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ME/CFS Australia Ltd
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Registered Charity 698


Mailing address:
PO Box 28,
South Australia 5007

Suite 506,
19 North Terrace,
Hackney, SA, 5069

1300 128 339

Office Hours:
Wednesdays, 11am-3pm

ME/CFS Australia (SA) Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.


ME/CFS Australia (SA) Inc aims to keep members informed of various research projects, diets, medications, therapies, news items, etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.

Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.


Eco Pest Control

ME/CFS Australia (SA) Inc wishes to thank Eco Pest Control for its support of the Society.

BankSA & Staff Charitable Fund

ME/CFS Australia (SA) Inc wishes to thank BankSA & Staff Charitable Fund for its support of Talking Point, the Society’s official journal.

Society Seminars for 2016
Saturday 20 February 2016
Dr Katia Ferrar and Ms Minh Pham from the University of South Australia discuss the research study “Physical activity and time use patterns of adults with chronic fatigue syndrome”.

Saturday 9 April 2016
A screening of the ME/CFS documentary, Forgotten Plague.

Saturday 25 June 2016
Dr Ian Buttfield discusses the ANRES website.
Mr Max Nelson discusses his PhD and two-day bike test study.
Dr Katia Ferrar presents an information document on her research.

Saturday 27 August 2016
Annual General Meeting
Dr Bruce Wauchope gives an update on a proposed ME/CFS clinic [download pamphlet], and talks about the stepped, problem-solving approach to their treatment protocol.

Saturday 19 November 2016
Dr Rachel Wells talks about the new Autonomia Clinic at the Royal Adelaide Hospital and what they are doing about POTS and other dysautonomia symptoms common in ME/CFS.
Details for all seminars…

ME/CFS Diagnostic Criteria and Guidelines

www ME: International Consensus Criteria
(Journal of Internal Medicine, Aug 2011)

For GPs:
ME – Adult & Paediatric:
International Consensus Primer for Medical Practitioners


ME/CFS Guidelines for GPs
(SA Department of Health)


ME/CFS Guidelines for GPs
(SA Department of Health)


ME/CFS Guidelines for psychiatrists


ME/CFS: A Clinical Case Definition and Guidelines for Medical Practitioners
– An Overview of the Canadian Consensus Document

  Note: See here for an overview on the Canadian Consensus Criteria for Fibromyalgia (PDF, 1.70 MB)
Australian ME/CFS Societies
ACT ME/CFS Society, Inc
Address: PO Box 717, Mawson ACT 2607
Phone: (02) 6290 1984
Fax: (02) 6290 4475
ME/CFS & FM Association NSW
Facebook: ME/CFS & FM NSW Support Group
Facebook: Chronic Fatigue Syndrome NSW
ME/CFS/FM Support Association Qld Inc
Address: c/o Mission Department, St. Vincent’s Hospital, Toowoomba Qld 4350
Phone: (07) 4632 8173
Facebook Page
ME/CFS Australia (SA) Inc
Postal address: PO Box 28, Hindmarsh SA 5007
Support line: 1300 128 339

Emerge Australia
The ME/CFS Society of WA (Inc)
Address: The Centre for Neurological Support, The Niche, 11 Aberdare Road, Nedlands, Perth WA 6009
Phone: (08) 9346 7477
Fax: (08) 9346 7534


Please note: This page reports a wide range of news items about ME/CFS and Fibromyalgia, not all positive or underpinned by science. See our Disclaimer (below left). If you see views that contradict the reality of the illness, please make it known to the writers or publishers of such articles – this will help to spread awareness amongst the general public.


South Australian Health And Medical Research Institute (SAHMRI) Calling For Research Participants

South Australian news

Friday 28 October 2016


From the South Australian Health and Medical Research Institute (via email):



South Australian Health and Medical Research Institute (SAHMRI)

Research participants wanted

Chronic fatigue syndrome: Leptin, interleukin 6 and clinical symptoms.

What is Chronic Fatigue Syndrome?

Chronic fatigue syndrome (CFS) is characterised by a constellation of symptoms in previously healthy and active individuals.

Because of these symptoms, quality of life of people with CFS can be extremely compromised. While the search for a clear-cut cause remains elusive, we believe that we can make a major contribution to a person’s quality of life by elucidating the biological basis of their clinical symptoms.

If the biology underlying the disabling symptoms of CFS is elucidated, we will be able to target treatments aimed at symptomatic improvement.

What is the purpose of this study?

To evaluate the relationship of the hormones (cytokines) Leptin and Interleukin-6 on the symptoms of Chronic Fatigue Syndrome. We can test these by using a blood sample. We are also embarking on the development of a genetic database for CFS.


Read more…


Linzi Talks About Living With ME

International news

Thursday 27 October 2016


From UK news outlet This Is


Linzi Sutton with her son Alfie Williams
I can’t even carry my son in my arms:
Linzi Sutton from Swindon who suffers with
ME, chronic fatigue and Fibromyalgia.
Linzi with her son Alfie Williams.
(Picture by Paul Nicholls)

Linzi talks about living with ME

By Marion Sauvebois
October 26, 2016
©Copyright 2001-2015

Linzi Sutton was just recovering from a decade in the throes of ME, also known as chronic fatigue syndrome, when she was diagnosed with fibromyalgia, an incurable condition which causes agonising pain, two years ago. Undaunted the 28-year-old from Woodhall Park is determined to reclaim her life and be the best mother she can to her children.

IMAGINE waking up tomorrow and not being able to work, move, do anything.

It’s happened to me – twice. The worst part is not being able to carry my son in my arms or even lift him. But you have to mourn your old self, your old life and find a way to manage.


Full article…


"It Will Take Me About An Hour And A Half For A 10 Minute Walk": Woman With Fibromyalgia Is Shaving Her Hair For Charity

International news

Wednesday 26 October 2016


From the Halstead Gazette:


Jill Liman
TIRED: Jill Liman has constant muscle pain

It will take me about an hour and a half for a 10 minute walk": Wife with muscular condition is shaving her hair for charity

By Katherine Palmer
October 22, 2016

A WIFE who has suffered with a muscular condition since she was a teenager is fundraising for the charity that supported her.

Jill Liman, from Sible Hedingham, has Fibromyalgia- a condition that leaves her with muscle pain, fatigue and disturbed sleep.

The condition affects one in 50 people, but Mrs Liman, from Hawkwood Road, is not letting it beat her.

Mrs Liman, 50, said: "I believe I have had Fibromyalgia since my teenage years, but at first I thought it was normal so I learned to live with it.

"However over the years it has got worse and I was diagnosed about four years ago."


Full article…


US Woman Sues Hospital Claiming It Discriminated Against Her Because Of Her Fibromyalgia

International news

Tuesday 25 October 2016


From US newspaper The Denver Post:


University of Colorado Memorial Hospital
Memorial Hospital North in Colorado Springs
in this 2007 file photo.
(Jerilee Bennett, Gazette file photo)

Woman sues Memorial Hospital in Colorado Springs, claiming it discriminated against her because of a disability

October 14, 2016
Copyright © 2016 Digital First Media

A physician diagnosed with fibromyalgia has sued Memorial Hospital in Colorado Springs claiming a doctor discriminated against her because of her disability.

The civil rights lawsuit was filed in Denver U.S. District Court on Thursday [October 13] on behalf of Dr. Elena Sumler by Arvada attorney Ralph Lamar. She is seeking back pay, including lost fringe benefits, compensatory damages, future lost wages and attorneys fees.


Full article…


Volunteers Wanted For UniSA Research

South Australian news

Tuesday 25 October 2016


From the University of South Australia's Max Nelson (via email):


University of South Australia

UniSA 2-day testing study

Researchers at the University of South Australia are looking for ME/CFS sufferers and healthy controls aged 18-65 to take part in a study which aims to investigate how non-invasive heart rate measures can be used to monitor post-exertional malaise. The study employs a 2-day maximal testing protocol, which has previously been shown to provide information on post-exertional malaise in ME/CFS patients, and may in addition be able to provide evidence on a reliable biomarker within the ME/CFS population.

Testing will all take place at the University of South Australia High Performance and Exercise Physiology Clinic located at the UniSA City-East campus on the corner of North Terrace and Frome Road. Testing will consist of one short familiarisation session (45 minutes), and two maximal testing sessions (90 minutes each). The maximal testing sessions need to be completed on consecutive days.


Read more…


Me Vs. Fibromyalgia: Founder Of "Spoon Theory" Needs Your Help

International news

Monday 24 October 2016


From The Huffington Post:


Christine Miserandino
Christine Miserandino/The Spoon Lady
(image source)

Me vs. Fibromyalgia: Founder of “Spoon Theory” Needs Your Help

By Puja Rios
October 10, 2016
Copyright © 2016, Inc.

Whether you have Fibromyalgia, Lupus, CFS, depression or any invisible disease, you know the guilt that comes along with it. Asking for help feels like the last thing to do when the fact is, we can feel like a burden to our loved ones even on a good day.

Christine Miserandino is the creator of ‘The Spoon Theory’ and a cherished member of the Chronic Pain family. She has given so much of her life to helping millions communicate what it’s really like living with Chronic Illness. Her theory has been read and translated all over the world!

Christine needs our help. The Spoon Lady has had a devastating year. Please read the excerpts below from her GoFundMe campaign and if you feel called to donate, click here.


Full article…


HPA Hypofunction In ME/CFS As A Consequence Of Activated Immune-Inflammatory And Oxidative And Nitrosative Pathways

International news

Sunday 23 October 2016


From Molecular Neurobiology:


HPA axis

Hypothalamic-Pituitary-Adrenal Hypofunction in Myalgic Encephalomyelitis (ME)/Chronic Fatigue Syndrome (CFS) as a Consequence of Activated Immune-Inflammatory and Oxidative and Nitrosative Pathways

Gerwyn Morris, George Anderson, Michael Maes

First Online:  20 October 2016
: 10.1007/s12035-016-0170-2

Cite this article as:
Morris, G., Anderson, G. & Maes, M. Mol Neurobiol (2016). doi:10.1007/s12035-016-0170-2


There is evidence that immune-inflammatory and oxidative and nitrosative stress (O&NS) pathways play a role in the pathophysiology of myalgic encephalomyelitis (ME)/chronic fatigue syndrome (CFS).

There is also evidence that these neuroimmune diseases are accompanied by hypothalamic-pituitary-adrenal (HPA) axis hypoactivity as indicated by lowered baseline glucocorticoid levels.

This paper aims to review the bidirectional communications between immune-inflammatory and O&NS pathways and HPA axis hypoactivity in ME/CFS, considering two possibilities: (a) Activation of immune-inflammatory pathways is secondary to HPA axis hypofunction via attenuated negative feedback mechanisms, or (b) chronic activated immune-inflammatory and O&NS pathways play a causative role in HPA axis hypoactivity.

Electronic databases, i.e., PUBMED, Scopus, and Google Scholar, were used as sources for this narrative review by using keywords CFS, ME, cortisol, ACTH, CRH, HPA axis, glucocorticoid receptor, cytokines, immune, immunity, inflammation, and O&NS.

Findings show that activation of immune-inflammatory and O&NS pathways in ME/CFS are probably not secondary to HPA axis hypoactivity and that activation of these pathways may underpin HPA axis hypofunction in ME/CFS.

Mechanistic explanations comprise increased levels of tumor necrosis factor-α, T regulatory responses with elevated levels of interleukin-10 and transforming growth factor-β, elevated levels of nitric oxide, and viral/bacterial-mediated mechanisms.

HPA axis hypoactivity in ME/CFS is most likely a consequence and not a cause of a wide variety of activated immune-inflammatory and O&NS pathways in that illness.


Full article…


MRI Could Help Diagnose Fibromyalgia: Study

International news

Saturday 22 October 2016


From Newsmax Media:


MRI scan
(Copyright iStock)

MRI Could Help Diagnose Fibromyalgia: Study

By Nathalie Wright
Wednesday, 19 October 2016
© 2016 Newsmax Media, Inc. All Rights Reserved.

Doctors may one day be able to diagnose fibromyalgia by means of a simple MRI scan. A study published in the journal Pain has, for the first time, identified a different brain response to pain and non-pain stimuli in people suffering from this chronic inflammatory disease.

Specialists have defined specific clinical procedures currently used to diagnose fibromyalgia, notably by assessing 12 tender points on the body. However, this doesn't explain what's going on at a neurological level in fibromyalgia patients or reflect individual levels of suffering.


Full article…


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