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ME/CFS AUSTRALIA (SA) INC

Registered Charity 3104

Email:
sacfs@sacfs.asn.au

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ME/CFS Australia (SA) Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.

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Post-polio case misdiagnosed as ME

Saturday 20 June 2009

Sandy and Eric YarrowA woman with post-polio syndrome (PPS) who was misdiagnosed years ago as having ME has taken up the fight to raise awareness of PPS.

Sandy Yarrow (pictured with husband Eric), has joined a campaign by the British Polio Fellowship to highlight the disease.

UK newspaper the Henley Standard has an article about Mrs Yarrow's experiences:

In 1992, she was incorrectly diagnosed with myalgic encephalomyelitis. It was only when she came across an article in the ME Association’s members magazine that she found out about PPS, a condition few GPs know about.

“It was a flash of realisation for me,” said Mrs Yarrow. “I contacted the consultant who wrote the article and he felt that I definitely had PPS and provided me with information to take to my GP.

“At first they wouldn’t believe that my shoulder was hurting and that I had a breathing problem.”

She was referred to a series of specialists until finally in 2001, with her condition having seriousy deteriorated, she saw a respiratory specialist who confirmed PPS.

The full article can be found here.

The National ME/FM Action Network has an article about PPS on its website that discusses similarities and differences between the two diseases.

If you feel there's a chance that you, too, may have PPS instead of ME/CFS/Fibromyalgia, please bear in mind that to have PPS you must have contracted polio at some stage earlier in your life.

 


 

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