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ME/CFS Australia Ltd
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Society Seminars
Saturday 16 August 2014
12:30 pm - 2:30 pm
Speaker: Robyn Lingard
Details…
 
Saturday 22 November 2014
Annual General Meeting
1 pm - 3 pm
Speaker: Dr Susan Cockshell
Details…
 
Become a Member
PDF Application Form 2014 (PDF, 243KB)
Text Application Form 2014 (plain text)
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ME/CFS AUSTRALIA (SA) INC

Registered Charity 698

Email:
sacfs@sacfs.asn.au

Mailing address:
PO Box 28,
Hindmarsh,
South Australia 5007

Office:
266 Port Road,
Hindmarsh,
South Australia 5007
Ph: 1300 128 339

Office Hours:
Wednesdays, 10am-3pm


FIBROMYALGIA HELP:
Contact
Fibromyalgia SA
at the
Arthritis Foundation of SA
118 Richmond Road,
Marleston 5033
Ph: (08) 8379 5711

ME/CFS Australia (SA) Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.

Disclaimer

ME/CFS Australia (SA) Inc aims to keep members informed of the various research projects, diets, medications, therapies etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.

Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.

Support

Eco Pest Control

ME/CFS Australia (SA) Inc wishes to thank Eco Pest Control for its support of the Society.

BankSA & Staff Charitable Fund

ME/CFS Australia (SA) Inc wishes to thank BankSA & Staff Charitable Fund for its support of Talking Point, the Society’s official journal.

ME/CFS Diagnostic Criteria and Guidelines

www ME: International Consensus Criteria
(Journal of Internal Medicine, Aug 2011)
PDF

For GPs:
ME – Adult & Paediatric:
International Consensus Primer for Medical Practitioners
(2012)
(PDF, 1.49 MB)

PDF

ME/CFS: A Clinical Case Definition and Guidelines for Medical Practitioners
– An Overview of the Canadian Consensus Document
(2005)
(PDF, 1 MB)

  Note: See here for an overview on the Canadian Consensus Criteria for Fibromyalgia (PDF, 1.70 MB)

PDF

ME/CFS Guidelines for GPs
(South Australian Department of Health)
(English) (PDF, 460 KB)

PDF

ME/CFS Guidelines for GPs
(South Australian Department of Health)
(German) (PDF, 186 KB)

PDF

For Psychiatrists (in English):
CFS: Assessment and Treatment of Patients with ME/CFS – Clinical Guidelines for Psychiatrists
(Eleanor Stein MD FRCP[C], 2005)
(PDF, 460 KB)

PDF

For Psychiatrists (in German):
Chronic Fatigue Syndrom: Diagnose und Behandlung von Patienten mit ME/CFS – Klinische Leitlinien für Psychiater
(Eleanor Stein MD FRCP[C], 2005)
(PDF, 313 KB)

 
Australian ME/CFS Societies
NATIONAL
ME/CFS Australia Ltd
Address: PO Box 7100 Dandenong VIC 3175
Phone: (03) 9793 4500
Fax: (03) 9793 1866
Web: www.mecfs.org.au
Email: ceo@mecfs.org.au
AUSTRALIAN CAPITAL TERRITORY
ACT ME/CFS Society, Inc
Address: c/o SHOUT, PO Box 717, Mawson ACT 2607
Phone: (02) 6290 1984
Fax: (02) 6290 4475
Web: www.mecfscanberra.org.au
Email: mecfsadmin@shout.org.au
NEW SOUTH WALES
ME/CFS Society of NSW Inc
Postal address: PO Box 5403, West Chatswood NSW 1515
Office address: Suite 204, 10 Help Street, Chatswood NSW 2067
Phone: (02) 8006 7448
Web: www.me-cfs.org.au
Email: admin@me-cfs.org.au
NEW SOUTH WALES
The ME/CFS & FM Association NSW
Web: www.mecfsnsw.org
NORTHERN TERRITORY
ME/CFS Australia (Northern Territory)
Address: PO Box 120, Prahran, VIC 3181
Reception: (03) 9529 1344
Support Line: (03) 9529 1600
Web: www.mecfs-vic.org.au
Email: admin@mecfs-nt.org.au
QUEENSLAND
ME/CFS/FM Support Association Qld Inc
Address: 27 Scott Street, Toowoomba Qld 4350
Phone: (07) 4632 8173
Phone: (07) 4659 5239
Web: www.mecfsfmq.org.au
Email: mefmtba@bigpond.com
SOUTH AUSTRALIA
ME/CFS Australia (SA) Inc
Postal address: PO Box 28, Hindmarsh SA 5007
Address: 266 Port Road, Hindmarsh SA 5007
Phone: (08) 8346 3237 ('834 MECFS')
Support line: (08) 8346 3237 or 1300 128 339 for country callers
Web: www.sacfs.asn.au
Email: sacfs@sacfs.asn.au
TASMANIA
ME/CFS Australia (Tasmania)
Address: PO Box 120, Prahran, VIC 3181
Reception: (03) 9529 1344
Support Line: (03) 9529 1600
Web: www.mecfs-vic.org.au
Email: admin@mecfs-tas.org.au
VICTORIA
ME/CFS Australia (Victoria)
Office address: 2/240 Chapel Street, Prahran, VIC, 3181
Postal address: PO Box 120, Prahran, VIC 3181
Reception: (03) 9529 1344
Support Line: (03) 9529 1600
Web: www.mecfs-vic.org.au
Email: admin@mecfs-vic.org.au
WESTERN AUSTRALIA
The ME/CFS Society of WA (Inc)
Address: The Centre for Neurological Support, The Niche, 11 Aberdare Road, Nedlands, Perth WA 6009
Phone: (08) 9346 7477
Fax: (08) 9346 7534
Web: www.mecfswa.org.au
Email: info@mecfswa.org.au

PDF

List of Australian ME/CFS organisations
(PDF, 19 KB)

Word

List of Australian ME/CFS organisations (Word, 41 KB)

 

 

Norwegian 'Woulds' (and 'Wouldn'ts'): The ME/CFS Survey

International news

Monday 28 July 2014

 

From Health Rising:

Norway
 

Norwegian ‘Woulds’ (and ‘Wouldn’ts’): The ME/CFS Survey

By Cort Johnson

We rarely get country-wide surveys and it’s definitely worthwhile taking a look at one when they occur. Norway, of course, is an interesting place these days with strong advocacy efforts getting significant media attention and pushing the Norwegian government to fund the Fluge/Mella Rituximab trials. Norway, as a country, appears to be a bit more Chronic Fatigue Syndrome aware than other countries – but is that awareness showing up in improved health?

1100 people answered the survey. Awareness may be higher than other countries but support is still very limited with just one (controversial) young person care facility and one hospital with a clinic for adults with ME/CFS.

Work at a clinic in Norway, however, sparked the B-12/MTHFR trial being carried out by the Open Medicine Institute and the 150 person, multi-center Fluge/Mella Rituximab trial is now getting underway. Norway, with its small resources and small population is definitely making a difference in the ME/CFS world.

Read more…

 
 
 

Study: Melatonin analgesia

International news

Sunday 27 July 2014

 

From BMC Pharmacology & Toxicology:

Tablets
 

Melatonin analgesia is associated with improvement of the descending endogenous pain-modulating system in fibromyalgia: a phase II, randomized, double-dummy, controlled trial

Authors:
Simone Azevedo de Zanette
Rafael Vercelino
Gabriela Laste
Joanna Ripoll Rozisky
André Schwertner
Caroline Buzzatti Machado
Fernando Xavier
Izabel Cristina de Souza
Alicia Deitos
Iraci L Torres
Wolnei Caumo

Publication:
BMC Pharmacology and Toxicology 2014, 15:40 doi:10.1186/2050-6511-15-40

Published:
23 July 2014

Abstract (provisional)

Background

Central disinhibition is a mechanism involved in the physiopathology of fibromyalgia. Melatonin can improve sleep quality, pain and pain threshold. We hypothesized that treatment with melatonin alone or in combination with amitriptyline would be superior to amitriptyline alone in modifying the endogenous pain-modulating system (PMS) as quantified by conditional pain modulation (CPM), and this change in CPM could be associated with serum brain-derived neurotrophic factor (BDNF). We also tested whether melatonin improves the clinical symptoms of pain, pain threshold and sleep quality.

Read more…

 
 
 

The human face of the Irish Coalition's disability funding cuts

International news

Saturday 26 July 2014

 

From Ireland's Sunday Independent:

Valerie Mullen
Valerie Mullen
(Photo: Tony Gavin)
 

The human face of Coalition's €1.2m disability funding cuts

Voluntary groups face an uphill battle to secure new funds within the next 12 months, writes Wayne O'Connor

PUBLISHED 20/07/2014|00:00

For years, Valerie Mullen was in so much pain that she attempted to take her own life on four separate occasions. Valerie suffers from fibromyalgia, a condition that causes her extreme physical and mental pain.

"I usually have awful pain in my back, my legs and my arms. It affects my sleep, it affects eating - it affects everything," she told the Sunday Independent.

"It is a motor neuron disease of the nervous system, where you have a constant, burning pain in every nerve you have."

The condition has taken a terrible toll on the 56-year-old from Rathgar, Dublin, and this was compounded when her basic mobility was impaired after she suffered a stroke five years ago.

Read more…

 
 
 

Student writer pursues passion, fights illness

International news

Friday 25 July 2014

 

From US news outlet The Courier (via SFGate):

Typewriter
 

Student writer pursues passion, fights illness

By KATE MABRY, The Courier
Published 8:02 am, Sunday, July 20, 2014

HOUMA, La. (AP) — A Nicholls State senior who has fibromyalgia and Lyme disease uses her passions for writing and art to prevail over her illnesses.

English major Sarah Hamilton, also known by her pseudonym Sarah Panic, crafts plaques and prints by typing prose onto photos from old magazines and books.

Since the 25-year-old Houma resident and Montegut native began her work, she has created several hundred prints and more than 15 plaques.

Read more…

 
 
 

ME woman Beth French swims 26 miles to the Isles of Scilly

International news

Thursday 24 July 2014

 

From the BBC:

Beth French
Beth French could not use
flippers, a wetsuit or
drysuit in the challenge
 

ME woman Beth French swims 26 miles to Scilly

23 July 2014 Last updated at 16:50

A woman who was once forced to use a wheelchair because of Chronic Fatigue Syndrome (CFS), or ME, has swum 26 miles from Cornwall to the Isles of Scilly.

Beth French, 36, who had the condition as a teenager, made the crossing in 17 hours, 28 minutes.

The massage therapist from Milverton, Somerset, is believed to be the first person to complete the swim in that direction.

Now she is planning a swim from Gibraltar to Morocco.

Read more…

 
 
 

Archibald Prize entry: "My Plague" by Julian Parker Welch

Australian news

Wednesday 23 July 2014

 

From artist Julian Parker Welch (via email):

"My Plague" by Julian Parker Welch
A section of "My Plague"
by Julian Parker Welch
(Click here for
the full painting)
 

I am a Sydney painter that recently did a piece for the Archibald Prize. I was not picked, which doesn't shock me or undermine my real reason for this piece.

Hopefully my explanation will give you a clear idea of what and who the painting is of.

The painting depicts two figures – in a pool of light at the foreground sits Professor Andrew Lloyd, Head of Infectious Disease at the University of New South Wales, and in the shadows at the back looms a Black Plague doctor from the 1400s.

This work has particular significance to me. For the last four years I have suffered from ME/CFS (Myalgic Encephalomyelitis/Chronic Fatigue Syndrome), which is a severe functionally disabling neuro-immune illness.

Read more…

 
 
 

Fibromyalgia research update from Integrated Tissue Dynamics

International news

Tuesday 22 July 2014

 

From ProHealth:

Research
 

Fibromyalgia Research Update from Integrated Tissue Dynamics

www.ProHealth.com • July 17, 2014

Editor's comment: In June 2013, we told you about new research conducted by Integrated Tissue Dynamics (INTiDYN), which found that people with fibromyalgia have excessive sensory nerve fibers around specialized blood vessel structures located in the palms of the hands. (See “Fibromyalgia: It's Not All in Your Head – It's in Your Hands!”) This week Dr. Frank Rice, President and Chief Scientist at INTiDYN, sent out this letter updating us on what they have been doing since releasing their groundbreaking study last year. Following the letter, you'll find links to the original journal article and related documents as well as some additional notes from Dr. Rice.

It has been too long since I have been in contact with many of you. An update is long overdue.

I am sure you wish research would go faster and so do we. We regret that we have not yet published anything new since the study last June in PAIN Medicine. It took over 3 years of research for that one publication. Based on the initial discovery of a real pathology, there are more than enough ideas to pursue (many inspired by you) limited by time and money. We are working on novel ideas and funding from many angles including the recent submission of a multi-million dollar grant proposal to the National Institutes of Health (NIH) in collaboration with the Center of Excellence for Pain Medicine at the University of California at San Diego. The proposed research would expand our study on female fibromyalgia patients, add male fibromyalgia patients, and include patients with complex regional pain syndrome (also known as reflex sympathetic dystrophy) and low back pain. It will take 3 months before we will know whether it is funded. So keep your fingers crossed.

Read more…

 
 
 

For previous news items, visit our full “In the News” archive:

In the News


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