| Real life: the long goodbye |
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International news
Thursday 11 March 2010
 The Irish Independent newspaper has an article about Criona Wilson (pictured) and her daughter Sophia Mirza:
Real life: The long goodbye
Devoted mum Criona Wilson helplessly watched on as chronic ME took the life of her daughter Sophia. Now, she is fighting to raise awareness about this debilitating illness
By Sarah Spendiff
Monday March 08 2010
Criona Wilson heard the old war song in her head, Now Is The Hour We Must Say Goodbye, and knew her daughter, Sophia, was about to die. The former midwife from Ennis, Co Clare, had been nursing her youngest through years of chronic ME, watching as the disease stole every part of her, bit by agonising bit.
Read more… |
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| Why ME sufferer Emma is learning to live again |
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International news
Wednesday 10 March 2010
 UK newspaper Devon24 has a profile of Emma Webb (pictured):
Why ME sufferer Emma is learning to live again
devon.editorial@archant.co.uk
24 February 2010
EMMA Webb's life changed forever without warning. What happened to her could happen to you.
The 35-year-old mum from Dunkeswell has spoken to the Midweek Herald in the hope of encouraging other people in her situation to come together, to form a social and support group.
Read more… |
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| South Australian election: postal voting |
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South Australian news
Tuesday 9 March 2010
 South Australia will be holding its State Election on Saturday 20 March 2009.
If you are eligible to vote but unable to attend a polling booth due to ill-health, you can offer a postal vote.
The Electoral Commission of South Australia has this advice:
Early and postal voting
Early voting
Information about early voting centres in SA, interstate and overseas, is available on these pages.
Postal voting
Postal voting is available to electors who are unable to attend a polling place on election day.
Read more… |
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| Doing housework with Fibromyalgia & CFS |
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International news
Monday 8 March 2010
 About.com's Adrienne Dellwo has an article about meeting the challenges of housework for people with ME/CFS/ Fibromyalgia:
Doing Housework With Fibromyalgia & Chronic Fatigue Syndrome
Saturday March 6, 2010
Ah, housework -- that constant nagging bundle of stuff we all need to take care of, at one point or another! Fibromyalgia and chronic fatigue syndrome make sure that we don't have the energy to keep up on it, and that when we finally get around to it, it's going to hurt and wear us out -- fast!
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| MCS Awareness Month |
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International news
Sunday 7 March 2010
 The American Chronicle has an article about MCS Awareness Month which will be in May:
MCS Awareness Month 2010
Lourdes Salvador
January 31, 2010
May 2010 is fast approaching. Each May Multiple Chemical Sensitivity Awareness and Education Month is observed in the United States.
Multiple chemical sensitivity (MCS) affects over 48 million men, women, and children of all races. Even though MCS is of widespread epidemic prevalence, public awareness of the toxicity of common environmental insults and ways to manage and accommodate MCS remain limited. Multiple Chemical Sensitivity Awareness Month, May 2010, bestows upon us a great opportunity to work towards increased public awareness of MCS.
Read more… |
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| NICNAS draft review |
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Australian news
Saturday 6 March 2010
 Australia's National Industrial Chemicals Notification and Assessment Scheme (NICNAS) has the latest news on its draft review:
As you are aware, the National Industrial Chemicals Notification and Assessment Scheme (NICNAS) and the Office of Chemical Safety and Environmental Health (OCSEH) are undertaking a joint review of Multiple Chemical Sensitivity (MCS).
The review aims to identify research needs to better understand the condition and to identify practical measures that may assist the medical profession with the management of MCS patients.
Read more… |
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| Medical course questionnaire |
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International news
Friday 5 March 2010
 UK researcher Linzi Tweedy is conducting a survey for people with ME/CFS.
ME Free For All reports:
Medical Course Questionnaire
I am seeking 200 volunteers to complete a questionnaire on ME.
The study I am undertaking forms part of my "Access to Medicine" course. The study will look into areas such as the classification of ME and will examine patients views on a mental health classification vs a physical origin for ME, such as the XMRV virus.
Read more… |
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| Professor of chemical engineering urges students to go fragrance-free |
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International news
Thursday 4 March 2010
 The Canary Report has an article about a University of New Hampshire professor who has written an open letter expressing his concerns about Multiple Chemical Sensitivity:
Professor of chemical engineering urges students to go fragrance-free
Posted on Feb 03, 2010 by Susie Collins in Blog, MCS, Susie Collins
Chemical engineering professor at the University of New Hampshire encourages students to “be considerate to human canaries and help them to enjoy life to the fullest.”
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| Theda's desperate fight against a chronic killer |
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International news
Wednesday 3 March 2010
 Western Australian newspaper WA Today has a profile of ME/CFS sufferer Theda Myint (pictured, with mother Carol Adams and partner Blake Graham):
Theda's desperate fight against a chronic killer
CHALPAT SONTI
March 2, 2010 - 3:22PM
Theda Myint had the world at her feet.
Bright, beautiful and vivacious, the budding investigative journalist was weeks away from starting her dream career.
Now, 10 years later, she is fighting for her life.
In addition to the newspaper article, there is now a television news item about Theda:
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| "Mono" linked to CFS in teens |
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International news
Tuesday 2 March 2010
 The Vancouver Sun reports:
"Mono" linked to chronic fatigue syndrome in teens
By Michelle Rizzo, Reuters
NEW YORK - Teens who develop "mono," otherwise known as infectious mononucleosis, may be at risk for chronic fatigue syndrome, according to a study in Pediatrics.
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| XMRV: third study fails to find virus |
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International news
Monday 1 March 2010
 EurekaAlert! reports:
New study casts doubt over ME virus link
Research: Prevalence of xenotropic murine leukaemia virus-related virus in patients with chronic fatigue syndrome in the Netherlands: retrospective analysis of samples from an established cohort
A new study published on bmj.com today casts doubt on recent claims that a human retrovirus known as XMRV is linked to chronic fatigue syndrome or ME (myalgic encephalitis).
This is the third study to refute the original US study reporting the link.
Read more… |
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| The Music Works |
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South Australian news
Sunday 28 February 2010
 The Music Works – aka The Dynamic Day Gig – is a monthly event held at the Governor Hindmarsh Hotel. It's organised by and for people with disabilities.
The next edition of The Music Works will be this Tuesday (2 March 2010) from 10:30am to 2:30pm.
Here's the flyer for the event:
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| Fibromyalgia Pain & 'Situational Narcissism' |
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International news
Saturday 27 February 2010
 About.com's Adrienne Dellwo has an interesting article about behaviour that can come about as a result of chronic pain:
Fibromyalgia Pain & 'Situational Narcissism'
Tuesday February 23, 2010
Narcissism: exceptional self-interest; self-love that shuts out others; behavior which involves exclusive self-absorption.
The terms "narcissism" or "narcissist" are rarely meant as compliments, so when I saw the headline, "Does Chronic Pain Turn You Into A Narcissist?" I clicked on it ready for a fight. As I read the article, however, I realized the term fits pretty well.
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| Society meeting program for 2010 |
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South Australian news
Friday 26 February 2010
 Here's the proposed meeting program for the Society in 2010:
Read more… |
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