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ME/CFS Australia Ltd
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ME/CFS AUSTRALIA (SA) INC

Registered Charity 698

Email:
sacfs@sacfs.asn.au

Mailing address:
PO Box 28,
Hindmarsh,
South Australia 5007

Office:
266 Port Road,
Hindmarsh,
South Australia 5007
Ph: 1300 128 339

Office Hours:
Wednesdays, 10am-3pm


FIBROMYALGIA HELP:
Contact
Fibromyalgia SA
at the
Arthritis Foundation of SA
118 Richmond Road,
Marleston 5033
Ph: (08) 8379 5711

ME/CFS Australia (SA) Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.

Disclaimer

ME/CFS Australia (SA) Inc aims to keep members informed of the various research projects, diets, medications, therapies etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.

Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.

Support

Eco Pest Control

ME/CFS Australia (SA) Inc wishes to thank Eco Pest Control for its support of the Society.

BankSA & Staff Charitable Fund

ME/CFS Australia (SA) Inc wishes to thank BankSA & Staff Charitable Fund for its support of Talking Point, the Society’s official journal.

Society Seminars for 2015
Saturday 14 February 2015
1:30pm
Speaker: Dr Roger Spizzo, Prospect Medical Centre
Topic: "The Fatigue Spectrum and the Gut"
Saturday 13 June 2015
1:30pm
Saturday 8 August 2015
1:30pm
Saturday 14 November 2015
1:30pm
Details for all seminars…

ME/CFS Diagnostic Criteria and Guidelines

www ME: International Consensus Criteria
(Journal of Internal Medicine, Aug 2011)
PDF

For GPs:
ME – Adult & Paediatric:
International Consensus Primer for Medical Practitioners
(2012)
(PDF, 1.49 MB)

PDF

ME/CFS: A Clinical Case Definition and Guidelines for Medical Practitioners
– An Overview of the Canadian Consensus Document
(2005)
(PDF, 1 MB)

  Note: See here for an overview on the Canadian Consensus Criteria for Fibromyalgia (PDF, 1.70 MB)

PDF

ME/CFS Guidelines for GPs
(South Australian Department of Health)
(English) (PDF, 460 KB)

PDF

ME/CFS Guidelines for GPs
(South Australian Department of Health)
(German) (PDF, 186 KB)

PDF

For Psychiatrists (in English):
CFS: Assessment and Treatment of Patients with ME/CFS – Clinical Guidelines for Psychiatrists
(Eleanor Stein MD FRCP[C], 2005)
(PDF, 460 KB)

PDF

For Psychiatrists (in German):
Chronic Fatigue Syndrom: Diagnose und Behandlung von Patienten mit ME/CFS – Klinische Leitlinien für Psychiater
(Eleanor Stein MD FRCP[C], 2005)
(PDF, 313 KB)

 
Australian ME/CFS Societies
NATIONAL
ME/CFS Australia Ltd
Address: PO Box 7100 Dandenong VIC 3175
Phone: (03) 9793 4500
Fax: (03) 9793 1866
Web: www.mecfs.org.au
Email: ceo@mecfs.org.au
AUSTRALIAN CAPITAL TERRITORY
ACT ME/CFS Society, Inc
Address: c/o SHOUT, PO Box 717, Mawson ACT 2607
Phone: (02) 6290 1984
Fax: (02) 6290 4475
Web: www.mecfscanberra.org.au
Email: mecfsadmin@shout.org.au
NEW SOUTH WALES
ME/CFS Society of NSW Inc
Postal address: PO Box 5403, West Chatswood NSW 1515
Office address: Suite 204, 10 Help Street, Chatswood NSW 2067
Phone: (02) 8006 7448
Web: www.me-cfs.org.au
Email: admin@me-cfs.org.au
NEW SOUTH WALES
The ME/CFS & FM Association NSW
Web: www.mecfsnsw.org
NORTHERN TERRITORY
ME/CFS Australia (Northern Territory)
Address: PO Box 120, Prahran, VIC 3181
Reception: (03) 9529 1344
Support Line: (03) 9529 1600
Web: www.mecfs-vic.org.au
Email: admin@mecfs-nt.org.au
QUEENSLAND
ME/CFS/FM Support Association Qld Inc
Address: c/o Mission Department, St. Vincent’s Hospital, Toowoomba Qld 4350
Phone: (07) 4632 8173
Web: www.mecfsfmq.org.au
Email: mefmtba@bigpond.com
Facebook Page
SOUTH AUSTRALIA
ME/CFS Australia (SA) Inc
Postal address: PO Box 28, Hindmarsh SA 5007
Address: 266 Port Road, Hindmarsh SA 5007
Phone: (08) 8346 3237 ('834 MECFS')
Support line: (08) 8346 3237 or 1300 128 339 for country callers
Web: www.sacfs.asn.au
Email: sacfs@sacfs.asn.au
TASMANIA
ME/CFS Australia (Tasmania)
Address: PO Box 120, Prahran, VIC 3181
Reception: (03) 9529 1344
Support Line: (03) 9529 1600
Web: www.mecfs-vic.org.au
Email: admin@mecfs-tas.org.au
VICTORIA
ME/CFS Australia (Victoria)
Office address: 2/240 Chapel Street, Prahran, VIC, 3181
Postal address: PO Box 120, Prahran, VIC 3181
Reception: (03) 9529 1344
Support Line: (03) 9529 1600
Web: www.mecfs-vic.org.au
Email: admin@mecfs-vic.org.au
WESTERN AUSTRALIA
The ME/CFS Society of WA (Inc)
Address: The Centre for Neurological Support, The Niche, 11 Aberdare Road, Nedlands, Perth WA 6009
Phone: (08) 9346 7477
Fax: (08) 9346 7534
Web: www.mecfswa.org.au
Email: info@mecfswa.org.au

PDF

List of Australian ME/CFS organisations
(PDF, 19 KB)

Word

List of Australian ME/CFS organisations (Word, 41 KB)

 

 

Distinct Stages To Chronic Fatigue Syndrome Identified

International news

Tuesday 3 March 2015

 

From BBC News:

Weary woman
 

Distinct stages to chronic fatigue syndrome identified

28 February 2015
Health

Distinct changes in the immune systems of patients with ME or chronic fatigue syndrome have been found, say scientists.

Increased levels of immune molecules called cytokines were found in people during the early stages of the disease, a Columbia University study reported.

It said the findings could help improve diagnosis and treatments.

UK experts said further refined research was now needed to confirm the results.

Read more…

 
 
 

US Fibromyalgia Patients Kicked Out Because Of Service Dogs

International news

Monday 2 March 2015

 

From EmaxHealth:

Dog
 

Fibromyalgia patients kicked out because of service dogs

By Lana Bandoim
2015-02-27 22:52

Two unrelated fibromyalgia patients recently encountered problems in public places because of their service dogs. The patients, a woman in Connecticut and a woman in Texas, were told they could not have their dogs inside the buildings and were denied service. Both of these incidents are potential violations of the Americans with Disabilities Act (ADA).

Rita Abrego suffers from fibromyalgia and several other health problems, but her service dog is an important part of her life. KSAT reports that Selene, a maltipoo, helps her cope with pain and anxiety. However, an employee at Herredero Mexican Restaurant in Alamo City told Abrego she could not have the dog inside and refused to serve the woman food. Abrego was forced to call the police and suffered an anxiety attack because of the incident. The restaurant owner mentioned that she was not aware of maltipoos being allowed to be service dogs. In addition, the owner admits she did not think Abrego was disabled because her health problems were not obvious.

Read more…

 
 
 

Scientists Discover Robust Evidence That Chronic Fatigue Syndrome Is A Biological Illness

International news

Sunday 1 March 2015

 

From Columbia University's Center For Infection and Immunity:

 

The Center for Infection and Immunity
 

Scientists Discover Robust Evidence That Chronic Fatigue Syndrome Is a Biological Illness

Immune signatures in blood point to distinct disease stages, open door to better diagnosis and treatment

NEW YORK (Feb. 27, 2015)—Researchers at the Center for Infection and Immunity at Columbia University’s Mailman School of Public Health identified distinct immune changes in patients diagnosed with chronic fatigue syndrome, known medically as myalgic encephalomyelitis (ME/CFS) or systemic exertion intolerance disease. The findings could help improve diagnosis and identify treatment options for the disabling disorder, in which symptoms range from extreme fatigue and difficulty concentrating to headaches and muscle pain.

These immune signatures represent the first robust physical evidence that ME/CFS is a biological illness as opposed to a psychological disorder, and the first evidence that the disease has distinct stages. Results appear online in the new American Association for the Advancement of Science journal, Science Advances.

Read more…

 
 
 

A Disease Doctors Refuse To See

International news

Saturday 28 February 2015

 

From The New York Times:

 

Fatigue art
(Image: Bénédicte Muller)
 

A Disease Doctors Refuse to See

Chronic Fatigue Syndrome Needs Effective Treatments

By Julie Rehmeyer
February 25, 2015

SANTA FE, N.M. — TOO often, doctors don’t understand chronic fatigue syndrome. They don’t know how to diagnose it, and they frequently even believe that patients with the disease are just whining or suffering from psychological problems. This needs to change.

That was the message from the Institute of Medicine’s recent report on the illness, which proposed new criteria to diagnose it and recommended ditching the syndrome’s confusing and demeaning name. The proposed alternative: systemic exertion intolerance disease, or S.E.I.D.

As a patient for 16 years, I’ve dealt with plenty of doctors who were ignorant about the disease. So my questions were: Will this work? Is a report from one of the most prestigious bodies in American medicine, an arm of the National Academy of Sciences, enough to make doctors take the disease seriously? Will patients get diagnoses faster and be treated more effectively?

Read more…

 
 
 

The Pain Brain: Hippocampal Atrophy Found In Fibromyalgia

International news

Friday 27 February 2015

 

From Cort Johnson's Health Rising:

 

Cognitive impairment
Reduced volume in the
hippocampus is just the
latest of many brain
findings in fibronyalgia
 

The Pain Brain: Hippocampal Atrophy Found in Fibromyalgia

By Cort Johnson on February 16, 2015

Sometimes you’ve got to ask where is it going to stop with fibromyalgia (FM) and the brain? Reductions in the volume of “gray matter” (the neuronal cell bodies and glial cells as opposed to the long nerve fibers) have been found in the insular, anterior cingulate cortices and the amygdala in the brains of FM patients. Other issues have been found in the thalamus, the basal ganglia, the parahippocampal gyrus, the premotor cortex, motor cortex, the somatosensory cortices and the prefrontal cortex in the brain. Other abnormalities have been found in the connections between various parts of the brain.

2015 Jan 30;8:47-52. doi: 10.2147/JPR.S71959. eCollection 2015. Fibromyalgia patients have reduced hippocampal volume compared with healthy controls.McCrae CS1, O’Shea AM1, Boissoneault J2, Vatthauer KE1, Robinson ME3, Staud R4, Perlstein WM5, Craggs JG1.

This Florida group was looking to add another brain region to the list: the hippocampus, a part of the limbic system that plays an important role in short-term memory (remember that?), long-term memory (generally thought to be intact) and “spatial navigation”. The hippocampus isn’t directly involved in the production of pain but a breakdown in hippocampal functioning could lead to a “feed-forward” process that ends up disrupting the limbic system and the pain networks in the brain.

Read more…

 
 
 

US Author Uses Marbles To Enlighten Children About Physical Limitations

International news

Thursday 26 February 2015

 

From US news outlet Herald-Mail Media:

How Many Marbles Do YOU Have?
 

Author uses marbles to enlighten children about physical limitations

By Meg Partington
Posted: Sunday, February 22, 2015 7:00 am

Name: Melinda Malott

Age: 51

City in which you reside: Williamsport

Day job: Retired nursing administrator

Book title: “How Many Marbles Do YOU Have?”

Genre: Children’s fiction

Quick synopsis of book: A mom uses a jar and some marbles to show her son how she goes about making decisions about what she can and can’t do in terms of activities in a day. He can take part in the decisions. She is physically limited by chronic fatigue syndrome and fibromyalgia. Very complex concepts are simplified in a colorful children’s book. Though her body is limited, her love for her children has no limits.

Read more…

 
 
 

Prefontal Myelination In Chronic Fatigue Syndrome

International news

Wednesday 25 February 2015

 

From the medical journal NMR in Biomedicine (via Wiley Online Library):

 

How Many Marbles Do YOU Have?
 

Evidence in chronic fatigue syndrome for severity-dependent upregulation of prefrontal myelination that is independent of anxiety and depression

Leighton R. Barnden, Benjamin Crouch, Richard Kwiatek, Richard Burnet, and Peter Del Fante

NMR in Biomedicine
Volume 28, Issue 3, Article first published online: 22 FEB 2015

View Full Article (HTML)
Enhanced Article (HTML)
Get PDF (943K)

References
Cited By

Abstract

Keywords:

  • CFS;
  • MRI;
  • severity;
  • depression;
  • midbrain;
  • myelin upregulation;
  • prefrontal white matter

White matter (WM) involvement in chronic fatigue syndrome (CFS) was assessed using voxel-based regressions of brain MRI against CFS severity scores and CFS duration in 25 subjects with CFS and 25 normal controls (NCs). As well as voxel-based morphometry, a novel voxel-based quantitative analysis of T1- and T2-weighted spin-echo (T1w and T2w) MRI signal level was performed.

Severity scores included the Bell CFS disability scale and scores based on the 10 most common CFS symptoms. Hospital Anxiety and Depression Scale (HADS) depression and anxiety scores were included as nuisance covariates.

By relaxing the threshold for cluster formation, we showed that the T1w signal is elevated with increasing CFS severity in the ventrolateral thalamus, internal capsule and prefrontal WM.

Earlier reports of WM volume losses and neuroinflammation in the midbrain, together with the upregulated prefrontal myelination suggested here, are consistent with the midbrain changes being associated with impaired nerve conduction which stimulates a plastic response on the cortical side of the thalamic relay in the same circuits.

Read more…

 
 
 

For previous news items, visit our full “In the News” archive:

In the News


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