December |
• |
New Zealand’s leading authority on CFS rewarded in New Year’s Honours
Dr Ros Vallings has been awarded The Order of New Zealand, MNZM. |
• |
Victorian News:
“Doc Talk” phone link-up
On Tuesday 27 November 2007, a two-hour teleconference for General Practitioners was convened by ME/CFS Australia (Victoria). |
• |
Merry Christmas from the Society
ME/CFS Australia (SA) Inc wishes you and your loved ones a very merry Christmas and a happy New Year. |
• |
Advertising campaign – funny or cruel?
An advertising campaign for ninemsn’s The Fix has been brought to the Society’s attention by a member who feels that it is insensitive and an insult to those suffering from CFS. |
• |
Phoenix Rising: 2006 Year in Review
The latest offering from Phoenix Rising is a special edition entitled ME/CFS Research 2006: The Year in Review. |
• |
Polio vaccine and ME/CFS link?
The following is a Q&A session with Dr Richard L Bruno who is Chairperson of the International Post-Polio Task Force and Director of The Post-Polio Institute and International Centre. |
• |
Office server back online
The Society’s office server is back online and fully functional. |
• |
Office server offline
The Society’s office server is currently offline and has been for a couple of weeks. |
• |
Making Adelaide a smoke-free city (for a day)
The Liberal Party’s The Hon David Ridgeway MLC is moving for Adelaide to be declared smokefree for two days in 2008. |
• |
Victorian News:
Victorian Companion Card
Victorians with a disability may be eligible for a Victorian Companion Card. |
• |
A Survey of ME/CFS Patients to Provide Data for Public Education
ProHealth’s ImmuneSupport.com is conducting an online survey. |
• |
Federal Election Watch:
Lobbying the new Federal Government on MCS
Dorothy Bowes, President of the Allergy Sensitivity and Environmental Health Association of Qld, has commenced a letter writing campaign to lobby the new federal Labor government for recognition of MCS and completion of the promised review of MCS by the Office of Chemical Safety. |
• |
Feeling left out? An interesting new Australian study
The final report of a major project addressing the broader issues of poverty, led by Professor Peter Saunders from the Social Policy Research Centre of the University of New South Wales, has now been released. |
• |
Federal Election Watch:
National health reform – an interesting approach by the AMA
The Australian Medical Association has written a pithy letter to the new Minister for Health, Nicola Roxon. |
• |
Riverland ME/CFS Support Group meeting
The Riverland ME/CFS Support Group’s next meeting will be held on Friday 28 March 2008 at the Riverland Resource Centre, Berri. |
• |
Victorian News:
By Laws for Victorian Society
Victorian members will realise that as part of the Constitutional changes, Rule 37 enables the Committee to develop By Laws to give better effect to the rules and for the proper and effective administration of the Society. |
November |
• |
AGM Minutes
The Minutes of the Society’s Annual General Meetings are now available. |
• |
Federal Election Watch:
Polly Chaser Tim Hill on chasing the pollies
Polly Chaser Dr Timothy Hill (PhD) has provided us with his latest letters to politicians and their responses, and offers analysis of it all. |
• |
Charity calendar to raise awareness of Fibromyalgia
A calendar is being produced to raise awareness of Fibromyalgia. |
• |
Dr Sarah Myhill writes to the media about the NICE Guidelines
Dr Sarah Myhill has written an open letter in support of an article published in The Daily Telegraph. |
• |
Phoenix Rising: Interview with Dr Suzanne Vernon
The latest offering from Phoenix Rising is an interview with Dr Suzanne Vernon, the new Scientific Director of the CFIDS Association of America. |
• |
Response from the ALP’s Nicola Roxon MP
Polly Chaser Dr Tim Hill (PhD) emailed Nicola Roxon MP and received a reply. |
• |
Photos from the Annual General Meeting
The Society held its Annual General Meeting on Saturday 17 November 2007 at the Disability Information and Resource Centre in Adelaide. |
• |
Vote against smoking
The South Australian Democrats are campaigning to have smoking banned in playgrounds. |
• |
Riverland ME/CFS Support Group meeting
The Riverland ME/CFS Support Group’s next meeting will be held on Friday 30 November 2007 at the Berri Resource Centre, Berri. |
• |
Federal Election Watch:
Another candidate responds – positively
Polly Chaser Dr Russell Pace lobbied David Wright, the independent candidate for the seat of Grey. Mr Wright responded. He has a personal connection with ME/CFS. |
• |
Federal Election Watch:
Letter to the Libs
Polly Chaser Patsy Harmsen wrote to the Liberal Party yesterday and is now awaiting a response. |
• |
Annual Reports
The president delivered the 2007 annual report at the Society’s AGM on Saturday 17 November. |
• |
Professor Kenny De Meirleir’s Presentation in Perth
Professor Kenny De Meirleir gave a presentation in Perth, Western Australia, on 3 November 2007. |
• |
CFS Heart Rate Dysfunction Persists In Sleep
The CFIDS Association of America reports that “A study published in Autonomic Neuroscience found that increased heart rate and reduced heart rate variability in CFS patients was also present during sleep, suggesting an ongoing state of sympathetic autonomic dysfunction”. |
• |
Federal Election Watch:
The Official List of Polly Chasers
We’ve now compiled a list of all our Polly Chasers. |
• |
Federal Election Watch:
Comment on Kate Ellis MP
Polly Chaser Julie Gilbert wrote to the ALP’s Federal Member for Adelaide, Kate Ellis MP, but didn’t receive much of a reply. |
• |
Federal Election Watch:
Postal votes
If you can’t make it to a polling booth on Election day you can cast your vote by post. |
• |
Reminder: AGM
A reminder that the Society’s Annual General Meeting for this year will be held this coming Saturday, 17 November 2007. |
• |
Transcript of live chat Q&A with Dr David S Bell
ProHealth’s ImmuneSupport.com hosted a live chat Q&A with Dr David S Bell MD (pictured) at 3pm on Friday 2 November in the US (7:30am on Saturday 3 November, South Australian time). |
• |
The Chookhouse Summit
A group of key ME/CFS medical practitioners met on 18 October to discuss ways and means of strengthening the medical networks for people with ME/CFS in South Australia. |
• |
Victorian News:
Part-time position vacant
A position is vacant for the part-time Community Development Officer for the Care and Crisis Support Service based in Burwood. |
• |
Federal Election Watch:
The Coalition on the Office of Chemical Safety – not much, but better than nothing
MCS Task Force convenor Peter Evans wrote to the Coalition regarding the huge inertia surrounding a review by the Office of Chemical Safety of the needs of people with MCS. |
• |
Judicial Review – no more pledges needed
The One Click Group has announced that no more pledges are necessary in the Judicial Review of the NICE Guidelines. |
• |
Federal Election Watch:
Second response from Dr Andrew Southcott MP
Dr Andrew Southcott MP has responded again to Polly Chaser Lynda Brett after she wrote to him about his first reply. |
• |
Judicial Review – a different perspective
Yesterday we ran an article about a call for help with legal action on a judicial review of the NICE Guidelines. The ME Association has published its own views on the legal action. |
• |
CFS/ME NICE Guidelines Judicial Review
The Society has received a flyer from The One Click Group about a judicial review of the NICE Guidelines. |
• |
Victorian News:
Link Up Plus Project
This project has been running for almost 12 months and is about to come to an end. Again it has proved a valuable communication tool for members who are housebound and feel isolated. |
• |
Victorian News:
1400 Victorian GPs to receive the Canadian Overview document
ME/CFS Australia (Victoria) has funded the printing and distribution of the Canadian Overview document to be included into the Satchel which is distributed to every GP who attends the GPCE over the weekend of the 16-18 November in Melbourne. |
• |
Victorian News:
Victorian funding update
Over the past 12 months ME/CFS Australia (Victoria) has been successful in obtaining funds from philanthropic trusts and others to assist the Society in providing much needed assistance to those with ME/CFS. |
• |
Federal Election Watch:
Update on MPs’ response to letters sent by Victoria
Since sending letters to the Victorian and Tasmanian Federal members of Parliament – and the Ministers involved – an election has been called. |
• |
Health Consumers Alliance e-bulletin
The Health Consumers Alliance of SA Inc (HCA) is the not-for-profit, peak community organisation for health consumers using SA health services. |
• |
Victorian News:
Victorian Society has a new operating name
Following the Special General Meeting held on 28 October 2007 and the subsequent approval being received from Consumer Affairs Victoria, the Victorian Society will now operate as “ME/CFS Australia (Victoria)”. |
• |
Federal Election Watch:
Response to Dr Andrew Southcott MP
Polly Chaser Lynda Brett replied to the response she received from Dr Andrew Southcott MP. |
• |
Phoenix Rising: Interview with Rik Carlson
The latest offering from Phoenix Rising is an interview with Rik Carlson, founder of the Vermont CFIDS Association. |
• |
Free training for volunteers
The Government of South Australia’s Office for Volunteers is funding free training for volunteers during November and December. |
• |
Federal Election Watch:
Response from the Lib’s Dr Andrew Southcott MP
Polly Chaser Lynda Brett wrote some time ago to the Dr Andrew Southcott MP, the Federal member for her electorate of Boothby. |
• |
Federal Election Watch:
Response from the ALP’s Tanya Plibersek MP
Polly Chaser Dr Timothy Hill (PhD) has had a response from the ALP’s Tanya Plibersek to an email he sent her. |
• |
Reminder: Live chat Q&A with Dr David S Bell
A reminder that ProHealth’s ImmuneSupport.com will be hosting a live chat Q&A with Dr David S Bell MD tomorrow morning at 7:30am (South Australian time). |
• |
Federal Election Watch:
Comment on Kate Ellis’s response
Dr Timothy Hill (PhD) has sent us a comment on the ALP’s Kate Ellis’s response to a query on ME/CFS funding. |
• |
ME/CFS Gets the Nod
ProHealth’s ImmuneSupport.com reports that “The CFS Name Change Advisory Board has amended its initial proposal and now recommends that the name for ‘chronic fatigue syndrome’ be changed to the acronym ME/CFS.” |
• |
CFS information from the Mayo Clinic
The Women’s Health section of the MayoClinic.com website has a comprehensive overview of CFS. |
October |
• |
Photos from the Riverland CFS Support Group’s 26 October meeting
Photos are now available from the Riverland CFS Support Group’s very first meeting held on Friday 26 October at Berri Library Multi Media Room, Berri. |
• |
New favourite poems for the week
“On Commissary Goldie’s Brains” by Robert Burns; and “Pointy Birds” by John Lillison. |
• |
The Environmental Illness Resource
The Environmental Illness Resource is a website that provides information, news and research updates, doctor-authored articles, forums, and other resources for sufferers of environmental illnesses such as MCS, CFS, and fibromyalgia. |
• |
Federal Election Watch:
Response from the ALP’s Kate Ellis MP
One of our Polly Chasers, Suzanne McCusker, has had a response from the ALP’s Federal Member for Adelaide, Kate Ellis MP. |
• |
Federal Election Watch:
Simon Molesworth letter to MPs
On Tuesday 9 October 2007 the Victorian President, Simon Molesworth, sent this letter and attachment to 66 Federal MPs in Victoria and Tasmania in the Senate and House of Representatives. |
• |
New section: My favourite…
Further to our article yesterday, we have a new section on the website devoted to “a few of our favourite things…” (to paraphrase a fairly well-known nun). |
• |
Your favourite poem – a new feature
We’re starting a new feature. It springs from one of the many interchanges between the team responsible for feeding this website’s voracious appetite. We started swapping favourite poems, and decided to bring everyone in on it. |
• |
Live chat Q&A with Dr David S Bell
ProHealth’s ImmuneSupport.com will be hosting a live chat Q&A with Dr David S Bell MD (pictured) on Friday 2 November 2007 from 3 to 4pm Pacific Standard Time in the US. |
• |
New joke: Wedding invitation
We have a new joke for our Humour section. |
• |
Reminder: Is Your House Killing You?
The second episode of Is Your House Killing You? will air tonight at 7:30pm on SBS. |
• |
Social Support and Fibromyalgia Research
A new research study focusing on fibromyalgia is underway at Victoria University. |
• |
Phoenix Rising: The Autonomic Nervous System Edition
Phoenix Rising is an informative newsletter put out monthly by American CFS sufferer Cort Johnson on his website CFS Phoenix. |
• |
Is Your House Killing You? – the full details
We announced recently that a great new TV series was starting shortly on SBS, Is Your House Killing You?. The program deals with something that most people with ME/CFS know all too much about: the toxic impacts of chemicals and moulds. |
• |
Are you right-brained, left-brained – or just fogged-brained?
Actually, this is a neat little test of the old right brain/left brain theory. It’s nothing to do with ME/CFS. But you might like to try it. |
• |
The MCS rally: how’s this for fast action?
Only one good politician attended the MCS rally on 8 October. But Sandra Kanck MLC was enough. |
• |
Riverland Support Group – first meeting
The Riverland CFS Support Group will be holding its first meeting on Friday 26 October 2007. |
• |
Society AGM
A reminder that the Society’s Annual General Meeting will be held on Saturday 17 November 2007 at the Disability Information and Resource Centre, 195 Gilles Street, Adelaide. |
• |
Photos from the MCS Rally
Twenty people – including a very cute little girl and a good Aussie cattle dog – rallied outside the offices of the Commonwealth Department of Health and Ageing on Monday 8 October. |
• |
CBT for ME doesn’t work according to psychiatrists
THE NICEGUIDELINES BLOG reports that an article recently published in The World Journal of Biological Psychiatry refutes claims that CFS/ME is a disease with a psychological basis and that CBT is effective in treating it. |
• |
Federal Election Watch:
Key Issues in ME/CFS in Australia
This paper has been developed over the past twelve months by Jim Chambers, Pres of the Victorian Society, as a document to send to the Federal Health Minister on behalf of the national body. |
• |
Rickettsia article
The following news article will possibly be of interest to those members who have tested positive to Rickettsia. |
• |
Remember the MCS Rally
We’re calling on you to attend the rally outside the offices of the Commonwealth Department of Health and Ageing. |
• |
Promoting the accommodation needs of people with ME/CFS and MCS
We advertised on 28 September a coming forum on housing for people with special needs. We’ve since liaised with the organisers and have had a positive response. |
• |
CFS Toolkit
The Centers for Disease Control and Prevention has published a “CFS Toolkit”. |
September |
• |
Chemically sensitive and concerned about fluoride?
We’ve been sent an alert from the national network of MCS campaigners regarding a pending approval to use a fluoride-based substance as a food fumigant. |
• |
Is Your House Killing You?
That’s the title of a coming series on SBS. It’s a beauty of a consciousness raiser for the cause of people with chemical sensitivities. |
• |
Housing forum – get along and say something
The Minister’s Strategic Housing Advisory Committee, along with Shelter SA, is presenting an information forum being held to give an update on the many changes that have occurred in housing over the past 12 to 15 months. |
• |
Help-With-Arthritis-Pain.com
A website that may be of interest to those with pain associated with ME/CFS or fibromyalgia is Help-With-Arthritis-Pain.com. |
• |
Phoenix Rising: The CDC Prevalence Definition Edition
Phoenix Rising is an informative newsletter put out monthly by American CFS sufferer Cort Johnson on his website CFS Phoenix. |
• |
New virus in CFIDS, MS, and epilepsy
According to a press release by the National CFIDS Foundation, Inc (NCF), “Recent independent scientific research funded by NCF of Needham, MA provided preliminary confirmation of a new virus identified in patients with Chronic Fatigue Syndrome.” |
• |
Women and Fibromyalgia
Author Barbara A Keddy, RN, PhD, has published a book entitled Women and Fibromyalgia: Living with an Invisible Dis-ease. |
• |
Meet Millie, the Only Kangaroo in the Whole ME/CFS Universe!
The South Australian State Committee has the frequent pleasure of being joined at meetings by Emma Wing’s joey, Millie. |
• |
MCS Reference Group meeting report
Peter Evans, Convenor of the SA Task Force on MCS, has a report of the 20 September MCS Reference Group meeting. |
• |
Photo exhibit tells story of chronic-fatigue syndrome
The Dallas Morning News has an article by Nancy Churnin about a photo exhibition entitled “The Faces of Chronic Fatigue Syndrome”. |
• |
Name Change Campaign - The Choice Is Yours!
ProHealth’s ImmuneSupport.com has a campaign underway to change the name ‘Chronic Fatigue Syndrome’ to ‘ME/CFS’. |
• |
Outdoor smoking: the minor parties fight for us
Family First and the South Australian Democrats have joined in Parliament of South Australia to get our feet-dragging State government to catch up to Queensland and other places when it comes to banning smoking in outdoor eating places. |
• |
Riverland Support Group
We’re delighted to learn that the Riverland is about to get a support group for people with ME/CFS. |
• |
MCS Public Health Rally
A Public Health Rally recognising Multiple Chemical Sensitivity will be held on Monday 8 October 2007 at the Department of Health and Ageing, 11 Waymouth Street, Adelaide. |
• |
Response to MCS Clinical Review
The Allergy, Sensitivity & Environmental Health Association Qld Inc has published a response to the Office of Chemical Safety’s MCS Clinical Review. |
• |
NICE Guideline on ME/CFS – MEA statement
Britain’s ME Association has responded to the recently published NICE Guideline on CFS/ME. |
• |
“Original Sin” – article by Cort Johnson
Cort Johnson, of CFS Phoenix, has written an article about the after-effects of an outbreak of CFS in Incline Village. |
• |
National Invisible Chronic Illness Awareness Week video
National Invisible Chronic Illness Awareness Week runs from 10-16 September 2007. |
• |
Nutrition information
Dietitian Melanie Reid, speaker at our recent meeting, has kindly provided us with nutrition-related information available to download. |
• |
Federal Election Watch:
Become an ME/CFS Polly Chaser
No, we’re not asking you to risk imprisonment by piercing APEC-level security systems. But how about joining our own campaign to pursue those Federal politicians during the coming election? |
• |
Photos from the Society’s 8 September 2007 meeting
Photos are now available from the Society’s meeting held on Saturday 8 September at the Ellangowan Hall in the St Peters Holy Name Church, Stepney. |
• |
New website section: Humour
The website has a new Humour section. |
• |
Our coming meeting is on that big topic – diet
Dietitian Melanie Reid speaks on this key issue and its many ramifications for people with ME/CFS. |
• |
We get a free commercial
We’ve scored a free radio commercial. |
• |
Ayurvedic seminars
Member Spen Langman has drawn our attention to two seminars. |
August |
• |
Flu vaccines
Some members have contacted us regarding influenza vaccines, given the current number and severity of flu cases in Adelaide. |
• |
Federal Election Watch:
Letter to the Federal Health Minister
Here’s an excellent letter written by WA president, Colin Neathercoat, to the Federal Minister for Health. |
• |
Federal Election Watch:
Electorates
Member James Hackett has helped us to put together data on where our members are across the eleven SA electorates. |
• |
Keep up with the national health agenda
Here’s the latest issue of the Consumers’ Health Forum of Australia newsletter HealthUpdate. |
• |
Support your local president
Our President Peter Cahalan has been nominated as a local hero in the My Local Hero scheme. This is a great opportunity to generate publicity for the Society and the cause of ME/CFS. |
• |
Healthy female volunteers needed for research project
Dr Richard Burnet, Deputy Director of Enocrinology at Royal Adelaide Hospital, is researching the topic of “Autonomic dysfunction in people with ME/CFS”. |
• |
Live chat: The Hot Issues Surrounding CFS
ImmuneSupport.com hosted a live chat Q & A that was conducted with Dr Leonard A Jason, PhD, a Chronic Fatigue Syndrome researcher and policy leader. |
• |
Reproductive Issues
In a disease that affects three to five times more women than men, relatively little direct research has focused on the gynecological implications of CFS. |
• |
Recall of Prexige
The federal Therapeutic Goods Administration has just recalled the drug Prexige because of its side effects. |
• |
Thank you to our Patron
We’d like to wish our immediate past patron, Mrs Marjorie Jackson-Nelson AC CVO MBE all the best in her recent retirement from the Governorship of SA. |
• |
Arts and science event at Flinders Medical Centre
There’s an interesting event coming up at Flinders Medical Centre (FMC) this Sunday 19 August. |
• |
Get up to date on disability issues
The Julia Farr Group and partners are organising a roadshow with key speakers on disability issues. |
• |
New website: ME agenda
We recently highlighted a new website, Read ME UK. Since then, we have had a message from its creator, Suzy Chapman, who says that she also has a parallel site called ME agenda which carries the same content. |
• |
CFIDS & Fibromyalgia Self-Help website
CFIDS & Fibromyalgia Self-Help is a US non-profit organisation dedicated to improving the quality of life for people with Chronic Fatigue Syndrome and fibromyalgia. |
• |
Australian ME/CFS Research
A study into ME/CFS is currently underway at The Australian National University. |
• |
New website section: Multimedia
ME/CFS Australia (SA) Inc website has a new section focussing on its multimedia content. |
• |
An interesting issue of HealthUpdate
The Consumers’ Health Forum of Australia, a national advocacy body, sends out a regular newsletter. With the Federal election looming it’s been on the trail meeting politicians. |
• |
Photos from the Society’s 4 August 2007 meeting
Photos are now available from the Society’s meeting held on Saturday 4 August at DIRC, 195 Gilles St, Adelaide. |
• |
Family Medical History of Persons with Chronic Fatigue Syndrome
ProHealth’s ImmuneSupport.com has an article about the possibility of Chronic Fatigue Syndrome and related diseases running in families. |
• |
New link: East Midlands Chronic Fatigue / ME Clinical Network Coordinating Centre
The East Midlands Chronic Fatigue / ME Clinical Network Coordinating Centre is a UK site that aims to provide useful information about specialist CFS services. |
• |
Chronic fatigue syndrome finally gains official respect
The International Herald Tribune has published an article on CFS entitled “Chronic fatigue syndrome finally gains official respect”. |
• |
DisAbility Expo 2007
DisAbility Expo is a fun day for persons with a disability, family, parents, friends and carers. Look, learn, be inspired and celebrate your ability and your potential. |
July |
• |
American Family Physician: Fibromyalgia
The latest issue of American Family Physician has a comprehensive article on Fibromyalgia. |
• |
MCS meeting
Members who have expressed interest in being part of our lobbying activities on chemical sensitivity issues may be interested in a meeting coming up this Friday 27 July. |
• |
Next Society meeting
The next Society meeting will be on Saturday 4 August, 12pm at DIRC. The topic is “A Guide to Managing CFS” and will be presented by psychologist Liana Taylor. |
• |
ME, CFS and disability pensions: a British saga
If you’re interested in the politics of how our condition is shaped and framed by health and bureaucratic establishments, then read on about recent developments in Britain. |
• |
ME Research UK Christmas cards
ME Research UK has Christmas cards for sale. There are 12 designs available. |
• |
Fatigue study
A fatigue study is currently underway at the Centre for Postgraduate Nursing at Otago University in New Zealand. |
• |
OzME Internet Mailing List
OzME is an Internet mailing list for people with CFS/CFIDS/ME, FMS, MPS, or any other related illness like MCS. |
• |
SAYME meeting
There will be a SAYME (South Australian Youth with ME) meeting this Sunday, 22 July 2007, from 12 noon to 3pm. |
• |
New York Times article on CFS
The New York Times has published an article on CFS entitled “Chronic Fatigue No Longer Seen as ‘Yuppie Flu’”. |
• |
Fibromyalgia information session
Fibromyalgia SA is providing an information session on Sunday 5 August 2007 at the Arthritis Foundation in Fullarton. |
• |
New State Health Care Bill – they’re asking for our comment
The State government is restructuring the health system – again. |
• |
Funding for chronic fatigue syndrome research should be increased
South Florida’s online newspaper, Sun-Sentinel.com, has an opinion piece by Dorothy Wall and Kenneth Friedman about funding in US for Chronic Fatigue Syndrome. |
• |
Telecross
Telecross is a service by the Australian Red Cross that provides the elderly and housebound with a reassuring daily phone call to ensure that they are safe and well. |
• |
Dr Andrew Barrie’s talk on bioresonance
For those of you who missed our 7 July meeting, here are Dr Barrie’s notes of his talk. |
• |
Jo Hicks update
Jazz vocalist Jo Hicks has been having difficulties with her email address but can now be contacted via email again. |
• |
CFIDSLink July 2007 e-newsletter
The July 2007 issue of CFIDSLink, the e-newsletter of the CFIDS Association of America, is now available. |
• |
Gene cluster linked to chronic fatigue
A news item by The Advertiser on Thursday 5 July reported that “Australian researchers have identified a cluster of genes linked to chronic fatigue syndrome which may help finally explain the mysterious condition.” |
• |
Encounters with the Invisible, by Dorothy Wall
Dorothy Wall is the author of a new book, Encounters with the Invisible. Dorothy has made a video presentation of her book. |
• |
Funding cuts
Arthritis SA has sent a letter to members and others. The letter outlines funding cuts, and the figures that they quote are astonishing in terms of cuts to a service that many of our members (particularly those with Fibromyalgia) use currently. |
• |
Photos from the Society’s 7 July 2007 meeting
Photos are now available from the Society’s meeting held on Saturday 7 July at DIRC, 195 Gilles St, Adelaide. |
• |
Phoenix Rising: first Advocacy Edition
Phoenix Rising is an informative newsletter put out monthly by American CFS sufferer Cort Johnson on his website CFS Phoenix. |
• |
Campaigning for a better Access to Buildings Standard
Australian building codes on disabled access are deficient in many areas, and the building industry has been campaigning against a range of improvements to them. |
• |
International award for CFS researcher
The Honolulu Advertiser reports that “Pathology professor Yoshitsugi Hokama, at the University of Hawai’i’s John A. Burns School of Medicine, has received a national award for his research connecting ciguatera poisoning to CFIDS. |
June |
• |
Next Society meeting
The Society’s next meeting will be held on Saturday 7 July at DIRC, 195 Gilles St, Adelaide. |
• |
The best new pain cures, with a focus on women
Although not specifically about ME/CFS, this article from CNN’s Health Magazine provides helpful strategies on pain management. |
• |
Badge Day photos
The Society’s Badge Day was held on Friday 1 June 2007 in Adelaide. |
• |
The national health agenda – keep informed
The Consumers’ Health Forum of Australia is a key national body which ensures that users of the health system are represented on all kinds of committees and reviews. |
• |
Next Society meeting
The Society’s next meeting will be held on Saturday 7 July at DIRC, 195 Gilles St, Adelaide. |
• |
Ten Discoveries about the Biology of CFS
Ten Discoveries about the Biology of CFS is a “print-and-go” handout listing 10 key discoveries, as described by Anthony Komaroff, MD. |
• |
CFIDSLink 20th Anniversary Special Edition e-newsletter
The CFIDS Association of America has published a special edition of their e-newsletter, CFIDSLink, commemorating the 20th year of the Association’s service and honoring the many people and events that have shaped two decades of collective CFS history. |
• |
ABC Radio National: All In The Mind
ABC Radio National’s Saturday afternoon program All In The Mind featured Chronic Fatigue Syndrome yesterday (Saturday 9 June). |
• |
Safer Solutions – a manual for chemically safe living
Here’s an excellent new Australian website devoted to pulling together practical ideas for managing one’s home and garden with minimal use of toxic chemicals. |
• |
Phoenix Rising: March/April 2007 issue
Phoenix Rising is an informative newsletter put out monthly by American CFS sufferer Cort Johnson on his website CFS Phoenix. |
• |
New ME/CFS website
ME/CFS Helpful Hints for Daily Living is a new website that contains a collection of practical hints for those suffering from ME/CFS. |
• |
CFS feature on Nightlife with Tony Delroy
The ABC’s Nightlife with Tony Delroy featured ME/CFS last night (Monday 4 June). |
• |
Video contest winners announced
Winners of the P.A.N.D.O.R.A. International Advocacy Video Contest have been announced. |
May |
• |
Canadian newspaper article on CFS
Montreal’s The Gazette newspaper has published an article on CFS. |
• |
CFS feature on Nightlife with Tony Delroy
The ABC’s Nightlife with Tony Delroy will be featuring ME/CFS in a segment on Monday 4 June around 9:40pm (SA) time. |
• |
National CFIDS Foundation award
The National CFIDS Foundation has presented its first “Outstanding Researcher Award”. |
• |
Professor Marmion’s talk on Q Fever
Committee member Melanie Cocker reports on Professor Barrie Marmion’s lecture of 12 May on Q Fever, Rickettsia and ME/CFS. |
• |
Q Fever vaccine – good news on the preventive front
There’s good news re the production of a Q Fever vaccine. |
• |
CFS Advisory Committee testimony
Mary Schweitzer has given testimony to the Chronic Fatigue Syndrome Advisory Committee of the US Department of Health & Human Services. |
• |
774 ABC Melbourne radio segment on CFS
774 ABC Melbourne’s Saturday morning segment, Fitness, Health and Nutrition with Tonya Roberts, had a feature on CFS on 19 May. |
• |
CFS and diet
The British Dietetic Association has produced a booklet on CFS and diet. |
• |
CFS in Nigeria
Sage Journals Online has published a study on the prevalence of CFS in Nigeria. |
• |
Radio interview with Peter Cahalan
Peter Cahalan, President of ME/CFS Australia (SA) Inc, was interviewed yesterday on 1197am RPH Adelaide. |
• |
Support sought for US Bill – update
Further to our earlier report on a call to support a US Bill for funding of the Nevada CFS Research Center, CFS Phoenix’s Cort Johnson has sent us another message. |
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JTV segment on ME/CFS
An article on ME/CFS appeared on JTV at 11:30pm last night (Friday 11 May) on ABC TV. |
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Adelaide ME/CFS Research Forum report
A report by Colin Neathercoat of the ME/CFS Research Forum, The University of Adelaide, 26-27 March 2007. |
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Federal inaction on the MCS Review – take action!!
Three years ago the Federal Office of Chemical Safety promised to review MCS issues. |
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The Federal budget and ME/CFS
The Federal Treasurer has delivered the 2007 Budget. |
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Support sought for US Bill
Cort Johnson, of CFS Phoenix, has alerted us to difficulties facing the Nevada CFS Research Center. |
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A happy Awareness Week for our Victorian colleagues
We’re delighted to hear that ME/CFS Australia (Victoria) has just learned that it’s received a major grant. |
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MJA editorial
The Medical Journal of Australia, in a recent editorial, discussed the “Blame Game” currently being played around Australia between the states and territories whenever health funding is mentioned. |
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New Maltese website
A new website has been created: M.E Sufferers Malta. |
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JTV segment on ME/CFS
The Australian youth TV show JTV is presenting a short story on ME/CFS to be aired on Friday 11 May 2007 at 11:30pm on ABC TV. |
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CFIDSLink May 2007 e-newsletter
The May 2007 issue of CFIDSLink, the e-newsletter of the CFIDS Association of America, is now available. |
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Q Fever, Rickettsia and ME/CFS – hear our local world figure
Emeritus Professor Barrie Marmion AM has carried out work on Q Fever and Rickettsia – known triggers for ME/CFS – for many years. |
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Jo Hicks
Society member Jo Hicks is a jazz singer who has released All Of Me, a CD of popular and jazz standards. |
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DVD now available
The DVD of the 25 March 2007 public meeting entitled “ME/Chronic Fatigue Syndrome: The breaking news from around the world” held at Norwood Concert Hall is now available from ME/CFS Australia (SA) Inc office. |
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Fibromyalgia Well Spring Foundation to supply housing to FM/ME/CFS sufferers
The Fibromyalgia Well Spring Foundation is planning to create subsidized housing estates in various locales. |
April |
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World Health Organization to update International Classification of Diseases
VOA News reports that “Medical professionals from around the world are working together under the World Health Organization to update the International Classification of Diseases.” |
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Health updates – are there devils (or angels) in the detail?
Here’s the latest HealthUpdate from the Consumers’ Health Forum of Australia. |
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Smoke-free local places – strike a blow for your health and civic rights
Messenger Community Newspapers is running an online poll. |
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DIRC wants you to tell your story
The Disability Information and Resource Centre (DIRC) is calling on people with disabilities to “tell their stories and share their experiences.” |
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Phoenix Rising Special Edition: Pat Fero interview
Phoenix Rising is an informative newsletter put out monthly by American CFS sufferer Cort Johnson on his website CFS Phoenix. |
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CFS Awareness Bracelets
On the back of the current craze for bracelets for worthy causes like Live 8’s Make Poverty History, a member of the Notcrazy CFS forum came up with the idea of a CFS Awareness bracelet. |
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Public invited to Advisory Committee meeting
The public will be invited to give witness testimonies during the CFS Advisory Committee meeting to be held on May 16 - 17 in Washington, DC. |
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Community Carers Service
Are you caring for someone with ME/CFS and would like respite assistance? Here’s information about an Australian Red Cross program which might help you. |
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Dr Ian Buttfield speaks at Kadina
Dr Ian Buttfield will address a meeting at the Kadina Town Hall on Saturday 21 April at 2pm. |
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Vision magazine now online
The Young ME Sufferers Trust publishes Vision, a magazine for young people, families and professionals. |
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The International IiME ME/CFS Conference 2007
Invest in ME (IiME) is hosting The International IiME ME/CFS Conference 2007 in London, beginning ME Awareness Month 2007. |
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CFIDSLink April 2007 e-newsletter
The April 2007 issue of CFIDSLink, the e-newsletter of the CFIDS Association of America, is now available. |
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Sydney Morning Herald article on CFS
The Sydney Morning Herald has an article on Chronic Fatigue Syndrome. |
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We’re postponing our next meeting
We were planning to have a meeting on 21 April to outline some of the discussions at the March research forum held here in Adelaide. |
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Phoenix Rising: January/February 2007 issue
Phoenix Rising is an informative newsletter put out monthly by American CFS sufferer Cort Johnson on his website CFS Phoenix. |
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National Health Card community consultation – be alert!
The latest issue of the Consumers’ Health Forum of Australia newsletter draws our attention to the looming introduction of a health and social services access card. |
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Norwood Concert Hall meeting DVD
We have had a professionally produced DVD made of the recent public meeting at Norwood Concert Hall. |
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M.E India
M.E India is a new website dedicated to providing information on ME/CFS. |
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Radio interview with Peter Cahalan
Peter Cahalan, president of ME/CFS Australia (SA) Inc, was interviewed yesterday on 1197am RPH Adelaide. |
March |
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ME/CFS Guidelines from The University of York
A British survey of a certain part of the literature has just been just released by The University of York. |
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Dr Dan Peterson speaks to the ABC
Dan Peterson was one of the four international participants in a two-day forum on ME/CFS at The University of Adelaide on 26-27 March. |
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Photos from the 25 March meeting
Here are photos from the 25 March meeting entitled “ME/CFS: breaking news from around the world”, held at Norwood Concert Hall. |
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Family health and chemicals
For anyone interested in the two issues of how chemical additives to food and vaccinations can affect our health, here’s an evening seminar coming very soon. |
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Chronic Fatigue Syndrome and diet
Well Woman Blog has an article about CFS and diet. As the article quotes: “Eating Healthy Won’t Cure Your CFS, But Eating Poorly Will Make It Worse.” |
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Support our salaried colleagues
It’d be nice for us to be able to employ staff. We don’t – courtesy of inequitable government policies which make it hard for smaller and new disability groups such us our Society. But supporting everyone struggling with ill health, disability or social disadvantage is a common cause. |
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MCS America Seeks Recognition for Environmental Illness
Express-Press-Release.com reports that “MCS America is seeking to clarify the many contradictions in the medical, scientific, legal, and social communities so that MCS may be granted the same recognition that the Centers for Disease Control recently granted to Chronic Fatigue Syndrome.” |
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High Beam Festival – celebrate after the big event!
If you’re going to the public meeting on 25 March, you might just be too tuckered out to join in SA’s disability arts festival High Beam Global. |
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From our mates in Wollongong
Wollongong hosts an active ME/CFS society which puts out a regular newsletter. |
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What’s in a name?
Lois Ventura, from the National Alliance for Myalgic Encephalomyelitis, has written an article about the various names given to ME/CFS. |
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Radio interview
Carole Whitelock presents 891 Afternoons, a radio program broadcast weekdays from 1 till 4pm on 891 ABC Adelaide. |
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Phoenix Rising Special Edition: IACFS Conference report, part 2
Part 2 of a special edition of Phoenix Rising by Cort Johnson has been published. |
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P.A.N.D.O.R.A. International Advocacy Video Contest
P.A.N.D.O.R.A., Inc (The Patient Alliance for Neuroendocrineimmune Disorders Organization for Research and Advocacy) has created an international advocacy video contest. |
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New website: Energy Meltdown
Pippa Kearnes, with the help of a few friends, has created a website entitled Energy Meltdown. |
February |
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TV ad campaign for CFS in the US
The Centers for Disease Control and Prevention has funded a new ad campaign for CFS to be shown on US television. |
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MCS Public Health Rally update
Peter Evans, Convenor of the South Australian Task Force on Multiple Chemical Sensitivity, has an update on the MCS Public Health Rally to be held on Thursday 1 March 2007. |
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Taskforce on Care Costs: “Who Cares?” campaign
The Taskforce on Care Costs has been lobbying for the past three years for greater recognition, respect and remuneration for carers. |
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ME/CFS meeting: The breaking news from around the world
There will be a meeting in Norwood Concert Hall on Sunday 25 March, 2007 featuring international speakers. |
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A Public Pain Symposium
Arthritis SA will be presenting A Public Pain Symposium on Sunday April 1, 2007. |
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IACFS Conference report
A report of The 2007 P.A.N.D.O.R.A. International IACFS Patient Conference, which was held in Florida on 10-14 January 2007, has been published by Dr Rosamund Vallings, MB BS. |
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The Carnitine Study – we can do better
We’ve twice posted information about an interesting study being conducted at the Sansom Institute within the University of South Australia. |
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MCS: our first rally for 2007
Peter Evans, convenor of the SA Task Force on MCS, sends news of our first public action for people with MCS for the year. |
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Experts Recommend New Name For CFS
ImmuneSupport.com has reported a meeting in January where they say a decision was taken to recommend a name change in the US. |
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A good deal at the Adelaide Zoo
Our links with other disability groups have put us on their distribution lists for the occasional special deal. |
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Anna Jacobs
Anna Jacobs is a novelist who has had 36 novels published and won the 2006 “Romantic Book of the Year” award in Australia. |
January |
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Phoenix Rising Special Edition: IACFS Conference
A special edition of Phoenix Rising by Cort Johnson has been published. |
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Drained by the brain
The Australian newspaper has an article on chronic fatigue syndrome entitled “Drained by the brain”. |
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Fatigue syndrome is not all in the mind
The UK’s Times Online recently published in its Health features section an interesting summary of CFS and the current state of research and treatment. |
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A Hummingbirds Guide e-Newsletter – January 2007
The January 2007 issue of Jodi Bassett’s A Hummingbirds Guide e-Newsletter is now available. |
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Phoenix Rising: January 2007 edition
We have received the latest edition of Phoenix Rising by Cort Johnson in Arizona. We always look forward to reading Cort’s newsletters, because he reports on the very latest research in the CFS field. |
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The Carnitine Study – roll up your sleeves and help
We advised you some time ago that the Sansom Institute at the University of South Australia was calling for volunteers to participate in a study of the blood levels of a naturally occurring substance called carnitine in people with CFS. |
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New DWP medical guidance – the actual document
The January 2007 issue of CFIDSLink, the e-newsletter of the CFIDS Association of America, is now available. |
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CFIDSLink January 2007 e-newsletter
The January 2007 issue of CFIDSLink, the e-newsletter of the CFIDS Association of America, is now available. |
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US petition for recognition of MCS
The community-based group MCS America is gathering signatures for a petition to US authorities for recognition of MCS. |
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New therapy for chronic fatigue syndrome to be tested at Stanford
A preliminary study suggests there may be hope in the offing for some sufferers of chronic fatigue syndrome with a new therapy being tested by researchers at the Stanford University School of Medicine. |
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Newly revised guideline booklet on ME/CFS
News from the ME Association reports that The Sussex & Kent ME/CFS Society – this year marking the 20th anniversary of its foundation – is distributing the very latest guideline booklet on ME/CFS. |
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Calendar 2007
Regina Clos, a good friend of ours from Germany, has passed on a calendar from Michael Sobetzko, a talented German artist. |
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Phoenix Rising: The IACFS Conference Edition
We recommend the online publication, Phoenix Rising. It’s an informative newsletter put out monthly by American CFS sufferer Cort Johnson on his website CFS Phoenix. It provides a quirky but in-depth and reliable view of new research in CFS. |
Registered Charity 3104
Email:
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Mailing address:
PO Box 322,
Modbury North,
South Australia 5092
Phone:
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