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ME/CFS Australia Ltd
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ME/CFS AUSTRALIA (SA) INC

Registered Charity 698

Email:
sacfs@sacfs.asn.au

Mailing address:
PO Box 28,
Hindmarsh,
South Australia 5007

Office:
266 Port Road,
Hindmarsh,
South Australia 5007
Ph: 1300 128 339

Office Hours:
Wednesdays, 10am-3pm


FIBROMYALGIA HELP:
Contact
Fibromyalgia SA
at the
Arthritis Foundation of SA
118 Richmond Road,
Marleston 5033
Ph: (08) 8379 5711

ME/CFS Australia (SA) Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.

Disclaimer

ME/CFS Australia (SA) Inc aims to keep members informed of the various research projects, diets, medications, therapies etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.

Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.

Support

Eco Pest Control

ME/CFS Australia (SA) Inc wishes to thank Eco Pest Control for its support of the Society.

BankSA & Staff Charitable Fund

ME/CFS Australia (SA) Inc wishes to thank BankSA & Staff Charitable Fund for its support of Talking Point, the Society’s official journal.

Society Seminars for 2015
Saturday 14 February 2015
1:30pm
Speaker: Dr Roger Spizzo, Prospect Medical Centre
Topic: "The Fatigue Spectrum and the Gut"
Saturday 13 June 2015
1:30pm
Saturday 8 August 2015
1:30pm
Saturday 14 November 2015
1:30pm
Details for all seminars…

ME/CFS Diagnostic Criteria and Guidelines

www ME: International Consensus Criteria
(Journal of Internal Medicine, Aug 2011)
PDF

For GPs:
ME – Adult & Paediatric:
International Consensus Primer for Medical Practitioners
(2012)
(PDF, 1.49 MB)

PDF

ME/CFS: A Clinical Case Definition and Guidelines for Medical Practitioners
– An Overview of the Canadian Consensus Document
(2005)
(PDF, 1 MB)

  Note: See here for an overview on the Canadian Consensus Criteria for Fibromyalgia (PDF, 1.70 MB)

PDF

ME/CFS Guidelines for GPs
(South Australian Department of Health)
(English) (PDF, 460 KB)

PDF

ME/CFS Guidelines for GPs
(South Australian Department of Health)
(German) (PDF, 186 KB)

PDF

For Psychiatrists (in English):
CFS: Assessment and Treatment of Patients with ME/CFS – Clinical Guidelines for Psychiatrists
(Eleanor Stein MD FRCP[C], 2005)
(PDF, 460 KB)

PDF

For Psychiatrists (in German):
Chronic Fatigue Syndrom: Diagnose und Behandlung von Patienten mit ME/CFS – Klinische Leitlinien für Psychiater
(Eleanor Stein MD FRCP[C], 2005)
(PDF, 313 KB)

 
Australian ME/CFS Societies
NATIONAL
ME/CFS Australia Ltd
Address: PO Box 7100 Dandenong VIC 3175
Phone: (03) 9793 4500
Fax: (03) 9793 1866
Web: www.mecfs.org.au
Email: ceo@mecfs.org.au
AUSTRALIAN CAPITAL TERRITORY
ACT ME/CFS Society, Inc
Address: c/o SHOUT, PO Box 717, Mawson ACT 2607
Phone: (02) 6290 1984
Fax: (02) 6290 4475
Web: www.mecfscanberra.org.au
Email: mecfsadmin@shout.org.au
NEW SOUTH WALES
ME/CFS Society of NSW Inc
Postal address: PO Box 5403, West Chatswood NSW 1515
Office address: Suite 204, 10 Help Street, Chatswood NSW 2067
Phone: (02) 8006 7448
Web: www.me-cfs.org.au
Email: admin@me-cfs.org.au
NEW SOUTH WALES
The ME/CFS & FM Association NSW
Web: www.mecfsnsw.org
NORTHERN TERRITORY
ME/CFS Australia (Northern Territory)
Address: PO Box 120, Prahran, VIC 3181
Reception: (03) 9529 1344
Support Line: (03) 9529 1600
Web: www.mecfs-vic.org.au
Email: admin@mecfs-nt.org.au
QUEENSLAND
ME/CFS/FM Support Association Qld Inc
Address: c/o Mission Department, St. Vincent’s Hospital, Toowoomba Qld 4350
Phone: (07) 4632 8173
Web: www.mecfsfmq.org.au
Email: mefmtba@bigpond.com
Facebook Page
SOUTH AUSTRALIA
ME/CFS Australia (SA) Inc
Postal address: PO Box 28, Hindmarsh SA 5007
Address: 266 Port Road, Hindmarsh SA 5007
Phone: (08) 8346 3237 ('834 MECFS')
Support line: (08) 8346 3237 or 1300 128 339 for country callers
Web: www.sacfs.asn.au
Email: sacfs@sacfs.asn.au
TASMANIA
ME/CFS Australia (Tasmania)
Address: PO Box 120, Prahran, VIC 3181
Reception: (03) 9529 1344
Support Line: (03) 9529 1600
Web: www.mecfs-vic.org.au
Email: admin@mecfs-tas.org.au
VICTORIA
ME/CFS Australia (Victoria)
Office address: 2/240 Chapel Street, Prahran, VIC, 3181
Postal address: PO Box 120, Prahran, VIC 3181
Reception: (03) 9529 1344
Support Line: (03) 9529 1600
Web: www.mecfs-vic.org.au
Email: admin@mecfs-vic.org.au
WESTERN AUSTRALIA
The ME/CFS Society of WA (Inc)
Address: The Centre for Neurological Support, The Niche, 11 Aberdare Road, Nedlands, Perth WA 6009
Phone: (08) 9346 7477
Fax: (08) 9346 7534
Web: www.mecfswa.org.au
Email: info@mecfswa.org.au

PDF

List of Australian ME/CFS organisations
(PDF, 19 KB)

Word

List of Australian ME/CFS organisations (Word, 41 KB)

 

 

Kelly Organises Sponsored Walk To Raise Money For Invest In ME After Her Husband Is Diagnosed With CFS

International news

Tuesday 5 May 2015

 

From UK newspaper the Gloucester Citizen:

Kelly Meadows and her children
Kelly Meadows with her
children Thomas 5,
Jessica 6, and Cassidy 2
 

Kelly organises sponsored walk to raise money for Invest ME after her husband is diagnosed with CFS

By Maryam Qaiser
Posted: May 04, 2015

After coming down with a bout of flu Richard Meadows decided to take some time off work to recover.

Little did he know, more than two years later, he would never return to his job as a long distance lorry driver.

The father-of-three from Highnam has been diagnosed with myalgic encephalomyelitis which is chronic fatigue syndrome. Richard, who was mortgage advisor before becoming a lorry driver, now has severe difficulty walking up the stairs.

Wife Kelly has to care for him full-time. She said: "He has to use a wheelchair now if we go out, but he gets tired very quickly.

"Richard is a very clever man but now he can't hold down a job or play outside with his children. It is awful, if he walks down the stairs he needs to sit down on the sofa straight away."

The couple believe the condition was triggered by the flu Richard, 34, came down with in October 2013. He also has tremors from the fatigue syndrome.

Read more…

 
 
 

Wearable Device For Fibromyalgia, Back Pain, And Diabetic Nerve Pain Comes With iOS App

International news

Monday 4 May 2015

 

From the National Pain Report:

Quell
 

Wearable Device for Fibromyalgia, Back Pain and Diabetic Nerve Pain Comes with iOS App

By Ed Coghlan
May 1, 2015

A new wearable device for chronic pain uses electrical stimulation to help people with fibromyalgia, back pain and diabetic nerve pain gain relief. And, it comes with its own iOS app to work the device.

The device is worn on the upper calf and delivers electrical stimulation to activate sensory nerves in the leg. The stimulation triggers the brain to release endogenous opioids, which help block pain signals.

Dr. Shai Gozani, president and CEO of NeuroMetrix, the company that makes the Quell system said,  “When you stimulate normal sensory nerves, it actually will trigger the brain to block pain signals. It elevates your inherent pain modulating chemicals—at a molecular level, it’s what painkillers do synthetically. But you can essentially cause a similar effect without any of the downsides by electrically stimulating to induce your brain to produce these chemicals.”

The Quell system is FDA-approved and available without a prescription. People who use the device state they wear it at night as well as during the day, and some report receiving pain relief within 15 minutes of turning stimulation on.

Read more…

 
 
 

Shining A Light: The End ME/CFS Project's Severely Ill Patient Study

International news

Sunday 3 May 2015

 

From Health Rising:

Health Rising

 

Shining A Light: The End ME/CFS Projects Severely Ill Patient Study

By Cort Johnson on May 1, 2015

The severely ill… They are the most baffling, disturbing and potentially illuminating subset of ME/CFS patients found.

Baffling

It’s hard to even read some of their stories. Their degree of debilitation can be mind-boggling. At their worst they can be totally bedbound, shuttered in darkness and almost completely removed from the world. The smallest stimulus can them into a relapse. It’s as if their nervous systems have collapsed on themselves.

The medical profession rarely encounters such complete debility. Consider that people in the last stage of heart failure can get around better than many of the most severely ill patients.

How formerly healthy and productive people ended up like is a complete mystery. No findings in ME/CFS can explain this kind of debilitation.

It’s time someone tried.

Read more…

 
 
 

All Fired Up For Latest Awareness Challenge

International news

Saturday 2 May 2015

 

From Irish newspaper the Connacht Tribune:

Nicola Lavin
Nicola Lavin, whose
Chilli Challenge idea for
creating awareness of ME,
is set to go global.
(Photo: Joe O'Shaughnessy)
 

All fired up for latest awareness challenge

Written by:
Friday, 1 May 2015 6:00

Lifestyle – Judy Murphy meets Nicola Lavin, a Galway woman spearheading the worldwide Chilli ME Challenge

First it was the Ice Bucket Challenge in aid of research into Motor Neuron Disease. Now things are going from freezing cold to red hot, thanks to Galway woman Nicola Lavin who has spearheaded the Chilli ME Challenge. This initiative is to raise awareness of and help fund research into Myalgic Encephalomyelitis, otherwise known as Chronic Fatigue Syndrome.

Nicola, who is originally from Menlo and now lives in Headford, is one of some 12,000 people in Ireland with ME – it has affected her life since her early 20s.

Nicola suffered from heart failure after giving birth to her son Aaron almost 14 years ago, and after that, she developed a mild form of ME. Medics thought that she had come into contact with a virus which caused her heart problems and also acted as a trigger for ME.

Read more…

 
 
 

When Physical Trauma And Infection Trigger Fibromyalgia

International news

Friday 1 May 2015

 

From ProHealth:

ProHealth
 

When Physical Trauma and Infection Trigger Fibromyalgia.

By Juan Jiao, MD, et al.
www.ProHealth.com
April 19, 2015

Physical Trauma and Infection as Precipitating Factors in Patients with Fibromyalgia.

Abstract:

OBJECTIVE: The objective of this study was to evaluate both precipitating factors in patients with fibromyalgia and any differences in clinical presentation, symptom severity, and quality-of-life between those with and without precipitating physical trauma or infection.

DESIGN: In a retrospective cross-sectional study, the authors compared patient characteristics and fibromyalgia symptom severity and quality-of-life with the Fibromyalgia Impact Questionnaire and the Short Form-36 Health Survey in patients seen in a fibromyalgia treatment program.

Read more…

 
 
 

Interview: New UK Support Group For Others With ME/CFS

International news

Thursday 30 April 2015

 

From UK news outlet the Grantham Journal:

Hannah Thompson
Hannah Thompson.
 

Grantham Journal Big Interview: Support group for others with chronic fatigue

Judith Hawkins
published 16:00 Saturday 25 April 2015

After suffering for years from exhaustion and muscle pains, Hannah Thompson, 29, of Kingston Avenue, Grantham, was finally diagnosed with Myalgic Encephalopathy (ME) otherwise known as Chronic Fatigue Syndrome.

Now Hannah wants to set up a Grantham support group for fellow sufferers.

When did the symptoms start?

At 10, I was diagnosed with glandular fever – rare at such a young age. I remember blood test after blood test and doctors scratching their heads. My earliest memories are being at home unable to walk up the stairs without bursting into tears due to the pain, or the sheer exhaustion. I was never what I would class as a normal kid growing up. Even going into town with my friends would lead to me having a nap. I just accepted it as part of my life. Then five years ago on a normal Saturday morning, I went to get out of bed and I’d lost all feeling in my legs, so collapsed to the floor. I was hobbling around for several days, becoming out of breath and exhausted with simple things. My parents rushed me up to A&E as my legs did not fully come back.

Read more…

 
 
 

US Students To March To White House in Support Of ME Patients

International news

Wednesday 29 April 2015

 

From US news outlet The Argus Report:

The White House
 

Students to March to White House in Support of ME Patients

April 27, 2015

ME sufferers and students carrying photographs of bed-bound ME patients will march to the White House tomorrow (April 28) [April 29 in Australia] in a bid to raise awareness of the disease and urge the US Department of Health and Human Services (HHS) to take urgent action.

The march dubbed Boots on the Ground in DC has been organized by MEAdvocacy.org, a small voluntary grassroots organization with a mission to raise awareness for people suffering from myalgic encephalomyelitis (ME).

“We have raised funds and organized this demonstration in DC to raise awareness about the illness and to urge the HHS to properly address this severe group of patients,” MEAdvocacy volunteer, Colleen Steckel told The Argus Report this morning. She said they were also asking the NIH to increase its funding of the disease to US$250 million per annum to bring it up to par with other similarly burdened diseases.

Read more…

 
 
 

For previous news items, visit our full “In the News” archive:

In the News


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