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ME/CFS AUSTRALIA (SA) INC

Registered Charity 698

Mailing address:
GPO Box 383,
Adelaide,
South Australia 5001

Office:
266 Port Road,
Hindmarsh,
South Australia 5007
Ph: (08) 8346 3237
('834 MECFS')

Office Hours:
Wednesdays, 10am-3pm

Support Line:
(Mondays and Thursdays,
10am-3pm)
Ph: (08) 8346 3237

SA country callers:
Ph: 1300 128 339
(local call)

FIBROMYALGIA HELP:
Contact
Fibromyalgia SA
at the
Arthritis Foundation of SA
118 Richmond Road,
Marleston 5033
Ph: (08) 8379 5711

ME/CFS Australia (SA) Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.

ME/CFS Australia (SA) Inc is a member of Charity Direct.

Donate online

Information and Support 2004 is an online appeal that aims to improve our Information and Support Line.

Links

ME/CFS societies

Australian

National
•	The ME/Chronic Fatigue Syndrome Association of Australia Limited Address: PO Box 7100 Dandenong VIC 3175 Phone: (03) 9793 4500 Fax: (03) 9793 1866 Web: www.mecfs.org.au Email: ceo@mecfs.org.au

Australian Capital Territory
•	ACT ME/CFS Society Inc Address: c/o SHOUT, PO Box 717, Mawson ACT 2607 Phone: (02) 6290 1984 Fax: (02) 6290 4475 Web: www.mecfscanberra.org.au Email: mecfsadmin@shout.org.au

New South Wales
•	ME/Chronic Fatigue Syndrome Society of NSW Inc Postal address: PO Box 5403, West Chatswood NSW 1515 Office address: Suite 204, 10 Help Street, Chatswood NSW 2067 Phone: (02) 9904 8433 Fax: (02) 9904 8435 Web: www.me-cfs.org.au Email: admin@me-cfs.org.au

Northern Territory
•	ME/CFS Australia (Northern Territory) Postal Address: PO Box 1363, Darwin NT 0801 Phone: (08) 8941 2365 Web: www.mecfs-nt.org.au Email: admin@mecfs-nt.org.au

Queensland
•	ME/CFS/FM Support Association Qld Inc Postal Address: 27 Scott Street, Toowoomba Qld 4350 Phone: (07) 4632 8173 Phone: (07) 4659 5239 Web: www.mecfsfmq.org.au Email: mefmtba@bigpond.com

South Australia
•	ME/CFS Society (SA) Inc Address: 266 Port Road, Hindmarsh, Adelaide 5007 Postal Address: GPO Box 383, Adelaide 5001 Phone: (08) 8346 3237 ('834 MECFS') Support Line: (08) 8410 8930 or 1300 128 339 for country callers Web: www.sacfs.asn.au Email: sacfs@sacfs.asn.au

Tasmania
•	ME/CFS Australia (Tasmania) Address: 5 Battery Square, Battery Point Tas 7004 Phone: (03) 6224 2576 Web: www.mecfs-tas.org.au Email: admin@mecfs-tas.org.au

Victoria
•	ME/CFS Australia (Victoria) Postal address: PO Box 7100, Dandenong Vic 3175 Office address: 15 Scott Street, Dandenong Vic 3175 Phone: (03) 9791 3100 (9am - 5pm, Monday - Friday) Support Line: (03) 9791 2199 (9am - 5pm, Monday - Friday) Fax: (03) 9793 1866 Web: www.mecfs-vic.org.au Email: admin@mecfs-vic.org.au

Western Australia
•	ME/CFS Society of WA Address: The Centre for Neurological Support, The Niche, 11 Aberdare Road Nedlands, Perth, Western Australia 6009 Phone: (08) 9346 7477 Fax: (08) 9346 7534 Web: www.mecfswa.org.au Email: info@mecfswa.org.au

International

Canada
•	FM-CFS Canada A national charity helping the more than one million Canadians with FM and CFS/ME, the organiser of Canada’s first national public awareness campaign, working to educate physicians through relationships with medical associations, and home of the Patient Registry, where patients volunteer to help researchers.
•	National ME/FM Action Network The National ME/FM Action Network is a registered, charitable, non-profit organization dealing with ME/CFS and FM, offering support, advocacy, education and research into the many and varied anomalies connected with these illnesses.
Italy
•	Associazione Malati di CFS The Associazione Malati di CFS is trying to find new resources for CFS research, and is helping the growth of a CFS project at the University of Pavia. The association is also trying to convince Italy’s politicians that the problem of CFS needs much more attention than it is given now.
New Zealand
•	ANZMES (Australia and New Zealand ME/CFS group) ANZMES is proactive and busy serving existing members and assisting those who are newly diagnosed, as well as helping those who may only suspect they are sufferers.
UK
•	Action for M.E. Action for M.E. is a national charity campaigning to improve the lives of people with ME in the UK.
•	Leeds & District M.E. Group The Leeds & District M.E. Group is for people who suffer from ME, their carers, relatives, friends and anyone with an interest in ME.
•	The ME Association The ME Association, founded in 1976, fulfils its strategic aims by funding and supporting research and providing information and support, education and training.
•	ME Support in the Midlands
•	Overton Studios Trust A UK Registered Charity providing holistic online and offline support for sufferers of ME, CFS, PVS, CFIDS and fibromyalgia.
•	The 25% M.E. Group This UK site offers information and support for severely affected ME sufferers.
USA
•	American Association for Chronic Fatigue Syndrome The mission of the IACFS/ME is to promote, stimulate and coordinate the exchange of ideas related to CFS, ME and fibromyalgia (FM) research, patient care and treatment.
•	CFIDS Association of America The CFIDS Association of America is the largest and most active charitable organization dedicated to conquering chronic fatigue syndrome.
•	The Unify Coalition Advocacy and help for “invisible” illnesses.

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Best sites for ME/CFS information

Australia

•	Alison Hunter Memorial Foundation Alison Hunter was a young Australian who died from complications from ME/CFS. This foundation was started by her mother to honour her, and is a great source of information.

International

•	About.com: Fibromyalgia & Chronic Fatigue Syndrome This is the premiere Web site for information on living and dealing with this illness. Run by Adrienne Dellwo, it is a great site to check out.
•	CFIDS Association of America One of the biggest ME/CFS/CFIDS organisations in the world, they have an excellent journal as well as a specialist research publication – go to the Archives section to read back-issues.
•	Het Alternatief Het Alternatief (The Alternative) is a Dutch website with a lot of biomedical information about ME.
•	The ME/CFS Information Page By Mary Schweitzer. A great source of links to other sites.
•	The CFIDS Report By Craig Maupin. Cutting-edge news and commentary for the CFIDS community.
•	CFS Italia Informative site from Italy (in Italian).
•	CFS News Tons of links to other sites – a great resource.
•	CFS Phoenix By Cort Johnson. This website is a library that CFS patients and interested parties can access in order to get overviews of particular areas of CFS research.
•	MayoClinic.com: Women’s Health: Chronic Fatigue Syndrome A comprehensive overview of ME/CFS in the Women’s Health section of the Mayo Clinic’s website.
•	M.E. Support M.E. Support is a friendly, informal online community bringing awareness to chronic fatiguing illnesses. It has articles, references, and resources on a vast array of subjects.
•	ProHealth ImmuneSupport.com A great place to find out about news, research and treatments. Immune support is run by a private nutritional supplement company.

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Research/Medical

Australian

•	Bioscreen Bioscreen is a specialist medical testing laboratory with current analytical testing information related to chronic fatigue and chronic pain related disorders.
•	CFS Discovery Dr DP Lewis has been involved in the care and management of patients with chronic fatigue syndrome (CFS) since 1985. In order to provide effective treatment for his patients, which now number more than one thousand, Dr Lewis has established a medical practice that is dedicated solely toward the diagnosis and treatment of CFS.
•	Dr Mark Donohoe’s Website Dr Donohoe has been one of Australia’s best known doctors in the field of environmental medicine, and has been involved in many areas of change within medicine, especially regarding the environment’s impact on human health.

International

•	CDC (Centers for Disease Control and Prevention): Chronic Fatigue Syndrome This web site offers information about Chronic Fatigue Syndrome and its diagnosis and treatment.
•	Center for Complex Infectious Diseases The primary mission of CCID is to determine the nature, origin, disease associations, modes of transmission, methods of diagnosis and responses to therapy of complex infectious diseases, and to disseminate such information.
•	East Midlands Chronic Fatigue / ME Clinical Network Coordinating Centre This UK site aims to provide useful information about the specialist services available within The Improvement Network and also to guide you to information that they consider to be helpful in the management of Chronic Fatigue Syndrome.
•	Institute for Molecular Medicine The mission of the Institute for Molecular Medicine is to contribute to the understanding of and the prevention and cure of catastrophic human chronic diseases, such as autoimmune diseases, fatigue illnesses, rheumatic diseases, cancer, AIDS, and infectious and genetic diseases.
•	MedRefs Medical References Management Database & The Chronic Fatigue Syndrome & Fibromyalgia Database A Microsoft Access database of medical references to ME/CFS.
•	National CFIDS Foundation Founded in 1997 by two 14-year CFIDS (Chronic Fatigue Immune Dysfunction Syndrome) advocates, the goals of the Foundation are to help fund medical research to find a cause, expedite treatments and eventually a cure for this devastating disease.

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Diet-related

•	AllergyDietitian An informative food allergy and food intolerance Web site from the Glen Waverley Dietetic Consultancy.
•	Food Intolerance Network Author Sue Dengate (pictured) provides information about the effects of food on behaviour, health and learning in children adults.

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Journals

•	HighWire Press A division of the Stanford University Libraries, HighWire Press hosts the largest repository of high impact, peer-reviewed content, with 1,065 journals and more than 4 million full text articles from over 130 scholarly publishers.
•	Free Medical Journals Over the next few years, many important medical journals will be available online, free and in full-text. The unrestricted access to scientific knowledge will have a major impact on medical practice. Open access medical textbooks will soon become the standard in medical publishing.
•	Free Full Text FreeFullText.com provides direct links to over 7000 scholarly periodicals which allow some or all of their online content to be viewed by ANYONE with Internet access for free (though some may require free registration). The issue(s) which are available for free are indicated for each title on the alphabetical periodical lists.

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ME/CFS activist sites

•	Blue Ribbon for the Awareness of ME UK-based movement seeking to raise awareness around the world about ME/CFS.
•	R.E.S.C.I.N.D. R.E.S.C.I.N.D. is Repeal Existing Stereotypes about Chronic, Immunological and Neurological Diseases.

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Youth-related

•	Association of Young People with ME (AYME) AYME is a UK-based independent registered charity dedicated to giving help, friendship, support and vital contact to children and young people with ME.
•	Band-Aides and Blackboards A fantastic resource for kids, teens and adults. Covers a wide range of issues concerned with growing up and coping with a medical problem.
•	CFIDS in Youth From the CFIDS Association of America.
•	CFS-20s Mailing List CFS-20s is an Internet mailing list for 20-somethings with CFIDS/CFS/ME and related conditions.
•	CFS-Y CFS-Y is a discussion group for young persons under the age of 25 who have CFS/CFIDS/ME or Fibromyalgia.
•	For Parents of Sick and Worn-Out Children When your child persistently suffers from symptoms of Chronic Fatigue and related syndromes, you as a parent have special kinds of problems. This page is devoted to developing and pointing toward help on these problems.
•	Young Action Online Our central principle is to create and maintain a concentrated resource of solid information from creditable sources for young people with ME, their families and professionals.

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Miscellaneous

•	An Eye Opening Guide to Chronic Fatigue Syndrome A list of links providing information and support for CFS sufferers.
•	Axford’s Abode: ME/CFS The ME/CFS Web site at Axford’s Abode aims to provide factually accurate, reliable and up-to-date information about chronic fatigue syndromes. The summaries of the research are compiled and checked by qualified health professionals with more than ten years experience in this field. The editor is a chartered health psychologist and psychophysiologist who has followed the research on ME since 1984.
•	Brainfog Keeping the lighter side of ME/CFS and life well and truly alive! Brainfog flies in the face of all preconceived notions that the illness ME/CFS is a creation of psychological disorders.
•	CFS Days Be it information on Chronic Fatigue Syndrome, Fibromyalgia or the healing tonic of a good laugh at them, this is the place to go.
•	Chronic Fatigue Treatments Chronic Fatigue Treatments is a forum for people to talk about what treatments have worked for them.
•	The Chronic Syndrome Support Association The CSSA was founded in order to educate the general population and health-care professionals who lack current knowledge of the research being done (and potential research that needs to be done) on serious, yet invisible, chronic immunological and neurological diseases.
•	Co-Cure This mailing list has been established with the goal of furthering co-operative efforts towards finding the cure for the illness commonly referred to as Chronic Fatigue Syndrome and Fibromyalgia.
•	Drug3k Drug3k is a website that provides information on prescription drugs.
•	Energy Meltdown This website, by Pippa Kearnes, contains miscellaneous contributions from ME/CFS sufferers.
•	The Environmental Illness Resource This website, by Matthew Hogg, provides information and resources for sufferers of Multiple Chemical Sensitivity, ME/CFS, and Fibromyalgia.
•	MCS Global Global recognition campaign for multiple chemical sensitivity and chemical injury.
•	Health Consumers Alliance South Australia The Health Consumers Alliance Inc of South Australia (HCA) is the not for profit, peak community organisation for health consumers using SA health services.
•	Healthopedia.com Healthopedia.com is a medical and health consumer information resource containing comprehensive and unbiased information in patient-friendly language from trusted sources on over 1,500 health topics (including Chronic Fatigue Syndrome), 70 focussed health centers, and more than 11,000 drugs and medications.
•	Help-With-Arthritis-Pain.com A website designed to help with the pain of arthritis and other joint diseases such as bursitis, gout and fibromyalgia.
•	Human Services Finder The Human Services Finder is the place to access information about health, housing, family and community services from the private, public and community sectors in South Australia.
•	Irritable Bowel Syndrome Treatment Information on the range of treatments available for IBS, from drugs to alternative therapies.
•	The Long-term Medical Conditions Alliance LMCA is the umbrella body for national voluntary organisations working to meet the needs of people with long-term health conditions.
•	The ME Tips Collection Zoë Williams maintains this site which contains some great tips on living with ME/CFS.
•	National Welfare Rights Network The National Welfare Rights Network provides free and independent information, advice and representation about Social Security law and its administration.

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