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ME/CFS Australia Ltd
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PDF Application Form 2015 (PDF, 243KB)
Text Application Form 2015 (plain text)
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Registered Charity 698


Mailing address:
PO Box 28,
South Australia 5007

266 Port Road,
South Australia 5007
Ph: 1300 128 339

Office Hours:
Wednesdays, 10am-3pm

Fibromyalgia SA
at the
Arthritis Foundation of SA
118 Richmond Road,
Marleston 5033
Ph: (08) 8379 5711

ME/CFS Australia (SA) Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.


ME/CFS Australia (SA) Inc aims to keep members informed of the various research projects, diets, medications, therapies etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.

Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.


Eco Pest Control

ME/CFS Australia (SA) Inc wishes to thank Eco Pest Control for its support of the Society.

BankSA & Staff Charitable Fund

ME/CFS Australia (SA) Inc wishes to thank BankSA & Staff Charitable Fund for its support of Talking Point, the Society’s official journal.

Society Seminars for 2015
Saturday 14 February 2015
Speaker: Dr Roger Spizzo, from Prospect Medical Centre
Topic: "The Fatigue Spectrum and the Gut"
Saturday 13 June 2015
Speaker: Skye Cibich, Accredited Exercise Physiologist from Adelaide Exercise Physiology
Saturday 8 August 2015
Speaker: Stelios Soulis, dietitian with Nutrition Health Experts at Mile End
Saturday 14 November 2015
Annual General Meeting
Speaker: Dr Peter Tunbridge
Details for all seminars…

ME/CFS Diagnostic Criteria and Guidelines

www ME: International Consensus Criteria
(Journal of Internal Medicine, Aug 2011)

For GPs:
ME – Adult & Paediatric:
International Consensus Primer for Medical Practitioners
(PDF, 1.49 MB)


ME/CFS: A Clinical Case Definition and Guidelines for Medical Practitioners
– An Overview of the Canadian Consensus Document
(PDF, 1 MB)

  Note: See here for an overview on the Canadian Consensus Criteria for Fibromyalgia (PDF, 1.70 MB)


ME/CFS Guidelines for GPs
(South Australian Department of Health)
(English) (PDF, 460 KB)


ME/CFS Guidelines for GPs
(South Australian Department of Health)
(German) (PDF, 186 KB)


For Psychiatrists (in English):
CFS: Assessment and Treatment of Patients with ME/CFS – Clinical Guidelines for Psychiatrists
(Eleanor Stein MD FRCP[C], 2005)
(PDF, 460 KB)


For Psychiatrists (in German):
Chronic Fatigue Syndrom: Diagnose und Behandlung von Patienten mit ME/CFS – Klinische Leitlinien für Psychiater
(Eleanor Stein MD FRCP[C], 2005)
(PDF, 313 KB)

Australian ME/CFS Societies
ME/CFS Australia Ltd
Address: PO Box 7100 Dandenong VIC 3175
Phone: (03) 9793 4500
Fax: (03) 9793 1866
ACT ME/CFS Society, Inc
Address: c/o SHOUT, PO Box 717, Mawson ACT 2607
Phone: (02) 6290 1984
Fax: (02) 6290 4475
ME/CFS Society of NSW Inc
Postal address: PO Box 5403, West Chatswood NSW 1515
Office address: Suite 204, 10 Help Street, Chatswood NSW 2067
Phone: (02) 8006 7448
The ME/CFS & FM Association NSW
ME/CFS Australia (Northern Territory)
Address: PO Box 120, Prahran, VIC 3181
Reception: (03) 9529 1344
Support Line: (03) 9529 1600
ME/CFS/FM Support Association Qld Inc
Address: c/o Mission Department, St. Vincent’s Hospital, Toowoomba Qld 4350
Phone: (07) 4632 8173
Facebook Page
ME/CFS Australia (SA) Inc
Postal address: PO Box 28, Hindmarsh SA 5007
Address: 266 Port Road, Hindmarsh SA 5007
Phone: (08) 8346 3237 ('834 MECFS')
Support line: (08) 8346 3237 or 1300 128 339 for country callers
ME/CFS Australia (Tasmania)
Address: PO Box 120, Prahran, VIC 3181
Reception: (03) 9529 1344
Support Line: (03) 9529 1600
ME/CFS Australia (Victoria)
Office address: 2/240 Chapel Street, Prahran, VIC, 3181
Postal address: PO Box 120, Prahran, VIC 3181
Reception: (03) 9529 1344
Support Line: (03) 9529 1600
The ME/CFS Society of WA (Inc)
Address: The Centre for Neurological Support, The Niche, 11 Aberdare Road, Nedlands, Perth WA 6009
Phone: (08) 9346 7477
Fax: (08) 9346 7534


List of Australian ME/CFS organisations
(PDF, 19 KB)


List of Australian ME/CFS organisations (Word, 41 KB)



"I'm 27 And Sleep 20 Hours A Day – This Illness Has Affected Everything In My Life"

International news

Wednesday 7 October 2015


From Scottish newspaper The Evening Telegraph:

Kevin McKinlay
Kevin McKinlay


By Nadia Vidinova
6 Oct 2015 6.00am

WHILE most men his age are busy going out with their friends, climbing the career ladder or starting a family, Kevin McKinlay struggles to brush his teeth.

The Dundee man was forced to retire, at the age of just 27, after being diagnosed with chronic fatigue syndrome.

The former customer service manager sleeps for up to 20 hours a day, suffers from muscle pain and has developed depression because of the condition, which he says has “ruined his life”.

He is now struggling to keep a roof over his head and fears for the future.

Read more…


With His Son Terribly Ill, A Top Scientist Takes On Chronic Fatigue Syndrome

International news

Tuesday 6 October 2015


From US newspaper The Washington Post:

Whitney Dafoe
Before he developed chronic
fatigue syndrome, Whitney
Dafoe was an award-winning
photographer and
a world traveler.
(Courtesy of Dafoe's family)

With his son terribly ill, a top scientist takes on chronic fatigue syndrome

By Miriam E. Tucker
October 5 at 1:55 PM

Before he got sick, Whitney Dafoe was an award-winning photographer and a world traveler. He’d helped build a nunnery in India, ridden a motorcycle in the Himalayas and visited all 50 American states.

He also worked on Barack Obama’s 2008 presidential campaign, and although he was already ill by January 2009, pushed himself to travel to Washington from his California home to photograph the inauguration.

But now, at 31, Whitney lies in bed in a darkened room in his parents’ home, unable to talk, walk or eat. He is fed intravenously and is barely able to tolerate light, sounds or being touched. His parents and the medical personnel who see him wear plain clothing when they enter his room because bright colors, shapes or any kind of print make him feel even worse, as does any movement that he’s not expecting.

“It’s hard to explain how fragile he is,” says his mother, Janet Dafoe.

This isn’t the picture that people imagine when they hear “chronic fatigue syndrome,” which is often viewed by the public and the health-care community as a trivial or primarily psychological complaint.

Read more…


An Interview With Jon Kaiser – Supporting Mitochondrial Function In ME/CFS

International news

Monday 5 October 2015


From ProHealth:

Jon Kaiser, MD
Jon Kaiser, MD

An Interview with Dr. Jon D. Kaiser - Supporting Mitochondrial Function in ME/CFS Patients
October 1, 2015

Dr. Jon Kaiser has been treating patients with Chronic Fatigue Syndrome, HIV/AIDS, Cancer and other immune system disorders for the past twenty-five years. He is a Clinical Instructor at the Department of Medicine, University of California San Francisco Medical School and Chief Medical Officer of K-PAX Pharmaceuticals.

Dr. Kaiser has written two books on improving immune system health, Immune Power and Healing HIV, and has given many lectures on optimizing immune function. He was also the principle investigator of a study published in the Journal of AIDS in 2006 showing that broad-spectrum micronutrient therapy can strengthen the immune systems of people with immune deficiency disorders.

His proof-of-concept study investigating a mitochondrial support strategy for patients with Chronic Fatigue Syndrome was published in the International Journal of Clinical and Experimental Medicine in 2015.

Dr. Kaiser’s approach utilizes an integration of natural and standard medical treatments.

Read more…


Forgotten Plague: A Must See Documentary

International news

Sunday 4 October 2015


From The Huffington Post:

Forgotten Plague

Forgotten Plague: A Must See Documentary

By Bill Johnson II
Posted: 03/10/2015 02:19 AEST
Updated: 03/10/2015 02:59 AEST

Ryan Prior, the director, co-writer and producer of the documentary Forgotten Plague, begins the film by issuing an invitation: walk a mile in my shoes.

Doing so means enduring a fight with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) beginning in late adolescence. A battle which took Ryan from a highly-active student-athlete to spending most of his time at home, often struggling to leave his room. After a grueling mission to find relief he is finally placed on a treatment regimen which reduced his symptoms and restored some of his mobility. Despite an intense treatment protocol, he continued to experience physical and emotional debilitation.

This is Ryan Prior's story, however, he is not alone.

One million individuals are diagnosed with ME/CFS (commonly called Chronic Fatigue Syndrome) in the United States alone. Total cost when health care and lost wages are considered is said to be 24 billion annually. Furthermore, women, African Americans and Native Americans are said to be at increased risk for developing the disease.

The film also points out inadequacies in diagnosis, assessment and treatment of ME/CFS which are due to several factors including lack of government funding for research on the disease, medical practitioners historical refusal to legitimize the condition, heavily reductionistic focus which often dominates mainstream professional health care practice and subsequently failure of the U.S. (and I would argue most western countries) to integrate so-called non-traditional healing practices into regular treatment recommendations.

Forgotten Plagues is must see TV, particularly when telling the stories from individuals diagnosed with ME/CFS.

Read more…


The US Health Care Industry Finally Recognises Fibromyalgia

International news

Saturday 3 October 2015


From the National Pain Report:

Medical files

The Health Care Industry Finally Recognizes Fibromyalgia

By Ginevra Liptan, MD
September 30, 2015

On October 1, 2015, fibromyalgia will finally be recognized as an official diagnosis in the new ICD-10 list of codes being adopted across the U.S. This is the final culmination of the advances over the last decade in the medical community’s understanding and acceptance of fibromyalgia as a real disease.

For the past 30 years, every U.S. hospital and doctor’s office has used the ICD-9 list of codes to indicate a diagnosis for all patient encounters. This list does not include a specific diagnosis code for fibromyalgia. Instead doctors have had to use the code “Myalgia and myositis, unspecified (729.1),” which includes any disorder causing muscle pain or inflammation. Muscle pain is definitely a part of fibromyalgia, but there are other important symptoms and unique features that make it a distinct entity, including non-restorative sleep, fatigue, and foggy thinking. In the new system, fibromyalgia finally gets its own diagnostic code: “Fibromyalgia (M79.7).”

Read more…


6 Reasons Why Trigger Point Injections Aren't Helping Your Fibromyalgia

International news

Friday 2 October 2015


From ProHealth:


6 Reasons Why Trigger Point Injections Aren't Helping Your Fibromyalgia

By Celeste Cooper, RN
September 21, 2015

Some people with fibromyalgia tell me that trigger point injections (TPIs) put them in a tailspin, making them physically ill and their body-wide pain worse. Yet, others hail the value of TPIs for the pain relief they bring. So, why is there such disparity?

  1. Trigger point injections treat trigger points. 

    The knotted up pieces of muscle fiber called trigger points (TrPs) are found in myofascial pain syndrome (MPS), not fibromyalgia. The two are distinctively different conditions with very different diagnostic criteria.
  2. Trigger points and tender points are not the same.

    Trigger points can be felt by the examiner and the pain is felt by the patient. Tender points cannot be felt by the examiner, but when the examiner applies enough pressure to cause blanching of their fingernail bed, it causes pain to the patient.

Read more…


Fibromyalgia Linked To Deficiencies In RBC Magnesium, IGF-1

International news

Thursday 1 October 2015


From Medscape Medical News:

Test tubes

Fibromyalgia Linked to Deficiencies in RBC Magnesium, IGF-1

Nancy A. Melville
September 22, 2015

NATIONAL HARBOR, MD — Patients with fibromyalgia show deficiencies in red blood cell (RBC) magnesium and insulin-like growth factor 1 (IGF-1), a small study shows, suggesting potential clues to underpinnings of the condition and avenues for treatment.

In a condition that is challenging to treat and complicated by the subjectivity of pain, identifying such deficiencies can represent important, objective measures of abnormalities with definable treatment goals, lead author Thomas J. Romano, MD, PhD, a pain specialist based in Martins Ferry, Ohio, told Medscape Medical News.

"Fibromyalgia is a disorder that is notoriously devoid of objective markers," he said.

"In identifying a comorbidity that can be objectively verified, you can let patients know that one of the reasons they could be having problems is because of these abnormal levels. Restoring those levels to where they should be, we have found, can truly turn people's lives around — they have more stamina and more energy," Dr Romano said.

Read more…


For previous news items, visit our full “In the News” archive:

In the News

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