Mailing address: PO Box 28,
South Australia 5007
Office: Closed while relocating
1300 128 339
ME/CFS Australia (SA) Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.
ME/CFS Australia (SA) Inc aims to keep members informed of various research projects, diets, medications, therapies, news items, etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.
Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.
ME/CFS Australia (SA) Inc wishes to thank Eco Pest Control for its support of the Society.
Saturday 9 April 2016
A screening of the ME/CFS documentary, Forgotten Plague.
Saturday 25 June 2016
1:30pm Dr Ian Buttfield discusses the ANRES website. Mr Max Nelson discusses his PhD and two-day bike test study. Dr Katia Ferrar presents an information document on her research.
Saturday 27 August 2016 Annual General Meeting
1:30pm Dr Bruce Wauchope gives an update on a proposed ME/CFS clinic [download pamphlet], and talks about the stepped, problem-solving approach to their treatment protocol.
Saturday 19 November 2016
1:30pm Dr Rachel Wells talks about the new Autonomia Clinic at the Royal Adelaide Hospital and what they are doing about POTS and other dysautonomia symptoms common in ME/CFS.
Please note: This page reports a wide range of news items about ME/CFS and Fibromyalgia, not all positive or underpinned by science. Please see our Disclaimer (below left). If you see views that contradict the reality of the illness, please make it known to the writers or publishers of such articles – this will help to spread awareness amongst the general public.
Society AGM Reminder
South Australian news
Saturday 27 August 2016
A reminder that the Society's Annual General Meeting for this year will be held today (Saturday 27 August 2016):
Take the lift to the fifth floor, and turn right as you leave the lift. The office is the second door on the right. The date of an “Official Opening” will be announced soon.
On-street parking is available on North Terrace, Nuffield Lane (east of building) and Westbury Street to the north. While roadworks are in progress there is no access to Westbury Street from Hackney Road.
South Australian Health and Medical Research Institute (SAHMRI)
Research participants wanted
Chronic fatigue syndrome: Leptin, interleukin 6 and clinical symptoms.
What is Chronic Fatigue Syndrome?
Chronic fatigue syndrome (CFS) is characterised by a constellation of symptoms in previously healthy and active individuals.
Because of these symptoms, quality of life of people with CFS can be extremely compromised. While the search for a clear-cut cause remains elusive, we believe that we can make a major contribution to a person’s quality of life by elucidating the biological basis of their clinical symptoms.
If the biology underlying the disabling symptoms of CFS is elucidated, we will be able to target treatments aimed at symptomatic improvement.
What is the purpose of this study?
To evaluate the relationship of the hormones (cytokines) Leptin and Interleukin-6 on the symptoms of Chronic Fatigue Syndrome. We can test these by using a blood sample. We are also embarking on the development of a genetic database for CFS.
Researchers of a controversial study, which had effectively implied that chronic fatigue syndrome (CFS) is ‘all in the mind’, have been forced by a tribunal to release their data so that independent researchers can assess their findings.
The action had been started by a CFS patient, Alem Matthees, under Freedom of Information legislation, who says the case had cost him greatly in time, energy and health, and as a result, he was now bed-ridden.
Researchers at the University of South Australia are looking for ME/CFS sufferers and healthy controls aged 18-65 to take part in a study which aims to investigate how non-invasive heart rate measures can be used to monitor post-exertional malaise. The study employs a 2-day maximal testing protocol, which has previously been shown to provide information on post-exertional malaise in ME/CFS patients, and may in addition be able to provide evidence on a reliable biomarker within the ME/CFS population.
Appointments are available 7 days a week, at any time between 8am and 6pm.
The 2-day testing protocol is very strenuous, and the current study aims to determine if the need for 2 physically taxing exercise tests can be reduced through the use of heart rate monitoring. We understand that the testing will be physically taxing, so we have beds available to recover on following the maximal testing sessions.
This research has the potential to both generate further evidence of a diminished capacity for physical exertion in ME/CFS sufferers and to provide an additional biomarker that can be used to illustrate the presence of ME/CFS. All participants will be provided with a detailed report on their performance and the presence of post-exertional malaise which can be given to their specialists.
The researchers are also looking for matched healthy control participants to take part in the study. Healthy controls need to be healthy and injury free, and of a similar age/body mass index/gender as the CFS/ME participants.
The ME/CFS patients will get a detailed report on their post-exertional malaise, and for the healthy participants they get information on their VO2 max and overall fitness. Usually a consult of this type costs $150 at our clinic, so they get that part for free!
For further information, please see the information sheets below, or contact:
People living with chronic conditions like Lyme Disease and other Environmental Illnesses encounter their share of loud, unsolicited opinions about their health status from others.
They contend with sweeping statements from bystanders about what it must be like to be really sick from these chronic illnesses, even though said bystanders have never suffered from those particular illnesses themselves. They are often told what they should & shouldn’t be doing in regards to their health & how they should look, feel & need to behave, even though no-one else has ever walked in their shoes.