ME/CFS South Australia Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.
ME/CFS South Australia Inc aims to keep members informed of various research projects, diets, medications, therapies, news items, etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.
Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.
ME/CFS Knowledge Center
Sunday 9 August 2009
The ME/CFS Knowledge Center is a new website that, in the words of its creators, focuses on "ways to help ME/CFS sufferers, as well as to increase knowledge of the illness among medical practitioners."
The project originated from conversations between an enlightened doctor and a ME/CFS sufferer in the summer of 2008.
The two were Dr. Herbert Hyman, M.D. a retired physician and authority on the disease, and Dan Moricoli, who has been afflicted with ME/CFS since May, 2006.
The discussions between the two men initially focused on ways to help ME/CFS sufferers, as well as to increase knowledge of the illness among medical practitioners, in their immediate South Florida area.
Their discussions quickly expanded to include Marla Silverman, a sufferer of ME/CFS for over 11 years and founder of a neuroendocrine immune disorder advocacy organization named P.A.N.D.O.R.A. (www.pandoranet.info).
Also joining the group was Dr. Kenneth Friedman, a professor at the New Jersey School of Medicine. Dr. Friedman is not only an expert on the disease but has a daughter who is severely afflicted with the condition.
The group quickly realized that while their initial attention was focused on ME/CFS patients in South Florida, their efforts could easily evolve to serve ME/CFS sufferers throughout the United States and the rest of the world via a user-collaborative web site.
Accordingly, the website ME-CFSKnowledgeCenter.com was registered and the first tentative steps taken towards the development of their vision of a patient-oriented, user-collaborative, Internet presence which would directly serve those afflicted with the disease in their daily lives.
cfsKnowledgeCenter, Inc. was formally established as a Florida Not for Profit corporation in September, 2008. Application to the IRS has been submitted for 503(c) non-profit tax status.
However expansive our dreams for the future, we start with limited time and resources.
We hope you share our vision and invite you to join our ME-CFSCommunity.
To the extent that you are able, we hope, too, that you will consider donating a bit of your time and a few of your dollars to help us along our path. For more specific information about how you can help, please refer to Help Us Help YOU.
The website can be found here.
The organisation adds:
Please also be advised that our ME-CFSCommunity http://cfsknowledgecenter.ning.com/ website maintains a video http://cfsknowledgecenter.ning.com/page/video-chat chat room, among a number of communication vehicles, to allow ME/CFS sufferers from around the world to speak directly with on another in real time.
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