21 July 2011: The National Institutes of Health recently convened a workshop on ME/CFS.

Bowling event raises more than $2,000 for CFS research
Wednesday 20 July 2011: More than 100 people showed up to help strike out chronic fatigue syndrome at the Bowl Away Chronic Fatigue Syndrome fundraiser at Brunswick Bowling Center, in Columbia, on Saturday, July 9.

Books by Paul Gregory
Tuesday 19 July 2011: UK psychologist and ME/CFS sufferer Paul Gregory has published two books.

Autism risk from Fibromyalgia and CFS drugs
Monday 18 July 2011: A new study suggests that selective serotonin reuptake inhibitors (SSRIs) taken during pregnancy may increase your risk of having a baby with an autism spectrum disorder.

MSU actors to present real-life stories of people with CFS
Sunday 17 July 2011: Actors from Missouri State University will dramatize the real-life stories of disabled Americans stricken with chronic fatigue syndrome.

Are women monopolizing Fibromyalgia?
Sunday 17 July 2011: Contrary to popular belief, women do not have a monopoly when it comes to suffering from Fibromyalgia. Men and children are not spared from this disease.

MCS submission
Saturday 16 July 2011: Peter Evans, convenor of the South Australian Task Force on Multiple Chemical Sensitivity, has provided us with his submission to the National Casemix and Classification Centre proposing the indexing of Multiple Chemical Sensitivity in the Australian version of the International Classification of Diseases, the World Health Organisation's official list of recognised diseases.

One on One: Kaitlin Rohrs
Friday 15 July 2011: A profile of US basketballer Kaitlin Rohrs whose sporting career was cut short due to ME/CFS.

ME/CFS life stories play premiers at Missouri State University
Thursday 14 July 2011: A US woman is spearheading a grassroots effort to raise $550 to have an acquaintance tested for XMRV.

XMRV-positive activists raising money to test man's wife for retrovirus
Wednesday 13 July 2011: A US woman is spearheading a grassroots effort to raise $550 to have an acquaintance tested for XMRV.

Brain activity separates CFS from depression, healthy controls
Wednesday 13 July 2011: New research shows that brain activity is significantly different between people with chronic fatigue syndrome, depression, and normal fatigue with otherwise good health.

Another positive result from South Australian ME/CFS research: Carnitine deficiency in ME/CFS sufferers
Tuesday 12 July 2011: We just had news recently that SA researchers, Stephanie Reuter Lange and Professor Allan Evans with the School of Pharmacy and Medical Sciences and Sansom Institute for Health Research, University of South Australia, have published their study into carnitine levels in ME/CFS sufferers.

Distinguishing Fibromyalgia from Rheumatoid Arthritis and Systemic Lupus in clinical questionnaires
Tuesday 12 July 2011: An analysis of the revised Fibromyalgia Impact Questionnaire (FIQR) and its variant, the Symptom Impact Questionnaire (SIQR), along with pain locations.

Poll: Onset type in Fibromyalgia & CFS
Monday 11 July 2011: What was the beginning of your illness like?

CFS link to retrovirus likely the result of lab contamination, studies find
Monday 11 July 2011: Two papers strongly discredit the association of the XMRV retrovirus with chronic fatigue syndrome.

Lyme Disease in Fibromyalgia & CFS
Sunday 10 July 2011: Dr. W. Ian Lipkin aka the "Virus Hunter," who is currently involved in two CFS studies including one on XMRV, recently spoke at the Whittemore Peterson Institute.

Webcast of Dr. W. Ian Lipkin's WPI presentation
Sunday 10 July 2011: Mark O’Sullivan, who suffers from ME, looks at acquired brain injury in his latest novel.

Tackling the brain head on
Saturday 9 July 2011: Mark O’Sullivan, who suffers from ME, looks at acquired brain injury in his latest novel.

Job Vacancy: Chief Executive Officer at ME/CFS Australia (Vic, Tas, NT)
Saturday 9 July 2011: ME/CFS Australia (Vic, Tas, NT) is looking for a new Chief Executive Officer.

Nerve-zapping implants could relieve Fibromyalgia
Friday 8 July 2011: After 15 years of battling fibromyalgia with medication and exercise, Lisa Simpson still had cramping, spasms, and pain all over her body.

Is autism related to CFS and Fibromyalgia?
Friday 8 July 2011: The nutrient L-carnitine appears effective in treating all three.

Current pain treatments don't work, Fibromyalgia expert says
Thursday 7 July 2011: In a new paper published in the British medical journal The Lancet, authors Dennis C. Turk, Ph.D., and colleagues from the University of Washington, Seattle,assert that current treatments for chronic, non-cancer-related pain are, simply, ineffective.

Ten Mile native authors poetry collection
Thursday 7 July 2011: US ME/CFS patient Laura Clay Newlon has just completed a collection of poetry that has been in the works for a number of years.

Appeals court rules in favor of teacher with sensitivity disability
Wednesday 6 July 2011: Denise Frisino, a Seattle middle school teacher diagnosed with respiratory sensitivity to molds, chemicals, and other environmental toxics was terminated for failing to report for work after reasonable accommodation were not provided as required by law.

Diagnosing a patient as a faker
Wednesday 6 July 2011: Even when patients describe pain in vivid detail, doctors have few tools to determine what's real.

Meeting Summary: ME/CFS State of the Knowledge Workshop
Tuesday 5 July 2011: A report of the "ME/CFS State of the Knowledge Workshop" held in the US during April 2011.

Inquest: Fibromyalgia sufferer killed on level crossing
Tuesday 5 July 2011: Inquest hears how victim, 58, looked up seconds before impact.

Ending the stalemate over CFS/ME
Monday 4 July 2011: A BMJ editorial about the recent kerfuffle involving XMRV.

Harvard tests distinguish CFS from depressed & healthy subjects
Monday 4 July 2011: EEG spectral coherence data distinguish chronic fatigue syndrome patients from healthy controls and depressed patients - A case control study.

Inspirational book
Sunday 3 July 2011: An inspirational woman from the UK who has been confined to her bed for the last seven years with M.E. has launched a book of thoughts and prayers which she hopes will help others struggling with the same devastating condition.

The MusicWorks
Sunday 3 July 2011: The MusicWorks – aka The Dynamic Day Gig – is a monthly event held at the Governor Hindmarsh Hotel.

Fibromyalgia on The Doctors
Saturday 2 July 2011: Fibromyalgia was featured on an episode of US TV show The Doctors.

Young woman chronicles life with CFS in memoir
Saturday 2 July 2011: Michelle Klein shares her international travels and life with a devastating illness in "The Monster Inside: The Story of an Ordinary Girl in Extraordinary Circumstances".

ME/CFS medical seminar in Melbourne
Friday 1 July 2011: Professor Kenny de Meirleir, international visiting medical ME/CFS expert, will present advances in the medical treatment and research understandings of ME/CFS.

There is help available for rare disorder
Friday 1 July 2011: Help is available for sufferers of a rare reaction to electricity says one local sufferer who has shared her experiences in a TV documentary.


GetUp! campaign suggestion
Thursday 30 June 2011: A campaign suggestion for GetUp!.

Brain fog in CFS and Fibromyalgia
Thursday 30 June 2011: Brain fog is a classic part of CFS and fibromyalgia.

Fibromyalgia prompts woman to write book
Wednesday 29 June 2011: A profile of Linda Mullinax and the Fibromyalgia that prompted her to write a book about her experiences.

"ME/CFS Alert" TV show debuts with Dr. Enlander
Wednesday 29 June 2011: The first segment of a new Web-based TV show – "ME/CFS Alert", hosted by Llewellyn King and Deborah Waroff – is an interview with Dr. Derek Enlander, MD.

Report deals blow to fatigue sufferers
Tuesday 28 June 2011: A new study sees no link to virus.

Chronic Fatigue Syndrome: misnamed, misdiagnosed, misunderstood
Tuesday 28 June 2011: What's in a name? A great deal, if you suffer from one of the most awful long-term diseases that is widespread: chronic fatigue syndrome.

Dangers of research into chronic fatigue syndrome
Monday 27 June 2011: An article by Nigel Hawkes in the British Medical Journal about how threats to researchers from activists in the CFS/ME community are stifling research into the condition.

Declaration made by Prof Malcolm Hooper on ethics conflict concerning PACE
Monday 27 June 2011: A statement by Professor Malcolm Hooper about Professor William Hamilton.

Battling illness with the healing power of a 99...
Sunday 26 June 2011: A profile of Paul Clarke and his ice-cream business.

Commentary: Living with CFS/ME
Sunday 26 June 2011: An article by Ollie Cornes about living with CFS/ME.

Ending the stalemate over CFS/ME
Saturday 25 June 2011: An editorial from the British Medical Journal.

ME 'not caused by virus', scientists announce
Saturday 25 June 2011: The condition ME is not caused by a virus despite previous evidence to the contrary, scientists have announced.

Is an enzyme called GAD responsible for Fibromyalgia?
Friday 24 June 2011: A recently published hypothesis raises the possibility that an enzyme involved in type-1 diabetes may also be an underlying cause of Fibromyalgia.

Now doctors say M.E. is NOT caused by virus but is found in the blood
Friday 24 June 2011: M.E. is definitely not caused by a virus despite past claims, leading scientists say.

Australian Generations Oral History Project
Thursday 23 June 2011: Some of our members might be interested in being interviewed as part of a massive Australian oral history program.

Why we must provide hope for those who suffer from ME
Thursday 23 June 2011: British Shadow Home Secretary Yvette Cooper shares her thought on having ME.

The brain a tiny key to a terrible lock
Wednesday 22 June 2011: Scientists have traced chronic pain to a defect in one enzyme in a single region of the brain. Could this be a decisive turn in the battle against pain?

Dan Allen Foundation will hold first annual fundraiser
Wednesday 22 June 2011: The foundation is named after Boston University football coach Dan Allen, who lost his life in 2004 due to a serious chemical injury that initiated Multiple Chemical Sensitivity.

Another CFS theory bites the dust
Tuesday 21 June 2011: The link between chronic fatigue syndrome and a bloodborne retrovirus has “turned out to be a furphy”, an expert says, with laboratory contamination apparently to blame for the finding.

DSM-5 web site period for comments extended
Tuesday 21 June 2011: The American Psychiatric Assocaition is extending the period for submitting comments and suggestions to its website regarding the proposed diagnostic criteria revisions and the newly proposed organizational structure for DSM-5.

Dr Nancy Klimas to be given Women's Health Award
Monday 20 June 2011: The NOW Foundation will present its second annual Victoria J. Mastrobuono Women's Health Award to Nancy Klimas, M.D., at the 2011 National NOW Conference.

Susanna Argady comments on the DSM-5
Monday 20 June 2011: Comment by Susanna Argady on DSM-5 draft proposals for the Complex Somatic Symptom Disorders category.

Moving to new "environmentally sensitive" housing unit in Ottawa
Sunday 19 June 2011: An article about Linda Sepp and her new, environmentally sensitive housing in Canada.

Comment by Dr John L Whiting to the DSM-5
Sunday 19 June 2011: Comment by Dr. John L. Whiting on DSM-5 draft proposals for the Complex Somatic Symptom Disorders category.

Speech by the Hon Tammy Franks on MCS
Saturday 18 June 2011: A speech on Multiple Chemical Sensitivity was given in the South Australian Legislative Council last week by the Hon Tammy Franks, MLC, SA Greens.

European ME Alliance submission to DSM-5 draft proposals
Saturday 18 June 2011: The European ME Alliance's submission to DSM-5 draft proposals for the Complex Somatic Symptom Disorders category.

ME/CFS: a member's perspective
Friday 17 June 2011: Society member Roger offers his perspective of having ME/CFS.

ME Association submission to the DSM-5
Friday 17 June 2011: The UK's ME Association has submitted comments to the consultation on the proposed, new American Diagnostic and Statistical Manual of Mental Disorders, otherwise known as the “DSM-5”.

Open letter: Proposals to test efficacy of Lightning Process
Thursday 16 June 2011: An open letter to Phil Parker, Inventor of the Lightning Process (to be freely available to all Lightning Process trainers), with copies to Dr Hilary Jones, Doctor at Daybreak TV, presenter Lorraine Kelly and known interested individuals and organisations.

Fred Friedberg's comments to the DSM-5 Work Group on Somatic Symptom Disorders
Thursday 16 June 2011: Fred Friedberg has submitted comments to the DSM-5 Work Group on Somatic Symptom Disorders.

Mary Schweitzer letter to APA on CSSD proposal for DSM-5
Wednesday 15 June 2011: A letter by Mary Schweitzer to the American Psychiatric Association about the creation of a new category, Complex Somatic Symptom Disorder, which may include ME/CFS.

Genetic expression after exercise in Fibromyalgia & CFS
Wednesday 15 June 2011: Researchers behind a new study say they've discovered post-exercise differences in genetic expression that meet criteria for an objective biomarker for a subgroup of ME/CFS.

Women's advocates send letter to Congressional leaders requesting a hearing on chronic pain
Tuesday 14 June 2011: The Campaign to End Chronic Pain in Women, led by organizational leaders from the CFIDS Association of America, Endometriosis Association, National Vulvodynia Association, and The TMJ Association, called on congressional leaders to convene a hearing on the US's chronic pain epidemic and examine solutions that could relieve suffering and substantially reduce health care costs.

The British Medical Journal reports on the Science controversy
Tuesday 14 June 2011: Researchers are facing calls to retract published findings that link chronic fatigue syndrome to a retrovirus called xenotropic murine leukemia virus related virus (XMRV) after new scientific criticism of their validity.

Open letter: Submission about the creation of a new category
Monday 13 June 2011: An open leter from Dr John H Greensmith, founder of ME Free For, calling for a new category of ME/CFS.

Effective treatment of Fibromyalgia requires multimodal treatment strategies
Monday 13 June 2011: Treatment of Fibromyalgia requires a multidimensional approach that addresses patient symptoms, as well as psychosocial, behavioral, and physical factors, a panel of experts said at the American Pain Society's 30th Annual Scientific Meeting.

Voices from the Shadows trailer
Sunday 12 June 2011: A trailer for 'Voices from the Shadows', a documentary about people with ME/CFS.

Author puts down pen to raise funds
Sunday 12 June 2011: A UK author is using his experience in the world of print to raise money for charities that help people living with the same medical condition afflicting his youngest daughter.

WWF pesticides petition
Saturday 11 June 2011: WWF has created a petition to help combat the overuse of pesticides.

Sodium oxybate for Fibromyalgia
Saturday 11 June 2011: Sodium oxybate was shown to be effective in patients with both moderate to severe fibromyalgia symptoms, according to an analysis presented at the American Pain Society's 30th Annual Scientific Meeting.

Invitation to SA couples to participate in ME/CFS research
Friday 10 June 2011: Adelaide counselling researcher Robyn Lingard is inviting couples to participate in research about living with ME/CFS.

Hay Festival: Yvette Cooper talks of battle with ME
Friday 10 June 2011: A profile of UK Shadow Home Secretary Yvette Cooper.

Diseases That Get No Respect Show
Thursday 9 June 2011: An episode of a US radio show that focuses on "diseases that get no respect", such as Fibromyalgia.

Dance for a 'fibro' cure
Thursday 9 June 2011: An article about a dance fundraiser for sufferers of Fibromyalgia.

AND Banking Customer Service Survey
Wednesday 8 June 2011: The Australian Network on Disability is assisting a major bank to gain a greater understanding of the banking needs of people with disability. The work will contribute to a review of the bank's Disability Action Plan which includes enhancing customer services for people with disability.

Findings dispute fatigue infection
Wednesday 8 June 2011: In a blow to people with chronic fatigue syndrome, two new studies raised serious doubts about earlier reports that the disabling disease is linked to infection with XMRV, a poorly understood retrovirus.

Rivka Solomon acts up, chronic fatigue be damned
Tuesday 7 June 2011: A profile of author Rivka Solomon.

CFS: life after XMRV
Tuesday 7 June 2011: As doubts about the retrovirus reach fever pitch, scientists focus on alternative directions for the field.

Given doubt cast on CFS-XMRV link, what about related research?
Monday 6 June 2011: The journal Science has cast doubt on a 2009 paper it published linking the virus XMRV to chronic fatigue syndrome and requested the authors retract the research.

Virus wrongly linked to CFS
Monday 6 June 2011: Two years ago, a widely publicized scientific report plucked an old mouse virus out of obscurity and held it up as a possible cause of chronic fatigue syndrome. According to a new study published today by a group of researchers in California, Wisconsin and Illinois, that report was wrong.

Coalition 4 ME/CFS puts out call for action on DSM-5 Proposal
Sunday 5 June 2011: The Coalition4ME/CFS - a coalition of US ME/CFS non-profit organizations – has issued a Call to Action on the impending DSM-5 proposal and provided information to assist organizations and patients in writing their own letter to the American Psychiatric Association.

The MusicWorks
Sunday 5 June 2011: The MusicWorks – aka The Dynamic Day Gig – is a monthly event held at the Governor Hindmarsh Hotel. It's organised by and for people with disabilities.

Chronic Fatigue Syndrome is misunderstood
Saturday 4 June 2011: What's in a name? A great deal, if you suffer from awful, long-term diseases that have no cure.

Northwest Portland artist painting mural to beautify neighborhood
Saturday 4 June 2011: A profile of Fibromyalgia sufferer Tara Stansberry who is using her artistic abilities for her neighbourhood.

Invest in ME Conference 2011 report
Friday 3 June 2011: A report by Dr Rosamund Vallings of the Invest in ME conference on 20 May 2011 in London.

How clean is too clean? Trust your gut instincts
Friday 3 June 2011: Could our obsession with cleanliness in our homes be working against us?

Chronic-fatigue paper called into question
Thursday 2 June 2011: Editors of the journal Science have asked the co-authors of a 2009 paper that linked chronic fatigue syndrome to a retrovirus called XMRV to voluntarily retract the paper.

Immunological abnormalities as potential biomarkers in CFS/ME
Thursday 2 June 2011: A study that investigated the profile of markers of immune function (including novel markers) in CFS/ME patients.

Dr Bell's 25-year follow-up on Lyndonville Outbreak patients
Wednesday 1 June 2011: Two videos of the Massachusetts CFIDS/ME & FM Association's 16 April event that feature ME/CFS specialist Dr. David Bell.

ME/CFS demo in San Francisco a success
Wednesday 1 June 2011: A report on the recent San Francisco ME/CFS demonstration.


Elliot Krane: The mystery of chronic pain
Tuesday 31 May 2011: Pediatrician Elliot Krane talks about the complex mystery of chronic pain, and reviews the facts we're just learning about how it works and how to treat it.

Music therapy reduces pain, depression
Tuesday 31 May 2011: Music therapy combined with other relaxation techniques based on guided imagery, reduces pain, depression and anxiety and improves sleep in Fibromyalgia.

Does Graded Exercise Therapy cure ME?
Monday 30 May 2011: An article and poster campaign in the UK from TYMES Trust, Dr Nigel Speight (longest serving NHS Consultant Paediatrician with a specialist interest in ME patients) with support from Professor Malcolm Hooper.

All Wheels 4 Fibromyalgia
Monday 30 May 2011: For the third straight year, the champion bicycling team, All Wheels 4 Fibromyalgia (AW4F), will be hitting the road once again to raise funds and awareness for the National Fibromyalgia Association.

Chronic fatigue patients protest lack of funding
Sunday 29 May 2011: An account of an ME/CFS awareness rally held in San Francisco.

My life with Fibromyalgia
Sunday 29 May 2011: An article by Don Sorensen about his life with Fibromyalgia.

Announcing Research1st
Saturday 28 May 2011: The CFIDS Association of America has launched the website which is intended to become a one-stop shop for the most current and reliable information about CFS research being conducted by top-flight scientists worldwide.

Raising awareness for ME/FM in Cornwall and Canada
Saturday 28 May 2011: A profile of Canada's Seaway M.E. /FM Self Help Group.

MCS Awareness Rally report
Friday 27 May 2011: A report by Peter Evans, Convenor of the South Australian Task Force on Multiple Chemical Sensitivity, of the recent MCS Awareness Rally.

The puzzle of Fibromyalgia
Friday 27 May 2011: Millions of Americans suffer from Fibromyalgia, but who knows the causes – or if there is even a cure?

David's been bedbound for 7 years
Thursday 26 May 2011: A local mother-of-three has spoken out about her fight to get treatment for her son whose life has been put on hold because of a serious neurological condition.

Fairfield's Nero has newfound goal away from basketball court
Thursday 26 May 2011: A profile of US basketballer Greg Nero.

Last day for voting in the Chase Community Giving Contest
Wednesday 25 May 2011: A reminder on how to vote in the Chase Community Giving Contest.

A 'clean refuge' combats chemical sensitivity disorder
Wednesday 25 May 2011: A profile of MCS sufferer Julie Daugherty and the construction of the toxin-free apartment she lives in atop her garage.

Jane's bid to battle ignorance of ME
Tuesday 24 May 2011: A profile of ME sufferer Jane Andrews.

Florida International University joins PANDORA as academic partner
Tuesday 24 May 2011: Stephen and Marly Silverman, of South Florida, have donated $5,000 toward creating an endowment through the Florida International University Foundation as a first step in creating the NEI Center, a PANDORA project.

PACE Trial shows two forms of pacing more effective than third type
Monday 23 May 2011: The Lancet article reporting the PACE research said that Cognitive Behavior Therapy and graded exercise were shown to be more effective than adaptive pacing, but what did patients actually do?

M.E. – often a life sentence
Monday 23 May 2011: An article from Dr John H Greensmith about ME Free For's "A sentence of M.E." project.

The permanent flu
Sunday 22 May 2011: A profile of US Fibromyalgia sufferer Becca Southwick.

Fibromyalgia to cause 'bone-crushing fatigue'
Sunday 22 May 2011: A profile of US Fibromyalgia sufferer Laurel Wright.

Adelaide brain scan research – volunteers wanted for repeat study
Saturday 21 May 2011: Now that the results of an MRI brain scan study conducted by an Adelaide team of researchers has been published, the researchers are calling for volunteers to participate in a repeat study to confirm the findings.

Dignity For Chronic Pain Sufferers
Saturday 21 May 2011: The Dignity for Chronic Pain Sufferers website was established to aid those who currently suffer from debilitating chronic pain illnesses.

Friday 20 May 2011: More than 1,300 people have put their names to a petition to stop the closure of a specialist unit for CFS sufferers at Queen's Hospital in the UK.

1,300-strong petition against ME unit closure at Romford hospital
Friday 20 May 2011: More than 1,300 people have put their names to a petition to stop the closure of a specialist unit for CFS sufferers at Queen's Hospital in the UK.

Rare chronic fatigue syndrome afflicts Holland's Ruth James
Friday 20 May 2011: A profile of US woman Ruth James.

The Lancet responds to criticism of its publication of the PACE Trial results
Thursday 19 May 2011: An editorial from The Lancet.

Entering the Chase Community Giving Contest
Thursday 19 May 2011: Instructions for entering the Chase Community Giving Contest.

Miss La Mesa breaks silence on her Fibromyalgia
Wednesday 18 May 2011: US newspaper La Mesa Patch, which focuses on news from the Californian city of La Mesa, has an article written by Katie Martin, the current winner of the Miss La Mesa competition, about her Fibromyalgia.

Health trust's error causes furore in Redbridge
Wednesday 18 May 2011: The chief executive of an ME charity and angry sufferers of the condition have criticised minutes of a health trust meeting which say a hospital unit will be "de-commissioned".

House of Representatives CFS speech
Tuesday 17 May 2011: Australian parliamentarian Geoff Lyons recently made a speech in the House of Representatives.

Group's three peaks challenge
Tuesday 17 May 2011: An intrepid group of walkers are tackling the UK's National Three Peaks Challenge in aid of a charity that has supported a teenager through his ME diagnosis.

Multiple Chemical Sensitivity Awareness Rally
Monday 16 May 2011: A rally to be held in Adelaide that will call on the State Government to fully implement the Parliamentary Inquiry into MCS recommendations for strategies to assist people with MCS to access health care.

Family's anger as ME unit is closed
Monday 16 May 2011: A UK family has claimed NHS bosses failed to tell desperate patients about a specialist unit for a rare illness before closing it due to a lack of demand.

Lucinda to climb Kilimanjaro with five amputees
Sunday 15 May 2011: A UK student who suffers chronic fatigue and joint inflammation will climb Kilimanjaro with five amputees, after forging an inspirational friendship with the most wounded British soldier to survive battle.

Theda's desperate final hunt for a chronic fatigue cure
Sunday 15 May 2011: After more than a decade tackling an uphill battle with a debilitating illness, Perth chronic fatigue sufferer Theda Myint is set to embark on a trip halfway around the globe in her desperate search for a cure.

South Australian Volunteers Day Concert
Saturday 14 May 2011: In IYV+10, South Australia's annual Volunteers Day Concert will be held at the Adelaide Festival Theatre on Monday 13 June, the Queen's Birthday and Volunteers Day public holiday.

Chronic Conditions Self-Management Expo
Saturday 14 May 2011: An expo to promote better understanding of the self-management of chronic diseases to members of the Australian Capital Territory and surrounding communities.

CFS breakthrough by interdisciplinary Adelaide research group
Friday 13 May 2011: A team of independent Adelaide researchers has made a breakthrough in CFS research using new approaches to the analysis of magnetic resonance imaging (MRI) scans of the brain.

Taking action in ME Awareness Month
Friday 13 May 2011: Action for M.E. activities for May, M.E. Awareness Month 2011, focus on welfare and work, NHS services and raising public awareness.

12 May: International ME/CFS/FM Awareness Day
Thursday 12 May 2011: May 12, 2011 is International ME/CFS and FM Awareness Day.

World Health Organization asked to officially recognise MCS and EHS
Thursday 12 May 2011: A delegation has a meeting with the WHO Director General for Public Health on 13 May where they will hand over the document requesting recognition together with signatures of over 450 Health professionals and organisations from 25 countries.

ME/CFS Medical Seminar to be opened by Hon. David Davis MLC Minister for Health
Thursday 12 May 2011: A media released from ME/CFS Australia (Vic, Tas, NT).

Unravelling the mystery of a cruel condition
Thursday 12 May 2011: UK newspaper The Press and Journal talks to Lyn Gilderdale about ME/CFS.

Chase Community Giving Contest
Wednesday 11 May 2011: The Whittemore Peterson Institute and the CFIDS Association of America both won in Round One of the Chase Community Giving Contest.

'Don't call my M.E. yuppie flu or laziness', says Rachel
Wednesday 11 May 2011: A profile of ME sufferer Rahcel Lindan.

Twibbons for profile pictures
Tuesday 10 May 2011: Blogger "rachelcreative" has created a range of Twibbons from the awareness badges.

Walk to Cure FM
Tuesday 10 May 2011: A fundraiser from the National Fibromyalgia & Chronic Pain Association.

ME/CFS Awareness Week 2011 Seminar
Monday 9 May 2011: ME/CFS Australia (Vic, Tas, NT) will be holding a seminar on Sunday 15 May.

Chronic Fatigue Syndrome story
Monday 9 May 2011: An article from the US blog Social Security Disability Help.

The Lancet journal was first to use ‘ME’ term in 1956
Sunday 8 May 2011: A letter to the Irish Medical Times from Tom Kindlon.

'For years I haven't been able to make a meal'
Sunday 8 May 2011: A profile of ME sufferer Susanna Geddes.

Adelaide support group meeting reminder
Saturday 7 May 2011: A quick reminder of today's meeting.

ME/CFS Awareness Week celebrations in Wollongong
Saturday 7 May 2011: The Wollongong ME/CFS/FM Support Group will celebrate Chronic Fatigue Syndrome Awareness Week on 8th - 14th May 2011.

Big study linking Chronic Fatigue to virus may be fatally flawed
Saturday 7 May 2011: An article from Forbes magazine's Science Business section as well as links to other articles.

Hannah's show to raise profile of CFS
Friday 6 May 2011: A student is hoping to raise public awareness of an illness with a special variety show.

Wirral teenager tells of her ME struggle to mark Awareness Week
Friday 6 May 2011: An article by Jane Clare about her life with ME/CFS.

'I still feel cross' says mother of tragic Lynn
Thursday 5 May 2011: Devoted mother Kay Gilderdale, who helped her ill daughter Lynn to die, has said she cannot return to the nursing job she once loved after their traumatic experience of hospitals.

Sleep-wake behavior in CFS
Thursday 5 May 2011: The results of a study that examined circadian patterns of activity, sleep, and cortisol secretion in patients with CFS.

Support for Theda not slowing down
Wednesday 4 May 2011: Support has been flowing in from around the country for chronic fatigue sufferer Theda Myint after revealed the tragic reality behind her private and painful battle with the debilitating illness.

Life of pain is now past
Wednesday 4 May 2011: A profile of Marilynn Graham who has embarked on her second decade living with fibromyalgia.

Arnie's story
Tuesday 3 May 2011: An ME/CFS patient case history is excerpted from Dr. Bell’s book Faces of CFS - Case Histories of Chronic Fatigue Syndrome.

Light Work photo exhibition
Tuesday 3 May 2011: An article about “Canaries,” an exhibition by Thilde Jensen of photographs of individuals with MCS.

Adelaide support group meeting
Monday 2 May 2011: The society's first gathering this year will be a support group meeting.

Fragrance Free Policy signs for hospitals
Monday 2 May 2011: Three Fragrance Free Policy signs for use in hospitals.

Peppermint earns respect in mainstream medicine
Monday 2 May 2011: University of Adelaide researchers have shown for the first time how peppermint helps to relieve Irritable Bowel Syndrome, which affects up to 20% of the population.

How to ease Fibromyalgia pain when traveling
Sunday 1 May 2011: Advice on travelling with Fibromyalgia.

The MusicWorks
Sunday 1 May2011: The MusicWorks – aka The Dynamic Day Gig – is a monthly event held at the Governor Hindmarsh Hotel. It's organised by and for people with disabilities.


Better care for ME is a step closer in Norfolk
Saturday 30 April 2011: The International Association for Chronic Fatigue Syndrome/ME (IACFS/ME) invites you to our next biennial conference to be held in Ottawa, Ontario, Canada, September 22-25, 2011.

Trickle-down cutbacks
Saturday 30 April 2011: The International Association for Chronic Fatigue Syndrome/ME (IACFS/ME) invites you to our next biennial conference to be held in Ottawa, Ontario, Canada, September 22-25, 2011.

IACFS/ME Biennial Conference
Friday 29 April 2011: The International Association for Chronic Fatigue Syndrome/ME (IACFS/ME) invites you to our next biennial conference to be held in Ottawa, Ontario, Canada, September 22-25, 2011.

Governor Hickenlooper proclaims May 2011 as MCS Awareness Month in Colorado
Friday 29 April 2011: Colorado State Governor John Hickenlooper declares May 2011 as Multiple Chemical Sensitivity Awareness Month.

WSU researcher awarded $900,000
Thursday 28 April 2011: Henry Heng, Ph.D., was recently awarded a $900,000 grant from the U.S. Department of Defense to study whether GWI stems from genomic instability, which he believes is the common link among GWI patients.

Cannabis use in patients with Fibromyalgia
Thursday 28 April 2011: Results of a study that aimed to describe the patterns of cannabis use and the associated benefits reported by patients with Fibromyalgia who were consumers of this drug.

No-high marijuana: future treatment for Fibromyalgia pain?
Wednesday 27 April 2011: In a new study, researchers say they've found a way to remove the "high" from marijuana while leaving the pain-relieving effects intact.

Do horses get Fibromyalgia?
Wednesday 27 April 2011: A veterinarian believes she has identified a form of Fibromyalgia in horses in her practice.

Is exercise always good for the body?
Tuesday 26 April 2011: A report on the PACE Trial.

Stem cell therapy using the patient's own fat to treat chronic pain and disease
Tuesday 26 April 2011: Patients Medical, an integrative medical center in NYC, is offering adult stem cell therapy for selected patients for a variety of chronic debilitating diseases including osteoarthritis, certain types of chronic fatigue and other degenerative and auto-immune diseases.

Chronic Fatigue in teens: rare but serious
Monday 25 April 2011: A new survey published in the journal Pediatrics suggests that about 1 out of 900 teenagers are diagnosed with CFS.

Adolescent CFS: Prevalence, Incidence, and Morbidity
Monday 25 April 2011: The results of a study to determine nationwide general practitioner-diagnosed prevalence and pediatrician–diagnosed incidence rates of adolescent CFS, and to assess CFS morbidity.

Serialisation of Kay Gilderdale book
Sunday 24 April 2011: Excerpts from Kay Gilderdale's book, One Last Goodbye.

Waltz against fatigue
Sunday 24 April 2011: The Windsor Seniors Dance Club held a charity dance of “waltzes, saunters, rumbas and blues” as a fundraiser for ME/CFS Australia.

Lecture invitation: "Pain. Is it all just in your mind?"
Saturday 23 April 2011: A Knowledge Works lecture in which Professor Lorimer Moseley will examine pain.

PACE Trial – letters that were not accepted by The Lancet
Saturday 23 April 2011: A lot of people on Monday [18 April 2011] received e-mails from The Lancet to say that their letter, in reply to the PACE trial report in The Lancet, was not accepted.

Invitation to couples to participate in ME/CFS research
Friday 22 April 2011: Adelaide counselling researcher Robyn Lingard is inviting couples to participate in research about living with ME/CFS.

Treating ME: what works?
Friday 22 April 2011: A letter to the editor in the April issue of Therapy

Adelaide Entertainment Book
Thursday 21 April 2011: Adelaide Entertainment™ Books are available for purchase as a fundraiser for ME/CFS Australia (SA) Inc.

Theda Myint locked up at Fremantle Hospital after euthanasia attempt
Thursday 21 April 2011: A Perth woman battling chronic fatigue syndrome was committed to the locked ward of Fremantle Hospital after an attempt to euthanise herself in a desperate bid to address her crippling condition.

An open letter to Julia re Dignity
Wednesday 20 April 2011: The Diss-Ability blog has written an open letter to Australian Prime Minister Julia Gillard about her recent comments regarding welfare recipients.

Coventry woman portrays her battle through art
Wednesday 20 April 2011: A former intensive care nurse has launched a poetry and art exhibition to tell the story of her brave battle with ME.

Comparison of treatments for CFS - the PACE trial
Tuesday 19 April 2011: A radio feature on the PACE trial.

ME/CFS State of the Knowledge Workshop: videos
Tuesday 19 April 2011: Both days (7 and 8 April 2011) of the ME/CFS State of the Knowledge Workshop are now available on video.

Stanford Medical Minutes: Chronic Fatigue Syndrome
Monday 18 April 2011: Stanford Medical Minutes are short interviews with clinical doctors and researchers from Stanford Hospital and Clinics discussing current topics in medicine.

Radio interview with Kay Gilderdale
Sunday 17 April 2011: Kay Gilderdale, author of One Last Goodbye, was interviewed on RTÉ Radio 1, Thursday 14 April 2011.

Five common 'no no's' for people with Fibromyalgia
Sunday 17 April 2011: Dr. Jacob Teitelbaum outlines five common "no no's" people mistakenly do when trying to manage Fibromyalgia.

Diving head-first into recovery
Saturday 16 April 2011: Just getting out of bed was a struggle for swimmer Ethan Camroux three years ago, but the 15-year-old has bounced back from a bout of chronic fatigue syndrome.

Chemical safety remodel's priority
Friday 15 April 2011: US newspaper the Arizona Daily Star has an article about Bill and Jane Todd and how they remodelled their home to accommodate Jane's Multiple Chemical Sensivitity.

Book: One Last Goodbye
Thursday 14 April 2011: Kay Gilderdale has written a book about her experiences with her daughter Lynn.

'ChronicBabe' blogs about pains of Fibromyalgia
Thursday 14 April 2011: A profile of Jenni Prokopy, creator of the health blog.

How mindfulness can add to your well being
Wednesday 13 April 2011: An interview with "mindfulness" expert Diana Winston on ABC Radio National's New Dimensions program.

Cate Campbell's slow road to recovery
Wednesday 13 April 2011: A profile of Australian swimmer Cate Campbell.

Family Forum: Dad kept in the dark
Tuesday 12 April 2011: The Family Forum panel of Adelaide newspaper The Advertiser advises a grandfather concerned about the welfare of his grandchildren.

Key moments of XMRV controversy at ME/CFS State of the Knowledge Workshop
Tuesday 12 April 2011: YouTube highlights of statements, debates, Q&As, presentations from the XMRV & Contamination segment of the NIH's 'chronic fatigue syndrome' (ME/CFS) State of the Knowledge workshop held in Bethesda, Maryland, April 7&8.

At NIH CFS conference, XMRV debate heats up
Tuesday 12 April 2011: Scientific conferences can sometimes be boring events, filled with talks that run over the allotted time, text-dense slides and debate that is so civil it is often hard to tell there is disagreement. But that’s not the case when the topic of the virus XMRV is on the table.

Find A Carer
Monday 11 April 2011: Find A Carer is a website that enables those in need of care in Australia to find a carer anywhere.

Mum refused food aid under tough new rules
Monday 11 April 2011: A New Zealand solo mother has been refused a food grant to feed her children because of tight new rules for hardship payments.

Chronic Fatigue Syndrome: lives interrupted
Sunday 10 April 2011: White House Chronicle columnist Llewellyn King has written an article about the lives of many with ME/CFS.

Fibromyalgia researcher reveals secrets of a painful mystery
Sunday 10 April 2011: A profile of Fibromyalgia specialist Dr. Jon Russell, a Union College alum living in Texas who spent his career tilting against a malady many colleagues regarded like windmills.

A healthy passion
Saturday 9 April 2011: Canadian artist Sarah Lacy, who has chronic fatigue syndrome, uses her art as a positive force in her life.

A Fibromyalgia doctor steps out: an interview with Dr. Dantini
Saturday 9 April 2011: An interview with Fobromyalgia specialist Daniel C. Dantini, M.D..

Study of CFS probes for XMRV in central nervous system
Friday 8 April 2011: There has been substantial mystery surrounding the origins of Chronic Fatigue Syndrome (CFS), a condition affecting as many as four million Americans and marked by symptoms that include a sense of weariness that sleep does not improve and difficulty with memory and concentration.

US singer Tony Terry talks about Fibromyalgia
Thursday 7 April 2011: The Fox network's MyFox Houston has a video (with accompanying text) featuring US singer Tony Terry who talks about how both he and his wife struggle with Fibromyalgia.

TV funnygirl reveals the astonishing inspiration behind her career
Wednesday 6 April 2011: Kirsty Strain is getting used to being laughed at. As one of the stars of BBC Scotland comedy show Burnistoun, the actress and model is usually on the end of a punchline.

The Long Road: CFS novel author returns to 'health'
Tuesday 5 April 2011: Caroline Anderson's gripping novel "A Chronic Fatigue Syndrome Novel" portrays a small community's fight for health (and justice) in the face of a mysterious disorder.

An etiological model for ME/CFS
Tuesday 5 April 2011: Research results from the journal Neuroscience & Medicine.

U.S. Fibromyalgia patients currently taking an approved therapy are more likely to...
Monday 4 April 2011: Approximately 40% of surveyed patients taking an approved therapy indicate they are “very unlikely” to ask their doctor to switch their therapy in the next year, compared with more than half of surveyed patients taking an off-label treatment.

The MusicWorks
Sunday 3 April 2011: The MusicWorks – aka The Dynamic Day Gig – is a monthly event held at the Governor Hindmarsh Hotel. It's organised by and for people with disabilities.

An open letter to Tony Abbott
Saturday 2 April 2011: Federal Opposition Leader Tony Abbott has proposed changes to laws regarding Australia's welfare recipients. Stella Young has written an open letter to Mr. Abbott.

B.C. announces $2 million to study fibromyalgia, Lyme disease, chronic fatigue
Friday 1 April 2011: Health officials in British Columbia announced $2 million for a study and new centre that will focus on screening, diagnoses and treatment of patients with fibromyalgia, Lyme disease and chronic fatigue syndrome.


Wig and robe to polka-dot bikini
Thursday 31 March 2011: A profile of surfer Marguerite Vujcich.

Atmosphere of concern
Wednesday 30 March 2011: An article about Rebekah Sheffield and her health troubles living in the US town of Dish.

How to decontaminate new clothing and fabrics
Tuesday 29 March 2011: Most new clothing and fabrics are permeated with toxic chemicals during manufacturing, which can be a real problem for people with Multiple Chemical Sensitivity. Ellen from Toronto, Canada, shares her decontamination protocol.

Putting exercise through its paces
Monday 28 March 2011: A new study has rekindled controversy over the treatment of chronic fatigue syndrome.

Ethnic minorities are 'silent sufferers' of chronic fatigue syndrome
Sunday 27 March 2011: New research published by BioMed Central's open access journal BMC Medicine shows that ethnicity, depression, lack of exercise or social support, and social difficulties are major risk factors for CFS.

New translational research reveals a useful model
Sunday 27 March 2011: Rubbing or massaging is often an instinctive response to pain. Now researchers have found that another kind of touch, vibration, can also help reduce certain types of pain by more than 40 percent.

Vibration helps reduces pain in chronic sufferers
Saturday 26 March 2011: Rubbing or massaging is often an instinctive response to pain. Now researchers have found that another kind of touch, vibration, can also help reduce certain types of pain by more than 40 percent.

Wirral girl defies ME illness to set sponsored walk challenge
Saturday 26 March 2011: A teenager who was diagnosed with ME at the age of 13 is to set aside her illness and take on a mountain-walking challenge.

ME/CFS Australian Patient Advocacy Network
Friday 25 March 2011: Victorian ME/CFS patient advocates Megan Poad and Sheila Ginnity have set up a new network.

The Sunday Sun apologises to readers
Friday 25 March 2011: UK newspaper The Sunday Sun has apologised to readers for an error it made in an article about hairdresser Barry Darby.

Jaw joint disorders likely coexist with other conditions
Friday 25 March 2011: Temporomandibular joint and muscles disorders are likely to coexist with any of many other conditions and are treated with a variety of measures, according to a new study by researchers at the Medical College of Wisconsin.

Sick and tired of being called lazy, chronic fatigue sufferers fight back
Thursday 24 March 2011: A serious health condition takes a physical, psychological and even financial toll on anyone. But those who have been diagnosed with chronic fatigue syndrome face an additional challenge: convincing the world the disorder exists.

Unlocking Chronic Fatigue Syndrome
Thursday 24 March 2011: As scientists race to find a biological cause for chronic fatigue syndrome, long considered by many doctors to exist in patients' heads, the National Institutes of Health could shed new light on the debate at a major scientific workshop on the disorder.

XMRV, CFS, and a fuller picture of their dubious connections
Wednesday 23 March 2011: A story about the danger of putting too much stock in one study and forgetting that scientific knowledge is hard won, proven over time, and borne out through many, many studies – not just one.

Relationship between gene variant and Fibromyalgia
Wednesday 23 March 2011: Research results published in The Journal of Rheumatology.

Xyrem not recommended for Fibromyalgia in Europe
Tuesday 22 March 2011: UCB announced today that the Committee for Medicinal Products for Human Use (CHMP) of the European Medicines Agency (EMA) informed UCB that Xyrem® (sodium oxybate) will not be recommended as a treatment for fibromyalgia syndrome in adults.

Cause for concern
Tuesday 22 March 2011: An editorial from Nature magazine about the current XMRV debate.

Organizations announce Coalition 4 ME/CFS
Monday 21 March 2011: NeuroEndocrineImmune Disease (NEIDs) organizations have formed the first US coalition to serve their patient community and change public policy.

Straight talk from Dr. Montoya: the Stanford Hospital CFS lecture
Monday 21 March 2011: A report from Cort Johnson about Dr Jose Montoya's recent talk at Stanford University.

Low carnitine level linked to CFS symptoms
Sunday 20 March 2011: A study recently published in the Journal of Internal Medicine suggests that low levels of carnitine may be linked to symptom severity in chronic fatigue syndrome.

Validation of new symptom-based Fibromyalgia criteria for IBS co-morbidity studies
Sunday 20 March 2011: The results of a study to determine the diagnostic validity of new symptom-based criteria in patients with FMS and/or IBS using the American College of Rheumatology (ACR) criteria as a gold standard

Fighting fatigue is a constant battle for cricketer
Saturday 19 March 2011: A profile of West Australian cricketer Alex Malcolm.

Handhelds help FM patients pinpoint symptom drivers & results
Saturday 19 March 2011: PDAs allow immediate, portable, detailed charting of time-associations between symptoms, energy, and emotional status.

Mother describes son's anguish with ME
Friday 18 March 2011: Diana Newcombe's 20-year-old son Oliver went from being a fit and active student to becoming bed-bound and unable to speak after having the flu in 2009.

Man with controversial illness can get benefits
Friday 18 March 2011: Honda must award long-term disability payments to a 47-year-old man suffering from extreme Chronic Fatigue Syndrome, the 9th Circuit ruled, finding that the insurance company's denial of those benefits was "implausible" and "illogical."

Fighting for a cause
Thursday 17 March 2011: When Judy Mikovits found links between chronic fatigue syndrome and a virus, the world took notice. Now, she's caught between the patients who believe her work and the researchers who don't.

Illness sees Barry Darby cut career short Thursday 17 March 2011
Thursday 17 March 2011: He is a cut above the rest when it comes to trimming celebrity barnets ... but due to ME/CFS, barber Barry Darby has hung up his scissors for the last time.

Video of Dr Jose Montoya speaking on CFS at Stanford University
Wednesday 16 March 2011: Dr Jose Montoya is seen discussing CFS and current research on diagnosis and treatment at a conference held at Stanford University’s alumni centre in California on 3 March 2011.

What I'm really thinking: The woman with ME
Wednesday 16 March 2011: Twenty years coping with the symptoms of ME is bad enough, but 20 years of coping with people's reactions to it adds insult to injury in the most literal sense.

Improvement in Fibromyalgia pain scale quantified
Tuesday 15 March 2011: A two-point improvement on the Brief Pain Inventory represents the minimum clinically important difference for patients with fibromyalgia pain, corresponding to a 30 to 35 percent improvement from baseline, according to a study published online Feb. 10 in Arthritis Care & Research.

Amid war on a mystery disease, patients clash with scientists
Monday 14 March 2011: There is a gaping divide between many Chronic Fatigue Syndrome patients and scientists studying the disease.

Get some sleep: Fibromyalgia raises restless leg risk
Monday 14 March 2011: A study showed that the prevalence of Restles Leg Syndrome was approximately 10 times higher in participants with Fibromyalgia than in the group of control subjects.

Fibromyalgia sufferers search for answers
Sunday 13 March 2011: Gaa Holdiman had some information to share and wondered what knowledge others had about her misunderstood condition.

Putting a face on Fibromyalgia
Sunday 13 March 2011: Glenda Smith, of Mt. Mesa, was diagnosed with fibromyalgia in 1989 at the age of 42. Since then she has had to contend with excruciating pain on a nearly daily basis.

PACE trial aftermath: ME Association writes to the Science Media Centre
Saturday 12 March 2011: The ME Association has a number of concerns about the way in which the Science Media Centre is dealing with the subject of ME/CFS and presenting it to the media.

XMRV and the blood supply: more study needed
Saturday 12 March 2011: In the ongoing effort to understand XMRV and related retroviruses, a key concern has been assessing whether a risk exists to the nation’s blood supply.

Mitochondria, not hypochondria
Friday 11 March 2011: University of Hull Professor of Psychology Rhona Johnston argues against the widespread belief that ME/chronic fatigue is a psychological condition.

Underfunding of Fibromyalgia and Chronic Fatigue Syndrome research
Friday 11 March 2011: The medical community has been aware of fibromyalgia (FMS) and chronic fatigue syndrome (ME/CFS) for decades, but we have incredibly few answers.

Fresh doubts about connection between mouse virus and human disease
Thursday 10 March 2011: A new finding presented at a conference here last week throws cold water on the impassioned debate about the link between a novel mouse retrovirus and prostate cancer and chronic fatigue syndrome in humans.

Artist pushes through the fog
Thursday 10 March 2011: Painting is not just a hobby for artist Patricia Hill. For her, it’s therapy.

Defining an illness is fodder for debate
Wednesday 9 March 2011: An article from The New York Times.

Clinical Investigators Conference: Ampligen clinical trials highlighted
Wednesday 9 March 2011: A press release from Hemispherx Biopharma.

An illness that's hard to live with – or define
Tuesday 8 March 2011: An article in The Wall Street Journal by Leonard A. Jason who discovered just how mysterious and frustrating ME/CFS is.

CFS still misunderstood and ignored
Tuesday 8 March 2011: Belgian medical journalist Marc Van Impe reports on the continued misrepresentation of chronic fatigue syndrome as a psychosomatic condition, despite ample evidence of multiple physiological abnormalities, and the persecution of physicians genuinely trying to help patients with biomedical treatments based on years of scientific research.

The puzzle of chronic fatigue
Monday 7 March 2011: For 20 years, a doctor in upstate New York has been trying to prove that an outbreak of the strange syndrome in his community was caused by a virus. Now new evidence is reopening the case.

Troubles of Chronic Fatigue Syndrome start with defining it
Monday 7 March 2011: A new study of chronic fatigue syndrome has highlighted how competing case definitions can lead to an epidemiologic “Rashomon” — what you see depends on who’s doing the looking — and has stoked a fierce debate among researchers and patient advocates on both sides of the Atlantic.

Two companies jointly file patent application for a CFS blood test
Sunday 6 March 2011: Chronix Biomedical ("Chronix") announced today that it filed a provisional United States patent application jointly with Hemispherx Biopharma, Inc. (NYSE Amex:HEB) ("Hemispherx") on a blood test for Chronic Fatigue Syndrome ("CFS").

Craig confident chronic fatigue is behind him
Sunday 6 March 2011: A profile of New Zealand cricketer Mark Craig.

Role model Stacey
Saturday 5 March 2011: As a young girl Amy Stacey struggled with the demands of being a young carer and coping with school life. Since then she has been determined to raise awareness of the role in schools by producing a DVD.

Dealing with dismissive attitude towards Fibromyalgia and CFS
Saturday 5 March 2011: Adrienne Dellwo discusses an unhelpfully common problem for many people with ME/CFS/Fibromyalgia.

ME/CFS Australia response to PACE Trial findings
Friday 4 March 2011: ME/CFS Australia has published a response to the PACE Trial findings.

Chronic Fatigue Syndrome and psychotherapy
Friday 4 March 2011: The Huffington Post has an op-ed piece by John Falk about his life with CFS.

Study: Chronic Fatigue Syndrome is actual disease
Thursday 3 March 2011: Fox News reports on the recent discovery of unique proteins in the spinal fluid of people with ME/CFS.

Minister Hames denies home help for bed-ridden Theda
Thursday 3 March 2011: Largely bedridden for the past 10 years due to the effects of myalgic encephalomyelitis, or ME – better known as chronic fatigue syndrome – Theda Myint and her family have battled the medical establishment, bureaucrats and politicians firstly to get her condition recognised, then to try to get treatment.

Riverland Disability & Ageing Expo 2011
Wednesday 2 March 2011: South Australia's Disability Information and Resource Centre presents the Riverland Disability & Ageing Expo 2011 which will be held on Friday 11 March.

Chronic pain sufferers push for treatment
Wednesday 2 March 2011: An article from Canadian newspaper The Sarnia Observer that focuses on Carol Huxley and her struggles with Fibromyalgia.

Publication of original Adelaide CFS MRI study
Tuesday 1 March 2011: An MRI study which detected brainstem dysfunction and altered homeostasis in people with CFS is about to be published in the medical journal NMR in Biomedicine.

Criticism of the PACE Trial results
Tuesday 1 March 2011: Criticism of the PACE Trial results has been mounting.


BBC Panorama documentary about Lynn Gilderdale wins award
Monday 28 February 2011: Yeovil-based media company GRACE Productions has won the prestigious Broadcast TV prize at the Medical Journalists’ Association Winter Awards 2011, for a documentary the company made for BBC Panorama.

Local problems for citizens with ME/CFS/Fibromyalgia
Monday 28 February 2011: A disabled woman has called for roadworks in Bicester town centre to be made more pedestrian friendly. And a Newmains mum-of-three has hit out at North Lanarkshire Council – after her car was severely damaged by a pothole.

The pleasant truths about pain
Sunday 27 February 2011: Chronic pain makes life hell for almost 30 million Americans. Cures are elusive, but in the meantime, emotions, expectations—and even sex—may help soothe the ache.

The Music Works
Sunday 27 February 2011: The Music Works – aka The Dynamic Day Gig – is a monthly event held at the Governor Hindmarsh Hotel. It's organised by and for people with disabilities.

Research breaks CFS stereotypes
Saturday 26 February 2011: Following on from yesterday's news item about unique proteins found in spinal fluid, CBS Evening News with Katie Couric featured a story on CFS.

Proteins in spinal fluid
Friday 25 February 2011: The University of Medicine & Dentistry of New Jersey has published the results of research involving unique proteins found in spinal fluid.

Study shows XMRV can cause ‘persistent infection’ in monkeys
Thursday 24 February 2011: The debate over what XMRV may do to humans continues. But at least in a small group of monkeys, one thing is clear, according to a new study.

A survey on living with invalidation of Fibromyalgia
Wednesday 23 February 2011: Caroline Kenny, a psychologist in clinical training at the National University of Ireland, Galway, has launched an international online survey to investigate how much Fibromyalgia is treated with disbelief.

Physical rehab survey: initial results
Tuesday 22 February 2011: Preliminary analysis of Action for M.E.’s survey of people with M.E. who have tried graded exercise therapy (GET), graded activity therapy (GAT) and/or exercise on prescription indicate that patients are still experiencing adverse affects as a result of trying GET in particular.

Press coverage and responses to The Lancet PACE article
Monday 21 February 2011: The PACE study results published in The Lancet has resulted in major press coverage, along with strong responses.

Rapper hopes to raise awareness of CFS
Sunday 20 February 2011: Manuals of treatments used in the PACE trial have now been published online.

PACE treatment manuals published online
Saturday 19 February 2011: Manuals of treatments used in the PACE trial have now been published online.

May 2011 proclaimed MCS Awareness Month in Washington State
Friday 18 February 2011: Washington State Governor Christine O. Gregoire urges all citizens to join her in observing May 2011 as Multiple Chemical Sensitivity Awareness Month.

Unity, disagreement, and respect
Thursday 17 February 2011: An opinion piece by Mary Schweitzer.

Moderate exercise increases expression...
Wednesday 16 February 2011: Research results that show moderate exercise increases expression for sensory, adrenergic and immune genes in chronic fatigue syndrome patients, but not in normal subjects.

Travelling with a disability
Tuesday 15 February 2011: Two websites have a wealth of information to assist people with disabilities who want to travel with a minimum of problems.

Becoming visible in Vermont: "Invisible" an ME/CFS film
Monday 14 February 2011: What is ME/CFS in Vermont like? The documentary Invisible suggests that it’s much like it is in the rest of US.

Optimism grows for treatment of fatigue disorder
Sunday 13 February 2011: No one could tell Karen LeVier why she was not shaking the flu until she was finally diagnosed wih CFS.

Increased capsaicin-induced secondary hyperalgesia in patients with MCS
Saturday 12 February 2011: Research results focusing on capsaicin.

Myra McClure and NIH's SEP
Friday 11 February 2011: Mary Schweitzer comments on the NIHs' appointment of the UK's Dr Myra McClure to the CFS Special Emphasis Panel requested by Congress to evaluate proposals for grant money from NIH concerning CFS.

An author escapes from Chronic Fatigue Syndrome
Thursday 10 February 2011: The New York Times recently spoke with Ms. Hillenbrand about her latest book and why she is speaking out about the challenges of life with CFS.

Five celebrities with Fibromyalgia
Wednesday 9 February 2011: Five celebrities with Fibromyalgia.

Life's grand plan
Tuesday 8 February 2011: Overcoming a chronic fatigue illness made the son of a club legend reconsider where football fitted in.

Seven conditions often mistaken for Fibromyalgia
Monday 7 February 2011: If you talk with a room full of fibromyalgia patients, you're likely to hear quite a few stories describing years of uncertainty prior to finally receiving a fibromyalgia diagnosis.

Transcript of UK Parliamentary debate on ME research
Sunday 6 February 2011: The transcript of a recent UK Parliamentary debate on ME research.

UK Parliamentary question: plans for ME research
Saturday 5 February 2011: Mike Weatherley, Conservative MP for Hove, tabled a written question in the UK Parliament about ME research.

New Facebook page for youth with ME/CFS
Friday 4 February 2011: ME/CFS Australia (Victoria) has created YOUth and ME (CFS), a Facebook page for young people with ME/CFS to share their experiences.

Detection of potential markers of Fibromyalgia in saliva
Thursday 3 February 2011: The results of a study that carried out a proteomic analysis of the whole saliva of FM patients in order to evaluate salivary biomarkers.

ME research news item on British TV today
Wednesday 2 February 2011: To coincide with the MPs’ debate on ME research in Westminster Hall tomorrow afternoon and the Medical Research Council’s £1.5 announcement last week, there will be items on BBC Look North (North East and Cumbria) and ITV Tyne Tees’ North East Tonight news.

Pacing for special events: slaying the dragon of post-exertional malaise
Wednesday 2 February 2011: Pacing is a challenge during normal times, but can be especially difficult for non-routine events, which include vacations, holiday celebrations, moving and remodeling, having dinner guests or houseguests or even, for some people, leaving the house for a doctor's appointment.

Flying the unfriendly skies
Tuesday 1 February 2011: Stricter security procedures at US airports have met with a public outcry and calls to reevaluate the way planes are kept safe.


Poll: Sensitivities in Fibromyalgia & CFS
Monday 31 January 2011: A key component of fibromyalgia and chronic fatigue syndrome, according to many researchers, is central sensitization.

The Music Works
Sunday 30 January 2011: The Music Works – aka The Dynamic Day Gig – is a monthly event held at the Governor Hindmarsh Hotel. It's organised by and for people with disabilities.

MRC invests £1.5m to encourage further CFS/ME research
Saturday 29 January 2011: The Medical Research Council (MRC) is committing £1.5m for research into the causes of CFS/ME.

Invest in ME Conference 2011
Friday 28 January 2011: Registration opened this week for the 6th international Invest in ME conference at One Birdcage Walk, home of the Institute of Mechanical Engineers, in central London, on Friday, 20 May 2011.

Blue Telescope wins event design award
Thursday 27 January 2011: US company Blue Telescope has been given an award for an interactive device that can educate physicians about the diagnosis of fibromyalgia.

Workplace bullying, stress, and Fibromyalgia
Wednesday 26 January 2011: Article author David Yamada has had conversations with three women who have been diagnosed with Fibromyalgia, and each has experienced severe bullying and heavy-duty stress at work.

Oxytocin may offer benefits in treatment of chronic pain
Tuesday 25 January 2011: There is now research evidence that the hormone oxytocin has a valuable role to play in healing fibromylgia in addition to other maladies.

Physician attitudes about Fibromyalgia
Monday 24 January 2011: A published report outlines many reasons doctors give to justify why they view Fibromyalgia in such a poor light.

An unbiased metagenomic search for infectious agents
Sunday 23 January 2011: Research results published in PubMed.

Handgrip strength test as a complementary tool in the assessment of Fibromyalgia severity in women
Saturday 22 January 2011: The results of a test to determine the ability of handgrip strength test to discriminate between presence and absence of fibromyalgia (FM) and FM severity in women.

Environmental illness on the rise
Friday 21 January 2011: Canada's Nova Scotia Environmental Health Centre is seeing more patients than ever.

Plasma neuropeptide Y: a biomarker for symptom severity in CFS
Thursday 20 January 2011: Athena Champneys is no stranger to questions about fibromyalgia, the illness that leaves her feeling wiped out and in pain.

Women living with Fibromyalgia may top number with diabetes
Wednesday 19 January 2011: Athena Champneys is no stranger to questions about fibromyalgia, the illness that leaves her feeling wiped out and in pain.

Michael Crawford on his return to the stage
Tuesday 18 January 2011: Actor Michael Crawford has written an article in the UK's Daily Mail about his return to the stage after being diagnosed with ME/CFS.

Study probes obesity link to Fibromyalgia
Monday 17 January 2011: A new study in The Journal of Pain reports there is close association between obesity and disability in fibromyalgia patients.

Planning a successful hospital stay or surgery
Sunday 16 January 2011: Information from MCS America that provides an overview of precautions that vulnerable people – especially those with chemical sensitivities – can take to avoid unnecessary harm during visits to a hospital or ER.

Wellcome Trust researchers respond to criticism of their XMRV virus conclusions
Saturday 15 January 2011: Scicasts published the story "Chronic Fatigue Syndrome Not Caused By XMRV Virus", reporting the Wellcome Trust's research which stated that XMRV virus – previously thought to be associated with chronic fatigue syndrome – is not the cause of the disease.

Study examined the benefit of coping with MCS
Friday 14 January 2011: Swedish scientists published results of a study that examined the use of coping strategies (strategies for coping with the disease) in people with chemical intolerance and the social support they receive.

The pain suffered by Fibromyalgia patients
Thursday 13 January 2011: A survey unearths findings on the burden of chronic pain in fibromyalgia patients.

Alison Johnson speaks at the NIEHS
Wednesday 12 January 2011: Alison Johnson, who has dedicated her life's work to bringing about full recognition of Multiple Chemical Sensitivity, gave a talk to officials at the National Institute of Environmental Health Sciences.

New 2011 calendar available for download
Tuesday 11 January 2011: A new CFS calendar for 2011 with cartoons by Hans-Michael Sobetzko are now available for download.

A drug for ME/CFS? The Rituximab story
Tuesday 11 January 2011: Cort Johnson reports on a drug that could possibly be used for ME/CFS.

Doctor is allowed to practise medicine again
Monday 10 January 2011: Dr Sarah Myhill has been told she is allowed to practise medicine again.

Diagnostic accuracy of symptoms characterising CFS
Monday 10 January 2011: The results of a study to determine the diagnostic accuracy for single symptoms and clusters of symptoms to distinguish between individuals with and without CFS.

Overview of Australian ME/CFS Science Conference
Sunday 9 January 2011: Dr Rosamund Vallings, a New Zealand GP who specialises in ME/CFS, has filed a two-part report on the International Science Symposium for ME/CFS held in Queensland in December 2010.

IACFS/ME challenges to Dr Unger
Saturday 8 January 2011: Elizabeth Unger has just been appointed Chief of the CFS research program at CDC.

Adjusting to MCS
Friday 7 January 2011: A video by Jasmine Walton.

The lingering mystery of CFS
Thursday 6 January 2011: An article from The New York Times discussing recent research results in Science Times.

Writing is good medicine
Wednesday 5 January 2011: Recent research shows that the simple act of writing down thoughts and feelings can help people with chronic illness improve their health.

Not all fatigue is the same
Tuesday 4 January 2011: The Newcastle NHS Chronic Fatigue Syndrome Service reports that not all fatigue is the same.

Q&A with Laura Hillenbrand
Monday 3 January 2011: Sports Illustrated magazine has a Q&A with author Laura Hillenbrand.

MCS News Australia moves to a new home
Sunday 2 January 2011: MCS News Australia has a new website.

Happy New Year
Saturday 1 January 2011: All of us here at ME/CFS Australia (SA) Inc wish you a Happy New Year.

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