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ME/CFS Australia (SA) Inc
Registered Charity 698


Postal address:
GPO Box 383,
Adelaide,
South Australia 5001


Office:
266 Port Road,
Hindmarsh,
South Australia 5007
Ph: (08) 8346 3237
('834 MECFS')

Support Line:
(Mondays and Thursdays,
10am-3pm)
Ph: (08) 8410 8930


SA country callers:
Ph: 1300 128 339
(local call)


Office Hours:
Wednesdays, 10am-3pm


ME/CFS Australia (SA) Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.



ME/CFS Australia (SA) Inc is a member of Charity Direct.



ourcommunity.com.auDonate online

Information and Support 2004 is an online appeal that aims to improve our Information and Support Line.

Read more…



Disclaimer

ME/CFS Australia (SA) Inc aims to keep members informed of the various research projects, diets, medications, therapies etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.

Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.

Society Meeting Program for 2010
May 8, 1pm:
Peter Taubert and Peter Evans
July 3, 11am:
Julie Peacock and Phil Calvert
Aug 28, 11am:
Brenda McHugh-Wilkinson
Nov 27, 1pm:
AGM with Dr Richard Kwiatek
 
Details for all meetings
 
The venue for all these seminars is Sophia House, 225 Cross Road, Cumberland Park (map).
 
Please note that this program is subject to change.

In the News

XMRV: positive results (US)

XMRV: first negative results (UK)

XMRV: second negative results (UK)

XMRV: third negative results (Netherlands)

Fibromyalgia

Multiple Chemical Sensitivity


Become a member
Why become a member?
Go to Application Form page
Download Application Form (PDF, 15KB)

Canadian Consensus Documents

ME/CFS Guidelines

To further assist busy medical practitioners, Dr Bruce Carruthers, principal author of the ME/CFS Consensus Document and Co-Editor of the FMS Consensus Document, and Marjorie van de Sande, Consensus Coordinator of the Consensus Documents, have written and published Overviews of the Canadian Consensus Documents for ME/CFS and FMS independent of any organisation:

PDF

Myalgic Encephalomyelitis / Chronic Fatigue Syndrome: A Clinical Case Definition and Guidelines for Medical Practitioners – An Overview of the Canadian Consensus Document (PDF, 1MB)

PDF

Fibromyalgia Syndrome: A Clinical Case Definition and Guidelines for Medical Practitioners – An Overview of the Canadian Consensus Document (PDF, 1.7MB)


ME/CFS Guidelines

For GPs

ME/CFS Guidelines

Every GP in South Australia should have on their shelves a copy of a new set of guidelines on how to diagnose and treat ME/CFS.

PDF

ME/CFS Guidelines for GPs
(English)
(PDF, 460KB)

PDF

ME/CFS Guidelines for GPs
(German)
(PDF, 186KB)

For psychiatrists

ME/CFS Guidelines

The Guidelines for psychiatrists are from Eleanor Stein MD FRCP(C), respected internationally for her work as a psychiatrist on ME/CFS.

PDF

ME/CFS Guidelines for psychiatrists
(English)
(PDF, 460KB)

PDF

ME/CFS Guidelines for psychiatrists
(German)
(PDF, 313KB)



Australian ME/CFS Societies

NATIONAL
The ME/Chronic Fatigue Syndrome Association of Australia Limited
Address: c/o ME/CFS Victoria, 23 Livingstone Close, Burwood VIC 3125
Phone: (03) 9888 8991
Fax: (03) 9888 8981
Web: www.mecfs.org.au
Email: mecfs@mecfs.org.au

AUSTRALIAN CAPITAL TERRITORY
The ACT ME/CFS Society, Inc
Postal address: c/o SHOUT, PO Box 717, Mawson ACT 2607
Phone: (02) 6290 1984
Fax: (02) 6290 4475
Web: www.mecfscanberra.org.au
Email: mecfsadmin@shout.org.au

NEW SOUTH WALES
ME/Chronic Fatigue Syndrome Society of NSW Inc
Postal address: PO Box 5403, West Chatswood, NSW, 1515
Office address: Suite 204, 10 Help Street, Chatswood NSW 2067
Phone: (02) 9904 8433
Fax: (02) 9904 8435
Web: www.me-cfs.org.au
Email: admin@me-cfs.org.au

NORTHERN TERRITORY
ME/CFS Australia (Northern Territory)
Address: PO Box 1363, Darwin NT 0801
Phone: (08) 8941 2365
Web: www.mecfs-nt.org.au
Email: admin@mecfs-nt.org.au

QUEENSLAND
ME/CFS/FM Support Association Qld Inc
Address: 27 Scott Street, Toowoomba Qld 4350
Phone: (07) 4632 8173
Phone: (07) 4659 5239
Web: www.mecfsfmq.org.au
Email: mefmtba@bigpond.com

SOUTH AUSTRALIA
ME/CFS Australia (SA) Inc
Postal address: GPO Box 383, Adelaide 5001
Address: 266 Port Road, Hindmarsh, Adelaide 5007
Phone: (08) 8346 3237 ('834 MECFS')
Support line: (08) 8410 8930 or 1300 128 339 for country callers
Web: www.sacfs.asn.au
Email: sacfs@sacfs.asn.au

TASMANIA
ME/CFS Australia (Tasmania)
Address: 5 Battery Square, Battery Point Tas 7004
Phone: (03) 6224 2576
Web: www.mecfs-tas.org.au
Email: admin@mecfs-tas.org.au

VICTORIA
ME/Chronic Fatigue Syndrome Society of Victoria
Postal address: PO Box 7100, Dandenong Vic 3175
Office address: 15 Scott Street, Dandenong Vic 3175
Phone: (03) 9791 3100 (9am - 5pm, Monday - Friday)
Support Line: (03) 9791 2199 (9am - 5pm, Monday - Friday)
Fax: (03) 9793 1866
Web: www.mecfs-vic.org.au
Email: admin@mecfs-vic.org.au

WESTERN AUSTRALIA
The ME/CFS Society of WA (Inc)
Address: The Centre for Neurological Support, The Niche, 11 Aberdare Road, Nedlands, Perth WA 6009
Phone: (08) 9346 7477
Fax: (08) 9346 7534
Web: www.mecfswa.org.au
Email: info@mecfswa.org.au

PDF

Download list of ME/CFS organizations as a PDF file (17KB)

Word

Download list of ME/CFS organizations as a Word document (40KB)



Support

Eco Pest Control

ME/CFS Australia (SA) Inc wishes to thank Eco Pest Control for its support of the Society.

BankSA & Staff Charitable Fund

ME/CFS Australia (SA) Inc wishes to thank BankSA & Staff Charitable Fund for its support of Talking Point, the Society’s official journal.

Real life: the long goodbye

International news

Thursday 11 March 2010

Criona WilsonThe Irish Independent newspaper has an article about Criona Wilson (pictured) and her daughter Sophia Mirza:

Real life: The long goodbye

Devoted mum Criona Wilson helplessly watched on as chronic ME took the life of her daughter Sophia. Now, she is fighting to raise awareness about this debilitating illness

By Sarah Spendiff
Monday March 08 2010

Criona Wilson heard the old war song in her head, Now Is The Hour We Must Say Goodbye, and knew her daughter, Sophia, was about to die. The former midwife from Ennis, Co Clare, had been nursing her youngest through years of chronic ME, watching as the disease stole every part of her, bit by agonising bit.

Read more…

 
 
Why ME sufferer Emma is learning to live again

International news

Wednesday 10 March 2010

Emma WebbUK newspaper Devon24 has a profile of Emma Webb (pictured):

Why ME sufferer Emma is learning to live again

devon.editorial@archant.co.uk
24 February 2010

EMMA Webb's life changed forever without warning. What happened to her could happen to you.

The 35-year-old mum from Dunkeswell has spoken to the Midweek Herald in the hope of encouraging other people in her situation to come together, to form a social and support group.

Read more…

 
 
South Australian election: postal voting

South Australian news

Tuesday 9 March 2010

VotingSouth Australia will be holding its State Election on Saturday 20 March 2009.

If you are eligible to vote but unable to attend a polling booth due to ill-health, you can offer a postal vote.

The Electoral Commission of South Australia has this advice:

Early and postal voting

Early voting

Information about early voting centres in SA, interstate and overseas, is available on these pages.

Postal voting

Postal voting is available to electors who are unable to attend a polling place on election day.

Read more…

 
 
Doing housework with Fibromyalgia & CFS

International news

Monday 8 March 2010

HouseworkAbout.com's Adrienne Dellwo has an article about meeting the challenges of housework for people with ME/CFS/ Fibromyalgia:

Doing Housework With Fibromyalgia & Chronic Fatigue Syndrome

Saturday March 6, 2010

Ah, housework -- that constant nagging bundle of stuff we all need to take care of, at one point or another! Fibromyalgia and chronic fatigue syndrome make sure that we don't have the energy to keep up on it, and that when we finally get around to it, it's going to hurt and wear us out -- fast!

Read more…

 
 
MCS Awareness Month

International news

Sunday 7 March 2010

American ChronicleThe American Chronicle has an article about MCS Awareness Month which will be in May:

MCS Awareness Month 2010

Lourdes Salvador
January 31, 2010

May 2010 is fast approaching. Each May Multiple Chemical Sensitivity Awareness and Education Month is observed in the United States.

Multiple chemical sensitivity (MCS) affects over 48 million men, women, and children of all races. Even though MCS is of widespread epidemic prevalence, public awareness of the toxicity of common environmental insults and ways to manage and accommodate MCS remain limited. Multiple Chemical Sensitivity Awareness Month, May 2010, bestows upon us a great opportunity to work towards increased public awareness of MCS.

Read more…

 
 
NICNAS draft review

Australian news

Saturday 6 March 2010

NICNASAustralia's National Industrial Chemicals Notification and Assessment Scheme (NICNAS) has the latest news on its draft review:

As you are aware, the National Industrial Chemicals Notification and Assessment Scheme (NICNAS) and the Office of Chemical Safety and Environmental Health (OCSEH) are undertaking a joint review of Multiple Chemical Sensitivity (MCS).

The review aims to identify research needs to better understand the condition and to identify practical measures that may assist the medical profession with the management of MCS patients.

Read more…

 
 
Medical course questionnaire

International news

Friday 5 March 2010

ME Free For AllUK researcher Linzi Tweedy is conducting a survey for people with ME/CFS.

ME Free For All reports:

Medical Course Questionnaire

I am seeking 200 volunteers to complete a questionnaire on ME.

The study I am undertaking forms part of my "Access to Medicine" course. The study will look into areas such as the classification of ME and will examine patients views on a mental health classification vs a physical origin for ME, such as the XMRV virus.

Read more…

 
 
Professor of chemical engineering urges students to go fragrance-free

International news

Thursday 4 March 2010

The Canary ReportThe Canary Report has an article about a University of New Hampshire professor who has written an open letter expressing his concerns about Multiple Chemical Sensitivity:

Professor of chemical engineering urges students to go fragrance-free

Posted on Feb 03, 2010 by Susie Collins in Blog, MCS, Susie Collins

Chemical engineering professor at the University of New Hampshire encourages students to “be considerate to human canaries and help them to enjoy life to the fullest.”

Read more…

 
 
Theda's desperate fight against a chronic killer

International news

Wednesday 3 March 2010

Theda Myint with mother Carol Adams and partner Blake GrahamWestern Australian newspaper WA Today has a profile of ME/CFS sufferer Theda Myint (pictured, with mother Carol Adams and partner Blake Graham):

Theda's desperate fight against a chronic killer

CHALPAT SONTI
March 2, 2010 - 3:22PM

Theda Myint had the world at her feet.

Bright, beautiful and vivacious, the budding investigative journalist was weeks away from starting her dream career.

Now, 10 years later, she is fighting for her life.

Update: In addition to the newspaper article, there is now a television news item about Theda:

The Age: Fighting a chronic killer (video)

Read more…

 
 
"Mono" linked to CFS in teens

International news

Tuesday 2 March 2010

TeensThe Vancouver Sun reports:

"Mono" linked to chronic fatigue syndrome in teens

By Michelle Rizzo, Reuters

NEW YORK - Teens who develop "mono," otherwise known as infectious mononucleosis, may be at risk for chronic fatigue syndrome, according to a study in Pediatrics.

Read more…

 
 
XMRV: third study fails to find virus

International news

Monday 1 March 2010

BMJEurekaAlert! reports:

New study casts doubt over ME virus link

Research: Prevalence of xenotropic murine leukaemia virus-related virus in patients with chronic fatigue syndrome in the Netherlands: retrospective analysis of samples from an established cohort

A new study published on bmj.com today casts doubt on recent claims that a human retrovirus known as XMRV is linked to chronic fatigue syndrome or ME (myalgic encephalitis).

This is the third study to refute the original US study reporting the link.

Read more…

 
 
The Music Works

South Australian news

Sunday 28 February 2010

The Music WorksThe Music Worksaka The Dynamic Day Gig – is a monthly event held at the Governor Hindmarsh Hotel. It's organised by and for people with disabilities.

The next edition of The Music Works will be this Tuesday (2 March 2010) from 10:30am to 2:30pm.

Here's the flyer for the event:

PDF

The Music Works: March 2010 (PDF, 143KB)

Read more…

 
 
Fibromyalgia Pain & 'Situational Narcissism'

International news

Saturday 27 February 2010

Woman and mirrorAbout.com's Adrienne Dellwo has an interesting article about behaviour that can come about as a result of chronic pain:

Fibromyalgia Pain & 'Situational Narcissism'

Tuesday February 23, 2010

Narcissism: exceptional self-interest; self-love that shuts out others; behavior which involves exclusive self-absorption.

The terms "narcissism" or "narcissist" are rarely meant as compliments, so when I saw the headline, "Does Chronic Pain Turn You Into A Narcissist?" I clicked on it ready for a fight. As I read the article, however, I realized the term fits pretty well.

Read more…

 
 
Society meeting program for 2010

South Australian news

Friday 26 February 2010

ME/CFS Australia (SA) IncHere's the proposed meeting program for the Society in 2010:

PDF

Download Society Meeting Program for 2010 (PDF, 13KB)

Read more…

 
 
More news…

For previous news items, visit our full “In the News” archive:

In the News


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Last modified: March 11, 2010