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ME/CFS Australia Ltd
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Society Seminars
Saturday 31 May 2014
1 pm - 3 pm
Speaker: Julie Peacock
 
Saturday 16 August 2014
12:30 pm - 2:30 pm
 
Saturday 22 November 2014
Annual General Meeting
1 pm - 3 pm
Speaker: Dr Susan Cockshell
 
Details…
 
Become a Member
PDF Application Form 2014 (PDF, 243KB)
Text Application Form 2014 (plain text)
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ME/CFS AUSTRALIA (SA) INC

Registered Charity 698

Email:
sacfs@sacfs.asn.au

Mailing address:
PO Box 28,
Hindmarsh,
South Australia 5007

Office:
266 Port Road,
Hindmarsh,
South Australia 5007
Ph: 1300 128 339

Office Hours:
Wednesdays, 10am-3pm


FIBROMYALGIA HELP:
Contact
Fibromyalgia SA
at the
Arthritis Foundation of SA
118 Richmond Road,
Marleston 5033
Ph: (08) 8379 5711

ME/CFS Australia (SA) Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.

Disclaimer

ME/CFS Australia (SA) Inc aims to keep members informed of the various research projects, diets, medications, therapies etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.

Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.

Support

Eco Pest Control

ME/CFS Australia (SA) Inc wishes to thank Eco Pest Control for its support of the Society.

BankSA & Staff Charitable Fund

ME/CFS Australia (SA) Inc wishes to thank BankSA & Staff Charitable Fund for its support of Talking Point, the Society’s official journal.

ME/CFS Diagnostic Criteria and Guidelines

www ME: International Consensus Criteria
(Journal of Internal Medicine, Aug 2011)
PDF

For GPs:
ME – Adult & Paediatric:
International Consensus Primer for Medical Practitioners
(2012)
(PDF, 1.49 MB)

PDF

ME/CFS: A Clinical Case Definition and Guidelines for Medical Practitioners
– An Overview of the Canadian Consensus Document
(2005)
(PDF, 1 MB)

  Note: See here for an overview on the Canadian Consensus Criteria for Fibromyalgia (PDF, 1.70 MB)

PDF

ME/CFS Guidelines for GPs
(South Australian Department of Health)
(English) (PDF, 460 KB)

PDF

ME/CFS Guidelines for GPs
(South Australian Department of Health)
(German) (PDF, 186 KB)

PDF

For Psychiatrists (in English):
CFS: Assessment and Treatment of Patients with ME/CFS – Clinical Guidelines for Psychiatrists
(Eleanor Stein MD FRCP[C], 2005)
(PDF, 460 KB)

PDF

For Psychiatrists (in German):
Chronic Fatigue Syndrom: Diagnose und Behandlung von Patienten mit ME/CFS – Klinische Leitlinien für Psychiater
(Eleanor Stein MD FRCP[C], 2005)
(PDF, 313 KB)

 
Australian ME/CFS Societies
NATIONAL
ME/CFS Australia Ltd
Address: PO Box 7100 Dandenong VIC 3175
Phone: (03) 9793 4500
Fax: (03) 9793 1866
Web: www.mecfs.org.au
Email: ceo@mecfs.org.au
AUSTRALIAN CAPITAL TERRITORY
ACT ME/CFS Society, Inc
Address: c/o SHOUT, PO Box 717, Mawson ACT 2607
Phone: (02) 6290 1984
Fax: (02) 6290 4475
Web: www.mecfscanberra.org.au
Email: mecfsadmin@shout.org.au
NEW SOUTH WALES
ME/Chronic Fatigue Syndrome Society of NSW Inc
Postal address: PO Box 5403, West Chatswood NSW 1515
Office address: Suite 204, 10 Help Street, Chatswood NSW 2067
Phone: (02) 9904 8433
Fax: (02) 9904 8435
Web: www.me-cfs.org.au
Email: admin@me-cfs.org.au
NORTHERN TERRITORY
ME/CFS Australia (Northern Territory)
Address: PO Box 120, Prahran, VIC 3181
Reception: (03) 9529 1344
Support Line: (03) 9529 1600
Web: www.mecfs-vic.org.au
Email: admin@mecfs-nt.org.au
QUEENSLAND
ME/CFS/FM Support Association Qld Inc
Address: 27 Scott Street, Toowoomba Qld 4350
Phone: (07) 4632 8173
Phone: (07) 4659 5239
Web: www.mecfsfmq.org.au
Email: mefmtba@bigpond.com
SOUTH AUSTRALIA
ME/CFS Australia (SA) Inc
Postal address: PO Box 28, Hindmarsh SA 5007
Address: 266 Port Road, Hindmarsh SA 5007
Phone: (08) 8346 3237 ('834 MECFS')
Support line: (08) 8346 3237 or 1300 128 339 for country callers
Web: www.sacfs.asn.au
Email: sacfs@sacfs.asn.au
TASMANIA
ME/CFS Australia (Tasmania)
Address: PO Box 120, Prahran, VIC 3181
Reception: (03) 9529 1344
Support Line: (03) 9529 1600
Web: www.mecfs-vic.org.au
Email: admin@mecfs-tas.org.au
VICTORIA
ME/CFS Australia (Victoria)
Office address: 2/240 Chapel Street, Prahran, VIC, 3181
Postal address: PO Box 120, Prahran, VIC 3181
Reception: (03) 9529 1344
Support Line: (03) 9529 1600
Web: www.mecfs-vic.org.au
Email: admin@mecfs-vic.org.au
WESTERN AUSTRALIA
The ME/CFS Society of WA (Inc)
Address: The Centre for Neurological Support, The Niche, 11 Aberdare Road, Nedlands, Perth WA 6009
Phone: (08) 9346 7477
Fax: (08) 9346 7534
Web: www.mecfswa.org.au
Email: info@mecfswa.org.au

PDF

List of Australian ME/CFS organisations
(PDF, 19 KB)

Word

List of Australian ME/CFS organisations (Word, 41 KB)

 

 

The status of and future research into ME/CFS

International news

Wednesday 23 April 2014

 

From Frontiers in Physiology (via the US National Library of Medicine):

Frontiers in Physiology
 

The status of and future research into Myalgic Encephalomyelitis and Chronic Fatigue Syndrome: the need of accurate diagnosis, objective assessment, and acknowledging biological and clinical subgroups

Frank N. M. Twisk

Abstract

Although Myalgic Encephalomyelitis (ME) and Chronic Fatigue Syndrome (CFS) are used interchangeably, the diagnostic criteria define two distinct clinical entities. Cognitive impairment, (muscle) weakness, circulatory disturbances, marked variability of symptoms, and, above all, post-exertional malaise: a long-lasting increase of symptoms after a minor exertion, are distinctive symptoms of ME.

This latter phenomenon separates ME, a neuro-immune illness, from chronic fatigue (syndrome), other disorders and deconditioning. The introduction of the label, but more importantly the diagnostic criteria for CFS have generated much confusion, mostly because chronic fatigue is a subjective and ambiguous notion.

Read more…

 
 
 

Charlie Ford's road to recovery from Chronic Fatigue Syndrome

Australian news

Tuesday 22 April 2014

 

From Herald Sun newspaper the Bayside Leader:

Charlie Ford
Charlie Ford from
Sandringham has
recovered from
Chronic Fatigue Syndrome.
(Picture: Susan Windmiller
Source: News Limited)

 

Charlie Ford’s road to recovery from Chronic Fatigue Syndrome

Nicole Precel
Bayside Leader
April 20, 2014 12:00AM

TWO years ago Charlie Ford struggled to get out of bed.

The active Sandringham 20-year-old had been struck down with chronic fatigue syndrome when out skateboarding about three years ago – his body suddenly went into “meltdown”.

“I couldn’t stand, I couldn’t walk,” he said.

But now Mr Ford is going for 5km runs and says it’s due to a program developed in Brighton.

He came across Toby Morrison, who runs CFS Health Centre in Brighton, whose program helped Mr Ford take small steps towards recovery.

Read more…

 
 
 

Transcranial magnetic stimulation for Fibromyalgia

International news

Monday 21 April 2014

 

From About.com's Adrienne Dellwo:

Brain activity
 

Transcranial Magnetic Stimulation for Fibromyalgia

By 
April 4, 2014

Research Brief

New research shows that a non-invasive, non-drug procedure called repetitive transcranial magnetic stimulation may improve the quality of life of people with fibromyalgia.

Researchers measured quality of life, both mental and physical, as well as pain, mood and anxiety over 11 weeks of treatment. They also looked at changes in brain metabolism.

They say the quality of life improvement was mainly in emotional and social areas and there was no significant difference in the other symptoms. They also found evidence of increase in the right limbic metabolism.

Read more…

 
 
 

2014 IACFS/ME Conference summary by Dr. Komaroff

International news

Sunday 20 April 2014

 

From The CFIDS Association of America:

 

The CFIDS Association of America
 

2014 IACFSME Summary by Dr. Komaroff

March 20-23, 2014 the IACFS/ME Biennial Conference, “Translating Science into Clinical Care”, was held in San Francisco. As is tradition, the IACFS/ME asked Dr. Komaroff to deliver a summary of the conference upon its conclusion.

In Dr. Komaroff’s review, the questions he saw addressed by many of the presentations were:

  • In an illness defined exclusively by subjective symptoms, is there evidence of objective underlying biological abnormalities?
  • Could those biological abnormalities theoretically explain the symptoms?
  • Do the abnormalities in fact correlate with the symptoms?

In this video (synced audio and PowerPoint presentation), Dr. Komaroff revisits those questions as he breaks down a summary review of the conference.

Read more…

 
 
 

Treatment of Fibromyalgia by use of PEMF

International news

Saturday 19 April 2014

 

From Caribbean Media Vision's CMVLive:

Neuroscience
 

Treatment of Fibromyalgia by Use of PEMF

Posted by: guestauthor
2014/04/11

Fibromyalgia is a pain processing disorder occurring due to abnormalities in how the central nervous system processes pain signals. It is typically characterized by chronic pain that is widespread in nature, fatigue and allodynia (heightened pain in response to touch). Moreover, patients suffering from this disorder are also likely to experience limb weakness, muscle twitches, palpitations, sleep disturbances among other complaints. Indeed, it is a disorder that leaves a patient with no choice but to seek for the most effective therapeutic options to treat the ongoing disease process as well as alleviate the symptoms. This is where PEMF [Pulsed electromagnetic field] fibromyalgia therapy comes in amidst other treatment modalities. Its effectiveness has been brought forth through clinical research studies with published results as evidence.

Read more…

 
 
 

Mark Craig a Volt from the blue for Black Caps

International news

Friday 18 April 2014

 

From New Zealand's Stuff.co.nz:

Mark Craig
SHOCKER: Otago offspinner
Mark Craig has received a
shock call-up to the
New Zealand test team
to tour West Indies.
(Photo: Photosport)
 

Mark Craig a Volt from the blue for Black Caps

By Logan Savory
Last updated 05:05 16/04/2014

A few years back New Zealand test cricket bolter Mark Craig spent much of his day feeling as if he was going to pass out at any moment.

Craig suffered from Chronic Fatigue Syndrome, an illness that had him doing very little for 11 months.

His days were mainly spent sitting on the couch or lying in bed at his family home in Auckland after he was forced to return home from Dunedin, where he was studying and playing cricket.

At that point, playing cricket at any level was far from his mind, let alone the prospect of lining up in the pinnacle of the sport, a test match.

Read more…

 
 
 

92 Club: Bristol football fans to visit all 92 grounds for Invest In ME charity

International news

Thursday 17 April 2014

 

From UK newspaper The Bristol Post:

 

92 Football Grounds in 92 hrs
 

92 Club: Bristol football fans to visit all 92 grounds for Invest In ME charity

By The Bristol Post
Posted: April 14, 2014

FOUR football fans from Bristol are preparing to embark on a tour of all 92 football league grounds in 92 hours in aid of Invest In ME. Team leader Mike Harley, 31, will be accompanied on the challenge by his wife Cat, 31, and two friends, Raza Rivzi and Mike Ward, both 32.

The group was inspired to raise money for the ME research charity by a childhood friend, who has had the condition for several years. Money raised will go towards UK trials of the drug Rituximab.

A 2,600-mile route is due to be completed in 92 hours of driving, spread out over the course of six days. The clock will be stopped every night so that each club can be visited in daylight, raising maximum publicity for the charity.

Mr Harley, a recruitment consultant from Bedminster, said: "The idea is to reach the grounds at a time where we can give out information and maximise on raising the profile of ME, the need for research into the illness and the Invest In ME charity.

"What's more important is to raise awareness of new treatments, rather than to break any records".

He added: "It's going to be a gruelling challenge but, as football fans, it's one we're all looking forward to."

Read more…

 
 
 

For previous news items, visit our full “In the News” archive:

In the News


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