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ME/CFS Australia Ltd
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ME/CFS AUSTRALIA (SA) INC

Registered Charity 698

Email:
sacfs@sacfs.asn.au

Mailing address:
PO Box 28,
Hindmarsh,
South Australia 5007

Office:
266 Port Road,
Hindmarsh,
South Australia 5007
Ph: 1300 128 339

Office Hours:
Wednesdays, 10am-3pm


FIBROMYALGIA HELP:
Contact
Fibromyalgia SA
at the
Arthritis Foundation of SA
118 Richmond Road,
Marleston 5033
Ph: (08) 8379 5711

ME/CFS Australia (SA) Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.

Disclaimer

ME/CFS Australia (SA) Inc aims to keep members informed of the various research projects, diets, medications, therapies etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.

Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.

Support

Eco Pest Control

ME/CFS Australia (SA) Inc wishes to thank Eco Pest Control for its support of the Society.

BankSA & Staff Charitable Fund

ME/CFS Australia (SA) Inc wishes to thank BankSA & Staff Charitable Fund for its support of Talking Point, the Society’s official journal.

Society Seminars for 2015
Saturday 14 February 2015
1:30pm
Speaker: Dr Roger Spizzo, from Prospect Medical Centre
Topic: "The Fatigue Spectrum and the Gut"
Saturday 13 June 2015
1:30pm
Speaker: Skye Cibich, Accredited Exercise Physiologist from Adelaide Exercise Physiology
Saturday 8 August 2015
1:30pm
Speaker: Stelios Soulis, dietitian with Nutrition Health Experts at Mile End
Saturday 14 November 2015
Annual General Meeting
1:30pm
Speaker: Dr Peter Tunbridge
Details for all seminars…

ME/CFS Diagnostic Criteria and Guidelines

www ME: International Consensus Criteria
(Journal of Internal Medicine, Aug 2011)
PDF

For GPs:
ME – Adult & Paediatric:
International Consensus Primer for Medical Practitioners
(2012)
(PDF, 1.49 MB)

PDF

ME/CFS: A Clinical Case Definition and Guidelines for Medical Practitioners
– An Overview of the Canadian Consensus Document
(2005)
(PDF, 1 MB)

  Note: See here for an overview on the Canadian Consensus Criteria for Fibromyalgia (PDF, 1.70 MB)

PDF

ME/CFS Guidelines for GPs
(South Australian Department of Health)
(English) (PDF, 460 KB)

PDF

ME/CFS Guidelines for GPs
(South Australian Department of Health)
(German) (PDF, 186 KB)

PDF

For Psychiatrists (in English):
CFS: Assessment and Treatment of Patients with ME/CFS – Clinical Guidelines for Psychiatrists
(Eleanor Stein MD FRCP[C], 2005)
(PDF, 460 KB)

PDF

For Psychiatrists (in German):
Chronic Fatigue Syndrom: Diagnose und Behandlung von Patienten mit ME/CFS – Klinische Leitlinien für Psychiater
(Eleanor Stein MD FRCP[C], 2005)
(PDF, 313 KB)

 
Australian ME/CFS Societies
NATIONAL
ME/CFS Australia Ltd
Address: PO Box 7100 Dandenong VIC 3175
Phone: (03) 9793 4500
Fax: (03) 9793 1866
Web: www.mecfs.org.au
Email: ceo@mecfs.org.au
AUSTRALIAN CAPITAL TERRITORY
ACT ME/CFS Society, Inc
Address: c/o SHOUT, PO Box 717, Mawson ACT 2607
Phone: (02) 6290 1984
Fax: (02) 6290 4475
Web: www.mecfscanberra.org.au
Email: mecfsadmin@shout.org.au
NEW SOUTH WALES
ME/CFS Society of NSW Inc
Postal address: PO Box 5403, West Chatswood NSW 1515
Office address: Suite 204, 10 Help Street, Chatswood NSW 2067
Phone: (02) 8006 7448
Web: www.me-cfs.org.au
Email: admin@me-cfs.org.au
NEW SOUTH WALES
The ME/CFS & FM Association NSW
Web: www.mecfsnsw.org
NORTHERN TERRITORY
ME/CFS Australia (Northern Territory)
Address: PO Box 120, Prahran, VIC 3181
Reception: (03) 9529 1344
Support Line: (03) 9529 1600
Web: www.mecfs-vic.org.au
Email: admin@mecfs-nt.org.au
QUEENSLAND
ME/CFS/FM Support Association Qld Inc
Address: c/o Mission Department, St. Vincent’s Hospital, Toowoomba Qld 4350
Phone: (07) 4632 8173
Web: www.mecfsfmq.org.au
Email: mefmtba@bigpond.com
Facebook Page
SOUTH AUSTRALIA
ME/CFS Australia (SA) Inc
Postal address: PO Box 28, Hindmarsh SA 5007
Address: 266 Port Road, Hindmarsh SA 5007
Phone: (08) 8346 3237 ('834 MECFS')
Support line: (08) 8346 3237 or 1300 128 339 for country callers
Web: www.sacfs.asn.au
Email: sacfs@sacfs.asn.au
TASMANIA
ME/CFS Australia (Tasmania)
Address: PO Box 120, Prahran, VIC 3181
Reception: (03) 9529 1344
Support Line: (03) 9529 1600
Web: www.mecfs-vic.org.au
Email: admin@mecfs-tas.org.au
VICTORIA
ME/CFS Australia (Victoria)
Office address: 2/240 Chapel Street, Prahran, VIC, 3181
Postal address: PO Box 120, Prahran, VIC 3181
Reception: (03) 9529 1344
Support Line: (03) 9529 1600
Web: www.mecfs-vic.org.au
Email: admin@mecfs-vic.org.au
WESTERN AUSTRALIA
The ME/CFS Society of WA (Inc)
Address: The Centre for Neurological Support, The Niche, 11 Aberdare Road, Nedlands, Perth WA 6009
Phone: (08) 9346 7477
Fax: (08) 9346 7534
Web: www.mecfswa.org.au
Email: info@mecfswa.org.au

PDF

List of Australian ME/CFS organisations
(PDF, 19 KB)

Word

List of Australian ME/CFS organisations (Word, 41 KB)

 

 

Aquatic Aerobic Exercise Offers Therapeutic Benefits To Fibromyalgia Patients

International news

Saturday 1 August 2015

 

From Fibromyalgia News Today:

 

Aquatics
 

Aquatic Aerobic Exercise Offers Therapeutic Benefits to Fibromyalgia Patients

By Patricia Silva, PhD
July 27th, 2015

Researchers at Cukurova University, Turkey recently revealed that aquatic aerobic exercise offers clinical benefits to patients with fibromyalgia syndrome (FMS). The study was published in the Journal of Physical Therapy Science and is entitled “The effects of aquatic, isometric strength-stretching and aerobic exercise on physical and psychological parameters of female patients with fibromyalgia syndrome”.

FMS, or simply fibromyalgia, is a medical disorder characterized by a set of symptoms that includes widespread chronic musculoskeletal pain, incapacitating fatigue, stiffness and numbness in certain parts of the body, painful response to pressure, headaches, unrefreshing sleep (poor sleep quality), anxiety or depression and mood alterations. Fibromyalgia can affect people’s ability to conduct simple daily tasks, compromising their quality of life. It is estimated that 5 to 15 million Americans are affected by this disorder, especially women.

FMS patients have a lower muscular strength, endurance and fitness levels in comparison to healthy individuals. In order to improve these parameters and reduce pain, there are several therapeutic modalities. Studies have shown that low intensity physical activity and exercise, such as walking, jogging, cycling, stretching and swimming have a positive impact in patients with chronic pain and FMS. Exercise increases FMS patient’s fitness levels, reduces the spread of pain and tenderness, reduces depression levels and improves the quality of life.

In the study, researchers analyzed the impact of aquatic, aerobic and isometric strength-stretching exercises in FMS patients’ physical and psychological parameters.

Read more…

 
 
 

The Next Lyrica?

International news

Friday 31 July 2015

 

From Health Rising:

Community
A major Fibromyalgia drug trial is
underway in the U.S. and Canada
 

The Next Lyrica? Thousand Person Fibromyalgia Drug Trial is Underway

By Cort Johnson
July 26, 2015

It’s not often that you see a 1,000-person drug trial for fibromyalgia or any other disease, but one recently begun in the U.S. and Canada. A Japanese drug company, Daiichi Sankyo, is making a huge bet on a new drug called mirogabalin for fibromyalgia and other diseases.

If mirogabalin sounds vaguely familiar it should. Daiichi Sankyo believes mirogabalin is a significant upgrade of pregabalin, e.g. Lyrica. Both drugs bind to calcium channels that have been implicated in the production of neuropathic pain.

Mirogabalin is believed to bind to a calcium channel subunit that has strictly analgesic; i.e. pain-reducing properties. Lyrica, on the other hand, also binds to another subunit that has central nervous system effects that may be responsible for its side effects. Mirogabalin, Daiichi Sankyo believes, will be more potent, have fewer side-effects, and be longer-acting than Lyrica.

That would be a winning combination for the many fibromyalgia sufferers who either didn’t derive benefit from the Lyrica or not enough benefit to stay on it. Lyrica’s reputation for producing side-effects has become so pervasive that the company is working with researchers to try and determine what kinds of ME/CFS patients it works for and which kinds it doesn’t.

Read more…

 
 
 

New HOPE For You And ME

International news

Thursday 30 July 2015

 

From Rich Carson, the founder of ProHealth:

Your illness does not define you...
 

New HOPE for You and ME

By Rich Carson
www.ProHealth.com
July 27, 2015

Living with one of the most devastating, disabling chronic diseases known to man is not easy, but patients like you and I can live happy, rich, vastly rewarding lives if we live with hope and the the self-discipline to take good care of ourselves. To do to this we need to empower ourselves with actionable information that we can use to help us to feel our best. And it's also critically important to acknowledge with every fiber of our being the truth of our situation, that 'this too shall pass.' We will get well; it's just a matter of time.

Breathtaking technological advances are furthering our understanding of medicine and the underlying processes involved in ME/CFS, FM and Lyme Disease—and it's happening at an ever-quickening pace. Exponential improvements in technology will soon make effective treatments and a cure only a matter of time.

Read more…

 
 
 

Reflections On The Institute Of Medicine's Systemic Exertion Intolerance Disease

International news

Wednesday 29 July 2015

 

From ProHealth:

Institute of Medicine
 

Reflections on the IOM’s systemic exertion intolerance disease

By Leonard A. Jason et al.
www.ProHealth.com
July 26, 2015

By Leonard A. Jason et al.

Abstract

The Institute of Medicine (IOM) in the US has recently proposed that the term Systemic Exertion Intolerance Disease (SEID) replace Chronic Fatigue Syndrome (CFS). In addition, the IOM proposed a new case definition for SEID, which includes substantial reductions or impairments in the ability to engage in pre-illness activities, unrefreshing sleep, post-exertional malaise, and either cognitive impairment or orthostatic intolerance.

Unfortunately, these recommendations for a name change were not vetted with patient and professional audiences, and the new criteria were not evaluated with data sets of patients and controls.

A recent poll suggests that the majority of patients reject this new name. In addition, studies have found that that prevalence rates will dramatically increase with the new criteria, particularly due to the ambiguity revolving around exclusionary illnesses.

Read more…

 
 
 

Watching "Cake" A Painful, But Validating Experience

International news

Tuesday 28 July 2015

 

From US news outlet Lancaster Online:

Jennifer Aniston and Chris Messina in Cake
Jennifer Aniston stars as
Claire Bennett in 2014's "Cake."
Pictured with Jennifer Aniston
is co-star Chris Messina.
(Photo Courtesy cakemovie.net)
 

Unscripted: Watching 'Cake" a painful, but validating experience

By JENELLE JANCI | Staff Writer
Posted: Sunday, July 26, 2015 10:00 am
Updated: 5:26 pm, Sun Jul 26, 2015.

When a movie I’ve been wanting to see comes to Netflix, I usually add it to “My List” and forget about it. It sits in digital limbo for months, sometimes until Netflix removes it.

When “Cake” was added, however, I watched it immediately.

I remember my disbelief when I first heard about “Cake.” How would a filmmaker accurately portray chronic pain, an often invisible illness?

Of course, Jennifer Aniston’s character has an extreme form of the disease. It’s an understandable artistic choice: There has to be a visual manifestation of her pain for the audience to connect.

Aniston, sans makeup for most of the film, barely looks like herself as Claire Bennett. In almost every scene, she shows her pain, whether in a stiff gait or seemingly constant frown.

But it’s easy to forget how many chronic pain sufferers choose not to show their daily struggle.

Read more…

 
 
 

Oral Colostrum For ME/CFS

International news

Monday 27 July 2015

 

From ProHealth:

Glass of milk
 

Oral Colostrum Macrophage-activating Factor for Serious Infection and Chronic Fatigue Syndrome: Three Case Reports

By T. Inui et al.
www.ProHealth.com
July 24, 2015

Abstract

BACKGROUND: Gc protein-derived macrophage-activating factor (GcMAF) immunotherapy has been steadily advancing over the last two decades. Oral colostrum macrophage-activating factor (MAF) produced from bovine colostrum has shown high macrophage phagocytic activity. GcMAF-based immunotherapy has a wide application for use in treating many diseases via macrophage activation or for use as supportive therapy.

Read more…

 
 
 

Canadian Drivers With Fibromyalgia More Likely To Be Involved In Serious Traffic Accidents: Study

International news

Sunday 26 July 2015

 

From Canadian newspaper the Toronto Sun:

Patient
 

Drivers with fibromyalgia more likely to be in serious traffic crashes: Study

By Sheryl Ubelacker
The Canadian Press
First Posted: Friday, July 24, 2015 01:12 PM EDT
Updated: Friday, July 24, 2015 01:20 PM EDT

TORONTO -- Drivers who have been diagnosed with fibromyalgia appear to have an elevated risk of being involved in motor vehicle crashes, even years after their initial diagnosis, research suggests.

A study in the July issue of the Journal of Rheumatology found that individuals with fibromyalgia had more than twice the risk of being in a serious automobile accident that sent them to a hospital emergency room, compared with the driving population as a whole.

"We're not looking at the sort of fender-benders here," said principal researcher Dr. Donald Redelmeier, a senior scientist at the Institute for Clinical Evaluative Sciences (ICES) in Toronto.

Fibromyalgia is a syndrome that affects at least 400,000 Canadians, but the numbers may be much higher. The condition, which disrupts nerve function, causes fluctuating symptoms, such as muscle pain, fatigue, insomnia, and joint stiffness.

There is no known cure, but symptoms can be treated with medications, lifestyle changes and stress management. The exact cause is unknown, but in some cases, trauma caused by a motor vehicle accident has been linked to subsequent onset of symptoms.

Read more…

 
 
 

For previous news items, visit our full “In the News” archive:

In the News


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