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ME/CFS Australia Ltd
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Registered Charity 698


Mailing address:
PO Box 28,
South Australia 5007

266 Port Road,
South Australia 5007
Ph: 1300 128 339

Office Hours:
Wednesdays, 10am-3pm

Fibromyalgia SA
at the
Arthritis Foundation of SA
118 Richmond Road,
Marleston 5033
Ph: (08) 8379 5711

ME/CFS Australia (SA) Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.


ME/CFS Australia (SA) Inc aims to keep members informed of the various research projects, diets, medications, therapies etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.

Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.


Eco Pest Control

ME/CFS Australia (SA) Inc wishes to thank Eco Pest Control for its support of the Society.

BankSA & Staff Charitable Fund

ME/CFS Australia (SA) Inc wishes to thank BankSA & Staff Charitable Fund for its support of Talking Point, the Society’s official journal.

Society Seminars for 2015
Saturday 14 February 2015
Speaker: Dr Roger Spizzo, from Prospect Medical Centre
Topic: "The Fatigue Spectrum and the Gut"
Saturday 13 June 2015
Speaker: Skye Cibich, Accredited Exercise Physiologist from Adelaide Exercise Physiology
Saturday 8 August 2015
Speaker: Stelios Soulis, dietitian with Nutrition Health Experts at Mile End
Saturday 14 November 2015
Annual General Meeting
Speaker: Dr Peter Tunbridge
Details for all seminars…

ME/CFS Diagnostic Criteria and Guidelines

www ME: International Consensus Criteria
(Journal of Internal Medicine, Aug 2011)

For GPs:
ME – Adult & Paediatric:
International Consensus Primer for Medical Practitioners
(PDF, 1.49 MB)


ME/CFS: A Clinical Case Definition and Guidelines for Medical Practitioners
– An Overview of the Canadian Consensus Document
(PDF, 1 MB)

  Note: See here for an overview on the Canadian Consensus Criteria for Fibromyalgia (PDF, 1.70 MB)


ME/CFS Guidelines for GPs
(South Australian Department of Health)
(English) (PDF, 460 KB)


ME/CFS Guidelines for GPs
(South Australian Department of Health)
(German) (PDF, 186 KB)


For Psychiatrists (in English):
CFS: Assessment and Treatment of Patients with ME/CFS – Clinical Guidelines for Psychiatrists
(Eleanor Stein MD FRCP[C], 2005)
(PDF, 460 KB)


For Psychiatrists (in German):
Chronic Fatigue Syndrom: Diagnose und Behandlung von Patienten mit ME/CFS – Klinische Leitlinien für Psychiater
(Eleanor Stein MD FRCP[C], 2005)
(PDF, 313 KB)

Australian ME/CFS Societies
ME/CFS Australia Ltd
Address: PO Box 7100 Dandenong VIC 3175
Phone: (03) 9793 4500
Fax: (03) 9793 1866
ACT ME/CFS Society, Inc
Address: c/o SHOUT, PO Box 717, Mawson ACT 2607
Phone: (02) 6290 1984
Fax: (02) 6290 4475
ME/CFS Society of NSW Inc
Postal address: PO Box 5403, West Chatswood NSW 1515
Office address: Suite 204, 10 Help Street, Chatswood NSW 2067
Phone: (02) 8006 7448
The ME/CFS & FM Association NSW
ME/CFS Australia (Northern Territory)
Address: PO Box 120, Prahran, VIC 3181
Reception: (03) 9529 1344
Support Line: (03) 9529 1600
ME/CFS/FM Support Association Qld Inc
Address: c/o Mission Department, St. Vincent’s Hospital, Toowoomba Qld 4350
Phone: (07) 4632 8173
Facebook Page
ME/CFS Australia (SA) Inc
Postal address: PO Box 28, Hindmarsh SA 5007
Address: 266 Port Road, Hindmarsh SA 5007
Phone: (08) 8346 3237 ('834 MECFS')
Support line: (08) 8346 3237 or 1300 128 339 for country callers
ME/CFS Australia (Tasmania)
Address: PO Box 120, Prahran, VIC 3181
Reception: (03) 9529 1344
Support Line: (03) 9529 1600
ME/CFS Australia (Victoria)
Office address: 2/240 Chapel Street, Prahran, VIC, 3181
Postal address: PO Box 120, Prahran, VIC 3181
Reception: (03) 9529 1344
Support Line: (03) 9529 1600
The ME/CFS Society of WA (Inc)
Address: The Centre for Neurological Support, The Niche, 11 Aberdare Road, Nedlands, Perth WA 6009
Phone: (08) 9346 7477
Fax: (08) 9346 7534


List of Australian ME/CFS organisations
(PDF, 19 KB)


List of Australian ME/CFS organisations (Word, 41 KB)



UK ME/CFS Teenager's Support Dog To Have Vital Hip Operation

International news

Wednesday 1 July 2015


From UK newspaper The Liverpool Echo:

Sophie Perkins with her mother Carolyn, veterinary surgeon Ben Keeley, and Hunter
Hunter the German Shepherd
is due to head to Runcorn
today for life-changing
surgery so he can continue
as chronic fatigue syndrome-
sufferer Sophie Perkins's
assistance dog.
Cambridgeshire teenager
Sophie, 16, is pictured
here with her mother
Carolyn and veterinary
surgeon Ben Keeley.

Teenager's support dog to have vital hip operation in Runcorn courtesy of vets group

By Oliver Clay-Le
18 June 2015

Cambridgeshire teen's hopes of helping beloved German Shepherd Hunter a step closer thanks to surgeons

A teenager with chronic fatigue syndrome (CFS) who launched a campaign to raise cash for her beloved German Shepherd to have vital hip surgery is over the moon after vets offered to carry out the operation in Runcorn.

Sophie Perkins, 16, has CFS – also known as ME – and relies on Hunter, who is an assistance in disability (AID) dog, to help her to do simple tasks including rising out of bed and for walking around the house.

The 22-month old pooch suffers hip dysplasia and arthritis in both pelvic joints and needs surgery before he loses function.

But, after becoming aware of Sophie’s campaign to raise up to £9,000 for the medical procedure, the Pets At Home Vet Group agreed to carry out the operations at its Northwest Surgeons specialist referrals centre at Delamere House in Sutton Weaver, funded in part by the £3,663 in cash raised so far.

Read more…


Diagnostic Methods For ME/CFS – A Systematic Review

International news

Tuesday 30 June 2015


From American News Report:


Fibromyalgia Considered Lifelong Central Nervous System Disorder

By Doug Lynch
28 June 2015

Fibromyalgia is now considered to be a central nervous system disorder, according to University of Michigan professor of anesthesiology, Daniel Clauw, M.D.

In a scientific session at the American Pain Society Annual Scientific Meeting, Dr. Clauw stated, “Fibromyalgia can be thought of both as a discreet disease and also as a final common pathway of pain centralization and chronification. Most people with this condition have lifelong histories of chronic pain throughout their bodies,” said Dr. Clauw. “The condition can be hard to diagnose if one isn’t familiar with classic symptoms because there isn’t a single cause and no outward signs.”

A press release from the American Pain Society describes that “fibromyalgia pain comes more from the brain and spinal cord than from areas of the body in which someone may experience peripheral pain. The condition is believed to be associated with disturbances in how the brain processes pain and other sensory information.” The society notes that doctors should suspect fibromyalgia in people with musculoskeletal pain “that is not fully explained by injury or inflammation.”

Read more…


Researchers Compare Twins' DNA To Discover Fibromyalgia Diagnosis

International news

Monday 29 June 2015


From Fibromyalgia News Today:


Researchers Compare Twins’ DNA To Discover Fibromyalgia Diagnosis

By Isaura Santos
June 17th, 2015

Researchers from King’s College London are trying to develop an effective strategy to diagnose fibromyalgia by comparing the DNA of twins in which one has the disease and the other one does not.

Fibromyalgia is a pain syndrome that leads to widespread bone and muscle pain, fatigue and sleep disturbances. Its causes are not clear yet, making is very hard to diagnose, manage and treat. For many years doctors were not convinced on the existence of the disease, thinking it could be something conceived by the patient. Currently, there are no blood tests, x-rays or scans that can actually confirm this pain syndrome; however, some blood tests are used to rule out other conditions.

Using an Arthritis Research UK fund of £171,000, investigators from King’s College London, are developing a reliable blood test that can support a proper diagnosis. The team will assess samples from 400 twin volunteers (using the Twins UK Bioresource that enrolled 13,000 twins in which one has chronic widespread pain) in the hopes they can identify DNA biomarkers related to the condition. The goal is to compare healthy and affected twin’s DNA to understand fundamental genetic differences.

Read more…


Thieves Steal Mobility Scooter, Walking Stick

Australian news

Sunday 28 June 2015


From Australian newspaper the Newcastle Herald:

Geoffrey and Margaret Brown
Geoffrey Brown with
his wife Margaret.
Thieves stole his
mobility scooter.
(Picture: Ryan Osland)

Thieves steal mobility scooter, walking stick

By Sam Rigney
June 26, 2015, 9:45 p.m.

KURRI Kurri man Geoffrey Brown, 73, says he has lost his independence after thieves stole his mobility scooter and walking stick from outside his home on Wednesday.

Mr Brown suffers from myalgic encephalomyelitis, also known as chronic fatigue syndrome, a neurological illness which affects a person's nervous system and leads to overwhelming malaise as a result of minimal effort, as well as other chronic symptoms.

It's a painful existence, made a little more comfortable by the use of his second-hand mobility scooter. It gets him out of the house and up the street and facilitates his social life.

But on Wednesday [24 June], between 1pm and 4pm while Mr Brown was out, thieves stole his scooter from where it was charging in the car port of his Wermol Street home. His walking stick was also on the scooter.

Read more…


UK ME Sufferers Want To Set Up New Support Group

International news

Saturday 27 June 2015

From UK newspaper The York Press:

Bill Clayton and Odette Marshall
Bill Clayton and
Odette Marshall,
who both suffer from ME,
at Bill’s home in Fulford
(Picture: Nigel Holland)

York ME sufferers want to set up new support group

By Maxine Gordon
First published Wednesday 24 June 2015 in News
Last updated 18:37 Wednesday 24 June 2015

A new row is erupting over claims ME – or chronic fatigue syndrome – is all in the head. MAXINE GORDON speaks to two sufferers in York whose lives have been affected by the disease

IF you thought we’d come a long way from myalgic encephalopathy (or ME) being dismissed as “yuppie flu”, think again.

A new tussle has broken out between sufferers and their campaigners and the medical establishment following the release of the book It’s All In The Head by leading neurologist Suzanne O’Sullivan, in which one of the topics covered is ME.

It has sparked a robust response from the ME Association and Countess Mar, member of the House of Lords, who also suffers from the condition, pointing out that the disease is a neuro-immune disorder and not a psychological one. Since 2005, ME has been classed in the UK as a long-term neurological condition, following guidelines from the World Health Organisation.

Read more…


New Focus On Chronic Fatigue in Australia

Australian news

Friday 26 June 2015


From the Medical Journal of Australia's MJA InSight:

Doctor and patient
(Photo: Squaredpixels / iStock)

New focus on chronic fatigue

By Leonor Mateus Ferreira
June 15th, 2015

A RENEWED focus on improving the diagnosis and management of patients with chronic fatigue has been welcomed, but an Australian expert says there is a long way to go before this complex illness is well understood.

Dr Robert Loblay, director of the Royal Prince Alfred Hospital Allergy Unit in Sydney, said the new focus in the US drew attention to the many unanswered questions regarding myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), but it did not offer a significant advance on the current knowledge base.

Dr Loblay said it was disappointing, but not surprising, that little progress had been made in the area of ME/CFS since he co-convened a working group to develop CFS clinical guidelines published in 2002. (1)

His comments follow the publication in the Annals of Internal Medicine of reviews of treatment and of diagnostic methods for ME/CFS as well as a position paper. (2)

Read more…


Conflicts Of Interests Affect Fibromyalgia Drug Development

International news

Thursday 25 June 2015


From Fibromyalgia News Today:

Blood tests

Conflicts of Interests Affect Fibromyalgia Drug Development

By Leonor Mateus Ferreira
June 15th, 2015

Over the last few decades there has been a dramatic rise in pharmaceutical industry funding and support of biomedical research. This has led to financial conflicts of interest (FCOIs) between scientific investigators and industry, raising concerns over the possibility of inappropriate influence of industry on biomedical research. Moreover, most studies so far have demonstrated that industry-funded research is linked to an increased probability of pro-industry results.

In a study entitled “Financial conflicts of interest and their association with outcome and quality of fibromyalgia drug therapy randomized controlled trials”, published in International Journal of Rheumatic Diseases, a team of researchers led by Winnie K. Pang, MD, from the University of Southern California-Los Angeles County Medical Center, analyzed the process of drug development and investigation in the field of fibromyalgia research.

The authors concluded that “the majority of FM-RCTs [fibromyalgia drug therapy randomized controlled trials] were industry-sponsored, and had at least one author with an FCOI [financial conflicts of interest]. Reporting of key methodological measures was suboptimal. After adjusting for study sample size, no association of industry funding or author’s FCOI with study outcome was seen.”

Read more…


For previous news items, visit our full “In the News” archive:

In the News

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