ME/CFS AUSTRALIA (SA) INC
Registered Charity 698
PO Box 28,
South Australia 5007
Closed while relocating
1300 128 339
ME/CFS Australia (SA) Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.
ME/CFS Australia (SA) Inc aims to keep members informed of the various research projects, diets, medications, therapies etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.
Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.
Responses to the NICE Guidelines legal ruling
Monday 16 March 2009
Invest in ME offers this editorial:
“Though NICE, with their well-paid lawyers and establishment machine behind them, have won the Judicial Review brought against them by ME patients this is a pyrrhic victory.
The fact that yet another group of patients have forced NICE to have to defend its policies and guidelines – guidelines meant to make the lives of those same patients better – shows how flawed the NICE organisation is and how little trust patients have in its approach and its conclusions.”
The rest of the editorial can be found here:
And Scotland's The Herald begins its report on the decision with this:
“Charities have condemned a court decision to throw out a bid by two ME sufferers to change guidance given to NHS doctors on treating the condition.
Douglas Fraser, a former violinist for the Scottish Philharmonic Orchestra, and Kevin Short, an engineer from Norfolk, argued that the guideline issued by Nice, the England and Wales NHS spending watchdog, unlawfully restricted the range of treatments available.
They claimed that decisions made by Nice were biased, or appeared to be biased, and that this was a view "shared across the ME community".”
The full article can be found here:
However, probably the most balanced and least sensational reporting of the decision comes from the BBC which shows an admirable lack of bias in such an emotive case:
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