ME/CFS AUSTRALIA (SA) INC
Registered Charity 698
PO Box 28,
South Australia 5007
Closed while relocating
1300 128 339
ME/CFS Australia (SA) Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.
ME/CFS Australia (SA) Inc aims to keep members informed of the various research projects, diets, medications, therapies etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.
Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.
NICE Guidelines – update on the legal challenge
Saturday 14 February 2009
The legal challenge to the NICE Guidelines in the UK has been relatively prominent in the press recently.
Scotland’s The Herald reports:
“A former violinist for the Scottish Philharmonic Orchestra launched a High Court battle yesterday to change the 'perverse and irrational' guidance given to doctors who treat ME sufferers.
Douglas Fraser, a former professional concert musician, along with Kevin Short, a university graduate and engineer, want a judicial review of the guidelines given to doctors for the treatment of Myalgic Encephalomyelitis (ME), or chronic fatigue syndrome, which affects an estimated 250,000 people in the UK.
They believe they should focus on medical treatment for the condition as well as the therapies advised by the National Institute for Health and Clinical Excellence (Nice).”
And The Shields Gazette reports:
“SOUTH Tyneside sufferers of a debilitating condition hope a legal challenge will lead to the re-writing of guidance on their treatment.
Medical guidelines on the diagnosis and management of myalgic encephalomyelitis (ME) and chronic fatigue syndrome (CFS) are being challenged in a judicial review at the High Court, in a case due to start today.
The case against the National Institute for Health and Clinical Excellence (Nice) has been brought by ME sufferers Kevin Short, from Norfolk, and Douglas Fraser, from London.
They are set to argue that the guidance fails to offer any significant help to severely affected sufferers, or to acknowledge the range or severity of the physical problems caused by ME.
The judicial review could lead to the existing advice, published in August 2007, being withdrawn.”
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