Society Logo
ME/CFS Australia Ltd

 
Please Click Here To Donate ME/CFS Australia (SA) Inc
 

Facebook
 


  ME/CFS AUSTRALIA (SA) INC

Registered Charity 698

Email:
sacfs@sacfs.asn.au

Mailing address:
PO Box 28,
Hindmarsh,
South Australia 5007

Office:
266 Port Road,
Hindmarsh,
South Australia 5007
Ph: 1300 128 339

Office Hours:
Wednesdays, 10am-3pm


FIBROMYALGIA HELP:
Contact
Fibromyalgia SA
at the
Arthritis Foundation of SA
118 Richmond Road,
Marleston 5033
Ph: (08) 8379 5711

ME/CFS Australia (SA) Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.

Disclaimer

ME/CFS Australia (SA) Inc aims to keep members informed of the various research projects, diets, medications, therapies etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.

Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.

Become a Member
PDF Application Form 2014 (PDF, 290KB)
Why become a member?
 

“Wow! Imagine if…”

February 25, 2006

CFIDS Association of AmericaThat’s how honorary secretary Peter Mitchell wrote in forwarding news to the State committee of the national lobbying blitz that the CFIDS Association of America will conduct in Washington in May.

Yes: we don’t have access to a paid lobbyist here in SA. But we’re a small place and the pollies are easier to get to – especially during an election!!

Have a look at what they’re doing:

Join us in Washington, D.C. on May 8-9 for the CFIDS Association of America’s 14th Lobby Day on Capitol Hill. Be part of the group that spends the day talking with lawmakers and their staff members about funding for CFIDS research, care and treatment centers, disability and education issues.

May 8: Training Session

On the afternoon of Monday, May 8, a mandatory training session will prepare all lobby day advocates for meetings on the Hill. Tom Sheridan, the Association’s Washington, D.C., government relations advisor since 1992, will lead the session. He’ll provide background on current federal priorities and up-to-the-minute issues that may affect discussions with members of Congress and actions they commit to take. Tom’s associate, Michelle Nawar, will brief participants on the legislation we’ll be trying to impact and how Capitol Hill staffers might use the information advocates present during these meetings. Kim McCleary, the Association’s president & CEO, will describe how advocacy drives other initiatives important to the CFIDS community and will review talking points and congressional requests. You’ll also hear from veteran lobby day participants about what to expect and will practice new skills with the people you’ll be grouped with for appointments the next day. First-time advocates will be matched with veteran lobby day participants or Association staff for their meetings on the hill. By the end of the session all advocates will feel confident with their messages, comfortable with Capitol Hill and secure in their right to be heard.

May 9: Lobby Day

When registering, advocates choose whether they prefer morning or/and afternoon appointments and whether they wish to do a heavy schedule or one that’s light. The Sheridan Group and the Association schedule all Hill meetings, targeting members of Congress who serve on committees that determine medical research funding and set health policy. We also reach out to newer members of Congress and those who represent lobby day advocates. In recent years advocates have met with a total of 70-85 key legislators on this single day – a major achievement for the CFIDS community and personally rewarding to the individuals who take part. We celebrate the victories large and small with a reception that evening, also a chance for advocates to share experiences and form or renew friendships with others committed to the cause.

Please consider joining us for this year’s event. We recognize that for many people affected by CFIDS, limitations imposed by health, strained finances and other responsibilities make it impossible to consider traveling to Washington, D.C., so we are extremely grateful for the efforts and sacrifice that participants make to take part in this experience. As the date approaches, we’ll have a “virtual lobby day” through CFIDS Link and our Grassroots Action Center, enabling those who can’t be with us in Washington to augment the impact of what advocates are able to accomplish in person on Capitol Hill.

Previous Previous Page