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ME/CFS AUSTRALIA (SA) INC

Registered Charity 3104

Email:
sacfs@sacfs.asn.au

Mailing address:

PO Box 322,
Modbury,
South Australia 5092

Phone:
1300 128 339

Office Hours:
Monday - Friday,
10am - 4pm
(phone)

ME/CFS Australia (SA) Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.

Disclaimer

ME/CFS Australia (SA) Inc aims to keep members informed of various research projects, diets, medications, therapies, news items, etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.

Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.

Support

Eco Pest Control

ME/CFS Australia (SA) Inc wishes to thank Eco Pest Control for its support of the Society.

BankSA & Staff Charitable Fund

ME/CFS Australia (SA) Inc wishes to thank BankSA & Staff Charitable Fund for its support of Talking Point, the Society’s official journal.

Society Seminars for 2018
Saturday 24 March 2018
1:30pm
Speaker:
Carol Hunter of Rose Park Psychology.
Topic: Coping strategies for patients, carers and families living with ME/CFS.

Saturday 30 June 2018
1:30pm
Speaker: Diana Bordean, a physiotherapist who helps people with Fibromyalgia and ME/CFS.
Topic: What can your physiotherapist do for you?
Plus... ME/CFS Life Hacks. Bring along your favourite disability aid, piece of equipment or device. A Travelscoot and electric wheelchair will be available on the day to try out.

Saturday 11 August 2018
Annual General Meeting
1:30pm
Speaker: Dr Mona Kaur
Topic: Gut Health & ME/CFS
New Venue: SACOSS, 47 King William Rd, Unley

Saturday 24 November 2018
1:30pm
Speaker: Dr Michael Musker, Senior Research Fellow, SAHMRI
Topic: Examining Chronic Fatigue Syndrome using biological markers: A comparison of controls and sufferers
Details for all seminars…

ME/CFS Diagnostic Criteria and Guidelines

www ME: International Consensus Criteria
(Journal of Internal Medicine, Aug 2011)
PDF

For GPs:
ME/CFS Primer for Clinical Practioners - 2014 Edition

PDF

ME/CFS Guidelines for GPs
(SA Department of Health)

PDF

ME/CFS Guidelines for psychiatrists

PDF

ME/CFS: A Clinical Case Definition and Guidelines for Medical Practitioners
– An Overview of the Canadian Consensus Document
(2005)

  Note: See here for an overview on the Canadian Consensus Criteria for Fibromyalgia (PDF, 1.70 MB)
 
Australian ME/CFS Societies
AUSTRALIA
ME/CFS Australia Ltd.
Web: mecfs.org.au
Email: mecfsaustralia@gmail.com
AUSTRALIAN CAPITAL TERRITORY
ACT ME/CFS Society, Inc
Address: PO Box 717, Mawson ACT 2607
Phone: (02) 6290 1984
Fax: (02) 6290 4475
Web: www.mecfscanberra.org.au
Email: mecfsadmin@shout.org.au
NEW SOUTH WALES
ME/CFS & FM Association NSW
Web: www.mecfsnsw.org
Facebook: ME/CFS & FM NSW Support Group
Facebook: Chronic Fatigue Syndrome NSW
QUEENSLAND
ME/CFS/FM Support Association Qld Inc
Address: c/o Mission Department, St. Vincent’s Hospital, Toowoomba Qld 4350
Phone: (07) 4632 8173
Web: www.mecfsfmq.org.au
Email: mefmtba@bigpond.com
Facebook Page
SOUTH AUSTRALIA
ME/CFS Australia (SA) Inc
PO Box 322,
Modbury North,
South Australia 5092
Support line: 1300 128 339
Web: www.sacfs.asn.au
Email: sacfs@sacfs.asn.au
VIC/TAS/NT
Emerge Australia
Web: emerge.org.au
WESTERN AUSTRALIA
The ME/CFS Society of WA (Inc)
Address: The Centre for Neurological Support, The Niche, 11 Aberdare Road, Nedlands, Perth WA 6009
Phone: (08) 9346 7477
Fax: (08) 9346 7534
Web: www.mecfswa.org.au
Email: info@mecfswa.org.au

 

65km Trek For Fibromyalgia

Australian news

Wednesday 19 September 2018

 

From Erin Hext on GoFundMe:

 

Erin Hext
Erin Hext
(Photo: Bush Treks)
 

65km Trek for Fibromyalgia

By Erin Hext
© 2010-2018 GoFundMe

CONQUERING THE OVERLAND TRACK -

WHEN:

September 22nd 2018.

AIM:

To raise funds and awareness for Fibromyalgia research and treatments.

All proceeds will go to the Fibromyalgia ME CFS Australia Bridges and Pathways clinic in Adelaide.

MY STORY:

Little is known about Fibromyalgia, so I thought.

I’d never even heard of Fibromyalgia up until recently when I was diagnosed with it.

Specialists don’t know what really causes it and if or when there’ll be a cure or an effective treatment available for the millions of people around the world who suffer from it.

...

WHAT THE FUNDS WILL GO TOWARDS:

There is currently no clinic research demonstration centre in Australia where patients can receive the latest treatment and doctors can refer people to access the latest information and resources.

Funds raised from my walk will go towards:

• staff salaries for a new clinic which will be working with universities to pilot Fibromyalgia and Chronic Fatigue Syndrome general practice early intervention care plans and
• evaluating Centrelink and NDIS (disability assessment management criteria).

The money will cover the Clinic doctors’ salary gaps allowing them to spend more time with each patient and to liaise with the researchers to collect the best possible evaluation data. During the pilot practice nurses will be trained to oversee personalised care plans and referrals to other primary care providers.

Once this program has been evaluated for the Australian health care setting, it will be rolled out Australia wide, helping millions of Australians who suffer from this debilitating illness and their health care providers.

 

Full article…

 
 
 

South Australian Fibromyalgia Research – Healthy Volunteers Wanted

South Australian news

Wednesday 19 September 2018

 

From Bridges & Pathways:

 

MRI scan
 

Fibromyalgia Research Healthy Volunteers Wanted

By Cathie Powell
Copyright © 2018 Bridges & Pathways.

Women, who are healthy, but who exercise vigorously at most once per week or not at all, aged 18 to 65 and on no regular medication, wanted as volunteers for innovative Adelaide research investigating MRI markers of brain inflammation in fibromyalgia syndrome. Must not be biologically related to any one with fibromyalgia or chronic fatigue syndrome.

For more information see Participant Information Sheet and for a summary of previous research see the link.

 

Full article…

 
 
 

Society Constitution

South Australian news

Wednesday 19 September 2018

 

ME/CFS Society (SA) IncThe society's constitution has been updated:

 

PDF

ME/CFS Australia (SA) Inc Constitution (PDF, 283KB)

 
 
 

Survey: What Should Be Considered In The Design Of A Clinic To Treat Complex Health Conditions?

South Australian news

Tuesday 18 September 2018

 

Please read the letter below from Cathie Powell at Bridges & Pathways and consider completing the online survey. It only takes about 10 minutes and can really help highlight the need for a round the clock, all in one clinic for all those with chronic complex health conditions.

 

Bridges & Pathways
 

What should be considered in the design of a clinic to treat complex health conditions?

By Cathie Powell
Copyright © 2018 Bridges & Pathways.

We have an urgent request for you to respond to this State Health Survey about ‘the need for a one-stop clinic for people with chronic and complex conditions in South Australia’.

This is a unique opportunity for you to have your say on matters that are important to you about the services you require to manage your chronic condition/s.

While this is not the proposed ME/CFS clinic, it would be complementary and your responses will let the State Health Department know what all South Australians with complex chronic conditions need to manage their health.

We are aware that many of you have difficulty completing online surveys due to the severity of your illness, and that you may also require assistance from family members and / or carers to compile the information. With this in mind we are showing the questions below in printed form, so you have time to think about them before you go online to complete the survey.

As you reply, it is important to remember this is a State Clinic. The aim is to address Service gaps and reduce waiting lists that cause unnecessary stress, disability and the need to go to hospital emergency departments.

Some examples for us might be the lack of:
• GPs and GP clinics that provide continuing and appropriate care with both during the day and after hours access.
• Care Managers, Practice Nurses to coordinate the range of services you need.
• Affordable physiotherapy, exercise physiology, dieticians, occupational therapy, psychologists.
• Holistic providers (many of you have advised us, you use these as part of your care)
• Community education programs, Information, phone and other on-line support from peer groups.

For those of you who are house bound and or live in rural areas,
• The need for 24/7 phone support
Telehealth GP appointments both with the doctor and your Case Manager
• Problems you have with physical access, ambulance, wheel chair, lifters for examination tables.
• Multiple Chemical Sensitivity issues

Any other issues related to the cost of your care e.g.
• The cost of medications
• Cost of tests to guide treatments and help with assessments.
• Services to meet Centrelink and National Disability requirements.

When you open the survey online, you will find the following explanation and 6 questions. As this is an opportunity to have your say, we suggest you to think about the questions before you answer. Thank you!

What should be considered in the design of a clinic to treat complex health conditions? Patients who have chronic and complex health conditions often utilise significant health services, not always at their convenience, through hospitals and emergency departments when access to their GP / other services, cannot be gained. SA Health wants to hear from consumers about what they would like to be considered in the design of a One-Stop Clinic for consumers with chronic and complex conditions.

Questions
1. What professions / healthcare workers would you like to see working there (eg: doctors, nurses,
physiotherapist, dietician etc)? (be as specific as you can)
2. What services would you use (eg: physio, wellness and prevention health education, nursing, etc)? (be as specific as you can)
3. What currently makes accessing health services difficult?
4. What would make you go to a ‘one stop clinic’ rather than present to an Emergency Department?
5. What would stop you from going to a ‘one-stop clinic’?
6. Any other comments or suggestions?

Below is the link to the on-line survey about the design of a clinic to treat complex health conditions on behalf of the SA State Health Department. We urgently request you complete it.

https://www.surveymonkey.com/r/CFF2SGZ

Thank you in advance. If you need help please ask your carers to assist you.

Regards Cathie and the SA ME/CFS Fibromyalgia Collaboration Clinic team.
South Australian ME/CFS/FMS Clinical & Research Collaboration
c/- Bridges & Pathways Institute Inc
Office: 08 82704316 or Mobile: 0447 133 682 or AH: 08 8358 6086
Email: bpprojects02@gmail.com

 
 
 

Netflix Users Demand Service Remove Chronic Illness Series 'Afflicted'

International news

Monday 17 September 2018

 

From popculture.streaming:

 

Bekah Fly
Afflicted participant Bekah Fly
 

Netflix Users Demand Service Remove Chronic Illness Series 'Afflicted'

By Daniel S. Levine
September 16, 2018
Entertainment Tonight/TV Guide Network. Copyright 2017 PopCulture.com. All rights reserved.

More than 7,400 people have signed a petition calling for Netflix to take down Afflicted, a controversial documentary series about people with chronic illnesses released last month.

Since all seven episodes of the series were released on Aug. 10, the show has been widely criticized for its portrayal of the subjects. Some argue that it makes a mockery out of those with chronic illnesses, and others say it ignores scientific studies on the conditions they have. The subjects themselves have also spoken out against the show.

More than 7,400 people have signed a petition calling for Netflix to take down Afflicted, a controversial documentary series about people with chronic illnesses released last month.

 

Full article…

 
 
 

Fibromyalgia Research – Healthy Volunteers Wanted

South Australian news

Monday 17 September 2018

 

From Bridges and Pathways:

 

Adelaide University
 
 
Robinson Research Institute

 

Fibromyalgia Research Healthy Volunteers Wanted

Women, who are healthy, but who exercise vigorously at most once per week or not at all, aged 18 to 65 and on no regular medication, wanted as volunteers for innovative Adelaide research investigating MRI markers of brain inflammation in fibromyalgia syndrome. Must not be biologically related to any one with fibromyalgia or chronic fatigue syndrome.

For more information see Participant Information Sheet and for a summary of previous research see the link.

For further information about the fibromyalgia syndrome, please see also the following link.

 

Full article…

 
 
 

Participants Needed For Online Survey

South Australian news

Monday 17 September 2018

 

From The CONVERSATIONS Project (via email):

 

The Conversations Project
 

Consumer Expectations & Experiences of the Health Care System – An International Study

The CONVERSATIONS Project
Originally published January 30, 2017

Do you want your voice to be heard?

Participants are needed for an online survey (about 20 mins). Researchers from University of SA and Flinders University are looking to understand consumer health care needs.

Your support in this study will help us to understand your health care needs, determine how responsive your health system is to your needs, and identify areas where health systems could improve to better serve these needs. In appreciation you will be invited to enter a draw to win one of 10 x AU$50 Visa Cards. You will also have the opportunity to receive a copy of the findings.

The survey can be found at https://www.surveymonkey.com/r/CONVERSATIONS-2016.

For more information go to www.conversations-project.info.

#MECFS #MECFSResearch

 
 
 

ME/CFS Australia (SA) Inc Co-Signs International Open Letter

South Australian news

Monday 17 September 2018

 

ME/CFS Australia (SA) Inc
 

ME/CFS Australia (SA) has signed an open letter to the journal Psychological Medicine asking for the 2013 PACE paper to be retracted.

By Deborah Marlin, Committee Member
Originally published on 30 March 2017

No doubt you will remember the PACE trial, a research study conducted in the UK looking at the effectiveness of GET (graded exercise therapy) and CBT (cognitive behaviour therapy) in the treatment of ME/CFS.

In 2013 the research team published a paper in the journal Psychological Medicine, in which they stated that each of these treatments led to recovery in 22% of patients, compared with only 7% in a comparison group. The two treatments, they concluded, offered patients “the best chance of recovery.”

There has been much criticism of the research methods used in this study from other researchers and from the ME/CFS community. ME/CFS Australia (SA), also, has serious concerns about methodological design flaws in the PACE trial.

 

Read more…

 
 
 

Petition: Fix The Issues With Accessing The Disability Support Pension

Australian news

Sunday 16 September 2018

 

From Jake Bailey on Change.org:

 

Centrelink is broken
 

Fix the issues with accessing the Disability Support Pension

Jake Bailey started this petition to Minister for Veterans' Affairs Hon. Dan Tehan MP and 3 others
1 March 2018

The current process for people suffering from chronic illness and disability to access social services is flawed in Australia. With waiting times exceeding 9 months for people to be assessed for the Disability Support Pension (DSP) it is forcing those living with a disability in some cases to live a lifestyle that puts them below the poverty line and is causing immense emotional hardship.

 

Full article…

 
 
 

Petition: Stop The Closure Of Welfare Rights Centre SA

South Australian news

Sunday 16 September 2018

 

From Change.org:

 

WRC
 

STOP THE CLOSURE OF WELFARE RIGHTS CENTRE SA

By Stephany Del Canto
1 June 2017

© 2017, Change.org, Inc.
Certified B Corporation

AWARD WINNING SPECIALIST WELFARE RIGHTS CENTRE SA FACING CLOSURE

Welfare Rights Centre SA is a community legal centre which specialises in social security law. The Centre has 30 years of experience and expertise in social security law and Centrelink administration. We provide free legal advice and representation to clients facing Centrelink problems. Our clients are the most vulnerable in our community; including terminally ill clients, systematically abused and significantly mentally ill clients attempting to obtain the Disability Support Payment, young people escaping horrifically violent homes to obtain a payment to afford food and people leaving domestic violence relationships to get payments to start a new life.

...

In the 2015-2016 financial year, we provided legal advice to well over 2,000 clients facing Centrelink issues and saw over 500 clients through the Housing Legal Clinic.

Late on Friday afternoon, 26 May, we received the surprising and shocking news that the Welfare Rights Centre SA was unsuccessful in retaining their funding beyond the 30 June 2017.

This level of expertise does not exist anywhere else in South Australia. All this experience will be lost if the closure goes ahead. The inability to get timely access to secure income support is often at the root of other legal needs, including housing, credit and debt and family violence. We have assisted domestic violence victims, vulnerable minors, people with significant disabilities and those facing homelessness.

 

Full article…

 
 
 

Entertainment Book

South Australian news

Saturday 15 September 2018

 

Order your new Enteraintment Membership!

Dear Friends,

Not sure what you can do to support your ME/CFS community?

Buying an Entertainment Book for yourself or as a gift for others is one way of supporting your Society.

Even if you are unable to dine out, you can save money at selected supermarkets and other retailers. The two for one vouchers come in handy with visitors and children, when using entertainment venues or activity centres.

Let family and friends know they can purchase their new Entertainment Books from us. Not just books covering South Australia; books are available for other states in Australia.

Where to buy:

- At our next Seminar
- Online at https://www.entertainmentbook.com.au/orderbooks/167c042
- For hard copy books (as opposed to digital copies), pay a bit extra for delivery or collect from Parkside – Ph: 1300 128 339 – or email pdelfante@sacfs.asn.au to make arrangements.

 

"The Entertainment Book is great value for such a low price. There are a lot of savings I get back instantly. It more than outweighs the original price. There is something for everyone, casual, fine dining, adventure and family...." - Susan L

 

Entertainment Book

 
 
 

Chronic Illness Manifesto Survey

International news

Friday 14 September 2018

 

From the UK's Chronic Illness Inclusion Project:

 

Chronic Illness Inclusion Project
 

Chronic Illness manifesto survey

About this survey

This is our first major survey capturing the experiences and views of people living with chronic illness. This is an opportunity to stand up (or lie down) and be counted and have your voice heard. Your responses will inform our chronic illness manifesto for change.

This survey is open to anyone with a long-term health condition or impairment that restricts their day to day life.

The survey takes about 20 minutes to complete. You can complete it in stages, coming back to where you left off. Please take breaks when you need to. We appreciate the effort surveys like this can take, and your answers are incredibly valuable. The more responses we get, the stronger our case for change.

The Chronic Illness Inclusion Project is a research project led by people with chronic illness and supported by the Centre for Welfare Reform. It is part of the DRILL programme of disability research and is funded by Big Lottery Fund. Find out more about DRILL here.

 

Begin the survey here…

 
 
 

NIH Launches New Working Group Dedicated To ME/CFS

International news

Friday 14 September 2018

 

From the Solve ME/CFS Initiative:

 

NIH
 

NIH LAUNCHES NEW WORKING GROUP DEDICATED TO ME/CFS

September 13, 2018
Copyright © 2018 The Solve ME/CFS Initiative.

The NIH (National Institutes of Health) recently formed The ME/CFS Working Group of the NINDS (National Institute of Neurological Disorders and Stroke) Advisory Council. The NINDS Advisory Council is an ongoing council chaired by Dr. Walter Koroshetz and is the highest decision-making authority within NINDS.

The news comes via the NINDS website:

“In May of 2018 the National Institute of Neurological Disorders and Stroke (NINDS) announced the creation of a Working Group of the National Advisory Neurological Disorders and Stroke (NANDS) Council focused on how best to advance research on myalgic encephalomyelitis / chronic fatigue syndrome (ME/CFS).

The Working Group was formed in summer 2018 and is composed of scientists, clinicians, representatives from advocacy organizations and individuals with ME/CFS, and is chaired by Dr. Steve Roberds, a member of the NANDS Council. The group held an introductory teleconference on September 4, 2018, during which Dr. Walter Koroshetz, NINDS Director, charged the group with providing scientific guidance on how best to advance research in ME/CFS at NIH. This includes identifying gaps and opportunities in ME/CFS research, considering unique opportunities for NIH-supported ME/CFS research to attract and train a pipeline of new and young investigators in this field, and identifying potential approaches to enhance ongoing research collaboration and communication between relevant advocacy organizations, individuals with ME/CFS, researchers, and federal agencies focused on funding research in ME/CFS. To inform these activities, the Working Group will seek input broadly from stakeholders (including people with ME/CFS, researchers and clinicians, and advocacy organizations) and other federal agencies, and will frame its findings in the context of ongoing activities.”

Carol Head, of SMCI, will sit on the Working Group as leader of the non-profit ME/CFS research and patient advocacy organization. We are pleased that SMCI has a seat at this table and believe the formation of this new Working Group, which has authority within the NIH, is a positive step forward the future of ME/CFS research at the NIH.

 

Full article…

 
 
 

'I Couldn't Hold A Pen' Mum Reveals Fibromyalgia Battle – Same Illness As Kirsty Young

International news

Friday 14 September 2018

 

From UK newspaper the Daily Express:

 

Claire Allan
Claire Allan says she is determined to lead
a full life despite having fibromyalgia.
(Photo: Claire Allan)
 

'I couldn't hold a pen' Mum reveals fibromyalgia battle – same illness as Kirsty Young

By Claire Allan
September 11, 2018
Copyright ©2018 Express Newspapers. "Daily Express" is a registered trademark. All rights reserved.

WHEN I read recently that BBC broadcaster Kirsty Young has been forced to take a break from Radio 4’s Desert Island Discs because she has a form of fibromyalgia I felt huge sympathy for her. I know just how debilitating this illness can be because I’ve suffered from it myself. I had started 2016 on a health high.

In 2015 I had managed to lose more than 3st 5lb and had overcome a health scare when I developed sepsis after a hysterectomy.

I was feeling really positive and determined, as my 40th birthday loomed, that I would be going into a new decade in a positive place.

In February, I started to notice that my hands were aching and I felt generally unwell. Not terribly sick but enough that it started to nag at me.

It felt as if I was getting flu but the flu never came.

The pain in my hands got worse, at times they felt very stiff.

Then the pain started to spread.

 

Full article…

 
 
 

Lady Gaga Opens Up In Vogue Interview About Struggling With Fibromyalgia And PTSD

International news

Thursday 13 September 2018

 

From Allure:

 

Lady Gaga
Lady Gaga
(Photo: Getty Images)
 

Lady Gaga Opens Up in Vogue Interview About Struggling With Fibromyalgia and PTSD

By Andrea Park at Self
September 12, 2018
© 2018 Condé Nast. All Rights Reserved.

Almost exactly one year ago, Lady Gaga took to Twitter to share that she had been diagnosed with fibromyalgia, which caused chronic pain and eventually led to her postponing several of her fall 2017 European tour dates. In her cover interview for the October 2018 issue of Vogue, the pop star opened up further about her health and about the misconceptions that inevitably follow diagnoses of fibromyalgia and other chronic illnesses.

"I get so irritated with people who don't believe fibromyalgia is real. For me, and I think for many others, it's really a cyclone of anxiety, depression, PTSD, trauma, and panic disorder, all of which sends the nervous system into overdrive, and then you have nerve pain as a result," she said. "People need to be more compassionate. Chronic pain is no joke. And it's every day waking up not knowing how you're going to feel."

 

Full article…

 
 
 

How Netflix's 'Afflicted' Failed The Chronic Illness Community

International news

Thursday 13 September 2018

 

From The Huffington Post:

 

Bekah Fly
 

How Netflix’s ‘Afflicted’ Failed the Chronic Illness Community

According to participants in the docuseries, producers promised compassion but delivered exploitation instead.

By Caitlin Flynn On Assignment for HuffPost
September 12, 2018
©2018 Oath Inc. All rights reserved. HuffPost News.

When “Afflicted” viewers first meet Bekah Fly, she and her boyfriend Jesse are living in a secluded van in the middle of the California desert. Her severe mold sensitivity makes it difficult for her to reside in traditional homes or apartments, she explains. She only leaves the desert for doctor’s appointments and otherwise avoids indoor spaces to keep her symptoms, such as asthma, at bay.

In the premiere episode, Fly tells the cameras that the prospect of indefinitely living with her mold sensitivity, on top of chronic Lyme disease, sometimes makes her wish to end her life. In the fourth episode of “Afflicted,” cameras pan to Fly’s brother Nick Dinnerstein, who discusses her history of depression and anxiety. Fly’s parents also make a brief appearance in the series, recalling her experience in a psychiatric ward as a teenager.

Together, the edited scenes forefront Fly’s mental health, pairing her family’s soundbites with those of medical experts who speculate that she and her fellow “Afflicted” subjects’ illnesses are the result of psychiatric problems.

When producers first contacted Fly about participating in the Netflix docuseries, she was worried about how the show intended to depict people with chronic illness. So she took a direct approach, she said: “I just asked them straight out, ‘Is this going to be a slant of where you have a bunch of doctors calling patients crazy?’”

According to her, executive producers Dan Partland and Peter Logreco assured Fly that they were committed to telling each patient’s story with compassion in their seven-episode series. She believed them, and, in 2017, decided to take part in “Afflicted.” By participating in the show, the 30-year-old New York City native said she was told she’d have the opportunity to work with doctors that she couldn’t otherwise afford.

Today, she regrets that decision.

In her opinion, producers of “Afflicted,” which premiered in August, not only misrepresented the extent of her health conditions on screen, but they pushed a singular narrative that’s long haunted individuals with a variety of persistent, multi-symptomatic, tough-to-diagnose illnesses: Her sickness is all in her head.

 

Full article…

 

See also: Medium – How Afflicted Manipulates Facts, Omits Evidence, and Insinuates Lies to Discredit Chronic Physical Illnesses.

 
 
 

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