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ME/CFS Australia Ltd
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ME/CFS AUSTRALIA (SA) INC

Registered Charity 698

Email:
sacfs@sacfs.asn.au

Mailing address:
PO Box 28,
Hindmarsh,
South Australia 5007

Office:
266 Port Road,
Hindmarsh,
South Australia 5007
Ph: 1300 128 339

Office Hours:
Wednesdays, 10am-3pm


FIBROMYALGIA HELP:
Contact
Fibromyalgia SA
at the
Arthritis Foundation of SA
118 Richmond Road,
Marleston 5033
Ph: (08) 8379 5711

ME/CFS Australia (SA) Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.

Disclaimer

ME/CFS Australia (SA) Inc aims to keep members informed of the various research projects, diets, medications, therapies etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.

Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.

Support

Eco Pest Control

ME/CFS Australia (SA) Inc wishes to thank Eco Pest Control for its support of the Society.

BankSA & Staff Charitable Fund

ME/CFS Australia (SA) Inc wishes to thank BankSA & Staff Charitable Fund for its support of Talking Point, the Society’s official journal.

Society Seminars for 2015
Saturday 14 February 2015
1:30pm
Speaker: Dr Roger Spizzo, Prospect Medical Centre
Topic: "The Fatigue Spectrum and the Gut"
Saturday 13 June 2015
1:30pm
Saturday 8 August 2015
1:30pm
Saturday 14 November 2015
Annual General Meeting
1:30pm
Speaker: Dr Peter Tunbridge
Details for all seminars…

ME/CFS Diagnostic Criteria and Guidelines

www ME: International Consensus Criteria
(Journal of Internal Medicine, Aug 2011)
PDF

For GPs:
ME – Adult & Paediatric:
International Consensus Primer for Medical Practitioners
(2012)
(PDF, 1.49 MB)

PDF

ME/CFS: A Clinical Case Definition and Guidelines for Medical Practitioners
– An Overview of the Canadian Consensus Document
(2005)
(PDF, 1 MB)

  Note: See here for an overview on the Canadian Consensus Criteria for Fibromyalgia (PDF, 1.70 MB)

PDF

ME/CFS Guidelines for GPs
(South Australian Department of Health)
(English) (PDF, 460 KB)

PDF

ME/CFS Guidelines for GPs
(South Australian Department of Health)
(German) (PDF, 186 KB)

PDF

For Psychiatrists (in English):
CFS: Assessment and Treatment of Patients with ME/CFS – Clinical Guidelines for Psychiatrists
(Eleanor Stein MD FRCP[C], 2005)
(PDF, 460 KB)

PDF

For Psychiatrists (in German):
Chronic Fatigue Syndrom: Diagnose und Behandlung von Patienten mit ME/CFS – Klinische Leitlinien für Psychiater
(Eleanor Stein MD FRCP[C], 2005)
(PDF, 313 KB)

 
Australian ME/CFS Societies
NATIONAL
ME/CFS Australia Ltd
Address: PO Box 7100 Dandenong VIC 3175
Phone: (03) 9793 4500
Fax: (03) 9793 1866
Web: www.mecfs.org.au
Email: ceo@mecfs.org.au
AUSTRALIAN CAPITAL TERRITORY
ACT ME/CFS Society, Inc
Address: c/o SHOUT, PO Box 717, Mawson ACT 2607
Phone: (02) 6290 1984
Fax: (02) 6290 4475
Web: www.mecfscanberra.org.au
Email: mecfsadmin@shout.org.au
NEW SOUTH WALES
ME/CFS Society of NSW Inc
Postal address: PO Box 5403, West Chatswood NSW 1515
Office address: Suite 204, 10 Help Street, Chatswood NSW 2067
Phone: (02) 8006 7448
Web: www.me-cfs.org.au
Email: admin@me-cfs.org.au
NEW SOUTH WALES
The ME/CFS & FM Association NSW
Web: www.mecfsnsw.org
NORTHERN TERRITORY
ME/CFS Australia (Northern Territory)
Address: PO Box 120, Prahran, VIC 3181
Reception: (03) 9529 1344
Support Line: (03) 9529 1600
Web: www.mecfs-vic.org.au
Email: admin@mecfs-nt.org.au
QUEENSLAND
ME/CFS/FM Support Association Qld Inc
Address: c/o Mission Department, St. Vincent’s Hospital, Toowoomba Qld 4350
Phone: (07) 4632 8173
Web: www.mecfsfmq.org.au
Email: mefmtba@bigpond.com
Facebook Page
SOUTH AUSTRALIA
ME/CFS Australia (SA) Inc
Postal address: PO Box 28, Hindmarsh SA 5007
Address: 266 Port Road, Hindmarsh SA 5007
Phone: (08) 8346 3237 ('834 MECFS')
Support line: (08) 8346 3237 or 1300 128 339 for country callers
Web: www.sacfs.asn.au
Email: sacfs@sacfs.asn.au
TASMANIA
ME/CFS Australia (Tasmania)
Address: PO Box 120, Prahran, VIC 3181
Reception: (03) 9529 1344
Support Line: (03) 9529 1600
Web: www.mecfs-vic.org.au
Email: admin@mecfs-tas.org.au
VICTORIA
ME/CFS Australia (Victoria)
Office address: 2/240 Chapel Street, Prahran, VIC, 3181
Postal address: PO Box 120, Prahran, VIC 3181
Reception: (03) 9529 1344
Support Line: (03) 9529 1600
Web: www.mecfs-vic.org.au
Email: admin@mecfs-vic.org.au
WESTERN AUSTRALIA
The ME/CFS Society of WA (Inc)
Address: The Centre for Neurological Support, The Niche, 11 Aberdare Road, Nedlands, Perth WA 6009
Phone: (08) 9346 7477
Fax: (08) 9346 7534
Web: www.mecfswa.org.au
Email: info@mecfswa.org.au

PDF

List of Australian ME/CFS organisations
(PDF, 19 KB)

Word

List of Australian ME/CFS organisations (Word, 41 KB)

 

 

Strong Correlation Discovered Between Fibromyalgia Pain And Quality Of Sleep

International news

Friday 22 May 2015

 

From MD Magazine:

Woman in bed
 

Strong Correlation Discovered Between Fibromyalgia Pain and Quality of Sleep

Caitlyn Fitzpatrick
Conference Coverage > APS 2015
May 14, 2015

Not only does poor sleep result in more pain for fibromyalgia (FM) patients, but it is also linked to a lower pain threshold.

Lead author Maren Hyde-Nolan, PhD, and her Wayne State University colleagues used 90 FM patients, ages 21 through 84, to determine the relationship between the factors. The findings were presented at the 34th Annual American Pain Society Scientific Meeting in Palm Springs, CA. “Fibromyalgia patients tend to have more restless sleep,” Hyde-Nolan told MD Magazine.

For one part of research, the subjects self-reported their pain levels as well as sleep patterns, including when they fell asleep and how long they think they slept for. Depression and pain catastrophizing were also taken into consideration. “People were fairly accurate in reporting when they fell asleep and how they slept,” Hyde-Nolan confirmed. “Interestingly enough, what they reported themselves was more predictable than the objective data.”

Read more…

 
 
 

Post-Exertional Malaise Questionnaire

International news

Thursday 21 May 2015

 

From DePaul University:

Questionnaire
 

Post-Exertional Malaise Questionnaire

Information Sheet for Participation in Research Study

Defining Post-exertional Malaise for ME and CFS

Principal Investigators: Stephanie McManimen, Center for Community Research

Institution: DePaul University, USA

Faculty Advisor: Leonard Jason, Ph.D., Center for Community Research

Research Team: Yolonda Williams, Ph.D.

We are conducting a research study because we are trying to learn more about what occurs before and during post-exertional malaise for individuals with Myalgic encephalomyelitis (ME) or chronic fatigue syndrome (CFS), as well as how these individuals define the term post-exertional malaise. We are asking you to be in the research because you have a diagnosis of ME or CFS, speak English, and are 18 years of age or older. If you agree to be in this study, you will be asked to complete a survey. The survey will include questions about your post-exertional malaise experiences related to your ME or CFS. We will also collect some personal and demographic information about you, such as age, gender, race, marital status, income, level of schooling, disability information, and work status. The full survey can be completed online. If there is a question you do not want to answer, you may skip it.

This study will take about 30 minutes of your time. Research data collected from you will be anonymous.

Read more…

 
 
 

Australian National Register Of Environmental Sensitivities

Australian news

Wednesday 20 May 2015

 

From Sharyn Martin (via email):

ANRES
 

Australian National Register of Environmental Sensitivities

The prevalence of Environmental Sensitivities is largely unknown in Australia.

ANRES (Australian National Register of Environmental Sensitivities) aims to provide the background evidence to highlight the need for recognition and assistance. Statistics are needed for reform, particularly at a political level.

This is not a government action but an independent initiative to gather data in the hope of influencing government decisions. Persons who register on this site will not be individually identified; their data will be kept private and secure.

If you have environmental sensitivities or are a carer of someone with environmental sensitivities please take the time to:

  • Firstly, become a member of ANRES – membership is free; and
     
  • Secondly, register your environmental sensitivities by following the link below or menu on the left of the page so you can contribute to the recognition of these medical disorders.

Read more…

 
 
 

Fibromyalgia Origins Found In Central Nervous System

International news

Tuesday 19 May 2015

 

From the National Pain Report:

Brain
 

Fibromyalgia Origins Found in Central Nervous System

By Ed Coghlan
May 17th, 2015

Fibromyalgia is now considered to be a lifelong central nervous disorder, which causes chronic pain.

Daniel Clauw, M.D., professor of anesthesiology, University of Michigan presented findings from his research at the American Pain Society Annual Meeting, in Palm Springs.

“Fibromyalgia can be thought of both as a discreet disease and also as a final common pathway of pain centralization and chronification. Most people with this condition have lifelong histories of chronic pain throughout their bodies,” Dr. Clauw said.

And the pain can be more than physical.

“It takes away your dreams, your hopes, and your happy moments. It makes loved ones grimace when they see you. It makes friends and family disappear. It isolates you into a tiny box until all that was you no longer remains,” Jenny Schwarz of East Helena, Montana told the National Pain Report.

Schwarz uses art – specifically painting to help manage her illness.

Read more…

 
 
 

UK Charity Fundraiser Gets Mr T Haircut For Chronic Fatigue Charity

International news

Monday 18 May 2015

 

From UK newspaper The Plymouth Herald:

Lee Stammers
 

Charity fundraiser gets Mr T haircut for chronic fatigue charity

By SAM BLACKLEDGE Herald Reporter
Plymouth Herald
Posted: May 15, 2015

A CHARITY fundraiser took on an unusual challenge – subjecting himself to a ‘Mr T haircut’.

Lee Stammers has lived with chronic fatigue syndrome, otherwise known as ME, for 15 years and says the disease has “robbed him of a normal adulthood”.

“Those with this condition have to live with limitations and restrictions in all facets of our lives and are often subjected to misunderstanding and judged on their actions,” he said.

“We have to live everyday with what we cannot do, pacing our time and energy and managing our daily activities.”

Read more…

 
 
 

New Research Could Lead To A Blood Test For Fibromyalgia

International news

Sunday 17 May 2015

 

From Medical Xpress:

Blood test
 

New research could lead to a blood test for common pain syndrome fibromyalgia

By Jane Tadman
May 12, 2015

New UK research could lead to a blood test to diagnose the common pain condition, fibromyalgia.

Fibromyalgia is common pain syndrome causing widespread muscle and bone pain, as well as fatigue and disturbed sleep. It has no obvious physical cause, is poorly understood and difficult to diagnose, treat and manage. For years there was doubt among the medical profession whether fibromyalgia actually existed – except in the minds of patients.

There is still no specific blood test, scan or x-ray that can confirm a diagnosis of the common pain syndrome, although blood tests are often carried out to rule out other conditions.

Now scientists at King's College London, funded by a three year grant of £171,000 from Arthritis Research UK, are hoping their latest research will lead to a reliable blood test to enable doctors to make a proper diagnosis.

Read more…

 
 
 

Struck Down With Chronic Fatigue

International news

Saturday 16 May 2015

 

From New Zealand newspaper the Western Leader (via Stuff.co.nz):

Marie Dent
Marie Dent says it has been
hard to give up work because
she loved her job working
with the community.
(Photo: Sarah Roberts)
 

Struck down with chronic fatigue

Some days Marie Dent finds it too difficult to even shower and get ready for the day ahead.

The Glen Eden resident was always the healthiest person among her group of friends until she was struck down with a bad case of the flu.

For months after Dent could barely gather the energy to get to work or tend to her garden.

After numerous tests the 62-year-old was diagnosed with Myalgic Encephalopathy (ME), better known as Chronic Fatigue Syndrome. ME/CFS Awareness Day is May 12.

The illness leaves sufferers exhausted after minimal activity. It usually follows a viral illness and persists over a long time period.

"When I first got sick I could hardly breath, I couldn't sleep. I looked in the mirror and I felt like I was looking at a ghost of my former self.

"I couldn't believe this is what my life had come down to," Dent says.

Read more…

 
 
 

Definitive Tests For Irritable Bowel Syndrome Developed

International news

Saturday 16 May 2015

 

From ScienceDaily:

Woman
 

Definitive tests for irritable bowel syndrome developed

Millions of people afflicted by irritable bowel syndrome can now be diagnosed quickly and accurately with two simple blood tests developed by a Cedars-Sinai gastroenterologist.

The tests, created by Mark Pimentel, MD, director of the GI Motility Program and Laboratory, confirm when a patient has developed IBS because of food poisoning, a major cause of the disorder.

Toxins produced by bacteria, such as salmonella, can severely harm the digestive system by damaging nerves critical to healthy gut function. The new blood tests identify the presence and amount of specific antibodies reacting to the toxins.

"Having an early diagnosis means patients can avoid years of invasive tests and visits to specialists that often leave them with more questions than answers," he said. "With these new blood tests, many patients will now be able to proceed right to therapy for their condition."

Read more…

 
 
 

For previous news items, visit our full “In the News” archive:

In the News


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