ME/CFS Australia (SA) Inc: IiME International ME/CFS Conference report

ME/CFS AUSTRALIA (SA) INC

Registered Charity 698

Email:
sacfs@sacfs.asn.au

Mailing address:
GPO Box 383,
Adelaide,
South Australia 5001

Office:
266 Port Road,
Hindmarsh,
South Australia 5007
Ph: (08) 8346 3237
('834 MECFS')

Office Hours:
Wednesdays, 10am-3pm

Support Line:
(Mondays and Thursdays,
10am-3pm)
Ph: (08) 8346 3237

SA country callers:
Ph: 1300 128 339
(local call)

FIBROMYALGIA HELP:
Contact
Fibromyalgia SA
at the
Arthritis Foundation of SA
118 Richmond Road,
Marleston 5033
Ph: (08) 8379 5711

ME/CFS Australia (SA) Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.

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Information and Support 2004 is an online appeal that aims to improve our Information and Support Line.

ME/CFS Australia (SA) Inc aims to keep members informed of the various research projects, diets, medications, therapies etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.

Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.

IiME International ME/CFS Conference report

Thursday 4 June 2009

A contributor to ProHealth who goes by the name of "consuegra" has posted a report of the 4th International ME/CFS Conference held on 29 May 2009 in London:

I am the Patient Advocate for my thirty-five year old daughter. I travel to conferences to observe what is going on in the field. This is not a scientific report. It is a record of my impressions, as limited as they may be. They are presented to give some impression of this conference to those who were not able to attend, particularly patients and patient advocates. I apologize ahead of time for my own biases and editorializing. A DVD will be released of the conference in July and can be purchase for 12 pounds.

This was the third consecutive year that I have attended this conference. It takes place in a beautiful old building on the southeast corner of Green Park. In many ways I could just reprint my report from last year. One positive note was that there were more participants at the conference. Each year it has gotten larger, and this year it was sold out. The government ministers, who were supposed to attend, were “tied up” and couldn’t make it. The conference resolved to send them a DVD of the lectures, urging them to consider these research and treatment efforts for CFS/ME.

You can read the full report here.