ME/CFS Australia (SA) Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.
ME/CFS Australia (SA) Inc aims to keep members informed of the various research projects, diets, medications, therapies etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.
Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.
ME/CFS Australia (SA) Inc wishes to thank Eco Pest Control for its support of the Society.
To further assist busy medical practitioners, Dr Bruce Carruthers, principal author of the ME/CFS Consensus Document and Co-Editor of the FMS Consensus Document, and Marjorie van de Sande, Consensus Coordinator of the Consensus Documents, have written and published Overviews of the Canadian Consensus Documents for ME/CFS and FMS independent of any organisation.
Editor's Comment: The authors of this study state that "[t]his is the first study to examine whether immunological differences may be found among patients fulfilling different diagnostic criteria for CFS/ME, according to the 1994 CDC and ICC. The findings indicate that the ICC is invaluable in identifying immunological differences that have consistently been shown to be decreased in CFS/ME patients diagnosed with the 1994 CDC."
Apart from its finding that the ICC is invaluable for identifying immune system abnormalities in patients with CFS/ME, this study demonstrates that objective measurements of immune system markers are essential for diagnosing the illness. The authors also found that "CFS/ME is not necessarily associated with irregular distribution of lymphocyte subtypes but rather deregulation of intricate functional capacities of these immune lymphocytes. It is important to consider in the interpretation of the findings that a relationship between immunological parameters and physical health does not imply causality but supports the hypothesis that some CFS/ME patients have an underlying immune mechanism contributing to their illness."
In short, this study provides concrete evidence that CFS/ME, at least for a subset of patients, is the product of an immune system disorder.
Editor's Comment: German researchers assessed the safety and effectiveness of treatment with vibration massage using a deep oscillation device for fibromyalgia. The technique is currently used by physiotherapists but also promoted for home-based self-application to stimulate the absorption of edema and reduce pain, as well as for its anti-inflammatory and antifibrous effects. However, it's safety and effectiveness for fibromyalgia had not been previously studied.
Sixty-three FM patients completed the trial. They received 45-minute treatments twice a week over a five-week period. Forty-one of the patients reported a total of 63 mild and short-lasting adverse events – mostly a worsening of prevalent FM symptoms. However, overall symptoms and quality of life were significantly improved at both the control and follow-up visits. The researchers concluded that vibration massage by deep oscillations is safe and and might provide sustained improvement in FM symptoms and quality of life.
Have you ever turned to alcohol trying to relieve your fibromyalgiasymptoms? It's a possibly dangerous and probably controversial topic, but some researchers are putting it out there.
A new paper from Tufts University asks the question of whether alcohol could be an alternative treatment for us. The researchers behind it base their inquiry on two things:
A study released earlier this year, and
Alcohol's impact on pain pathways and the neurotransmitter GABA.
I wrote about the earlier study back in March. Basically, when looking at self-reported alcohol consumption in people with fibromyalgia, researchers linked moderate alcohol use with lower pain levels and better quality of life. (More alcohol did not mean more relief!)
If he wants to observe a classic David-versus-Goliath rumble, Gladwell might want to go to Washington on Tuesday (Dec. 10). He will see a frail woman go up against the federal government with a humble petition and a small following of mostly very sick people.
Her name is Susan Kreutzer and she suffers from the debilitating and mysterious disease Chronic Fatigue Syndrome (CFS), also known as Myalgic Encephalomyelitis, which is the name patients favor.
Kreutzer and others will begin their demonstration at 9a.m. outside the headquarters of the Department of Health and Human Services on Independence Avenue, where she will hand over a petition. Then she will move up the street to Capitol Hill to demonstrate and hand-deliver petitions to members of Congress. She will end her day of petitioning her government outside the White House.
When you have a debilitating chronic illness like fibromyalgia and chronic fatigue syndrome, sometimes you find yourself stuck in bed or on the couch for long stretches of time - like days or weeks. At the same time, most of us have to keep a household running as much as possible. It's a daunting task, especially when taking a shower leads to a four-hour nap, or when you're in so much pain that you can barely speak.
I had a few years where I'd be up for a couple weeks, then down for a couple weeks. My kids were really little then. It wasn't easy, but we found ways to make it work ... at least, at a basic level. I've had some reminders of this lately, since I keep getting really sick and going down for a few days (thank you, suppressed immune system!) It's also shown me what it's like with somewhat older kids, who are capable of more, but also harder to keep my eye on.
First, a word of encouragement for those who are in this situation: Being limited by your illness DOES NOT make you a bad parent. A whole lot of us have raised happy, well-adjusted kids while facing those limitations, and they often grow up to be especially caring, understanding, and self-reliant because of our challenges. Make sure they know they're loved, and they'll be okay in spite of fewer trips to the park and getting their own snack out of the fridge.
A brand new neuroscience research project is about to get underway on the Isle of Wight that will focus its attention on the debilitating chronic pain condition, Fibromyalgia Syndrome (FMS).
The Island’s Radiology and Chronic Pain departments will be linking with neuroscience colleagues at both Imperial College and University of Southampton to explore new techniques to help them better understand the condition.