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ME/CFS Australia Ltd
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ME/CFS AUSTRALIA (SA) INC

Registered Charity 698

Email:
sacfs@sacfs.asn.au

Mailing address:
PO Box 28,
Hindmarsh,
South Australia 5007

Office:
266 Port Road,
Hindmarsh,
South Australia 5007
Ph: 1300 128 339

Office Hours:
Wednesdays, 10am-3pm


FIBROMYALGIA HELP:
Contact
Fibromyalgia SA
at the
Arthritis Foundation of SA
118 Richmond Road,
Marleston 5033
Ph: (08) 8379 5711

ME/CFS Australia (SA) Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.

Disclaimer

ME/CFS Australia (SA) Inc aims to keep members informed of the various research projects, diets, medications, therapies etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.

Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.

Support

Eco Pest Control

ME/CFS Australia (SA) Inc wishes to thank Eco Pest Control for its support of the Society.

BankSA & Staff Charitable Fund

ME/CFS Australia (SA) Inc wishes to thank BankSA & Staff Charitable Fund for its support of Talking Point, the Society’s official journal.

Society Seminars for 2015
Saturday 14 February 2015
1:30pm
Speaker: Dr Roger Spizzo, from Prospect Medical Centre
Topic: "The Fatigue Spectrum and the Gut"
Saturday 13 June 2015
1:30pm
Speaker: Skye Cibich, Accredited Exercise Physiologist from Adelaide Exercise Physiology
Saturday 8 August 2015
1:30pm
Speaker: Stelios Soulis, dietitian with Nutrition Health Experts at Mile End
Saturday 14 November 2015
Annual General Meeting
1:30pm
Speaker: Dr Peter Tunbridge
Details for all seminars…

ME/CFS Diagnostic Criteria and Guidelines

www ME: International Consensus Criteria
(Journal of Internal Medicine, Aug 2011)
PDF

For GPs:
ME – Adult & Paediatric:
International Consensus Primer for Medical Practitioners
(2012)
(PDF, 1.49 MB)

PDF

ME/CFS: A Clinical Case Definition and Guidelines for Medical Practitioners
– An Overview of the Canadian Consensus Document
(2005)
(PDF, 1 MB)

  Note: See here for an overview on the Canadian Consensus Criteria for Fibromyalgia (PDF, 1.70 MB)

PDF

ME/CFS Guidelines for GPs
(South Australian Department of Health)
(English) (PDF, 460 KB)

PDF

ME/CFS Guidelines for GPs
(South Australian Department of Health)
(German) (PDF, 186 KB)

PDF

For Psychiatrists (in English):
CFS: Assessment and Treatment of Patients with ME/CFS – Clinical Guidelines for Psychiatrists
(Eleanor Stein MD FRCP[C], 2005)
(PDF, 460 KB)

PDF

For Psychiatrists (in German):
Chronic Fatigue Syndrom: Diagnose und Behandlung von Patienten mit ME/CFS – Klinische Leitlinien für Psychiater
(Eleanor Stein MD FRCP[C], 2005)
(PDF, 313 KB)

 
Australian ME/CFS Societies
NATIONAL
ME/CFS Australia Ltd
Address: PO Box 7100 Dandenong VIC 3175
Phone: (03) 9793 4500
Fax: (03) 9793 1866
Web: www.mecfs.org.au
Email: ceo@mecfs.org.au
AUSTRALIAN CAPITAL TERRITORY
ACT ME/CFS Society, Inc
Address: c/o SHOUT, PO Box 717, Mawson ACT 2607
Phone: (02) 6290 1984
Fax: (02) 6290 4475
Web: www.mecfscanberra.org.au
Email: mecfsadmin@shout.org.au
NEW SOUTH WALES
ME/CFS Society of NSW Inc
Postal address: PO Box 5403, West Chatswood NSW 1515
Office address: Suite 204, 10 Help Street, Chatswood NSW 2067
Phone: (02) 8006 7448
Web: www.me-cfs.org.au
Email: admin@me-cfs.org.au
NEW SOUTH WALES
The ME/CFS & FM Association NSW
Web: www.mecfsnsw.org
NORTHERN TERRITORY
ME/CFS Australia (Northern Territory)
Address: PO Box 120, Prahran, VIC 3181
Reception: (03) 9529 1344
Support Line: (03) 9529 1600
Web: www.mecfs-vic.org.au
Email: admin@mecfs-nt.org.au
QUEENSLAND
ME/CFS/FM Support Association Qld Inc
Address: c/o Mission Department, St. Vincent’s Hospital, Toowoomba Qld 4350
Phone: (07) 4632 8173
Web: www.mecfsfmq.org.au
Email: mefmtba@bigpond.com
Facebook Page
SOUTH AUSTRALIA
ME/CFS Australia (SA) Inc
Postal address: PO Box 28, Hindmarsh SA 5007
Address: 266 Port Road, Hindmarsh SA 5007
Phone: (08) 8346 3237 ('834 MECFS')
Support line: (08) 8346 3237 or 1300 128 339 for country callers
Web: www.sacfs.asn.au
Email: sacfs@sacfs.asn.au
TASMANIA
ME/CFS Australia (Tasmania)
Address: PO Box 120, Prahran, VIC 3181
Reception: (03) 9529 1344
Support Line: (03) 9529 1600
Web: www.mecfs-vic.org.au
Email: admin@mecfs-tas.org.au
VICTORIA
ME/CFS Australia (Victoria)
Office address: 2/240 Chapel Street, Prahran, VIC, 3181
Postal address: PO Box 120, Prahran, VIC 3181
Reception: (03) 9529 1344
Support Line: (03) 9529 1600
Web: www.mecfs-vic.org.au
Email: admin@mecfs-vic.org.au
WESTERN AUSTRALIA
The ME/CFS Society of WA (Inc)
Address: The Centre for Neurological Support, The Niche, 11 Aberdare Road, Nedlands, Perth WA 6009
Phone: (08) 9346 7477
Fax: (08) 9346 7534
Web: www.mecfswa.org.au
Email: info@mecfswa.org.au

PDF

List of Australian ME/CFS organisations
(PDF, 19 KB)

Word

List of Australian ME/CFS organisations (Word, 41 KB)

 

 

New Book From Dr Rosamund Vallings

International news

Thursday 3 September 2015

 

From New Zealand's Calico Publishing:

Managing ME/CFS: A Guide For Young People
 

Managing ME CFS

A Guide for Young People

by Dr Rosamund Vallings, MNZM, MB BS

Foreword by Richie Barnett

If you are a young person who has just been diagnosed with ME or Chronic Fatigue Syndrome (that’s CFS), and even if you’ve had this condition for  while, you will find a sympathetic voice in this book. Dr Vallings is a very experienced medical doctor and she has spent much of her career helping people with ME/CFS. She explains this complicated illness in a way that is easy to understand. The book is full of great suggestions for managing everyday tasks and working through the ups and downs of the illness, and there are lots of tips on how to create the best chance of recovery. Dr Vallings has even included stories from young people who are managing this illness. Her message to young people is to learn as much as you can about ME/CFS and to actively take charge of your health. As she says, ‘Only you know how you really feel.’ Anyone caring for a young person with ME/CFS will also find this book useful.

Read more…

 
 
 

Megan Schartner's Foggy Frog And The Pain Gang Helps To Explain Chronic Fatigue And Constant Pain

South Australian news

Wednesday 2 September 2015

 

From South Australia's 891 ABC News Adelaide:

Megan Schartner
Some days, Megan Schartner
struggles to get out of bed.
But when she feels better
than normal, a walk outside
is always a pleasant journey.
(891 ABC Adelaide:
Brett Williamson)

 

Megan Schartner's Foggy Frog and the Pain Gang helps to explain chronic fatigue and constant pain

By Brett Williamson
891 ABC Adelaide
Posted Tuesday 1 September 2015 at 3:58pm

When Megan Schartner wanted to explain her chronic fatigue, fibromyalgia and chronic pelvic pain to others she created the children's characters Foggy Frog and the Pain Gang.

Ms Schartner had just completed a double degree in arts and science, and was employed full-time and studying a Bachelor of Education when she woke up with severe pain in her waist.

On the advice of her husband, she went to see her doctor.

The doctor immediately referred her to the nearest hospital, and she was soon in the emergency ward with fears of appendicitis.

When no cause was found, Ms Schartner was released and her journey of elimination began as she searched for the cause of her pain.

"It took over six months to get a diagnosis, which is quite a long time when you are in chronic pain," she said.

"I think I was sleeping 20 hours a day for the first few weeks."

Doctors were able to determine the cause of her pain through diagnosis by exclusion.

"There are no known cures for the two main conditions that I have been diagnosed with and it is basically that I need to work out how to live with the chronic pain and the chronic fatigue," she said.

Unable to continue studying, Ms Schartner began to research her diagnosis and found there was not a great deal of easily understandable information available.

She turned to blogging her experiences and began to toy with the idea of creating a children's story to explain how she felt.

Read more…

 
 
 

Interview With Australian ME/CFS Researcher Professor Don Staines

Australian news

Tuesday 1 September 2015

 

From Australian radio station 612 ABC Brisbane:

Professor Don Staines
 

Who Are You? Professor Don Staines, ME/CFS research, Griffith University Gold Coast

By Karin Adam
31 August 2015, 12:41 PM

I look down the list of publications and qualifications in front of me and I feel both impressed and somewhat humbled.

My guest on Who Are You this morning is Professor Don Staines.

He's helped set up the ground-breaking National Centre for Neuroimmunology and Emerging Diseases at Griffith University here on the Gold Coast ... it's only been around a few years and already it's leading the way around the world when it comes to Chronic Fatigue Syndrome.

He's also been the public health physician for Gold Coast Health. I asked him about why he has dedicated his life to public health and the exciting research underway on the Gold Coast that he's hoping will lead to a breakthrough on Chronic Fatigue Syndrome or, as it's now known, Myalgic Encephalomyelitis (ME).

Read more…

 
 
 

The ME/CFS Severely Ill Big Data Study – Update

International news

Monday 31 August 2015

 

From the Open Medicine Foundation (via email):

Open Medicine Foundation
 

Phase 1 of the End ME/CFS Project is fully funded!

$1 million ME/CFS Severely ill Big Data Study

We are thrilled to announce that we just received $350K from a tremendously generous anonymous donor for the ME/CFS Severely ill Big Data Study. This adds to our $500K and other incredible donations that we have received from generous and engaged donors via donations, recurring donations, crowdfunding efforts and fundraisers all over the world.

We will continue our efforts towards funding the next phase of the End ME/CFS project and in bringing thought leaders together in global collaboration.

Now let's find a biomarker!

Read more…

 
 
 

New Potential Therapeutic Strategy For Severe Pain Based On Nanorods

International news

Sunday 30 August 2015

 

From Fibromyalgia News Today:

Nanotechnology
 

New Potential Therapeutic Strategy for Severe Pain Based on Nanorods

By Patrícia Silva, PhD
August 26th, 2015

Researchers at Kyoto University’s Institute for Integrated Cell-Material Sciences (iCeMS) in Japan, recently reported a novel technique with potential therapeutic relevance for the management of pain. The study was recently published in the journal Angewandte Chemie International Edition and is entitled “Thermosensitive Ion Channel Activation in Single Neuronal Cells by Using Surface-Engineered Plasmonic Nanoparticles”.

Nanotechnology corresponds to the manipulation of matter at the molecular scale and it has allowed significant advances in medical diagnosis and treatment. The control of cellular functions using external photoresponsive nanomaterials has a huge potential for the development of cell-engineering technologies and therapies. Gold nanorods in particular, correspond to tiny rods that can absorb light in the near-infrared region generating heat when excited with infrared light; nanorods can also be used as light emitting devices.

Read more…

 
 
 

Juvenile Fibromyalgia: Intensive Therapy Relieves Pain

International news

Saturday 29 August 2015

 

From Medscape:

Doctor and teen
 

Juvenile Fibromyalgia: Intensive Therapy Relieves Pain

Larry Beresford
August 25, 2015

Children with fibromyalgia experienced significant improvements in pain and function without medications after an intensive program of physical therapy (PT), occupational therapy (OT), and psychosocial services, according to a new study. The improvements were still significant 1 year after completing the program.

David D. Sherry, MD, from the Division of Rheumatology at Children's Hospital of Philadelphia, and colleagues present their findings in an article published online July 21 in the Journal of Pediatrics.

"Our children with long-standing fibromyalgia exhibited significant improvement in nearly all of the functional and pain measures that we applied," the authors write.

Read more…

 
 
 

A Doctor Treating Fibromyalgia Who Also Has Fibromyalgia

International news

Friday 28 August 2015

 

From the National Pain Report:

 

Ginevra Liptan, MD
Ginevra Liptan, MD
 

A Doctor Treating Fibromyalgia Who Also Has Fibromyalgia

Posted on August 26, 2015

At the National Pain Report, we have been thinking for some time about increasing the amount of coverage on fibromyalgia – which affects depending on who you believe between 6 and 10 million Americans – most of them women. We hear from readers who a thirst for more information.

We had heard of Dr. Ginevra Liptan who founded The Frida Center for Fibromyalgia in Lake Oswego, Oregon (just outside of Portland). It is the first private practice in the U.S. dedicated exclusively to fibromyalgia.

What drew us to her was her book published in 2011 – Figuring Out Fibromyalgia. And one other thing – she also has been diagnosed with fibromyalgia. She agreed to an interview which is so thoughtful we are dividing into two or three sections.

National Pain Report: “You come about your interest in fibromyalgia from a personal experience – you suffer from it yourself. How has that formed your work?”

Dr. Liptan: “I started experiencing muscle pain and profound fatigue in medical school. At age 26, I suddenly went from being a very healthy and active to barely functional, exhausted, and in pain all the time. I saw several well-regarded medical specialists and no one could figure out what was wrong with me or give me any guidance. Ultimately my diagnosis came from a chiropractor! I started to explore alternative therapies, and finally found a few that really helped. Wanted to figure out if those therapies I stumbled upon would help others. Pretty much decided then and there to devote my career to studying and treating fibromyalgia.”

Read more…

 
 
 

For previous news items, visit our full “In the News” archive:

In the News


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