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ME/CFS Australia Ltd
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Registered Charity 698


Mailing address:
PO Box 28,
South Australia 5007

266 Port Road,
South Australia 5007
Ph: 1300 128 339

Office Hours:
Wednesdays, 10am-3pm

Fibromyalgia SA
at the
Arthritis Foundation of SA
118 Richmond Road,
Marleston 5033
Ph: (08) 8379 5711

ME/CFS Australia (SA) Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.


ME/CFS Australia (SA) Inc aims to keep members informed of the various research projects, diets, medications, therapies etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.

Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.


Eco Pest Control

ME/CFS Australia (SA) Inc wishes to thank Eco Pest Control for its support of the Society.

BankSA & Staff Charitable Fund

ME/CFS Australia (SA) Inc wishes to thank BankSA & Staff Charitable Fund for its support of Talking Point, the Society’s official journal.

Society Seminars for 2015
Saturday 14 February 2015
Speaker: Dr Roger Spizzo, Prospect Medical Centre
Topic: "The Fatigue Spectrum and the Gut"
Saturday 13 June 2015
Saturday 8 August 2015
Saturday 14 November 2015
Details for all seminars…

ME/CFS Diagnostic Criteria and Guidelines

www ME: International Consensus Criteria
(Journal of Internal Medicine, Aug 2011)

For GPs:
ME – Adult & Paediatric:
International Consensus Primer for Medical Practitioners
(PDF, 1.49 MB)


ME/CFS: A Clinical Case Definition and Guidelines for Medical Practitioners
– An Overview of the Canadian Consensus Document
(PDF, 1 MB)

  Note: See here for an overview on the Canadian Consensus Criteria for Fibromyalgia (PDF, 1.70 MB)


ME/CFS Guidelines for GPs
(South Australian Department of Health)
(English) (PDF, 460 KB)


ME/CFS Guidelines for GPs
(South Australian Department of Health)
(German) (PDF, 186 KB)


For Psychiatrists (in English):
CFS: Assessment and Treatment of Patients with ME/CFS – Clinical Guidelines for Psychiatrists
(Eleanor Stein MD FRCP[C], 2005)
(PDF, 460 KB)


For Psychiatrists (in German):
Chronic Fatigue Syndrom: Diagnose und Behandlung von Patienten mit ME/CFS – Klinische Leitlinien für Psychiater
(Eleanor Stein MD FRCP[C], 2005)
(PDF, 313 KB)

Australian ME/CFS Societies
ME/CFS Australia Ltd
Address: PO Box 7100 Dandenong VIC 3175
Phone: (03) 9793 4500
Fax: (03) 9793 1866
ACT ME/CFS Society, Inc
Address: c/o SHOUT, PO Box 717, Mawson ACT 2607
Phone: (02) 6290 1984
Fax: (02) 6290 4475
ME/CFS Society of NSW Inc
Postal address: PO Box 5403, West Chatswood NSW 1515
Office address: Suite 204, 10 Help Street, Chatswood NSW 2067
Phone: (02) 8006 7448
The ME/CFS & FM Association NSW
ME/CFS Australia (Northern Territory)
Address: PO Box 120, Prahran, VIC 3181
Reception: (03) 9529 1344
Support Line: (03) 9529 1600
ME/CFS/FM Support Association Qld Inc
Address: c/o Mission Department, St. Vincent’s Hospital, Toowoomba Qld 4350
Phone: (07) 4632 8173
Facebook Page
ME/CFS Australia (SA) Inc
Postal address: PO Box 28, Hindmarsh SA 5007
Address: 266 Port Road, Hindmarsh SA 5007
Phone: (08) 8346 3237 ('834 MECFS')
Support line: (08) 8346 3237 or 1300 128 339 for country callers
ME/CFS Australia (Tasmania)
Address: PO Box 120, Prahran, VIC 3181
Reception: (03) 9529 1344
Support Line: (03) 9529 1600
ME/CFS Australia (Victoria)
Office address: 2/240 Chapel Street, Prahran, VIC, 3181
Postal address: PO Box 120, Prahran, VIC 3181
Reception: (03) 9529 1344
Support Line: (03) 9529 1600
The ME/CFS Society of WA (Inc)
Address: The Centre for Neurological Support, The Niche, 11 Aberdare Road, Nedlands, Perth WA 6009
Phone: (08) 9346 7477
Fax: (08) 9346 7534


List of Australian ME/CFS organisations
(PDF, 19 KB)


List of Australian ME/CFS organisations (Word, 41 KB)



US Mayor Proclaims May 12 Fibromyalgia Awareness Day

International news

Saturday 28 March 2015


From US newspaper the New York Amsterdam News:

Caterpillar Walk

Mayor Ras Baraka proclaims May 12 Fibromyalgia Awareness Day in Newark

Cyril Josh Barker
3/26/2015, 10:45 a.m.

Newark, N.J., Mayor Ras Baraka and local citizens are joining communities around the nation to raise awareness about Americans living with fibromyalgia.

Baraka recently proclaimed May 12 “Fibromyalgia Awareness Day.” The New York/New Jersey Caterpillar Walk at Hudson River Park is the first such walk taking place in the New York-New Jersey area.

The Caterpillar Walk has nearly 200 registered participants and will host a special performance by inspirational singer-songwriter Bobby Long. The walk will also feature presenters from NYU and the National Institute for Health, which join the efforts of the walk by talking about medical and research advancements and approaches to care for those living with fibromyalgia.

Read more…


Disabled UK Woman Says: Scooters Give Us Freedom, So Please Show Tolerance

International news

Friday 27 March 2015


From UK newspaper the Derby Telegraph:

Janet Warner
Janet Warner

Disabled Derby woman says: Scooters give us freedom so please show tolerance

By Janet Warner
Derby Telegraph
Posted: March 24, 2015

IN 1995, with Derby becoming more pedestrianised, I could no longer reach all the shops I needed to due to my own health problems.

There was only one solution – to join Derby Shopmobility and use a scooter. Once I started, I felt liberated. I could regain some of my independence.

That year, for the first time in 12 years, I was able to do my own Christmas shopping without relying on catalogues.

However, I soon found that some members of the public were not very tolerant of scooter users.

To that end, I have been spat on, verbally abused and nearly knocked off the vehicle I was using by someone pushing a pushchair in front of me and verbally abusing me, leaving me badly shaken. Fortunately, my husband was with me, reassuring me that the incident was not my fault.

On another occasion, while browsing in one of our major stores, someone pushed a wheelchair right behind me, leaving me no room to reverse out, then accused me of being a bad driver, and I shouldn't be on a scooter. To which I replied that she was wrong.

So please, if you do see scooter drivers, remember that we do have the right to be out and about just as you do. Remember that we cannot see you over A-boards, and you may not see us.

Read more…


Canadian Woman's Sensitivies Confine Her To House

International news

Thursday 26 March 2015


From Nova Scotia newspaper The News:

Wendy Kearly
Wendy Kearly
(Photo: Adam MacInnis
– The News)


Woman’s sensitivities confine her to house

Adam MacInnis
Published on March 23, 2015

Fears being forced to move into semi-detached unit will put her at risk

Wendy Kearly believes the only place she is safe is inside her home on Munroe Street in New Glasgow – and with some legitimate reasons.

Kearly has multiple chemical sensitivity, a disease that causes her to have an increased sensitivity to chemicals ranging from car exhaust to print on a paper. Even a trip to the hospital where she is exposed to people wearing perfume has caused her to be sick for days.

It’s so bad that sometimes she has to open her mail and leave it for a couple of days in the box to air out before reading it. Other times she uses a plastic sleeve to read it with.

She wears an industrial respirator when she leaves her home, but that is for a very limited time – about three hours – each month. That three hours is spent getting groceries and visiting doctors. The rest of her time is spent, for the most part, home alone.

“That three hours still makes me sick,” she said.

Read more…


US Vaccine Court's Tough Standards May Face Supreme Court Test

International news

Wednesday 25 March 2015


From US news outlet Bloomberg:

Scales of Justice

Vaccine Court’s Tough Standards May Face Supreme Court Test

By Andrew Zajac
7:31 PM ACDT March 18, 2015

(Bloomberg) -- The U.S. Supreme Court is being asked to decide whether people who suffer harmful vaccine side effects should have an easier time winning compensation from the government.

Congress created what’s known as the vaccine court in 1986, setting up a no-fault system to shield drug makers from crippling jury awards and compensate those who are hurt in the pursuit of a greater public good. The question about how the system works -- and whether more injured parties should get the benefit of the doubt -- is being raised as some contagious diseases including measles resurface and debate rages over whether vaccine skeptics should be allowed to choose not to have their children inoculated.

“The government is in a difficult position,” said Ed Kraus, a professor at the Chicago-Kent College of Law who represents plaintiffs in vaccine cases. He said the U.S. is walking a tightrope in trying to protect all Americans’ health as well as those few who have bad reactions to vaccines.

The court works well for many, he said, but when cases aren’t clear-cut “it’s not meeting the needs of people who have legitimate claims because the science is so complex and the burden of proof is high.”

The case the Supreme Court will this week consider taking was filed by the parents of Ilya Dobrydnev, who had a hepatitis B vaccination in 2001, when he was 10. He had a fever, swollen lymph nodes, inner ear inflammation and eventually debilitating memory loss. Now 23, he’s disabled by chronic fatigue syndrome.

Read more…


UK Fibromyalgia Sufferer To Complete Monumental Task

International news

Tuesday 24 March 2015


From UK newspaper the Wells Journal:

Rosina Thomas
Rosina Thomas

Wells muscle disease sufferer to complete monumental task

By Wells Journal
Posted: March 21, 2015

A WELLS woman is preparing to push through her personal pain barrier to help those facing a daily fight for survival.

Brave Rosina Thomas, who has severe fibromyalgia among a range of health issues, is aiming to walk 10,000 steps a day for a week – the equivalent of many miles – to raise money and awareness for safer water points in African villages.

She is taking part in the event called Walk in Her Shoes, and the distance represents that which women have to walk every day just to collect enough water to survive in some parts of Africa.

Read more…


Interview: UK Author Lucy Saxon On How Chronic Fatigue Syndrome Gave Her Time To Write

International news

Tuesday 17 March 2015


From UK newspaper the Herts & Essex Observer:

Lucy Saxon
Comic conventions fan
Lucy Saxon dressed
in homage to
Captain America

Interview: Stortford author Lucy Saxon on how Chronic Fatigue Syndrome gave her time to write

By Tom Durham
Posted: March 09, 2015

FOR a World Book Day special, the Observer spoke to Bishop's Stortford fantasy author Lucy Saxon, 20.

At just 18, the former Bishop's Stortford College student signed a three-book advance deal, worth almost £100,000, with Harry Potter publisher Bloomsbury – while suffering from a debilitating illness.The book lover wrote her first published novel, Take Back the Skies, in just three weeks while suffering a severe bout of chronic fatigue syndrome at the age of 16. Bedridden and rarely at school, she left the College after achieving top GCSE grades and has continued to write the Tellus book series from her bedroom in her family's Stortford home.

Tom Durham spoke to the self-confessed nerd and comic convention fan about how her illness gave her physical restraints, but provided her the freedom to pen a novel ...

Read more…


Pfizer's Lyrica Pain Drug Fails FDA Test For Fibromyalgia In Adolescents

International news

Monday 16 March 2015


From Proactive Investors USA and Canada:


Pfizer's Lyrica pain drug fails FDA test for fibromyalgia in adolescents

By Alessandro Bruno
Fri 13 March 2015 12:51 pm

Pfizer's (NYSE:PFE) Lyrica pain drug has failed to meet U.S. Food and Drug Administration (FDA) requirements in a post-marketing study testing the treatment of fibromyalgia in adolescents.

The main goal of the FDA-mandated test, the results of which were announced after market close on March 12, was to evaluate the safety and effectiveness of Lyrica in treating teenagers (12-17 years) suffering from fibromyalgia (FM).

The study concluded that no statistically significant difference between Lyrica and the placebo arm was observed in the mean pain score.

Pfizer conducted the study, which enrolled 107 adolescent patients in a randomized, double-blind, placebo-controlled test that lasted 15 weeks, throughout the U.S., Europe and Asia. This study is the first large pharmacological treatment study to be completed in this study population.

Read more…


Study Shows Why Exercise Magnifies Exhaustion For Chronic Fatigue Syndrome Patients

International news

Sunday 15 March 2015


From the University of Florida's News:


Study shows why exercise magnifies exhaustion for chronic fatigue syndrome patients

Published: March 12 2015

The mechanism that causes high-performance athletes to “feel the burn” turns out to be the culprit in what makes people with chronic fatigue syndrome feel exhausted by the most common daily activities, new University of Florida Health research shows.

Published in the February issue of the journal Pain, the study shows that the neural pathways that transmit feelings of fatigue to the brain might be to blame. In those with chronic fatigue syndrome, the pathways do their job too well.

The findings also provide evidence for the first time that peripheral tissues such as muscles contribute to feelings of fatigue. Determining the origins of fatigue could help researchers develop therapies or identify targets for those therapies.

Researchers focused on the role of muscle metabolites, including lactic acid and adenosine triphosphate, or ATP, in the disease. The study has demonstrated for the first time that these substances, released when a person exercises his or her muscles, seem to activate these neural pathways. Also, UF Health researchers have shown that these pathways seem to be much more sensitive in patients with chronic fatigue syndrome than in patients without the disease, something that hasn’t been studied before.

Read more…


For previous news items, visit our full “In the News” archive:

In the News

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