ME/CFS South Australia Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.
ME/CFS South Australia Inc aims to keep members informed of various research projects, diets, medications, therapies, news items, etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.
Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.
New online survey on children with Fibromyalgia: participants wanted
Tuesday 5 January 2010
NFA Survey on Children with Fibromyalgia
The National Fibromyalgia Association (NFA) is conducting an online survey to gather important information on children with fibromyalgia symptoms (‘juvenile fibromyalgia’).
The purpose of the survey is to collect data that will:
• Help researchers and others to better understand the nature of FM in children,
• Generate information regarding treatment effectiveness and the impact FM has on children’s lives,
• And help the NFA develop ways to improve the quality of life for juvenile FM patients.
Resulting data will cover demographic and familial factors, symptoms, facts surrounding healthcare professionals consulted and diagnosis, comorbid conditions, effects of drugs & other therapies tried, willingness to participate in clinical trials, and more.
If you are a parent or guardian of a child with FM symptoms, the NFA asks that you take a few minutes to fill out their online survey. Or if you know of any parents/guardians of children affected by FM, please direct them to the survey.
TO COMPLETE THE SURVEY ONLINE, click here
The above originally appeared here.
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