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Phoenix Rising – ‘Cracking the Foundations’ edition

Friday 27 February 2009

CFS Phoenix Phoenix Rising is an informative newsletter put out monthly by American CFS sufferer Cort Johnson on his website CFS Phoenix.

You can subscribe to the newsletter as well as download each issue.

The latest from Cort is the ‘Cracking the Foundations’ edition:

Phoenix Rising: ‘Cracking the Foundations’ edition

Here’s Cort’s introduction:

Welcome to 'Cracking the Foundations' a special edition of Phoenix Rising . If you read one edition of Phoenix Rising all year I suggest that you read this one. How might the Lab 'crack' the foundations of this disease? By obliterating the idea that ME/CFS is an obscure difficult to understand disease that's not amenable to analysis using our current techniques.

The Pacific Fatigue Lab is doing this by using ordinary, well-accepted medical tests (done slightly differently) to demonstrate unique abnormalities in ME/CFS patients. Every doctor is familiar with these tests, every hospital has the equipment. If their work holds up it will be an astounding achievement - possibly even a new dawn for this disease's sufferers. Are there 'ifs', and 'buts'? Yes, there are - there always are - but the possibilities are great.

If you think the work is valuable please drop the University of the Pacifc administrators a short e-mail thanking them for their support - a very rare thing in academia. Their e-mail addresses are supplied in the newsletter.

Check 'Cracking the Foundations' out at http://aboutmecfs.org/News/PRJan09Pacific.aspx. There's also a link to a PDF file on the page; simply click it and you can download a clean copy of the newsletter. It's a new home for Phoenix Rising and a new website - still tweaky - but mostly functioning. The website will continue to change over the forseeable future as new features are added.

Last month I asked for people with database experience and the results exceeded my expectations. (Thank you AK!). Phoenix Rising will, by hook or crook, attain non-profit status this year. If anyone with experience at that can provide some tips I would love to hear from them. (phoenixcfs@gmail.com)

Next up - a two part interview with Dr. Friedberg on treating ME/CFS.

Yours truly,

--
Cort Johnson

Phoenix Rising - An ME/CFS Website at Phoenix-cfs.org

 


 

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Phoenix Rising in the news:

14/09/09: The Conference Edition III
22/07/09: A remarkable story of recovery
29/05/09: March 2009 Edition
17/01/09: December 2008 Edition
15/12/08: The News Edition
17/10/08: The Cortisol Edition
15/09/08: Interview with Dr Ken Friedman Part III
10/09/08: Treating Orthostatic Intolerance
25/08/08: Congressional Briefing etc
15/08/08: The Symposium on Viruses in CFS
06/07/08: Interview with Dr Ken Friedman Part II
18/06/08: Nancy Klimas on the Immune System, Treatment and the Future
24/05/08: Interview with Tom Hennessy
08/05/08: The Advocacy Month Part II
25/04/08: Interview with Dr Ken Friedman
16/04/08: February 2008
26/03/08: Interview with Martha Kilcoyne
12/03/08: January 2008
29/01/08: End of year ‘Story Edition’
22/12/07: 2006 Year in Review
27/11/07: Interview with Dr Suzanne Vernon
02/11/07: Interview with Rik Carlson
15/10/07: The Autonomic Nervous System Edition
25/09/07: The CDC Prevalence Definition Edition
07/07/07: First Advocacy Edition
07/06/07: March/April 2007 issue
21/04/07: Special Edition: Pat Fero interview
10/04/07: January/February 2007 issue
08/03/07: Special Edition: IACFS Conference report, part 2
30/01/07: Special Edition: IACFS Conference
19/01/07: January 2007 edition
05/01/07: The IACFS Conference Edition
14/12/06: Special Edition: Dorothy Wall interview
05/12/06: October 2006 newsletter
25/10/06: September 2006 newsletter
04/10/06: August 2006 newsletter
26/07/06: June 2006 newsletter
16/06/06: May 2006 newsletter
02/06/06: March & April 2006 newsletters
28/03/06: January & February 2006 newsletters
04/02/06: December 2005 newsletter
04/01/06: November 2005 newsletter

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