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ME/CFS Australia Ltd
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ME/CFS AUSTRALIA (SA) INC

Registered Charity 698

Email:
sacfs@sacfs.asn.au

Mailing address:
PO Box 28,
Hindmarsh,
South Australia 5007

Office:
Closed while relocating

Phone:
1300 128 339

Office Hours:
Wednesdays, 10am-3pm

ME/CFS Australia (SA) Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.

Disclaimer

ME/CFS Australia (SA) Inc aims to keep members informed of the various research projects, diets, medications, therapies etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.

Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.

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ME/CFS general information
Fact Sheet
A Basic Overview
What’s in a name?
Information for students and schools
External links

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What’s in a name?

ME, or Myalgic Encephalomyelitis, was first used in 1956 to describe the condition. The name suggests muscle pain and inflammation of the brain – originally thought to be the cause of the illness. In the UK the term ME is still used although some groups have moved to the term Myalgic Encephalopathy which suggests muscle pain and brain dysfunction.

In 1988 the term Chronic Fatigue Syndrome (CFS) was coined. Although this term is a little easier to understand, it has proved unhelpful. In countries such as Australia, where this term has been widely used, it has often generated the perception that the disease is just ‘chronic fatigue’ when it is actually a multi-symptom illness, and fatigue is not always the most disabling or challenging symptom.

In the USA, the name CFIDS or Chronic Fatigue Immune Deficiency Syndrome, was adopted based on new theories of the underlying cause of the illness. This is also not considered an accurate description of the disease.

In Australia, most patient groups use the term ME/CFS. Until the underlying cause of the condition is known, it is to be expected a number of different names will continue to be used to describe it.

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