ME/CFS Australia (SA) Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.
ME/CFS Australia (SA) Inc aims to keep members informed of the various research projects, diets, medications, therapies etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.
Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.
ME/CFS Australia (SA) Inc wishes to thank Eco Pest Control for its support of the Society.
To further assist busy medical practitioners, Dr Bruce Carruthers, principal author of the ME/CFS Consensus Document and Co-Editor of the FMS Consensus Document, and Marjorie van de Sande, Consensus Coordinator of the Consensus Documents, have written and published Overviews of the Canadian Consensus Documents for ME/CFS and FMS independent of any organisation.
Physicians from the McGill University Health Centre (MUHC), McGill University and the University of Calgary have published a review article in the CMAJ (Canadian Medical Association Journal) to help family doctors diagnose and treat fibromyalgia. The article represents the first time researchers have published Canadian guidelines to help manage the condition.
Fibromyalgia is a chronic condition that affects the central nervous system causing pain throughout the body. It is often accompanied by fatigue, depression and sleep problems. It affects mostly women and their multiple symptoms often go years without a proper diagnosis and treatment.
"One million Canadians have fibromyalgia and the time has come to take their suffering seriously. This is a real condition that greatly impacts patients and their families. Finally there are national guidelines to help diagnose and treat this syndrome," says Dr. John Pereira, a study co-author from the University of Calgary’s Faculty of Medicine and a physician at the Calgary Chronic Pain Centre.
The city of Portland was served with a lawsuit on Monday that accuses Bureau of Maintenance managers of failing to accommodate an employee who suffers from a condition called Multiple Chemical Sensitivity.
Julee Reynolds says co-workers wearing scented products such as perfume and hand lotion have triggered the disorder, causing her respiratory distress, dizziness, headaches, nausea, and anaphylaxis, a potentially deadly allergic reaction.
In a new study, scientists found evidence suggesting a strong genetic component of fibromyalgia by genotyping members of multiple families in which several members have the condition.
Researchers identified 116 such families and analyzed their genetic makeup using 341 different markers. They found that the estimated risk rate of fibromyalgia in siblings was 13.6%, compared to a 2% prevalence in the overall population.
They also identified particular genetic markers on a chromosome region labeled 17p11.2-q11.2. This is the first study to identify this particular region as involved in fibromyalgia.
Researchers concluded that these findings suggest genetics play a major role in who develops fibromyalgia. They say further studies involving these families should go forward in order to discover more about the risk and causal factors for the illness.
Australian GPs reveal why they are risking their reputations by diagnosing patients with Lyme disease — from bacteria that are not even supposed to be in Australia. The treatment, high-dose antibiotics, is alarming health authorities and the nation’s chief medical officer has formed an advisory committee to look into this controversial disease. Di Martin investigates.
Fibromyalgia and chronic fatigue syndrome symptoms can get a whole lot worse after physical activity. Because of that, it's pretty natural for us to be afraid of the consequences, and therefore avoid activity.
I've seen a lot of research that mentions these tendencies, and it usually comes off sounding like this is psychologically abnormal behavior and needs to be fixed. That seriously rubs me the wrong way. Avoiding the milieu of pain, fatigue, brain fog, and other nasty symptoms that exertion can trigger seems like about the most sane thing a person can do!
That's why it was refreshing to see a new study that acknowledged, right off the bat, that it's not so strange:
"These exacerbations make it understandable for people with CFS and FM to develop fear of performing body movement or physical activity and consequently avoidance behaviour toward physical activity."
Researchers went on to say that their goals were to look at ways to measure fear of movement and avoidance behavior, how common they are, and, yes, what treatment options are available for it.
International Awareness Day, May 12th 2013: Worldwide Protests and Events
MAY 10, 2013
Mark takes a look at what’s going on around the world this weekend to mark International Awareness Day
May 12th is International Awareness Day for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS). Awareness Day events also recognize Fibromyalgia (FM), Multiple Chemical Sensitivities (MCS), Gulf War Syndrome (GWS), Lyme Disease, and other chronic neuro-endocrine-immune diseases (NEIDs). Awareness Week runs from May 12th-18th, and the whole of May is Awareness Month. As with many awareness campaigns, ribbons are worn to show support for the campaign – blue for ME/CFS, purple for FM, and green for MCS.
A multitude of Awareness and Fundraising events are taking place this weekend, all across the real and virtual worlds, so I’ve been trawling the web to find out what’s going on. I found an incredible range of events – educational walks and fun runs; a gala fundraising concert in Vancouver, Canada; Sleepathons and Virtual Discos on Facebook; talks featuring Drs Bateman, Kogelnik and Vallings (the Bateman and Kogelnik talks will be webcast)… and just when you thought you’d seen it all, Bob Miller is Skydiving to raise money for Simarron Research!