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ME/CFS Australia Ltd
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ME/CFS AUSTRALIA (SA) INC

Registered Charity 698

Email:
sacfs@sacfs.asn.au

Mailing address:
PO Box 28,
Hindmarsh,
South Australia 5007

Office:
Closed while relocating

Phone:
1300 128 339

Office Hours:
Wednesdays, 10am-3pm

ME/CFS Australia (SA) Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.

Disclaimer

ME/CFS Australia (SA) Inc aims to keep members informed of various research projects, diets, medications, therapies, news items, etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.

Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.

Support

Eco Pest Control

ME/CFS Australia (SA) Inc wishes to thank Eco Pest Control for its support of the Society.

BankSA & Staff Charitable Fund

ME/CFS Australia (SA) Inc wishes to thank BankSA & Staff Charitable Fund for its support of Talking Point, the Society’s official journal.

Society Seminars for 2016
Saturday 20 February 2016
1:30pm
Dr Katia Ferrar and Ms Minh Pham from the University of South Australia discuss the research study “Physical activity and time use patterns of adults with chronic fatigue syndrome”.

Saturday 9 April 2016
1:30pm
A screening of the ME/CFS documentary, Forgotten Plague.

Saturday 25 June 2016
1:30pm
Dr Ian Buttfield discusses the ANRES website.
Mr Max Nelson discusses his PhD and two-day bike test study.
Dr Katia Ferrar presents an information document on her research.

Saturday 27 August 2016
Annual General Meeting
1:30pm
Dr Bruce Wauchope gives an update on a proposed ME/CFS clinic [download pamphlet], and talks about the stepped, problem-solving approach to their treatment protocol.

Saturday 19 November 2016
1:30pm
Dr Rachel Wells talks about the new Autonomia Clinic at the Royal Adelaide Hospital and what they are doing about POTS and other dysautonomia symptoms common in ME/CFS.
Details for all seminars…

ME/CFS Diagnostic Criteria and Guidelines

www ME: International Consensus Criteria
(Journal of Internal Medicine, Aug 2011)
PDF

For GPs:
ME – Adult & Paediatric:
International Consensus Primer for Medical Practitioners
(2012)

PDF

ME/CFS Guidelines for GPs
(SA Department of Health)
(English)

PDF

ME/CFS Guidelines for GPs
(SA Department of Health)
(German)

PDF

ME/CFS Guidelines for psychiatrists

PDF

ME/CFS: A Clinical Case Definition and Guidelines for Medical Practitioners
– An Overview of the Canadian Consensus Document
(2005)

  Note: See here for an overview on the Canadian Consensus Criteria for Fibromyalgia (PDF, 1.70 MB)
 
Australian ME/CFS Societies
AUSTRALIAN CAPITAL TERRITORY
ACT ME/CFS Society, Inc
Address: PO Box 717, Mawson ACT 2607
Phone: (02) 6290 1984
Fax: (02) 6290 4475
Web: www.mecfscanberra.org.au
Email: mecfsadmin@shout.org.au
NEW SOUTH WALES
ME/CFS & FM Association NSW
Web: www.mecfsnsw.org
Facebook: ME/CFS & FM NSW Support Group
Facebook: Chronic Fatigue Syndrome NSW
QUEENSLAND
ME/CFS/FM Support Association Qld Inc
Address: c/o Mission Department, St. Vincent’s Hospital, Toowoomba Qld 4350
Phone: (07) 4632 8173
Web: www.mecfsfmq.org.au
Email: mefmtba@bigpond.com
Facebook Page
SOUTH AUSTRALIA
ME/CFS Australia (SA) Inc
Postal address: PO Box 28, Hindmarsh SA 5007
Support line: (08) 8346 3237 or 1300 128 339 for country callers
Web: www.sacfs.asn.au
Email: sacfs@sacfs.asn.au
VICTORIA
TASMANIA
NORTHERN TERRITORY

Emerge Australia
Web: emerge.org.au
WESTERN AUSTRALIA
The ME/CFS Society of WA (Inc)
Address: The Centre for Neurological Support, The Niche, 11 Aberdare Road, Nedlands, Perth WA 6009
Phone: (08) 9346 7477
Fax: (08) 9346 7534
Web: www.mecfswa.org.au
Email: info@mecfswa.org.au

 

Please note: This page reports a wide range of news items about ME/CFS and Fibromyalgia, not all positive or underpinned by science. Please see our Disclaimer (below left). If you see views that contradict the reality of the illness, please make it known to the writers or publishers of such articles – this will help to spread awareness amongst the general public.

 

Society AGM Reminder

South Australian news

Saturday 27 August 2016

 

A reminder that the Society's Annual General Meeting for this year will be held today (Saturday 27 August 2016):

 

ME/CFS Australia (SA) Inc
 

Society Seminar

Saturday 27 August 2016
1:30 pm

Location: Sophia House, 225 Cross Road, Cumberland Park

Speaker:

Dr Bruce Wauchope gives an update on a proposed ME/CFS clinic [download pamphlet], and talks about the stepped, problem-solving approach to their treatment protocol.

 

Details…

 
 
 

The Society's New Office

South Australian news

Friday 26 August 2016

 

Society office
 

The new office for ME/CFS Australia (SA) Inc is now open on Wednesdays between 11 am and 3 pm in Suite 506, 19 North Terrace, Hackney.

Take the lift to the fifth floor, and turn right as you leave the lift. The office is the second door on the right. The date of an “Official Opening” will be announced soon.

On-street parking is available on North Terrace, Nuffield Lane (east of building) and Westbury Street to the north. While roadworks are in progress there is no access to Westbury Street from Hackney Road.

Hackney Gourmet Café & Snack Bar is located on the ground floor.

 

Read more…

 
 
 

South Australian Health And Medical Research Institute (SAHMRI) Calling For Research Participants

South Australian news

Friday 26 August 2016

 

From the South Australian Health and Medical Research Institute (via email):

 

SAHMRI
 

South Australian Health and Medical Research Institute (SAHMRI)

Research participants wanted

Chronic fatigue syndrome: Leptin, interleukin 6 and clinical symptoms.

What is Chronic Fatigue Syndrome?

Chronic fatigue syndrome (CFS) is characterised by a constellation of symptoms in previously healthy and active individuals.

Because of these symptoms, quality of life of people with CFS can be extremely compromised. While the search for a clear-cut cause remains elusive, we believe that we can make a major contribution to a person’s quality of life by elucidating the biological basis of their clinical symptoms.

If the biology underlying the disabling symptoms of CFS is elucidated, we will be able to target treatments aimed at symptomatic improvement.

What is the purpose of this study?

To evaluate the relationship of the hormones (cytokines) Leptin and Interleukin-6 on the symptoms of Chronic Fatigue Syndrome. We can test these by using a blood sample. We are also embarking on the development of a genetic database for CFS.

 

Read more…

 
 
 

Society AGM Reminder

South Australian news

Thursday 25 August 2016

 

A reminder that the Society's Annual General Meeting for this year will be held this Saturday (27 August 2016):

 

ME/CFS Australia (SA) Inc
 

Society Seminar

Saturday 27 August 2016
1:30 pm

Location: Sophia House, 225 Cross Road, Cumberland Park

Speaker:

Dr Bruce Wauchope gives an update on a proposed ME/CFS clinic [download pamphlet], and talks about the stepped, problem-solving approach to their treatment protocol.

 

Details…

 
 
 

UK High School A-Level Student Over The Moon With An A* And Two As Despite Suffering From Chronic Fatigue

International news

Wednesday 24 August 2016

 

From UK newspaper Stroud News & Journal:

 

Jessica Bragg
Jessica Bragg
 

Stroud High School A-level student Jessica Bragg over the moon with A* and two As despite suffering from chronic fatigue

By Megan Titley, Reporter
19 August 2016
©Copyright 2001-2015

BATTLING sleep deprivation is part and parcel of studying for exams but for an A-level student at Stroud High School exhaustion never left her.

Jessica Bragg, who studied psychology, music and English literature, was over the moon with her grades, an A* and two As.

She will go on take a degree in psychology in Cardiff as a result.

 

Full article…

 
 
 

Researchers Who Claimed Chronic Fatigue Is "All In The Mind" Forced To Disclose Data

International news

Tuesday 23 August 2016

 

From What Doctors Don't Tell You:

 

Woman
 

Researchers who claimed chronic fatigue is “all in the mind” forced to disclose data

By Bryan Hubbard
August 22nd 2016
© 2010 - 2016 WDDTY Publishing Ltd. All Rights Reserved.

Researchers of a controversial study, which had effectively implied that chronic fatigue syndrome (CFS) is ‘all in the mind’, have been forced by a tribunal to release their data so that independent researchers can assess their findings.

The action had been started by a CFS patient, Alem Matthees, under Freedom of Information legislation, who says the case had cost him greatly in time, energy and health, and as a result, he was now bed-ridden.

 

Full article…

 
 
 

Volunteers Wanted For UniSA Research

South Australian news

Tuesday 23 August 2016

 

From the University of South Australia's Max Nelson (via email):

 

University of South Australia
 

UniSA 2-day testing study

Researchers at the University of South Australia are looking for ME/CFS sufferers and healthy controls aged 18-65 to take part in a study which aims to investigate how non-invasive heart rate measures can be used to monitor post-exertional malaise. The study employs a 2-day maximal testing protocol, which has previously been shown to provide information on post-exertional malaise in ME/CFS patients, and may in addition be able to provide evidence on a reliable biomarker within the ME/CFS population.

Testing will all take place at the University of South Australia High Performance and Exercise Physiology Clinic located at the UniSA City-East campus on the corner of North Terrace and Frome Road. Testing will consist of one short familiarisation session (45 minutes), and two maximal testing sessions (90 minutes each). The maximal testing sessions need to be completed on consecutive days.

Appointments are available 7 days a week, at any time between 8am and 6pm.

The 2-day testing protocol is very strenuous, and the current study aims to determine if the need for 2 physically taxing exercise tests can be reduced through the use of heart rate monitoring. We understand that the testing will be physically taxing, so we have beds available to recover on following the maximal testing sessions.

This research has the potential to both generate further evidence of a diminished capacity for physical exertion in ME/CFS sufferers and to provide an additional biomarker that can be used to illustrate the presence of ME/CFS. All participants will be provided with a detailed report on their performance and the presence of post-exertional malaise which can be given to their specialists.

The researchers are also looking for matched healthy control participants to take part in the study. Healthy controls need to be healthy and injury free, and of a similar age/body mass index/gender as the CFS/ME participants.

The ME/CFS patients will get a detailed report on their post-exertional malaise, and for the healthy participants they get information on their VO2 max and overall fitness. Usually a consult of this type costs $150 at our clinic, so they get that part for free!

For further information, please see the information sheets below, or contact:

Mr Daniel Clark (Daniel.Clark@unisa.edu.au, ph 8302 1365); or
Mr Max Nelson (Max.Nelson@unisa.edu.au, ph 8302 1502).

Download:

DOC ME 2-day test Info sheet (DOCX, 26 KB)
PDF ME 2-day test Info sheet (PDF, 442 KB)

DOC ME-CFS Advertising Material (DOCX, 18 KB)
PDF ME-CFS Advertising Material (PDF, 219 KB)

 
 
 

International ME/CFS Conference Airs Exciting Research Prospects

International news

Monday 22 August 2016

 

From New Zealand's Stuff:

 

Dr Rosamund Vallings
Dr Rosamund Vallings
 

International ME/CFS conference airs exciting research prospects

By Meghan Lawrence
August 19, 2016
© 2016 Fairfax New Zealand Limited

After a recent international ME conference in London, ME/CFS patients are closer to a future of understanding and recognition than ever before.

Dr Rosamund Vallings​, of Howick Health and Medical Centre, in Auckland, attended the conference in June and has returned home excited about the prospects of various international research paths.

 

Full article…

 
 
 

When Sick People Don't Look Sick Enough They Must Be Faking It

International news

Sunday 21 August 2016

 

From The Huffington Post:

 

Yolanda Hadid
Former cast member of The Real Housewives of
Beverly Hills
, Yolanda Hadid, shares her battle
with Lyme Disease to raise awareness.
(Photo: s_bukley/Shutterstock)
 

When sick people don’t look sick enough they must be faking it.

By Amelia Hill
08/20/2016
Copyright © 2016 TheHuffingtonPost.com, Inc.

People living with chronic conditions like Lyme Disease and other Environmental Illnesses encounter their share of loud, unsolicited opinions about their health status from others.

They contend with sweeping statements from bystanders about what it must be like to be really sick from these chronic illnesses, even though said bystanders have never suffered from those particular illnesses themselves. They are often told what they should & shouldn’t be doing in regards to their health & how they should look, feel & need to behave, even though no-one else has ever walked in their shoes.

So when comedians Sara & Erin Foster decided to publicly weigh in on the health legitimacy & personal choices of Lyme Disease sufferer, past cast member of The Real Housewives of Beverly Hills & the woman they up until recently called their stepmother, Yolanda Hadid, well I decided to pay attention to that.

 

Full article…

 
 
 

Party Time To Honour Blenheim's Boomtown Rapper

International news

Sunday 21 August 2016

 

From New Zealand website Stuff:

 

Bradley Simmonds
Bradley Simmonds, aka B-man, performs in his video Catch
This Feeling. An 80s party is being held in his honour.
(Photo: Bradley Simmonds/YouTube)
 

Party time to honour Blenheim's Boomtown rapper

By Paula Hulburt
August 17, 2016
© 2016 Fairfax New Zealand Limited

A party is being held in honour of a Blenheim YouTube star who is battling a debilitating illness.

Bradley Simmonds, clocked up an impressive 11,620 hits after creating his tongue-in-check rap about Blenheim; Boomtown.

Now an 80s-themed party is being organised in tribute to the fun-loving rap sensation who was diagnosed with Myalgic Encephalopathy (ME), also known as Chronic Fatigue Syndrome (CFS).

 

Full article…

 
 
 

More In The News


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