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ME/CFS AUSTRALIA (SA) INC

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Phoenix Rising – December 2008 edition

Saturday 17 January 2009

CFS Phoenix Phoenix Rising is an informative newsletter put out monthly by American CFS sufferer Cort Johnson on his website CFS Phoenix.

You can subscribe to the newsletter as well as download each issue.

The latest from Cort is the December 2008 edition:

Phoenix Rising: December 2008

Here’s Cort’s introduction:

 

Welcome to the Dec edition of Phoenix Rising. Here we're caught up again in one of the most intriguing and possibly consequential stories in memory: the CFIDS Association of America's accusations that the CDC has essentially been squandering money – lots of money – on dead-end projects on CFS. Now with the full minutes of the federal advisory meeting on CFS present we dive deeper into the controversy and take a quick look at the ups and downs of Dr. Reeves' tenure and ask what happens if he does leave.

As all this was unfolding a group of ME/CFS experts was doing the first external review of the CDC program in ten years and we take a critical look at the report they issued during this rather turbulent period.

http://phoenix-cfs.org/Dec08CDC.html

The next issue on Phoenix Rising, "Cracking the Foundations", will take a look at the possibly groundbreaking work that the Pacific Fatigue Lab is doing. If you read only one issue this year make sure this is the one! This is really exciting stuff.

Redesign. Phoenix Rising has been undergoing a complete redesign over the past 4 or 5 months and shortly (hopefully!) change dramatically in appearance – be prepared for a very different looking website. The website will, over the course of 2009, include many more ways that you can interact with it and it will expand its scope greatly. Forums and blogs, comment sections, treatment assessment sections, possibly a social networking section, and more will be added. It will also move to a different URL.

Your Vision. To some extent the scope of the website depends on what your vision for a website on ME/CFS is and if you're willing to help make that a reality. My experience with websites is that none of it is easy but that virtually anything is doable. I encourage you to think – to even dream a little – about what you'd really like to see in a website and then contact me and we'll see if we can work together to make that happen.

If you have programming experience, in particular experience with asp.net and/or databases and could provide some guidance/help, I would love to hear from you.

Any Apology! If you received a request to join Facebook from me I apologize. I recently opened up a Facebook account for Phoenix Rising. One of the services they offer is the opportunity to scan your address book for other Facebook members and invite them to join your Facebook account. They ended up inviting a few people already on Facebook and a lot of people not on Facebook. Your e-mail addresses are only used to convey information on ME/CFS; they are not used to promote products! I apologize if you received a request from me to join Facebook.

Yours truly,

Cort Johnson

Phoenix Rising – An ME/CFS Website at Phoenix-cfs.org

 

You can also subscribe to the newsletter as well as download each issue.

 


 

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Phoenix Rising in the news:

14/09/09: The Conference Edition III
22/07/09: A remarkable story of recovery
29/05/09: March 2009 Edition
17/01/09: December 2008 Edition
15/12/08: The News Edition
17/10/08: The Cortisol Edition
15/09/08: Interview with Dr Ken Friedman Part III
10/09/08: Treating Orthostatic Intolerance
25/08/08: Congressional Briefing etc
15/08/08: The Symposium on Viruses in CFS
06/07/08: Interview with Dr Ken Friedman Part II
18/06/08: Nancy Klimas on the Immune System, Treatment and the Future
24/05/08: Interview with Tom Hennessy
08/05/08: The Advocacy Month Part II
25/04/08: Interview with Dr Ken Friedman
16/04/08: February 2008
26/03/08: Interview with Martha Kilcoyne
12/03/08: January 2008
29/01/08: End of year ‘Story Edition’
22/12/07: 2006 Year in Review
27/11/07: Interview with Dr Suzanne Vernon
02/11/07: Interview with Rik Carlson
15/10/07: The Autonomic Nervous System Edition
25/09/07: The CDC Prevalence Definition Edition
07/07/07: First Advocacy Edition
07/06/07: March/April 2007 issue
21/04/07: Special Edition: Pat Fero interview
10/04/07: January/February 2007 issue
08/03/07: Special Edition: IACFS Conference report, part 2
30/01/07: Special Edition: IACFS Conference
19/01/07: January 2007 edition
05/01/07: The IACFS Conference Edition
14/12/06: Special Edition: Dorothy Wall interview
05/12/06: October 2006 newsletter
25/10/06: September 2006 newsletter
04/10/06: August 2006 newsletter
26/07/06: June 2006 newsletter
16/06/06: May 2006 newsletter
02/06/06: March & April 2006 newsletters
28/03/06: January & February 2006 newsletters
04/02/06: December 2005 newsletter
04/01/06: November 2005 newsletter
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