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Phoenix Rising – ‘Cracking the Foundations’ edition
Friday 27 February 2009
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The latest from Cort is the ‘Cracking the Foundations’ edition:
Here’s Cort’s introduction:
Welcome to 'Cracking the Foundations' a special edition of Phoenix Rising . If you read one edition of Phoenix Rising all year I suggest that you read this one. How might the Lab 'crack' the foundations of this disease? By obliterating the idea that ME/CFS is an obscure difficult to understand disease that's not amenable to analysis using our current techniques.
The Pacific Fatigue Lab is doing this by using ordinary, well-accepted medical tests (done slightly differently) to demonstrate unique abnormalities in ME/CFS patients. Every doctor is familiar with these tests, every hospital has the equipment. If their work holds up it will be an astounding achievement - possibly even a new dawn for this disease's sufferers. Are there 'ifs', and 'buts'? Yes, there are - there always are - but the possibilities are great.
If you think the work is valuable please drop the University of the Pacifc administrators a short e-mail thanking them for their support - a very rare thing in academia. Their e-mail addresses are supplied in the newsletter.
Check 'Cracking the Foundations' out at http://aboutmecfs.org/News/PRJan09Pacific.aspx. There's also a link to a PDF file on the page; simply click it and you can download a clean copy of the newsletter. It's a new home for Phoenix Rising and a new website - still tweaky - but mostly functioning. The website will continue to change over the forseeable future as new features are added.
Last month I asked for people with database experience and the results exceeded my expectations. (Thank you AK!). Phoenix Rising will, by hook or crook, attain non-profit status this year. If anyone with experience at that can provide some tips I would love to hear from them. (firstname.lastname@example.org)
Next up - a two part interview with Dr. Friedberg on treating ME/CFS.
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